Health information

健康信息
  • 文章类型: Journal Article
    将健康信息集成到大学信息系统中对于增强学生的支持和福祉具有巨大的潜力。尽管越来越多的研究强调了大学生面临的问题,包括压力,抑郁症,残疾,在信息学领域,很少在机构层面纳入卫生技术。
    本研究旨在调查大学系统内健康信息集成的现状,并提供设计建议以解决现有的差距和机会。
    我们使用以用户为中心的方法与利益相关者进行访谈和焦点小组会议,以收集对系统的全面见解和要求。方法涉及数据收集,分析,和建议的工作流的开发。
    这项研究的发现揭示了当前在大学信息系统中处理健康和残疾数据的过程中存在的缺陷。在我们的结果中,我们讨论了将健康相关信息集成到学生信息系统中的一些要求,如隐私和保密,及时沟通,任务自动化,残疾资源。我们提出了一个工作流程,将流程分为两个不同的组成部分:健康和残疾系统以及生活质量和健康的衡量标准。拟议的工作流程强调了学术顾问在促进支持和加强利益相关者之间的协调方面的重要作用。
    为了简化工作流程,利益相关者之间的有效协调和重新设计大学信息系统至关重要。然而,实施新系统将需要大量资金和资源。我们强烈强调加强标准化和监管以支持健康和残疾信息系统要求的重要性。通过采用标准化的做法和条例,我们可以确保所需支持系统的顺利有效实施。
    UNASSIGNED: Integrating health information into university information systems holds significant potential for enhancing student support and well-being. Despite the growing body of research highlighting issues faced by university students, including stress, depression, and disability, little has been done in the informatics field to incorporate health technologies at the institutional level.
    UNASSIGNED: This study aims to investigate the current state of health information integration within university systems and provide design recommendations to address existing gaps and opportunities.
    UNASSIGNED: We used a user-centered approach to conduct interviews and focus group sessions with stakeholders to gather comprehensive insights and requirements for the system. The methodology involved data collection, analysis, and the development of a suggested workflow.
    UNASSIGNED: The findings of this study revealed the shortcomings in the current process of handling health and disability data within university information systems. In our results, we discuss some requirements identified for integrating health-related information into student information systems, such as privacy and confidentiality, timely communication, task automation, and disability resources. We propose a workflow that separates the process into 2 distinct components: a health and disability system and measures of quality of life and wellness. The proposed workflow highlights the vital role of academic advisors in facilitating support and enhancing coordination among stakeholders.
    UNASSIGNED: To streamline the workflow, it is vital to have effective coordination among stakeholders and redesign the university information system. However, implementing the new system will require significant capital and resources. We strongly emphasize the importance of increased standardization and regulation to support the information system requirements for health and disability. Through the adoption of standardized practices and regulations, we can ensure the smooth and effective implementation of the required support system.
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  • 文章类型: Journal Article
    背景:COVID-19大流行刺激了全球传染病的增长。为了对抗COVID-19信息流行,有必要了解什么样的错误信息正在传播。此外,各种当地因素影响着信息在不同国家的表现。因此,了解不同国家之间的传染病是如何以及为什么不同的是公共卫生的利益问题。这项研究旨在阐明和比较美国和日本的信息流行产生的COVID-19错误信息的类型。
    方法:COVID-19事实核查文章是从两种语言的事实核查文章的两个最大出版商处获得的。收集了1,743篇美国文章和148篇以各自语言编写的日本文章,文章发表于2020年1月23日至2022年11月4日之间。使用自由文本挖掘软件KHCoder对文章进行分析。对经常出现的单词和相关单词组进行了探索。根据集聚图和先前的研究,创建了八类错误信息。最后,为这八个类别创建了编码规则,并进行卡方检验以比较两个数据集。
    结果:总体而言,两种语言中最常见的单词都与健康相关术语有关,但是日本的数据集中有更多的单词指的是外国。在八个类别中,在Holm-Bonferronip值调整有关统计数据的错误信息比例后,发现卡方p≤0.01的差异(US40.0%vs.JP25.7%,Φ0.0792);病毒的起源和由此产生的歧视(美国7.0%vs.JP20.3%,Φ0.1311);和COVID-19疾病严重程度,治疗,或测试(美国32.6%与JP45.9%,Φ0.0756)。
    结论:发现当地环境因素可能影响这两个国家的疾病流行;这些因素的代表包括美国的社会两极分化和日本的HPV疫苗恐慌。日本对错误信息的相对抵制可能会影响消费的错误信息的种类,将注意力从阴谋论转移到与健康相关的问题上。然而,需要做更多的研究来验证错误信息抵抗是否以这种方式影响错误信息消费模式。
    BACKGROUND: The COVID-19 pandemic has spurred the growth of a global infodemic. In order to combat the COVID-19 infodemic, it is necessary to understand what kinds of misinformation are spreading. Furthermore, various local factors influence how the infodemic manifests in different countries. Therefore, understanding how and why infodemics differ between countries is a matter of interest for public health. This study aims to elucidate and compare the types of COVID-19 misinformation produced from the infodemic in the US and Japan.
