Medical assistance in dying

临终医疗援助
  • 文章类型: Journal Article
    目的:调查有关国际自愿辅助死亡(VAD)法律的医疗保健政策和成本分析的最新文献。研究设计是根据首选报告项目进行系统评价和荟萃分析(PRISMA)指南进行的映射文献综述。
    方法:1990年1月至2023年3月之间发表的原始研究文章,调查了国际上VAD法律的财务成本和医疗保健预算影响。对引文进行了相关性和合格性筛选,并且排除了任何未探讨成本分析的非全文研究。筛选了以下数据源:MEDLINE,PubMed,EMBASE,还审查了CINAHL和任何相关的国际卫生当局年度报告。
    结果:在2790篇筛选的文章中,8项研究符合纳入标准,3项纳入图谱综述.审查的研究包括前瞻性研究,两个加拿大和一个美国。只有一项加拿大研究使用当前VAD法律的数据进行了成本分析。所有三项研究表明,VAD法律将减少医疗保健支出,1995年美国约为6.27亿美元。加拿大在2017年约为17.1至7710万美元,在2021年约为86.9至14900万美元,总体而言,与临终关怀的原始成本相比,成本平均降低了约87%。
    结论:这篇综述指出了成本分析文献中的稀缺性,并提供了最新的国际VAD法律摘要,从中潜在的成本降低是显而易见的。缺乏回顾性整理的金融VAD数据凸显了未来研究的必要性,以告知决策者影响当前政策的经济因素,需要年度财务报告,并在国际上优化未来的立法框架。
    OBJECTIVE: To investigate the current literature on healthcare policies and cost analyses around international Voluntary Assisted Dying (VAD) laws. The study design is a mapping literature review following Preferred-Reporting-Items-for-Systematic-Reviews-and-Meta-Analyses (PRISMA) guidelines.
    METHODS: Original research articles published between January 1990 to March 2023, investigating the financial cost and healthcare budget effect of VAD laws internationally. Citations were screened for relevance and eligibility, and any non-full-text research that did not explore cost analysis was excluded. The following data sources were screened: MEDLINE, PubMed, EMBASE, CINAHL and any relevant international health authority annual reports were also reviewed.
    RESULTS: Of the 2790 screened articles, eight studies met the inclusion criteria and three were included in the mapping review. The reviewed studies included prospective studies, two Canadian and one US. Only one of the Canadian studies provided a cost analysis using data from current VAD laws. All three studies showed VAD laws would reduce healthcare spending, with the US approximating $627million in 1995. Canada approximating $17.1 to $77.1million in 2017 and $86.9 to $149.0million in 2021, overall, leading to an average percentage reduction in costs of approximately 87% compared to original costs of end-of-life care.
    CONCLUSIONS: This review identifies a scarcity in cost-analysis literature and provides a summary of the latest international VAD laws, from which a potential cost reduction is apparent. The absence of retrospectively collated financial VAD data highlights a need for future research to inform policymakers of the economic factors affecting current policies with a need for annual fiscal reports and to optimise future legislative frameworks internationally.
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  • 文章类型: Editorial
    随着患有躯体疾病的人越来越多地获得辅助死亡,问题是,那些患有精神疾病的人是否也应该有机会。这一困难和复杂问题的核心是平等和平等的尊重等价值观。这些问题需要人道的审议。
    With assisted dying becoming increasingly available to people suffering from somatic diseases, the question arises whether those suffering from mental illnesses should also have access. At the heart of this difficult and complex matter are values such as equality and parity of esteem. These issues require humane deliberation.
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  • 文章类型: Journal Article
    在多个国家/地区发生了仅与饮食失调(ED)有关的原因的辅助死亡,包括那些将实践限制为具有终端条件的个人的实践。本系统评价的目的是(1)确定ED患者中所有已知的辅助死亡病例,以及(2)描述用于授予患者辅助死亡请求的临床依据。
    我们对同行评审的研究和公开的政府报告进行了系统搜索,以确定ED患者的辅助死亡病例。在包括病例定性数据的报告中,通过定性内容分析,提取临床基本原理并将其分组为多个领域.
