Mixed Methods Design

混合方法设计
  • 文章类型: Journal Article
    背景:痴呆症患者的自主性丧失,每天需要照顾者的支持。痴呆症涉及沟通技巧的逐渐下降,导致痴呆症患者及其护理人员的互动和隔离减少,对二元成员的生活质量产生负面影响。由此带来的压力和照顾者的负担使他们特别容易倦怠。
    目的:本研究旨在检查交流辅助人员(COMPAs)的功效,一个遵循以人为本和情感交流原则设计的应用程序,旨在改善痴呆症患者和护理人员的福祉,并减轻护理人员的负担。
    方法:在本实施研究中,2个长期护理机构(n=17)的志愿者护理人员接受了使用COMPAs和策略改善与痴呆症患者沟通的培训.定性和定量分析,半结构化面试,并在对COMPAs进行8周干预前后完成问卷。
    结果:半结构化访谈显示,所有护理人员在COMPAs干预后都感受到了积极的影响,即,改善痴呆症患者和护理人员之间的沟通质量和生活质量。一般健康问卷-12评分的统计学显著降低也支持了生活质量的改善(改善的护理人员:9/17,53%;z=2.537;P=0.01)。COMPAs干预措施还与个人成就感的统计学显着增加相关(护理人员改善:11/17,65%;t15=2.430;P=0.03;d=0.61[中等效果大小])。
    结论:COMPAs干预通过在二元体系内发展以人为本的沟通,改善了痴呆症患者及其照顾者的幸福感,增加同理心,并减轻护理人员的负担,尽管大多数护理人员不熟悉技术。结果为长期护理环境中的COMPAs干预提供了希望。不同人群的较大群体对照研究,在不同的背景下,在痴呆症的不同阶段,将更清楚地了解COMPAs干预措施的好处。
    BACKGROUND: Persons living with dementia experience autonomy loss and require caregiver support on a daily basis. Dementia involves a gradual decline in communication skills, leading to fewer interactions and isolation for both people living with dementia and their caregivers, negatively impacting the quality of life for both members of the dyad. The resulting stress and burden on caregivers make them particularly susceptible to burnout.
    OBJECTIVE: This study aims to examine the efficacy of Communication Proches Aidants (COMPAs), an app designed following the principles of person-centered and emotional communication, which is intended to improve well-being in persons living with dementia and caregivers and reduce caregiver burden.
    METHODS: In this implementation study, volunteer caregivers in 2 long-term care facilities (n=17) were trained in using COMPAs and strategies to improve communication with persons living with dementia. Qualitative and quantitative analyses, semistructured interviews, and questionnaires were completed before and after 8 weeks of intervention with COMPAs.
    RESULTS: Semistructured interviews revealed that all caregivers perceived a positive impact following COMPAs interventions, namely, improved quality of communication and quality of life among persons living with dementia and caregivers. Improved quality of life was also supported by a statistically significant reduction in the General Health Questionnaire-12 scores (caregivers who improved: 9/17, 53%; z=2.537; P=.01). COMPAs interventions were also associated with a statistically significant increased feeling of personal accomplishment (caregivers improved: 11/17, 65%; t15=2.430; P=.03; d=0.61 [medium effect size]).
    CONCLUSIONS: COMPAs intervention improved well-being in persons living with dementia and their caregivers by developing person-centered communication within the dyad, increasing empathy, and reducing burden in caregivers although most caregivers were unfamiliar with technology. The results hold promise for COMPAs interventions in long-term care settings. Larger group-controlled studies with different populations, in different contexts, and at different stages of dementia will provide a clearer picture of the benefits of COMPAs interventions.
