Healthcare Policy

医疗保健政策
  • 文章类型: Journal Article
    目的:本研究旨在分析国内外影像诊断和治疗的前景,专注于日本,为决策提供当前的见解,加强临床实践,和国际合作。
    方法:1996年至2021年的数据来自日本卫生部,医疗设备CT的劳动和福利数据库,MRI,PET,乳房X线照相术,和放射治疗。日本的国家健康保险索赔和特定健康检查数据库用于检查编号。使用经济合作与发展组织(OECD)数据库对41个国家的数据进行了国际比较。
    结果:数据包括总共108,596台CT设备,47,233MRI设备,2998PET装置,20,641MMG设备,和8023RT设备在调查期间。通过国际比较,日本每百万人的CT和MRI设备排名第一,每1000人的检查数量排名第二。每百万人的PET设备数量超过了经合组织的平均水平;然而,2020年,每1000人的考试数量低于经合组织的平均水平(日本:4.0,经合组织:4.9)。尽管日本的乳房X线摄影设备数量超过了经合组织的平均水平(日本:33.8,经合组织:2020年为24.5),放射治疗装置计数与OECD平均值相似(日本:8.3,OECD:7.9,2020年).
    结论:我们分析了日本在影像诊断和放疗方面的设备使用情况。从最初的调查年开始,所有设备都呈上升趋势。然而,不仅必须增加设备和检查的数量,而且还必须解决放射科医生和专职卫生专业人员的长期短缺问题。基于从这项研究中获得的见解,了解诊断成像和放射治疗设备的实际状况对于掌握国内情况至关重要,并可能有助于提高日本的医疗保健质量。
    OBJECTIVE: This study aimed to analyze the domestic and international landscape of imaging diagnostics and treatments, focusing on Japan, to provide current insights for policymaking, clinical practice enhancement, and international collaboration.
    METHODS: Data from 1996 to 2021 were collected from Japan\'s Ministry of Health, Labor and Welfare database for medical device counts of CT, MRI, PET, mammography, and radiotherapy. The National Database of Health Insurance Claims and Specific Health Checkups of Japan was utilized for examination numbers. An international comparison was made with data from 41 countries using the Organization for Economic Cooperation and Development (OECD) database.
    RESULTS: The data included a total of 108,596 CT devices, 47,233 MRI devices, 2998 PET devices, 20,641 MMG devices, and 8023 RT devices during the survey period. Upon international comparison, Japan ranked first in CT and MRI devices per million people and second in examination numbers per 1000 people. The number of PET devices per million people exceeded OECD averages; however, the number of examinations per 1000 people was below the OECD average in 2020 (Japan: 4.0, OECD: 4.9). Although Japan exceeded OECD averages in mammography device counts (Japan: 33.8, OECD: 24.5 in 2020), radiotherapy device counts were similar to OECD averages (Japan: 8.3, OECD: 7.9 in 2020).
    CONCLUSIONS: We have analyzed the utilization of equipment in the context of diagnostic imaging and radiotherapy in Japan. Since the initial survey year, all devices have shown an upward trend. However, it is essential not only to increase the number of devices and examinations but also to address the chronic shortage of radiologists and allied health professionals. Based on the insights gained from this study, understanding the actual status of diagnostic imaging and radiation therapy equipment is critical for grasping the domestic situation and may contribute to improving the quality of healthcare in Japan.