    我们确定了10篇同行评审的文章和20份政府报告,描述了至少60名在2012年至2024年间接受辅助死亡的ED患者。临床理由分为三个领域:不可补救性,终端性,自愿请求。报告强调,接受辅助死亡的ED患者患有晚期疾病,无法治愈,和/或无法治疗的状况,并具有足够的决策能力来做出最终决定。大多数政府报告都没有包含足够的描述性数据来验证精神疾病。
    我们的系统评价结果强调,在报告精神病患者的辅助死亡方面存在相当大的差距,对监督和公共安全构成重大担忧。在许多情况下,用于确认ED患者符合辅助死亡资格的临床理由缺乏有效性,也不符合经验理解.
    UNASSIGNED: Assisted dying for reasons solely related to an eating disorder (ED) has occurred in multiple countries, including those which restrict the practice to individuals with a terminal condition. The aims of this systematic review were to (1) identify all known cases of assisted deaths among patients with EDs and (2) describe the clinical rationales used to grant patients\' requests for assisted death.
    UNASSIGNED: We conducted a systematic search of peer-reviewed studies and publicly available government reports to identify cases of assisted death in patients with EDs. In reports that included qualitative data about the case, clinical rationales were extracted and grouped into domains by qualitative content analysis.
    UNASSIGNED: We identified 10 peer-reviewed articles and 20 government reports describing at least 60 patients with EDs who underwent assisted dying between 2012 and 2024. Clinical rationales were categorized into three domains: irremediability, terminality, and voluntary request. Reports emphasized that patients with EDs who underwent assisted death had terminal, incurable, and/or untreatable conditions and had adequate decision-making capacity to make a life-ending decision. Most government reports did not include descriptive-enough data to verify psychiatric conditions.
    UNASSIGNED: The results of our systematic review underscore considerable gaps in the reporting of assisted death in patients with psychiatric conditions, posing substantial concerns about oversight and public safety. In many cases, the clinical rationales that were used to affirm patients with EDs were eligible for assisted death lack validity and do not cohere with empirical understanding.
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  • 文章类型: Journal Article
    加拿大的辅助死亡方法,临终医疗援助(MAiD),截至2024年初,对其保护患者免受刑事医疗连环杀害(HSK)的能力进行了评估,以评估其保障措施的强度。MAiD通过安乐死或自我管理的辅助自杀(EAS)发生,在许多国家和司法管辖区是合法的或被考虑的。参与HSK的临床医生通常针对与符合MAiD的患者具有相同临床特征的患者。他们可以借鉴类似的理由,例如,结束感知到的患者痛苦,并为临床医生提供乐趣。由于缺乏工作人员背景调查,HSK可能在相当长的一段时间内未被发现或未经证实,监督和监督不力,当局未能对同事的担忧采取行动,病人,或证人。加拿大MAiD系统,有效地基于安乐死,具有类似的特征,在广泛的患者资格标准下,临床医生可以免除杀人罪和协助自杀罪的刑事责任。对加拿大模式的评估为加强保障措施和发现在那里和其他司法管辖区存在或考虑合法EAS的滥用行为提供了见解。没有对EAS进行不太可能的重新定罪,更好的临床保护措施,标准,审查和培训那些参与MAiD的人,并且对其监督和交付进行彻底的重组可以帮助减轻在被授权容纳杀人临床医生的系统中滥用的可能性。
    The Canadian approach to assisted dying, Medical Assistance in Dying (MAiD), as of early 2024, is assessed for its ability to protect patients from criminal healthcare serial killing (HSK) to evaluate the strength of its safeguards. MAiD occurs through euthanasia or self-administered assisted suicide (EAS) and is legal or considered in many countries and jurisdictions. Clinicians involved in HSK typically target patients with the same clinical features as MAiD-eligible patients. They may draw on similar rationales, e.g., to end perceived patient suffering and provide pleasure for the clinician. HSK can remain undetected or unconfirmed for considerable periods owing to a lack of staff background checks, poor surveillance and oversight, and a failure by authorities to act on concerns from colleagues, patients, or witnesses. The Canadian MAiD system, effectively euthanasia-based, has similar features with added opportunities for killing afforded by clinicians\' exemption from criminal culpability for homicide and assisted suicide offences amid broad patient eligibility criteria. An assessment of the Canadian model offers insights for enhancing safeguards and detecting abuses in there and other jurisdictions with or considering legal EAS. Short of an unlikely recriminalization of EAS, better clinical safeguarding measures, standards, vetting and training of those involved in MAiD, and a radical restructuring of its oversight and delivery can help mitigate the possibility of abuses in a system mandated to accommodate homicidal clinicians.