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  • 文章类型: Journal Article
    祖父母照顾孙子是一种普遍的社会现象。这项研究探讨了照顾孙子女的祖父母与健康相关的生活质量的看法。开发了一种混合方法设计。在第一阶段,参与者采用基线问卷进行访谈.第二阶段由焦点小组组成,100名参与者中有19名处于定量阶段。从定量分析中获得的分数与定性数据一致;它们反映出,更多参与照顾孙子女的祖父母的照顾者有更多的抑郁和压力症状,并且对身体健康相关的生活质量的感知较差。起初似乎是积极的方面,让祖父母照顾者保持活跃,当涉及到共享护理和祖父母提供护理的意愿被滥用时,可能会变得消极。
    Grandparental care of grandchildren is a prevalent social phenomenon. This study explores the perceptions of health-related quality of life of grandparents caring for their grandchildren. A mixed methods design was developed. In the first phase, participants were interviewed using a baseline questionnaire. The second phase consisted of focus groups with 19 of the 100 participants in the quantitative phase. The scores obtained from the quantitative analysis are in line with the qualitative data; they reflect that grandparent carers who are more involved in the care of their grandchildren have more symptoms of depression and stress and have poorer perceptions of physical health-related quality of life. What may at first appear to be a positive aspect, keeping grandparent carers active, can become negative when it comes to shared care and when the grandparents\' willingness to provide care is abused.
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  • 文章类型: Journal Article
    背景:数字化转型为改善不同医疗保健提供者之间的信息交流提供了新的机会,包括住院病人,门诊和护理设施。由于患者出院时信息特别容易丢失,数字化转型为改善部门间排放管理提供了巨大的机会。然而,大多数改进策略都集中在医院内部的结构上。
    目的:本研究旨在评估数字化出院管理系统的实施情况,项目“优化部门排放管理”(SEKMA,源自德国塞克托尔·阿尔贝格里芬德公司的公司管理公司),及其对再入院率的影响。
    方法:采用混合方法设计来评估数字化排放管理系统的实施及其对再入院率的影响。实施后,使用保真度分析评估了计划干预(逻辑模型)和实际干预之间的一致性.最后,双变量和多变量分析用于评估实施再入院率的有效性.为此,根据2019年4月至2019年8月以及2022年4月至2022年8月期间的入院常规数据,采用差异-差异法.血管外科作为干预组,其中优化的排放管理于2022年4月实施。内科和心内科组成对照组。
    结果:总体而言,进行了26次采访,我们探索了21个决定因素,它可以分为3组:“优化潜力,\"\"障碍,\"和\"启用程序。“根据这些结果,制定了19项战略来解决决定因素,包括医疗保健提供者之间缺乏网络,数字信息传输,和用户不友好。在这些策略的基础上,被11名医院医生优先考虑,建立了一个逻辑模型。在19种策略中,7(37%;例如,电子放电信,为医院的社会服务提供移动设备,并以国家用药计划的格式生成个人用药计划)已在SEKMA实施。对已实施策略应用的保真度的调查表明,其中3种策略尚未得到广泛应用。在14,854例住院患者的常规数据中,未观察到SEKMA对再入院的显着影响(P=.20)。
    结论:本研究证明了优化患者护理部门间合作的潜力。尽管尚未观察到SEKMA对再入院的显着影响,创建一个连接不同医疗保健提供者的数字生态系统似乎是确保部门安全和快速联网的有前途的方法。所描述的出院管理的部门间优化提供了结构化模板,用于在德国和其他具有类似分散的医疗保健系统的国家的其他护理区域中实施类似的本地数字护理网络基础设施。
    BACKGROUND: Digital transformation offers new opportunities to improve the exchange of information between different health care providers, including inpatient, outpatient and care facilities. As information is especially at risk of being lost when a patient is discharged from a hospital, digital transformation offers great opportunities to improve intersectoral discharge management. However, most strategies for improvement have focused on structures within the hospital.
    OBJECTIVE: This study aims to evaluate the implementation of a digitalized discharge management system, the project \"Optimizing instersectoral discharge management\" (SEKMA, derived from the German Sektorübergreifende Optimierung des Entlassmanagements), and its impact on the readmission rate.