    METHODS: COVID-19 fact-checking articles were obtained from the two largest publishers of fact-checking articles in each language. 1,743 US articles and 148 Japanese articles in their respective languages were gathered, with articles published between 23 January 2020 and 4 November 2022. Articles were analyzed using the free text mining software KH Coder. Exploration of frequently-occurring words and groups of related words was carried out. Based on agglomeration plots and prior research, eight categories of misinformation were created. Lastly, coding rules were created for these eight categories, and a chi-squared test was performed to compare the two datasets.
    RESULTS: Overall, the most frequent words in both languages were related to health-related terms, but the Japan dataset had more words referring to foreign countries. Among the eight categories, differences with chi-squared p ≤ 0.01 were found after Holm-Bonferroni p value adjustment for the proportions of misinformation regarding statistics (US 40.0% vs. JP 25.7%, ϕ 0.0792); origin of the virus and resultant discrimination (US 7.0% vs. JP 20.3%, ϕ 0.1311); and COVID-19 disease severity, treatment, or testing (US 32.6% vs. JP 45.9%, ϕ 0.0756).
    CONCLUSIONS: Local contextual factors were found that likely influenced the infodemic in both countries; representations of these factors include societal polarization in the US and the HPV vaccine scare in Japan. It is possible that Japan\'s relative resistance to misinformation affects the kinds of misinformation consumed, directing attention away from conspiracy theories and towards health-related issues. However, more studies need to be done to verify whether misinformation resistance affects misinformation consumption patterns this way.
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  • 文章类型: Journal Article
    互联网已成为人们寻求健康信息的首选来源,包括在炎症性肠病(IBD)管理中至关重要的饮食建议。因此,我们旨在评估中国有关IBD饮食建议的在线信息质量.
    搜索引擎百度和必应被用来使用关键词“炎症性肠病饮食”筛选其前25个网页,“溃疡性结肠炎饮食,\"\"克罗恩病的饮食,“\”炎症性肠病营养,“\”溃疡性结肠炎营养,“和”克罗恩病的营养。“根据《美国医学会杂志》(JAMA)基准,两名医生对信息质量进行了评估,全球质量评分(GQS),以及明确的工具。
    选择了108个网页进行评估。JAMA的平均分数,GQS,和DISCERN分别为1.48、3.11和36.20。与商业和健康门户网站相比,专业人士和非营利组织的文章表现出卓越的质量。许多网页未能为共享决策提供明确的信息来源或支持。几页的信息缺乏对IBD食物类型的全面描述,有些页面甚至包含不准确之处。百度和必应之间的得分没有统计学上的显着差异。
    中国IBD饮食建议的在线信息质量中等到较低,并且在不同来源之间表现出明显差异。这需要网络作者的共同努力,互联网平台,和监管机构,提高大众医疗信息的质量。
    UNASSIGNED: The internet has become a preferred source for people seeking health information, including diet recommendations which are pivotal in the management of inflammatory bowel disease (IBD). Hence, we aimed to assess the quality of online information in China regarding IBD dietary recommendations.