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  • 文章类型: Journal Article
    哥伦比亚是最早将安乐死合法化的国家之一。然而,在国际学术文献中所知道的关于该国的法规是稀缺和过时的。这种缺乏拉丁美洲局势的信息在秘鲁的情况下更为明显,利马高等法院在2021年允许一个人获得安乐死,开创了先例。厄瓜多尔,2024年2月,该组织刚刚将所有公民的安乐死合法化,国际对话也有同样缺席的风险。本文首次总结了拉丁美洲有关安乐死的所有现行法规,通过对西班牙语主要来源的研究,并分析了这三个邻国之间的一些趋同。
    Colombia was one of the first countries to decriminalise euthanasia. However, what is known in the international academic literature about the country\'s regulations is scarce and outdated. Such lack of information on the situation in Latin America is even more evident in the case of Peru, where the Lima Superior Court of Justice set a precedent by allowing a person to have access to euthanasia in 2021. Ecuador, which has just decriminalised euthanasia for all its citizens in February 2024, risks being similarly absent from the international dialogue. This article summarises for the first time all the regulations in force regarding euthanasia in Latin America, through a study of primary sources in Spanish, and analyses some of the convergences between these three neighbouring countries.
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  • 文章类型: Journal Article
    暂无摘要。
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  • 文章类型: Journal Article
    这项研究调查了南澳大利亚医学肿瘤学家,以捕捉他们的看法,参与自愿辅助死亡(VAD)活动的意愿和感知障碍和动机。大约70%的接受调查的医学肿瘤学家报告熟悉VAD法规。不到一半的医生(39.1%)表示愿意参加任何VAD活动。依良心拒服兵役率为22%。在没有经验的情况下,参与的最大障碍是缺乏时间和不确定性。这些结果表明,在南澳大利亚实施VAD时,出于良心拒服兵役的比率很低,参与意愿也很低,并确定参与的障碍,这些障碍在很大程度上是后勤的。
    This study surveyed South Australian medical oncologists to capture their perceptions, willingness to participate and perceived barriers and motivations to participation in voluntary assisted dying (VAD) activities. Approximately 70% of surveyed medical oncologists reported familiarity with VAD legislation. Less than half of physicians (39.1%) reported willingness to participate in any VAD activities, and the rate of conscientious objection was 22%. The top barriers to participation were lack of time and uncertainty given no prior experience. These results demonstrate both a low rate of conscientious objection and a low rate of willingness to participate at the point of VAD implementation in South Australia, and identify barriers to participation that are largely logistical.
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  • 文章类型: Journal Article
    当医师协助死亡(在本文中称为医疗协助死亡或MAiD)可用于患有精神障碍的个体作为唯一的潜在医疗条件(MD-SUMC)时,边缘性人格障碍(BPD)患者经常要求MAiD。精神科医生和其他临床医生必须准备好评估和管理这些请求。
    本文的目的是定义何时应将BPD患者视为无法治愈的,治疗耐药障碍,并为临床医生提供一种评估和管理BPD患者对MAiD的要求的方法。
    这篇透视论文通过使用已发表的,不可补救性的权威定义,包括与不可补救性评估相关的值得注意的系统和/或荟萃分析评论。
    临床医生必须了解在其管辖范围内授予MAiD的资格要求,以便他们能够适当地为评估过程做好准备。对特定人的痛苦的不可忍受性的评估来自与患者进行广泛的对话;然而,应更客观可靠地评估患者是否患有无法治愈的BPD.在疾病严重程度的背景下,对评估BPD不可治愈性的系统方法进行了审查。治疗抗性和不可逆性。
    除了表征不可补救性之外,本文还介绍了接受MAiD评估过程的BPD患者自杀风险的评估和管理.
    UNASSIGNED: When physician assisted dying (referred to as Medical Assistance in Dying or MAiD in this article) is available for individuals with mental disorders as the sole underlying medical condition (MD-SUMC), patients with borderline personality disorder (BPD) frequently request MAiD. Psychiatrists and other clinicians must be prepared to evaluate and manage these requests.
    UNASSIGNED: The purposes of this paper are to define when patients with BPD should be considered to have an irremediable, treatment resistant disorder and provide clinicians with an approach to assess and manage their patients with BPD making requests for MAiD.
