目的:意识到孩子有像自闭症谱系障碍(ASD)这样的终身发育状况会给父母带来悲伤和悲伤的感觉。目前还不清楚,然而,父母如何处理和理解这些情绪。这篇叙述性综述的目的是探讨ASD儿童父母的悲伤过程。
方法:使用数据库Psychinfo对文献进行分析,Scopus,WebofScience,和PubMed。作为我们研究的一部分,我们还手动搜索了灰色文献(谷歌学者)和论文数据库(ProQuest)。在研究标准中,(1)针对作为ASD儿童父母的直接线人,(2)在不同的英语语言来源发表的原创和实证研究,(3)与父母的悲伤经历有关的结果,和/或涉及抚养ASD儿童的过程,(4)采用定性数据收集方法进行研究。
方法:7篇文章符合纳入标准,纳入本叙事分析。
结果:我们的研究的演绎内容分析揭示了三个主要主题:(i)模棱两可的损失的表现,(ii)处理被剥夺公民权的悲伤,和(iii)振荡。
结论:结果表明,儿童ASD会使父母感到歧义和不确定性,经历悲伤,并可能导致预期的改变,紧急情感反应,和自责归因。当面对因孩子的状况而产生的困难时,ASD儿童的父母可能会经历重大的生活变化,并在各种应对策略之间出现波动。
结论:这些发现有望为医疗保健专业人员提供,包括护士和一线临床医生,提供有关ASD儿童父母所经历的悲伤负担的宝贵信息,以便他们可以为他们提供和验证必要的支持。此外,还需要严格的定性和定量研究来支持提出的索赔。
OBJECTIVE: Realizing that a child has a lifelong developmental condition like Autism Spectrum Disorder (ASD) can create feelings of sadness and grief for the parents. It remains unclear, however, how parents deal with and understand these emotions. The purpose of this narrative review was to explore the grief process of parents of children with ASD.
METHODS: An analysis of the literature was conducted using the databases Psychinfo, Scopus, Web of Science, and PubMed. As part of our research, we also searched the grey literature (Google Scholar) and the thesis database (ProQuest) manually. Among the study criteria were (1) targeting direct informants as parents of children with ASD, (2) original and empirical research published in different English-language sources, (3) outcomes pertaining to grief experiences among parents, and/or processes involved in raising children with ASD, and (4) studies with qualitative data collection methods.
METHODS: Seven articles met the inclusion criteria and were included in this narrative analysis.
RESULTS: Our study\'s deductive content analysis revealed three primary themes: (i) manifestations of ambiguous loss, (ii) dealing with disenfranchised grief, and (iii) oscillation.
CONCLUSIONS: The results showed that ASD in children can cause parents to feel ambiguity and uncertainty, experience grief, and may result in the modification of expectations, emergent affective responses, and self-blame attributions. When confronted with difficulties arising from their child\'s condition, parents of children with ASD may undergo significant life changes and oscillate between various coping strategies.
CONCLUSIONS: The findings are expected to provide healthcare professionals, including nurses and front-line clinicians, with valuable information about the burden of grief experienced by parents of children with ASD so they can provide and validate the necessary support for them. Moreover, rigorous qualitative and quantitative studies are also required to support the claims made.