    UNASSIGNED: The search engines Baidu and Bing were used to screen for their top 25 webpages using the keywords \"inflammatory bowel disease diet,\" \"ulcerative colitis diet,\" \"Crohn\'s disease diet,\" \"inflammatory bowel disease nutrition,\" \"ulcerative colitis nutrition,\" and \"Crohn\'s disease nutrition.\" The quality of information was assessed by two physicians according to the Journal of the American Medical Association (JAMA) benchmark, the Global Quality Score (GQS), and the DISCERN instrument.
    UNASSIGNED: One hundred and eight webpages were selected for evaluation. The mean scores for JAMA, GQS, and DISCERN were 1.48, 3.11, and 36.20, respectively. Articles from professionals and non-profit organizations demonstrated superior quality compared to those from commercial and health portal websites. Many webpages failed to provide an explicit source of information or support for shared decision-making. The information on several pages lacked comprehensive descriptions of food types for IBD, with some pages even containing inaccuracies. No statistically significant differences in scores were observed between Baidu and Bing.
    UNASSIGNED: The quality of online information on IBD dietary recommendations in China is moderate to low and exhibits significant variation across different sources. This warrants joint efforts from online authors, internet platforms, and regulators, to improve the quality of popular medical information.
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  • 文章类型: Journal Article
    偏头痛是世界范围内最常见和最昂贵的神经系统疾病之一。非药理学和数字递送的治疗选择已经长期用于偏头痛的治疗。例如,偏头痛管理工具,已使用在线偏头痛诊断或数字联网患者。最近,ChatGPT的应用用于医疗保健领域,从识别潜在的研究课题到协助专业人员进行临床诊断并帮助患者管理健康。尽管偏头痛管理取得了进展,只有少数患者得到充分的信息和治疗。重要的是为这些患者提供信息,以帮助他们管理症状和日常活动。本案例研究的主要目的是检查ChatGPT负责任地处理症状描述的适当性,建议从可靠的来源提供补充援助,提供关于治疗选择的有价值的观点,并对偏头痛患者的日常生活产生潜在影响。使用演绎,定性研究,通过半结构化访谈分析了不同类型偏头痛患者与ChatGPT的十种相互作用。ChatGPT提供了与常见的科学患者资源一致的相关信息。反应通常是可理解的,在情况上是适当的,提供个性化的见解,尽管偶尔在互动中存在差异。ChatGPT的移情语气和语言清晰度鼓励用户参与。然而,发现来源引用不一致,在某些情况下,不可理解,这影响了信息的整体可理解性。ChatGPT对于寻求偏头痛疾病信息的患者可能很有希望。其特定于用户的响应显示了与基于Web的静态源相比的潜在优势。然而,可重复性和准确性问题凸显了数字健康素养的必要性。这些发现强调了持续评估人工智能系统及其在健康传播中更广泛的社会影响的必要性。
    Migraines are one of the most common and expensive neurological diseases worldwide. Non-pharmacological and digitally delivered treatment options have long been used in the treatment of migraines. For instance, migraine management tools, online migraine diagnosis or digitally networked patients have been used. Recently, applications of ChatGPT are used in fields of healthcare ranging from identifying potential research topics to assisting professionals in clinical diagnosis and helping patients in managing their health. Despite advances in migraine management, only a minority of patients are adequately informed and treated. It is important to provide these patients with information to help them manage the symptoms and their daily activities. The primary aim of this case study was to examine the appropriateness of ChatGPT to handle symptom descriptions responsibly, suggest supplementary assistance from credible sources, provide valuable perspectives on treatment options, and exhibit potential influences on daily life for patients with migraines. Using a deductive, qualitative study, ten interactions with ChatGPT on different migraine types were analyzed through semi-structured interviews. ChatGPT provided relevant information aligned with common scientific patient resources. Responses were generally intelligible and situationally appropriate, providing personalized insights despite occasional discrepancies in interaction. ChatGPT\'s empathetic tone and linguistic clarity encouraged user engagement. However, source citations were found to be inconsistent and, in some cases, not comprehensible, which affected the overall comprehensibility of the information. ChatGPT might be promising for patients seeking information on migraine conditions. Its user-specific responses demonstrate potential benefits over static web-based sources. However, reproducibility and accuracy issues highlight the need for digital health literacy. The findings underscore the necessity for continuously evaluating AI systems and their broader societal implications in health communication.