    UNASSIGNED: This perspective paper developed the authors\' viewpoint by using a published, authoritative definition of irremediability and including noteworthy systematic and/or meta-analytic reviews related to the assessment of irremediability.
    UNASSIGNED: The clinician must be aware of the eligibility requirements for granting MAiD in their jurisdiction so that they can appropriately prepare themselves and their patients for the assessment process. The appraisal of the intolerability of the specific person\'s suffering comes from having an extensive dialogue with the patient; however, the assessment of whether the patient has irremediable BPD should be more objectively and reliably determined. A systematic approach to the assessment of irremediability of BPD is reviewed in the context of the disorder\'s severity, treatment resistance and irreversibility.
    UNASSIGNED: In addition to characterizing irremediability, this paper also addresses the evaluation and management of suicide risk for patients with BPD undergoing the MAiD assessment process.
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  • 文章类型: Journal Article
    背景:在全球范围内,辅助死亡(AD)已在少数但越来越多的司法管辖区合法化,包括加拿大和澳大利亚。两国的早期研究表明,为了应对准入障碍,患者和护理人员采取行动影响他们对AD的个人经历,以及更广泛的AD系统。这项研究分析了患者和护理人员如何建议AD系统中的其他决策者应解决已发现的问题。
    方法:我们进行了半结构化,在维多利亚州(澳大利亚)和加拿大三个省(不列颠哥伦比亚省,安大略省和新斯科舍省)。使用反身主题分析和码本模板分析对数据进行分析。
    结果:对67名参与者进行了60次访谈(65名护理人员,2名患者)。在维多利亚,这涉及对33名参与者的28次采访(32名护理人员,1名患者)约28名患者经历。在加拿大,这涉及32次采访34名参与者(33名护理人员,1例)约33例患者经历。我们产生了六个主题,对应于患者和护理人员解决已发现的系统问题的六个总体建议:(1)改善有关AD的信息的内容和传播;(2)积极制定有关AD提供的政策和程序;(3)通过自上而下的行动解决机构异议;(4)积极开发悲伤资源和同伴支持机制;(5)修改法律以解决法律障碍;(6)参与并采取行动。
    结论:AD系统应监测并响应具有AD系统第一手经验的患者和护理人员的建议,他们处于独特的位置,可以识别问题和改进建议。迄今为止,加拿大在解决已确定的问题方面反应相对较好,而维多利亚州政府已表示,没有计划修改法律以解决已确定的访问障碍。这可能导致患者和护理人员继续承担起采取行动来解决已识别问题的负担。
    患者和护理人员是这项研究的核心。我们采访了患者和护理人员,了解他们的AD经历,本文重点介绍了他们对解决AD系统中已发现的障碍的建议。澳大利亚和加拿大的患者兴趣小组也支持我们的招募过程。
    BACKGROUND: Assisted dying (AD) has been legalised in a small but growing number of jurisdictions globally, including Canada and Australia. Early research in both countries demonstrates that, in response to access barriers, patients and caregivers take action to influence their individual experience of AD, as well as AD systems more widely. This study analyses how patients and caregivers suggest other decision-makers in AD systems should address identified issues.
    METHODS: We conducted semistructured, qualitative interviews with patients and caregivers seeking AD in Victoria (Australia) and three Canadian provinces (British Columbia, Ontario and Nova Scotia). Data were analysed using reflexive thematic analysis and codebook template analysis.
    RESULTS: Sixty interviews were conducted with 67 participants (65 caregivers, 2 patients). In Victoria, this involved 28 interviews with 33 participants (32 caregivers, 1 patient) about 28 patient experiences. In Canada, this involved 32 interviews with 34 participants (33 caregivers, 1 patient) about 33 patient experiences. We generated six themes, corresponding to six overarching suggestions by patients and caregivers to address identified system issues: (1) improved content and dissemination of information about AD; (2) proactively develop policies and procedures about AD provision; (3) address institutional objection via top-down action; (4) proactively develop grief resources and peer support mechanisms; (5) amend laws to address legal barriers; and (6) engage with and act on patient and caregiver feedback about experiences.
    CONCLUSIONS: AD systems should monitor and respond to suggestions from patients and caregivers with firsthand experience of AD systems, who are uniquely placed to identify issues and suggestions for improvement. To date, Canada has responded comparatively well to address identified issues, whereas the Victorian government has signalled there are no plans to amend laws to address identified access barriers. This may result in patients and caregivers continuing to take on the burdens of acting to address identified issues.