    METHODS: A mixed methods design was used to evaluate the implementation of a digitalized discharge management system and its impact on the readmission rate. After the implementation, the congruence between the planned (logic model) and the actual intervention was evaluated using a fidelity analysis. Finally, bivariate and multivariate analyses were used to evaluate the effectiveness of the implementation on the readmission rate. For this purpose, a difference-in-difference approach was adopted based on routine data of hospital admissions between April 2019 and August 2019 and between April 2022 and August 2022. The department of vascular surgery served as the intervention group, in which the optimized discharge management was implemented in April 2022. The departments of internal medicine and cardiology formed the control group.
    RESULTS: Overall, 26 interviews were conducted, and we explored 21 determinants, which can be categorized into 3 groups: \"optimization potential,\" \"barriers,\" and \"enablers.\" On the basis of these results, 19 strategies were developed to address the determinants, including a lack of networking among health care providers, digital information transmission, and user-unfriendliness. On the basis of these strategies, which were prioritized by 11 hospital physicians, a logic model was formulated. Of the 19 strategies, 7 (37%; eg, electronic discharge letter, providing mobile devices to the hospital\'s social service, and generating individual medication plans in the format of the national medication plan) have been implemented in SEKMA. A survey on the fidelity of the application of the implemented strategies showed that 3 of these strategies were not yet widely applied. No significant effect of SEKMA on readmissions was observed in the routine data of 14,854 hospital admissions (P=.20).
    CONCLUSIONS: This study demonstrates the potential of optimizing intersectoral collaboration for patient care. Although a significant effect of SEKMA on readmissions has not yet been observed, creating a digital ecosystem that connects different health care providers seems to be a promising approach to ensure secure and fast networking of the sectors. The described intersectoral optimization of discharge management provides a structured template for the implementation of a similar local digital care networking infrastructure in other care regions in Germany and other countries with a similarly fragmented health care system.
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  • 文章类型: Journal Article
    背景:成人日间服务(ADS)为患有复杂慢性病的老年人提供基于社区的医疗保健,但依靠过时的方法与提供者传达用户的健康信息。CareMOBI,一款新颖的移动健康(mHealth)应用程序,开发是为了满足对技术平台的需求,以改善ADS设置和提供商之间的双向信息交换和通信。
    目的:本研究旨在研究CareMOBI在ADS环境中的可行性和可接受性。
    方法:采用并行三角混合方法设计,参与者是面向客户的ADS工作人员,包括直接护理人员(有偿护理人员),护士,和社会工作者。进行了访谈,以描述采用CareMOBI应用程序的障碍和促进者。该应用程序的可接受性是使用技术接受模型问卷的改编版本进行测量的。数据被整合到4个主题中,作为信息矩阵的锚点:易用性,临床价值,适合工作流程,和收养的可能性。
    结果:一组ADS工作人员(N=22)参与了这项研究。参与者报告说,这4个领域的可接受性很高。定性结果证实了问卷结果;参与者认为该应用程序是有用的,并且可能在实践中实施CareMOBI。然而,与会者表示需要在整个实施过程中提供适当的培训和技术支持。
    结论:CareMOBI应用程序具有通过易于使用和便携式的方法促进有效沟通来改善ADS设置中的护理管理的潜力。虽然CareMOBI的整合是可以接受和可行的,开发特定角色的培训模块和技术援助计划对于在ADS环境中成功实施至关重要。
    BACKGROUND: Adult day services (ADS) provide community-based health care for older adults with complex chronic conditions but rely on outdated methods for communicating users\' health information with providers. CareMOBI, a novel mobile health (mHealth) app, was developed to address the need for a technological platform to improve bidirectional information exchange and communication between the ADS setting and providers.
    OBJECTIVE: This study aims to examine the feasibility and acceptability of CareMOBI in the ADS setting.
    METHODS: A concurrent-triangulation mixed methods design was used, and participants were client-facing ADS staff members, including direct care workers (paid caregivers), nurses, and social workers. Interviews were conducted to describe barriers and facilitators to the adoption of the CareMOBI app. The acceptability of the app was measured using an adapted version of the Technology Acceptance Model questionnaire. Data were integrated into 4 themes as anchors of an informational matrix: ease of use, clinical value, fit within workflow, and likelihood of adoption.