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  • 文章类型: Journal Article
    本文讨论了医院临床医生在协调和推荐患者急性后护理方面面临的日益严峻的挑战,重点关注与获得最常见的急性后服务相关的问题:熟练护理机构(SNF)和家庭保健机构(HHA)。在协调放电方面,在这些环境中,医院临床医生对护理提供的信息很少.急性护理医院之间连续的患者护理中断加剧了这种知识差距,SNFs,和HHA。为了应对这些挑战,医院临床医生必须了解最近的联邦政策如何影响SNF和HHA护理提供.本文概述了影响SNF和HHA的最新医疗保险和医疗补助服务中心(CMS)政策和计划,包括(1)按服务收费报销改革(即,患者驱动支付模型[PDPM]和患者驱动分组模型[PDGM]),(2)捆绑支付方案,(3)负责任的护理组织,和(4)MedicareAdvantage计划。总的来说,本文旨在通过提供有关最近的政策变化如何影响患者护理的相关信息,帮助医院临床医生了解急性后护理服务的发展变化。
    This paper addresses the increasing challenges faced by hospital clinicians in coordinating and recommending post-acute care for patients, focusing on issues related to access to the most common post-acute services: skilled nursing facilities (SNFs) and home health agencies (HHAs). In coordinating discharges, hospital clinicians have minimal information on care delivery in these settings. This knowledge gap is exacerbated by the disrupted continuum of patient care between acute care hospitals, SNFs, and HHAs. To address these challenges, hospital clinicians must understand how recent federal policies have impacted SNF and HHA care provision. The paper provides an overview of recent Centers for Medicare and Medicaid Services (CMS) policies and programs affecting SNFs and HHAs, including (1) fee-for-service reimbursement reform (i.e., Patient Driven Payment Model [PDPM] and the Patient Driven Groupings Model [PDGM]), (2) bundled payment programs, (3) accountable care organizations, and (4) Medicare Advantage plans. Overall, this paper aims to help hospital clinicians stay informed about the evolving landscape of post-acute care delivery by providing relevant information on how recent policy changes have impacted patient care.
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  • 文章类型: Journal Article
    背景:2018年UNOS分配政策将优先考虑的地理边界更改为器官分配,这种变化的影响是广泛的。这项调查的目的是分析供体移植中心距离在分配政策改变前后的器官旅行和相应结果的变化。
    方法:UNOS数据库用于识别2016年至2021年所有等待心脏移植的成年患者。移植中心根据供体心脏移动的平均距离进行分组,基于它们是否从>250英里外接受了超过50%的器官。提供了等待名单和移植患者的描述性统计数据。回归分析建模候补死亡率,移植的发生率,总生存率,和移植物存活。
    结果:平均旅行距离较长的中心年平均移植量较高,等待名单的总天数减少(86.6vs.149.2天),冷缺血时间增加(3.6vs.3.2h),移植后总生存率或移植物生存率没有显着差异。
    结论:在保留移植后结局的同时减少候补时间的益处广泛扩展。在新的器官采购和保存技术时代,当我们修改器官移植政策时,在这项调查中观察到的趋势将是有用的。
    BACKGROUND: The 2018 UNOS allocation policy change deprioritized geographic boundaries to organ distribution, and the effects of this change have been widespread. The aim of this investigation was to analyze changes in donor transplant center distance for organ travel and corresponding outcomes before and after the allocation policy change.
    METHODS: The UNOS database was utilized to identify all adult patients waitlisted for heart transplants from 2016 to 2021. Transplant centers were grouped by average donor heart travel distance based on whether they received more or less than 50% of organs from >250 miles away. Descriptive statistics were provided for waitlisted and transplanted patients. Regression analyses modeled waitlist mortality, incidence of transplant, overall survival, and graft survival.
    RESULTS: Centers with a longer average travel distance had a higher mean annual transplant volume with a reduction in total days on a waitlist (86.6 vs. 149.2 days), an increased cold ischemic time (3.6 vs. 3.2 h), with no significant difference in post-transplant overall survival or graft survival.
    CONCLUSIONS: The benefits of reducing waitlist time while preserving post-transplant outcomes extend broadly. The trends observed in this investigation will be useful as we revise organ transplant policy in the era of new organ procurement and preservation techniques.
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  • 文章类型: Journal Article
    丙型肝炎病毒(HCV)是全球重大的公共卫生挑战,由于慢性肝病而导致大量发病率和死亡率。尽管有高效且耐受性良好的直接抗病毒疗法,在丙型肝炎筛查中仍然存在广泛的差异,获得治疗,与护理的联系,和治疗结果。这篇综述文章综合了来自各种研究的证据,以强调这些差异的多因素性质,影响少数民族,社会经济地位较低的人,有物质使用障碍的人,以及惩教设施内的人。该审查还讨论了克服障碍并确保对所有HCV患者的公平护理所需的政策含义和有针对性的策略。提供了对未来研究的建议,以解决旨在缩小差距的干预措施的知识和有效性评估方面的差距。
    Hepatitis C virus (HCV) is a significant public health challenge globally, with substantial morbidity and mortality due to chronic liver disease. Despite the availability of highly effective and well-tolerated direct-acting antiviral therapies, widespread disparities remain in hepatitis C screening, access to treatment, linkage to care, and therapeutic outcomes. This review article synthesizes evidence from various studies to highlight the multifactorial nature of these disparities, which affects ethnic minorities, people with lower socioeconomic status, individuals with substance use disorders, and those within correctional facilities. The review also discusses policy implications and targeted strategies needed to overcome barriers and ensure equitable care for all individuals with HCV. Recommendations for future research to address gaps in knowledge and evaluation of the effectiveness of interventions designed to reduce disparities are provided.
