背景:患有囊性纤维化(CF)的人通常在其复杂的医学护理之上有心理困难,比如焦虑,抑郁症,医学上的不信任这些已被证明与更差的依从性有关,肺功能检查结果,和其他健康结果。在这个试点试验中,我们实施了一项基于叙事治疗方法的日志记录计划,以改善CF患者的身心健康结局.
方法:在单中心CF诊所随访的8名12-17岁确诊为CF的青少年每周通过电子邮件发送日志提示,探讨治疗依从性等主题,感觉与CF不同,焦虑,抑郁症,和人际关系。受试者完成了有关其写作任务和健康措施的经验的调查,包括儿科症状清单(PSC-17)和从电子病历中收集的基线健康数据。
结果:PSC-17的平均分下降了5.5分,降至28以下(平均值23.5,标准差12.2),这是筛选积极的行为或情绪问题的截止日期。参与者报告说,这项研究令人愉快,焦虑/抑郁情绪有所改善。100%的参与者回答“强烈同意”声明“我建议其他CF患者撰写有关本研究主题的文章。\"
结论:对CF患者的日志干预是可行的,并且很受欢迎。初步结果显示PSC-17和其他福祉措施有所改善。需要进一步的研究来评估日记对心理健康和疾病结果的影响。
BACKGROUND: Individuals with cystic fibrosis (CF) often have psychological difficulties on top of their medically complex care, such as anxiety, depression, and medical mistrust. These have been shown to be associated with worse adherence, pulmonary function test results, and other health outcomes. In this pilot trial, we implemented a
journaling program based on narrative therapy methodology to improve mental and physical health outcomes for individuals with CF.
METHODS: Eight adolescents aged 12-17 with a confirmed diagnosis of CF followed in a single center CF clinic were emailed weekly
journaling prompts that explored topics like treatment adherence, feeling different with CF, anxiety, depression, and interpersonal relationships. Subjects completed surveys about their experience with the writing assignment and measures of wellness including the Pediatric Symptom Checklist (PSC-17) and baseline health data was collected from the electronic medical records.
RESULTS: The average score for the PSC-17 decreased by 5.5 points, and fell to less than 28 (mean 23.5, SD 12.2), which is the cutoff for screening positive for behavioral or emotional problems. Participants reported the study was enjoyable and had improvement in feelings of anxiety/depression. 100% of participants responded \"Strongly Agree\" to the statement \"I recommend other people with CF to write about the topics from this study.\"
CONCLUSIONS: The
journaling intervention for individuals with CF was feasible and well received. Initial results show improvement in PSC-17 and other well-being measures. Further studies are needed to evaluate the impact of
journaling on mental health and disease outcomes.