    RESULTS: A mix of ADS staff (N=22) participated in the study. Participants reported high levels of acceptability across the 4 domains. Qualitative findings corroborated the questionnaire results; participants viewed the app as useful and were likely to implement CareMOBI in their practice. However, participants expressed a need for proper training and technical support throughout the implementation process.
    CONCLUSIONS: The CareMOBI app has the potential to improve care management in the ADS setting by promoting effective communication through an easy-to-use and portable method. While the integration of CareMOBI is acceptable and feasible, developing role-specific training modules and technical assistance programs is imperative for successful implementation within the ADS setting.
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  • 文章类型: Journal Article
    背景:数字健康干预措施,例如个性化的短信辅导,被认为是负担得起的和可扩展的方法来支持健康的生活方式的改变。SMS,或者发短信,对瑞典的大多数人来说都是现成的服务,个性化短信教练在支持行为改变方面显示出巨大的希望。
    目的:本研究旨在根据能力探索高度个性化的短信指导对行为改变的有效性,机会,动机-行为(COM-B)模型在瑞典一家非营利性健身组织中不从事身体活动的成年人样本中。
    方法:该研究使用了混合方法设计,其中客户充当自己的对照。参与者是客户(n=28)和健身顾问(n=12)。收集了三种类型的数据:(1)基线和短信干预后的定量数据以及客户的等待名单,(2)来自与健身顾问的半结构化访谈的定性数据,(3)健身顾问和客户之间的假名短信对话。
    结果:总体而言,结果表明,个性化短信辅导在支持客户行为变化方面是有效的。定量分析显示了客户的能力(科恩d=0.50),机会(科恩d=0.43),与基线相比,SMS干预期间与健身顾问的关系(Cohend=0.51)得到改善。此外,定性分析揭示了个性化文本如何为现有的工作方法增加价值(例如,增加连续性和灵活性)以及在干预期间客户和健身顾问之间的关系如何变化,这有助于激励客户。
    结论:个性化短信指导是支持健康行为改变的有效方法。需要进一步探索本研究中出现的人与人之间的联系,以充分了解数字健康干预的有效性。
    BACKGROUND: Digital health interventions, such as personalized SMS coaching, are considered affordable and scalable methods to support healthy lifestyle changes. SMS, or texting, is a readily available service to most people in Sweden, and personalized SMS coaching has shown great promise in supporting behavior changes.
    OBJECTIVE: This study aims to explore the effectiveness of highly personalized SMS coaching for behavior change according to the Capability, Opportunity, Motivation-Behavior (COM-B) model on a sample of physically inactive adults in a nonprofit fitness organization in Sweden.
    METHODS: The study used a mixed methods design in which clients acted as their own controls. The participants were clients (n=28) and fitness consultants (n=12). Three types of data were collected: (1) quantitative data at baseline and after the SMS intervention and the waitlist from the clients, (2) qualitative data from semistructured interviews with the fitness consultants, and (3) pseudonymized texting conversations between the fitness consultants and clients.
    RESULTS: Overall, the results showed that personalized SMS coaching was effective in supporting the clients\' behavior changes. The quantitative analysis showed how the clients\' capabilities (Cohen d=0.50), opportunities (Cohen d=0.43), and relationship with the fitness consultants (Cohen d=0.51) improved during the SMS intervention in comparison with baseline. Furthermore, the qualitative analysis revealed how personalized texts added value to existing work methods (eg, increasing continuity and flexibility) and how the relationship between the clients and fitness consultants changed during the intervention, which helped motivate the clients.
    CONCLUSIONS: Personalized SMS coaching is an effective method for supporting healthy behavior changes. The human connection that emerged in this study needs to be further explored to fully understand the effectiveness of a digital health intervention.