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  • 文章类型: Journal Article
    背景:传统的开放式中线颈椎后路融合术有一些缺点。它会导致软组织损伤,肌肉萎缩,如果筋膜裂开,则会损害侧块和疼痛的突出颈椎后路器械或棘突。此外,患者经常经历邻近节段疾病的快速发展,这可能导致衰弱性疼痛和功能障碍的再次出现。临床相关性:保留组织的颈椎后路融合术是治疗有症状的颈椎间盘退行性疾病患者的替代方法。然而,广泛的临床采用受到模棱两可的挑战,关于适当的程序报销编码的误解和误解。技术进步:保留组织的颈椎后路融合程序于2018年获得美国食品和药物管理局(FDA)的批准(CORUS™脊柱系统和CAVUX®小平面固定系统(CORUS/CAVUX);Providence™医疗技术)。该技术通过实现颈椎后路融合的稳定性和结果,解决了传统脊柱融合方法的问题,而没有传统方法中与明显的肌肉剥离相关的发病率。该技术使用专门的植入物和仪器来执行促进骨融合和提供稳定性所需的所有步骤,同时最小化组织破坏。该技术涉及广泛的骨准备,用于融合和放置跨越小关节的专门稳定植入物,促进自然骨骼生长和融合,同时减少广泛暴露的需要。该程序提供了一种有效的,针对颈椎间盘退行性疾病患者的微创解决方案。报销和编码清晰度:本文为保留组织的颈椎后路融合的适当报销编码提供了全面的基本原理。这是医疗技术的采用和可及性的关键方面。这些信息对从业人员和医疗保健管理人员至关重要,确保创新程序得到准确编码和报销。程序细节和临床证据:通过详细说明程序步骤,使用的仪器和程序的生理基础,本文为脊柱外科医生和付款人提供了宝贵的教育资源,可以为该程序进行适当的编码。结论:CORUS/CAVUX的工作描述与当前的侧块螺钉固定的手术标准相当,该螺钉固定带有剥脱术和高架后路移植以促进后路融合。因此,建议使用CPT代码22600/22840,因为它们最能反映手术方法,仪器仪表,剥皮,颈椎后路融合植骨手术。
    Background: The traditional open midline posterior cervical spine fusion procedure has several shortcomings. It can cause soft tissue damage, muscle atrophy, compromise of the lateral masses and painful prominent posterior cervical instrumentation or spinous process if there is dehiscence of the fascia. Additionally, patients frequently experience the rapid development of adjacent segment disease, which can result in the reemergence of debilitating pain and functional impairment. Clinical relevance: Tissue-sparing posterior cervical fusion is an alternative method for treating patients with symptomatic cervical degenerative disc disease. However, widespread clinical adoption has been challenged by ambiguity, misunderstandings and misinterpretations regarding appropriate procedural reimbursement coding. Technological advancement: The tissue-sparing posterior cervical fusion procedure was approved by the US Food and Drug Administration (FDA) in 2018 (CORUS™ Spinal System and CAVUX® Facet Fixation System (CORUS/CAVUX); Providence™ Medical Technology). This technique addresses the concerns with traditional spine fusion methods by achieving the stability and outcomes of posterior cervical fusion without the morbidity associated with significant muscle stripping in the traditional approach. This technology uses specialized implants and instrumentation to perform all of the steps required to facilitate bone fusion and provide stability while minimizing tissue disruption. The technique involves extensive bone preparation for fusion and placement of specialized stabilization implants that span the facet joint, promoting natural bone growth and fusion while reducing the need for extensive exposure. This procedure provides an effective, less invasive solution for patients with cervical degenerative disc disease. Reimbursement and coding clarity: The article provides a comprehensive rationale for appropriate reimbursement coding for tissue-sparing posterior cervical fusion. This is a critical aspect for the adoption and accessibility of medical technologies. This information is crucial for practitioners and healthcare administrators, ensuring that innovative procedures are accurately coded and reimbursed. Procedural details and clinical evidence: By detailing the procedural steps, instruments used and the physiological basis for the procedure, this article serves as a valuable educational resource for spine surgeons and payers to appropriately code for this procedure. Conclusions: The description of work for CORUS/CAVUX is equivalent to the current surgical standard of lateral mass screw fixation with decortication and onlay posterior grafting to facilitate posterior fusion. Thus, it is recommended that CPT codes 22600/22840 be used, as they best reflect the surgical approach, instrumentation, decortication, posterior cervical fusion and bone grafting procedures.