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  • 文章类型: Journal Article
    背景:口臭,以不良的口腔气味为特征,代表了一个共同的关注。
    目的:本研究旨在评估基于网络的阿拉伯口臭健康信息的质量和可读性,因为互联网正在成为全球重要的医疗信息来源。
    方法:从Google检索了300个阿拉伯语网站,使用3个常用的阿拉伯语口臭短语。网站的质量是使用《美国医学会杂志》建立的基准标准进行评估的,明确的工具,以及网络基金会行为准则(HONcode)上健康的存在。可读性评估(Flesch阅读轻松[FRE],Gobbledygook的简单测量,和Flesch-Kincaid等级[FKGL])使用基于网络的可读性指标进行。
    结果:共检查了127个网站。关于质量评估,87.4%(n=111)的网站未能满足美国医学会杂志的任何要求,强调缺乏作者身份(作者的贡献),归因(参考文献),披露(赞助),和货币(发布日期)。DISCERN工具的平均得分为34.55(SD7.46),大多数(n=72,56.6%)被评为中等质量,43.3%(n=55)得分较低,没有人获得高分,表明在提供高质量的健康信息以做出决策和治疗选择方面存在普遍不足。没有网站有HONcode认证,强调对这些资源的可信度和可信度的关注。关于可读性评估,阿拉伯语口臭网站的可读性得分很高,90.5%(n=115)的FRE评分≥80分,98.4%(n=125)的Gobbledygook简单测量评分<7分,67.7%(n=86)的FKGL评分<7分。DISCERN评分与网站上的单词数量(P<.001)和句子数量(P<.001)之间存在显着相关性。此外,句子数量与FKGL和FRE评分之间存在显著关系(P<.001)。
    结论:虽然发现可读性非常好,表明该信息可供公众访问,阿拉伯口臭网站的质量很差,反映了在提供可靠和全面的健康信息方面的巨大差距。这突出了需要提高高质量材料的可用性,以确保讲阿拉伯语的人群能够获得关于口臭及其治疗方案的可靠信息,将质量和可用性联系在一起,这对于有效的健康沟通至关重要。
    BACKGROUND: Halitosis, characterized by an undesirable mouth odor, represents a common concern.
    OBJECTIVE: This study aims to assess the quality and readability of web-based Arabic health information on halitosis as the internet is becoming a prominent global source of medical information.
    METHODS: A total of 300 Arabic websites were retrieved from Google using 3 commonly used phrases for halitosis in Arabic. The quality of the websites was assessed using benchmark criteria established by the Journal of the American Medical Association, the DISCERN tool, and the presence of the Health on the Net Foundation Code of Conduct (HONcode). The assessment of readability (Flesch Reading Ease [FRE], Simple Measure of Gobbledygook, and Flesch-Kincaid Grade Level [FKGL]) was conducted using web-based readability indexes.
    RESULTS: A total of 127 websites were examined. Regarding quality assessment, 87.4% (n=111) of websites failed to fulfill any Journal of the American Medical Association requirements, highlighting a lack of authorship (authors\' contributions), attribution (references), disclosure (sponsorship), and currency (publication date). The DISCERN tool had a mean score of 34.55 (SD 7.46), with the majority (n=72, 56.6%) rated as moderate quality, 43.3% (n=55) as having a low score, and none receiving a high DISCERN score, indicating a general inadequacy in providing quality health information to make decisions and treatment choices. No website had HONcode certification, emphasizing the concern over the credibility and trustworthiness of these resources. Regarding readability assessment, Arabic halitosis websites had high readability scores, with 90.5% (n=115) receiving an FRE score ≥80, 98.4% (n=125) receiving a Simple Measure of Gobbledygook score <7, and 67.7% (n=86) receiving an FKGL score <7. There were significant correlations between the DISCERN scores and the quantity of words (P<.001) and sentences (P<.001) on the websites. Additionally, there was a significant relationship (P<.001) between the number of sentences and FKGL and FRE scores.