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  • 文章类型: Journal Article
    在COVID-19大流行期间,实体器官移植(SOT)接受者已广泛使用远程医疗。虽然有证据表明,远程医疗是大多数SOT接受者可以接受的替代方案,他们的满意度及其背景仍不清楚。本研究采用了混合方法方法来调查SOT接受者的观点(即肝脏,肾,和同时肝肾)对远程医疗的利弊。共有252名成人SOT接受者完成了一项在线调查,该调查定量评估了远程健康体验和满意度。其中15人通过参加焦点小组或个人访谈进一步分享了他们的观点。大约70%的在线调查参与者以前曾使用远程医疗进行移植护理。定量数据表明,虽然接受者大多对远程医疗感到满意,特别是它的有效性和便利性,他们对导航远程医疗系统的可靠性不太满意。定性数据进一步表明,远程医疗对于认为自己在临床和/或社会上脆弱的SOT接受者可能效果较差,需要紧急护理,并担心隐私。这些发现表明,使用远程医疗提供移植护理的计划应优先考虑个性化,考虑每个SOT接受者的独特需求和偏好。
    Telehealth has become widely available to solid organ transplant (SOT) recipients during the COVID-19 pandemic. While evidence suggests that telehealth serves as an acceptable alternative for most SOT recipients, their satisfaction and its context remain unclear. This study used a mixed methods approach to investigate the perspectives of SOT recipients (i.e., liver, kidney, and simultaneous liver-kidney) on the benefits and disadvantages of telehealth. A total of 252 adult SOT recipients completed an online survey that quantitatively assessed telehealth experience and satisfaction. Fifteen of them further shared their perspectives by participating in either a focus group or individual interview. Approximately 70% of online survey participants had previously used telehealth for their transplant care. The quantitative data documented that, while recipients were mostly satisfied with telehealth, especially with its effectiveness and convenience, they were less satisfied with the reliability of navigating the telehealth system. The qualitative data further showed that telehealth could be less effective for SOT recipients who perceived themselves as clinically and/or socially vulnerable, needed urgent care, and were concerned about privacy. These findings suggest that the plan for using telehealth to provide transplant care should prioritize personalization, considering unique needs and preferences of each SOT recipient.
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  • 文章类型: Multicenter Study
    目标:描述护理专业学生在第一波COVID-19大流行期间(2020年5月至6月)进入就业的经历及其心理健康。
    背景:作为其他医疗保健专业人员,在第一次COVID-19浪潮中工作的护理学生患有功能失调的心理健康症状。
    方法:顺序,混合方法,多中心研究。
    方法:研究人群包括三所西班牙大学护理学位第三和第四年的92名学生,在大流行期间进入工作岗位。数据收集时间为2020年5月至6月。在定量阶段,数据是使用在线问卷收集的,该问卷包含经过验证的焦虑和压力量表.在定性阶段,对18名参与者进行了半结构化访谈.对定量数据进行了描述性分析,对定性数据进行了反身性专题分析,和分析相结合。COREQ核对表用于报告。
    结果:将综合的定量和定性结果分为五个主题领域:(1)临床安置中断,(2)以医疗助理合同进入就业,(3)防止传染,(4)适应形势,管理情绪,(5)经验教训。
    结论:学生对进入就业有积极的整体体验,因为他们能够发展自己的护理技能。然而,他们以过度责任造成的压力形式产生了情感影响,学术不确定性,缺乏个人防护装备和使用培训,以及将疾病传播给家庭成员的可能性。
    结论:在当前上下文中,必须在学习计划中进行更改,以指导护理学生能够应对极端的临床情况,如流行病。这些方案应包括更广泛地覆盖流行病和大流行病,并管理诸如复原力之类的情感方面。
    OBJECTIVE: To describe the experiences of nursing students and their mental health as they entered employment during the first wave of the COVID-19 pandemic (May-June 2020).
    BACKGROUND: As other healthcare professionals, nursing students who worked during the first COVID-19 wave suffered from dysfunctional mental health symptoms.
    METHODS: Sequential, mixed-method, multicentre study.
    METHODS: The study population comprised 92 students in the third and fourth year of the Nursing degree at three Spanish universities, who entered employment during the pandemic. Data were collected between May and June 2020. In the quantitative phase, data were collected using an online questionnaire containing both validated anxiety and stress scales. In the qualitative phase, semi-structured interviews were conducted with 18 participants. A descriptive analysis of the quantitative data and a reflexive thematic analysis of the qualitative data were carried out, and analyses were combined. COREQ checklist was used for reporting.