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  • 文章类型: Journal Article
    阿片类药物危机严重影响了脊柱外科的疼痛管理实践,促使对传统方法进行批判性的重新评估。虽然阿片类药物历来有效缓解术后疼痛,它们的广泛使用导致了巨大的公共卫生挑战,包括成瘾和过量。这篇综述探讨了脊柱手术中阿片类药物的替代策略,强调非阿片类药物选择[例如,非甾体抗炎药(NSAIDs),肌肉松弛剂,局部麻醉药]和非药物干预(例如,物理治疗,认知行为疗法)。这些替代方案旨在减轻阿片类药物相关风险,同时优化患者预后。关键发现突出了这些方法的功效,安全考虑,和实际影响。建议包括个性化疼痛管理计划和多学科合作,以加强护理服务。未来的方向建议推进创新疼痛管理技术的研究,并促进循证实践以减轻阿片类药物依赖。最终,将这些策略纳入临床实践对于解决阿片类药物危机和确保脊柱外科的优质护理至关重要.
    The opioid crisis has significantly impacted pain management practices in spine surgery, prompting a critical reassessment of traditional approaches. While opioids have historically been effective for post-operative pain relief, their widespread use has led to substantial public health challenges, including addiction and overdose. This review explores alternative strategies to opioids in spine surgery, emphasizing non-opioid pharmacological options [e.g., nonsteroidal anti-inflammatory drugs (NSAIDs), muscle relaxants, local anesthetics] and non-pharmacological interventions (e.g., physical therapy, cognitive-behavioral therapy). These alternatives aim to mitigate opioid-related risks while optimizing patient outcomes. Key findings highlight these approaches\' efficacy, safety considerations, and practical implications. Recommendations include personalized pain management plans and multidisciplinary collaboration to enhance care delivery. Future directions suggest advancing research in innovative pain management technologies and promoting evidence-based practices to mitigate opioid dependence. Ultimately, integrating these strategies into clinical practice is essential for addressing the opioid crisis and ensuring quality care in spine surgery.
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  • 文章类型: Journal Article
    预防儿童肥胖和相关的合并症通常受到少数民族人群医疗保健提供的不成比例差异的阻碍。本研究从少数民族人群父母的角度和经验出发,对影响儿童肥胖和相关共病的情境因素进行分析。
    经过道德批准,通过传单联系了英格兰东北部少数民族人口的家庭(n=180),社区社会团体和在线论坛。在联系的180个家庭中,22表达的兴趣,其中12名父母有资格参加这项研究,一个家庭因时间限制而退出。因此,采访了来自少数民族社区的11名父母,其中至少有一个肥胖儿童。每个家庭分别在家中进行访问,并根据研究的定性进行半结构化访谈,描述性现象学设计。其中9个家庭有一个孩子被诊断患有肥胖相关的合并症(非酒精性脂肪肝,肌肉骨骼问题或呼吸系统疾病)。半结构化访谈围绕父母对子女如何受到肥胖和合并症影响的观点和经验进行标准化。医疗保健预防性干预措施,包括生活方式体力活动和营养,以及解决肥胖对他们生活影响的观点。所有访谈均使用定性主题分析进行分析。
    父母的观点揭示了11个主题,围绕着与肥胖儿童生活在一起的经历,风险,与肥胖相关的非传染性疾病的影响;以及获得支持的机会,和少数民族特有的障碍。父母透露了社会劣势,害怕受到社会服务的伤害,对他们文化和宗教传统的看法,和种族污名化与孩子的体重有关。父母报告说,与孩子的联系更加紧密,以保护他们免受超重的不良后果,对医疗保健肥胖预防计划知之甚少。工作压力,缺乏时间,缺乏专业人士的指导被视为健康生活方式的障碍,虽然朋友的支持和更亲密的家庭纽带在采用健康的生活方式行为方面是促进者。然而,人们很少意识到或接触到目前的医疗保健肥胖预防产品。
    少数民族社区关于儿童肥胖预防的观点与医疗保健系统的预防性产品不符。面向社区和家庭的肥胖预防方法,尤其是生活方式干预需要超出那些由初级卫生保健系统管理.