    UNASSIGNED: Patients and caregivers are central to this research. We interviewed patients and caregivers about their experiences of AD, and the article focuses on their suggestions for addressing identified barriers within AD systems. Patient interest groups in Australia and Canada also supported our recruitment process.
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  • 文章类型: Journal Article
    背景:2021年,西班牙成为第一个授予和提供安乐死和医疗协助自杀权的南欧国家。根据法律,国家有义务确保通过卫生服务,这意味着医疗保健专业人员的参与至关重要。然而,它的实施不平衡。我们的研究侧重于理解可能的道德冲突,这些冲突塑造了临终医疗援助实践的不同立场,确定哪些核心思想可能是它们的基础,并提出造成这种差距的可能原因。获得的知识有助于理解其复杂性,将光线分成矛盾的轮廓,并制定策略来增加他们的参与。
    方法:我们通过半结构化访谈(1小时)与25名初级保健医生和护士(12)进行了探索性定性研究。医院护理(7)姑息治疗(6),17个女人和8个男人,从马德里招募来的,加泰罗尼亚,2023年3月至5月之间的安达卢西亚。采访被记录下来,转录,并编码在Atlas中。ti软件通过主题和解释方法来开发概念模型。
    结果:我们确定了MAiD的四种方法:全面支持(FS),条件支持(CS)条件拒绝(CR),完全拒绝(FR)。完全支持和完全拒绝适合MAiD上的传统支持和反对职位。然而,中间有一个灰色区域,由条件轮廓表示,他们的参与无法事先预测。考虑到他们对四个核心思想的不同解释,这些概况是有区别的:临终护理,宗教,专业职责/道义,患者自主性这些想法可以相交,这意味着参与者的位置是多原因和复杂的。配置文件之间的差异可以通过其道德推理中使用的道德权威的不同来源以及其对自治的个人主义或关系方法来解释。
    结论:最终没有共识,而是在医疗保健专业人员中对MAiD的多元道德观点共存。了解哪些案件特别难以评估或法律的哪些方面不容易解释,将有助于制定新的战略,澄清法律框架,或指导道德推理和教育,目的是减少不可预测的MAID不参与。
    BACKGROUND: In 2021, Spain became the first Southern European country to grant and provide the right to euthanasia and medically assisted suicide. According to the law, the State has the obligation to ensure its access through the health services, which means that healthcare professionals\' participation is crucial. Nevertheless, its implementation has been uneven. Our research focuses on understanding possible ethical conflicts that shape different positions towards the practice of Medical Assistance in Dying, on identifying which core ideas may be underlying them, and on suggesting possible reasons for this disparity. The knowledge acquired contributes to understanding its complexity, shedding light into ambivalent profiles and creating strategies to increase their participation.
    METHODS: We conducted an exploratory qualitative research study by means of semi-structured interviews (1 h) with 25 physicians and nurses from primary care (12), hospital care (7), and palliative care (6), 17 women and 8 men, recruited from Madrid, Catalonia, and Andalusia between March and May 2023. Interviews were recorded, transcribed, and coded in Atlas.ti software by means of thematic and interpretative methods to develop a conceptual model.
    RESULTS: We identified four approaches to MAiD: Full Support (FS), Conditioned Support (CS), Conditioned Rejection (CR), and Full Rejection (FR). Full Support and Full Rejection fitted the traditional for and against positions on MAiD. Nevertheless, there was a gray area in between represented by conditioned profiles, whose participation cannot be predicted beforehand. The profiles were differentiated considering their different interpretations of four core ideas: end-of-life care, religion, professional duty/deontology, and patient autonomy. These ideas can intersect, which means that participants\' positions are multicausal and complex. Divergences between profiles can be explained by different sources of moral authority used in their moral reasoning and their individualistic or relational approach to autonomy.
    CONCLUSIONS: There is ultimately no agreement but rather a coexistence of plural moral perspectives regarding MAiD among healthcare professionals. Comprehending which cases are especially difficult to evaluate or which aspects of the law are not easy to interpret will help in developing new strategies, clarifying the legal framework, or guiding moral reasoning and education with the aim of reducing unpredictable non-participations in MAID.
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