    RESULTS: The combined quantitative and qualitative results were organised into five thematic areas: (1) Interruption of clinical placements, (2) Entering employment on a healthcare assistant contract, (3) Preventing contagion, (4) Adapting to the situation and managing emotions, and (5) Lessons learned.
    CONCLUSIONS: The students had a positive overall experience of entering employment, as they were able to develop their nursing skills. However, they had an emotional impact in form of stress caused by excessive responsibility, academic uncertainty, lack of personal protective equipment and training in its use, and the possibility of spreading disease to their family members.
    CONCLUSIONS: In the current context, changes must be made in study programmes to instruct nursing students to be able to cope with extreme clinical situations, such as pandemics. The programmes should include a more extensive coverage of epidemics and pandemics and management of emotional aspects such as resilience.
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  • 文章类型: Journal Article
    目的:从患者和护理人员的角度来看,目标是:确定哪些结果演示,描述工作生产率损失(WPL)结果,是最容易理解的;测量哪些演示文稿是重要的报告;并调查哪些WPL结果被视为重要的临床试验结果。
    方法:我们使用了四个阶段,顺序混合方法设计,以患者为导向的研究,参与一个患者的合作伙伴。我们进行了大声思考的采访,在不列颠哥伦比亚省/加拿大,审查WPL结果和我们的调查,衡量结果的可理解性和重要性,以及每个WPL结果的重要性。我们调查了一个代表工作加拿大人的样本。使用线性和逻辑回归对研究结果进行总结和分析。我们进行了亚组分析;一个是基于性别的。所有回归均使用广义估计方程进行。
    结果:在我们的定性阶段,采访了20名患者和护理人员。与会者建议结果简短,简单,并在视觉上表现出来。然后,对118名患者和120名护理人员进行了调查。以天数或成本为单位的结果产生了最高的可理解性和报告重要性。大多数人认为所有WPL结果都很重要,甚至有些重要。协会表明,结果表述越容易理解,它越有可能被评为重要。年龄是与选择天数或成本显着相关的唯一因素,这是最重要的结果。
    结论:以天数和成本表示WPL结果,使用外行术语和视觉支持,在临床试验中,患者和护理人员被认为是最容易理解和最重要的报告。我们的研究结果支持临床试验标准化WPL的测量,以包括其所有结果(缺勤,presenteism,就业状况变化和总工作生产率损失),除了评估要提供给患者和护理人员的WPL结果的全面性的工具。
    From the perspectives of patients and caregivers, the objectives were: identifying which result presentations, describing work productivity loss (WPL) outcomes, are most understandable; measuring which presentations are important to report; and investigating which WPL outcomes are viewed as important alongside clinical trials results.
    We used a four phased, sequential mixed methods design, guided by patient-oriented research engaging one patient partner. We conducted think-aloud interviews, in British Columbia/Canada, to review WPL results and our survey measuring the understandability and importance of the results, and importance of each WPL outcome. We surveyed a sample representing working Canadians. The findings were summarized and analyzed using linear and logistic regression. We conducted sub-group analyses; one was gender based. All regressions were conducted using generalized estimating equations.
    In our qualitative phases, 20 patients and caregivers were interviewed. Participants recommended for the results to be brief, simple, and represented visually. Then, 118 patients and 120 caregivers were surveyed. The results presented in days or cost yielded the highest understandability and importance to report. All WPL outcomes were identified as important to somewhat important to report by most. The associations indicated that the more understandable the result presentation was, the more likely it was to be rated as important. Age was the only factor significantly associated with selecting days or cost as the most important result.
    Presenting WPL results in days and cost, using lay terms and visual supports, were viewed as easiest to understand and most important to report in clinical trials by patients and caregivers. Our findings are supportive of clinical trials standardizing the measurement of WPL to include all of its outcomes (absenteeism, presenteeism, employment status changes and total work productivity loss), in addition to tools assessing the comprehensiveness of WPL results to be provided to patients and caregivers.