    UNASSIGNED: Preventing childhood obesity and associated comorbidities is often hampered by disproportionate disparity in healthcare provision in minority ethnic populations. This study contextualized factors influencing childhood obesity and related comorbidity from the perspectives and experiences of parents of ethnic minority populations.
    UNASSIGNED: Following ethical approval, families (n = 180) from ethnic minority populations in the Northeast of England were contacted through flyers, community social groups and online forum. Of the 180 families contacted, 22 expressed interests, of whom 12 parents were eligible to participate in the study, and one family dropped out due to time constraints. Therefore 11 parents from ethnic minority communities living with at least one child with obesity were interviewed. Each family was separately visited at home and took part in a semi-structured interview based on the study\'s qualitative, descriptive phenomenological design. Nine of the families had one child who was diagnosed with an obesity-related comorbidity (non-alcoholic fatty liver disease, musculoskeletal problems or respiratory disorder). Semi-structured interviews were standardized around parents\' perspective and experience on how their children were impacted by obesity and comorbidities, healthcare preventative interventions including lifestyle physical activity and nutrition, and views on tackling obesity impact on their lives. All interviews were analyzed using qualitative thematic analysis.
    UNASSIGNED: Parents\' perspectives revealed 11 themes centered around experience of living with a child with obesity, risks, and impact of obesity related Non-Communicable Diseases; and access to support, and barriers unique to minority ethnic groups. Parents revealed social disadvantages, fear of victimization by social services, perceptions on their cultural and religious traditions, and racial stigmatization related to their child\'s weight. Parents reported closer bonding with their children to protect them from the untoward consequences of overweight, and little awareness of healthcare obesity prevention programs. Work pressure, lack of time, absence of guidance from professionals were seen as barriers to healthy lifestyle, while support from friends and closer family bond in adopting healthy lifestyle behaviors were facilitators. However, there was little awareness or access to current healthcare obesity preventive offerings.
    UNASSIGNED: Minority ethnic communities\' perspective on childhood obesity prevention does not match the healthcare system preventative offerings. Community and family-oriented obesity preventative approaches, especially lifestyle interventions are needed beyond those administered by the primary healthcare system.
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  • 文章类型: Journal Article
    骨科目前正在出现采用转化研究策略的以患者为中心的多重护理模式的几种趋势。这些与疼痛中的表观遗传学讨论无缝对齐,一种疼痛管理的临床方法,优先考虑根据个人需求定制医疗保健,preferences,和环境。认识到影响疼痛感知的独特遗传和表观遗传因素,医疗保健提供者可以将个性化见解整合到他们以患者为中心的方法中,提供更有针对性和有效的疼痛管理策略,适合每个人的经验。定制3D打印技术也可能与更有效和可靠地治疗疼痛性退行性结构异常变得越来越相关。预计他们将与精准医学对肌肉骨骼护理的重新定义齐头并进。需要更有效地分析外科医生的临床决策和患者对高价值骨科护理的看法。共享决策(SDM)对于确定每位患者的最佳解决方案以及提高利益相关者对影响付款人手术或非手术治疗的不同优先级价值的因素的理解至关重要。系统,和其他供应商。在骨科手术中通过有效的SDM识别高价值的骨科手术不仅需要向患者提供信息。Rasch对患者期望的分析可以提供这种细致入微的方法,包括理解患者的价值观,解决误解,并使手术建议与患者特定目标保持一致。在以患者为中心的框架内优化骨科治疗可以推动更广泛支持该领域的报销政策的创新。将高价值与低价值骨科手术分开的研究可能会影响医疗保健决策者的资源分配。
    Several trends toward patient-centered multi-care models employing translational research strategies are currently emerging in orthopaedics. These align seamlessly with epigenetics discussions in pain, a clinical approach to pain management that prioritizes tailoring healthcare to individual needs, preferences, and circumstances. Recognizing the unique genetic and epigenetic factors influencing pain perception, healthcare providers can integrate personalized insights into their patient-centered approach, offering more targeted and effective pain management strategies tailored to each individual\'s experience. Custom 3D-printing technologies may also become increasingly relevant to more effectively and reliably treat painful degenerative structural abnormalities. They are expected to go hand-in-hand with the precision medicine redefinition of musculoskeletal care. More effective analysis of surgeons\' clinical decision-making and patients\' perception of high-value orthopaedic care is needed. Shared Decision Making (SDM) is critical to identifying the best solution for each patient and improving stakeholders\' understanding of factors influencing the diverse prioritizing values of surgical or non-surgical treatments by payers, systems, and other providers. Identifying high-value orthopaedic surgeries via effective SDM in orthopedic surgery requires more than just presenting patients with information. The Rasch analysis of patient expectations can provide this nuanced approach that involves understanding patient values, addressing misconceptions, and aligning surgical recommendations with patient-specific goals. Optimizing orthopaedic treatment within the patient-centered framework can drive innovation in reimbursement policies that support the field more broadly. Research on separating high-value from low-value orthopaedic procedures may likely impact healthcare decision- makers\' resource allocation.
