目的:了解子宫肌瘤(肌瘤)患者在连续护理过程中的医疗保健经验,从早期症状到诊断,治疗,和管理,同时还调查健康差异。
方法:我们对肌瘤患者进行了20次半结构化访谈。访谈被逐字转录,并使用主题分析进行定性分析。符合条件的参与者是18岁及以上的女性,居住在印第安纳州两个招聘地点(Tippecanoe或Marion县)之一的75英里内,美国。
结果:女性经历了无数的身体症状,这往往表现为心理和性障碍,渗透到日常生活的各个方面。互联网搜索经常被称为其主要信息来源。生育成为决定治疗方案的一个重要因素。然而,健康差异阻止了一些人接受高质量的肌瘤医疗保健。一些妇女报告说,在COVID-19大流行期间呆在家里有助于治疗身体症状。总的来说,参与者提倡更大的子宫肌瘤意识和教育。
结论:结果强调了肌瘤相关决定的障碍和促进因素,行为,和结果。将研究转化为实践是以综合的社会生态模型和健康框架的社会决定因素为指导的,以制定战略干预措施。
结论:干预措施应旨在改善肌瘤的医疗服务,教育和意识,和少数族裔的患者提供者沟通,农村,和低社会经济地位的社区不成比例地受到肌瘤的影响。
To understand healthcare experiences among patients with uterine fibroids (fibroids) across the continuum of care, from early symptoms through diagnosis, treatment, and management, while also investigating health disparities.
We conducted 20 semi-structured interviews with patients with fibroids. Interviews were transcribed verbatim and qualitatively analyzed using thematic analysis. Eligible participants were women aged 18 and over, residing within 75 miles of one of the two recruitment locations (Tippecanoe or Marion County) in Indiana, USA.
Women experienced myriad physical symptoms, which often manifested into psychological and sexual disturbances and infiltrated all aspects of daily life. Internet searches were frequently mentioned as their main information source. Fertility became a prominent factor in deciding treatment options. However, health disparities prevented some from receiving quality fibroids healthcare. Some women reported staying home during COVID-19 pandemic facilitated the management of physical symptoms. Overall, participants advocated for greater fibroids awareness and education.
Results highlight barriers and facilitators to fibroids-related decisions, behaviors, and outcomes. Translation of research to practice was guided by a combined Social-Ecological Model and social determinants of health framework for development of strategic interventions.
Interventions should aim to improve fibroids healthcare access, education and awareness, and patient-provider communication for minority, rural, and low socioeconomic status communities disproportionately impacted by fibroids.