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  • 文章类型: English Abstract
    Development of an advanced practice nurse (APN) role for nutrition management: A needs assessment using a mixed methods approach Abstract. Background: Nurses are attributed to play a key role in nutrition management. This field has emerged to be a subject of advanced nursing practice. Aim: Conducting a needs assessment on the role profile of an advanced practice nurse (APN) in nutrition management according to the PEPPA framework. Methods: Mixed methods design. In a cross-sectional study on the current practice, the diagnostic accuracy of nurses\' nutrition screening using Nutritional Risk Screening (NRS 2002) compared with independent assessment by a nutrition expert using NRS 2022 was examined. In case of a positive screening result, reasons were determined using an in-depth assessment. In addition, semi-structured, guideline-based interviews were conducted and content-analysed. Results: The identification of patients at risk by nurses\' nutrition screening showed a need for improvement (sensitivity: 56%, specificity: 96%; n = 195). Commonly identified reasons for (risk of) malnutrition (n = 51) were lack of desire to eat/lack of appetite or increased caloric needs due to illness. Development opportunities and expectations for an APN were specified based on the interviews (n = 20). They refer to skill enhancement, support within the interprofessional team in complex treatment cases and a stronger nursing role in nutrition management. Conclusions: Based on the needs assessment, the APN\'s areas of responsibility were identified and assigned to the Hamric model, and implementation strategies could be derived.
    Zusammenfassung. Hintergrund: Pflegefachpersonen wird eine Schlüsselrolle im Ernährungsmanagement zugeschrieben. Dieser Bereich wurde als ein Schwerpunkt der Entwicklung einer Advanced Nursing Practice identifiziert. Ziel: Bedarfsanalyse zum Rollenprofil einer Advanced Practice Nurse (APN) entsprechend dem PEPPA-Rahmenmodell. Methodik: Mixed Methods-Design. In einer Querschnittserhebung zum Ist-Stand wurde die diagnostische Genauigkeit des pflegerischen Ernährungsscreenings mittels Nutritional Risk Screening (NRS 2022) im Vergleich zur Einschätzung durch eine Ernährungsexpertin mittels NRS 2022 untersucht. Bei positivem Befund wurden Gründe mithilfe eines vertieften Assessments ermittelt. Ergänzend wurden halbstrukturierte, leitfadengestützte Interviews geführt und inhaltsanalytisch ausgewertet. Ergebnisse: Die Identifikation von Risikopatient_innen im pflegerischen Screening wies Verbesserungsbedarf auf (Sensitivität: 56%, Spezifität: 96%; n = 195). Häufig identifizierte Gründe (des Risikos) einer Mangelernährung (n = 51) waren die fehlende Lust zum Essen/Appetitlosigkeit oder ein krankheitsbedingter erhöhter Bedarf. Entwicklungsmöglichkeiten und Erwartungen an eine APN wurden anhand der Interviews (n = 20) konkretisiert. Sie beziehen sich auf Kompetenzerweiterung, Support im interprofessionellen Team bei komplexen Behandlungsfällen und einer stärkeren pflegerischen Rolle im Ernährungsmanagement. Schlussfolgerungen: Anhand der Bedarfsanalyse konnten Aufgabenbereiche der APN benannt, dem Modell nach Hamric zugeordnet und Umsetzungsstrategien abgeleitet werden.