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  • 文章类型: Journal Article
    确保获得适当的眼睛健康服务不仅是一项基本人权,也是保持个人生活质量的关键。预防失明,促进整体福祉。在撒哈拉以南非洲(SSA)等低收入国家尤其如此,认识到获得医疗保健与健康的社会决定因素(SDOH)之间的复杂关系对于解决健康差距至关重要。这项研究的目的不仅是阐明和强调数百万人在获得眼部护理方面面临的障碍,而且还为旨在在不同人群中创造公平机会的干预措施和政策铺平道路。要做到这一点,对护理和相关健康文献累积指数(CINAHL)进行了范围审查,Embase,和PubMed数据库,用于符合搜索词和纳入标准的研究。结果表明,增加视力护理的干预策略必须超越医疗保健部门,以应对多方面的挑战。与参与解决更广泛的民生问题的利益相关者合作,比如粮食安全,教育,和SDOH,必须确保在SSA中全面和可持续地改善视力护理的可及性。
    Ensuring access to proper eye health services is not only a fundamental human right but also crucial for preserving an individual\'s quality of life, preventing blindness, and promoting overall well-being. This is especially true in low-income countries like Sub-Saharan Africa (SSA) where recognizing the intricate relationship between access to healthcare and social determinants of health (SDOH ) is crucial to addressing health disparities. The goal of this study was to elucidate and highlight not only the barriers millions face in obtaining eye care but also pave the way for interventions and policies aimed at creating equitable access across diverse populations. To do this, a scoping review was conducted across the Cumulated Index to Nursing and Allied Health Literature (CINAHL), Embase, and PubMed databases for studies meeting the search terms and inclusion criteria. The results show that intervention strategies that increase vision care must extend beyond the healthcare sector to address the multifaceted challenges. Collaborating with stakeholders involved in addressing broader livelihood issues, such as food security, education, and SDOH, becomes imperative to ensure comprehensive and sustainable improvements in vision care accessibility in SSA.
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  • 文章类型: Journal Article
    在医疗保健的变革性景观中,个性化医疗作为一个关键的转变,利用遗传,环境和生活方式数据,以定制医疗治疗,以提高结果和成本效率。其成功的核心是公众参与并同意在数据隐私问题日益加剧的情况下共享健康数据。为了调查欧洲公众对这一范式的看法,我们进行了一项全面的横断面调查,以捕捉公众对个性化医疗和数据共享模式的看法,包括数字工具和电子记录。该调查在八个主要欧洲联盟国家分发,其结果旨在指导未来的决策和建立信任措施,以确保卫生数据交换。这篇文章描述了我们的方法论方法,调查结果将在随后的出版物中阐述。
    [方框:见正文]。
    In the transformative landscape of healthcare, personalized medicine emerges as a pivotal shift, harnessing genetic, environmental and lifestyle data to tailor medical treatments for enhanced outcomes and cost efficiency. Central to its success is public engagement and consent to share health data amidst rising data privacy concerns. To investigate European public opinion on this paradigm, we executed a comprehensive cross-sectional survey to capture the general public\'s views on personalized medicine and data-sharing modalities, including digital tools and electronic records. The survey was distributed in eight major European Union countries and the results aim at guiding future policymaking and trust-building measures for secure health data exchange. This article delineates our methodological approach, whereby survey findings will be expounded in subsequent publications.
    [Box: see text].
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