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  • 文章类型: Journal Article
    背景:性功能障碍是青少年和年轻成人癌症幸存者生活质量的一个关键方面。研究一直表明,青少年和年轻人的心理和身体发病率高于年龄较大的幸存者和健康的同龄人,包括性功能障碍的发生率升高,通常伴随着对性生活的满意度降低和满足性里程碑的延迟。此外,性功能障碍,身体形象问题,和生育状况会影响他们在身体和情感上亲密的信心。尽管有这些证据,有限的研究调查了心理社会和人际关系因素对该组报告的性健康结局的影响。这在为青少年和年轻的成年癌症幸存者提供全面的性保健方面存在很大差距,尤其是由于最近越来越重视性的生物心理社会模型以及干预和治疗的二元方法。与其他癌症类型相比,青少年和年轻成人组的结直肠癌(CRC)发病率以惊人的速度增长.早发型CRC患者性功能障碍发生率升高,心理困扰,以及社会和身体负担,通常是由肠道控制问题引起的,失禁,和身体形象。
    目的:本研究采用解释性序贯混合方法(1)表征性功能,性困扰,二元应对,不孕症相关的困扰,诊断后前5年内的青少年和年轻成人CRC幸存者及其伴侣的关系和心理健康结果;(2)检查性功能和二元应对行为对性困扰的相互影响;(3)确定与应对性功能障碍及其相关困扰相关的人际关系或夫妻特征。
    方法:参与的夫妇(n=60)将完成一项基于网络的定量调查,调查性功能,性困扰,二元应对,不孕症相关的困扰,情感功能,关系满意度,和身体形象(仅限癌症幸存者)。20对夫妇的子集将与研究小组的2名成员进行深入的双向访谈,以进一步探索为应对癌症相关的性功能障碍和痛苦而实施的基于夫妇的策略。
    结果:该研究获得了机构审查委员会的批准。夫妇的招募和入学始于2022年7月。
    结论:结果将通过强调人际关系过程的作用,为夫妇在CRC治疗后导航性亲密经历的挑战提供更深入的理解。这些发现将为在CRC之后有更大的性困扰风险的年轻夫妇提供双重干预。
    DERR1-10.2196/41831。
    BACKGROUND: Sexual dysfunction represents a critical aspect of quality of life for adolescent and young adult cancer survivors. Studies have consistently documented that adolescents and young adults report greater psychological and physical morbidity than older survivors and healthy peers, including elevated rates of sexual dysfunction, often accompanied by lower satisfaction with sex life and delays in meeting sexual milestones. Moreover, sexual dysfunction, body image concerns, and fertility status affect their confidence in being both physically and emotionally intimate. Despite this evidence, limited research has investigated the influence of psychosocial and interpersonal factors on sexual health outcomes reported by this group. This constitutes a significant gap in the provision of comprehensive sexual health care for adolescent- and young adult-onset cancer survivors, especially since greater emphasis has been recently placed on the biopsychosocial model of sexuality and dyadic approaches to intervention and treatment. In comparison to other cancer types, the incidence of colorectal cancer (CRC) has been increasing at an alarming rate for the adolescent and young adult group. Patients with early-onset CRC experience elevated rates of sexual dysfunction, psychological distress, and social and physical burden, often resulting from issues with bowel control, incontinence, and body image.
    OBJECTIVE: This study uses an explanatory sequential mixed methods approach to (1) characterize sexual function, sexual distress, dyadic coping, infertility-related distress, relationship and mental health outcomes of adolescent and young adult CRC survivors within the first 5 years post diagnosis and their partners; (2) examine the reciprocal influence of sexual function and dyadic coping behaviors on sexual distress; and (3) identify interpersonal or couple characteristics associated with coping with sexual dysfunction and its associated distress.
    METHODS: Participating couples (n=60) will complete a quantitative web-based survey investigating sexual function, sexual distress, dyadic coping, infertility-related distress, emotional functioning, relationship satisfaction, and body image (cancer survivors only). A subset of 20 couples will participate in an in-depth dyadic interview with 2 members of the research team to further explore couple-based strategies implemented to cope with cancer-related sexual dysfunction and distress.
    RESULTS: The study received institutional review board approval. Recruitment and enrollment of couples began in July 2022.
    CONCLUSIONS: Results will provide a deeper understanding of the challenges couples experience as they navigate sexual intimacy after CRC treatment by highlighting the role of interpersonal processes. These findings will inform a dyadic intervention for young couples at risk of greater sexual distress in the aftermath of CRC.
    UNASSIGNED: DERR1-10.2196/41831.
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