    CONCLUSIONS: While readability was found to be very good, indicating that the information is accessible to the public, the quality of Arabic halitosis websites was poor, reflecting a significant gap in providing reliable and comprehensive health information. This highlights the need for improving the availability of high-quality materials to ensure Arabic-speaking populations have access to reliable information about halitosis and its treatment options, tying quality and availability together as critical for effective health communication.
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  • 文章类型: Journal Article
    背景:挪威对电子健康的使用率很高。
    方法:本文总结并讨论了Tromsø7研究的公开数据,2015年至2016年进行,重点是挪威40岁及以上人口的电子卫生利用。
    结果:超过一半的参与者报告说使用互联网进行健康目的。获取信息的主要渠道是搜索引擎,应用程序,社交媒体平台,和在线视频。受访者经常根据网上获得的信息采取行动,和在线健康信息影响了有关医疗保健利用和治疗管理的决策。大多数受访者表示对网上发现的信息有积极的反应。
    结论:Tromsø7研究强调了电子健康在挪威的广泛利用。该研究还强调了电子健康对个人健康相关决策过程的重大影响。研究结果表明,整体使用电子卫生并不能取代传统卫生服务的使用,而是作为补充。大多数受访者报告对在线健康信息的积极反应,强调电子健康在现代医疗保健实践中的重要性和相关性。
    BACKGROUND: Norway has a high use of e-health.
    METHODS: This paper summarizes and discusses the published data from the Tromsø 7 Study, conducted between 2015 and 2016, focusing on e-health utilization in the Norwegian population aged 40 and above.
    RESULTS: More than half of the participants reported using the Internet for health purposes. The main channels for obtaining information were search engines, apps, social media platforms, and online videos. The respondents frequently acted upon the information obtained online, and online health information influenced decisions regarding healthcare utilization and treatment management. Most respondents indicated a positive reaction to the information found online.
    CONCLUSIONS: The Tromsø 7 Study highlights the widespread utilization of e-health in Norway. The study also emphasizes the significant impact of e-health on individuals\' decision-making processes related to their health. The findings suggest that the use of e-health overall does not replace the use of traditional health services, but rather functions as a supplement. Most respondents report positive reactions to online health information, highlighting the importance and relevance of e-health in modern healthcare practices.
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  • 文章类型: Journal Article
    目的:结直肠癌(CRC)幸存者报告说,出院后医疗保健专业人员的饮食和体力活动指导是有限的。幸存者从其他来源寻求建议。这项研究严格地综合了英语饮食和体育活动指导,可在线获得CRC幸存者。
    方法:我们进行了互联网搜索,以确定CRC发病率高的国家的国家癌症组织(NCO)。我们在NCO网站上搜索了有关饮食和体力活动的指导。建议按癌症阶段(预防/生存)分类,癌症类型,和预期结局(健康或癌症控制-CRC复发/CRC特异性死亡率)。综合指南来自至少一半来源一致提出的建议。
    结果:我们确定了来自六个国家的12个NCO,他们提出了27项饮食和身体活动建议。对于预防儿童权利公约,超过80%的建议旨在改善癌症控制结局.对于CRC幸存者,不到40%的建议旨在改善癌症控制结局.体力活动是超过50%的NCO网站上提出的唯一建议,旨在改善CRC幸存者的癌症控制结果。
    结论:NCO网站上对CRC幸存者的饮食和体力活动指导是有限的,主要基于改善总体健康的建议。没有改善癌症控制结果。NCO网站经常向幸存者提供初级预防指导,这可能反映了缺乏专门针对CRC生存的证据。有必要为幸存者提供基于证据的饮食和身体活动建议,全面,并且在组织之间保持一致,并针对特定的癌症地点进行定制。
    OBJECTIVE: Colorectal cancer (CRC) survivors report that diet and physical activity guidance from healthcare professionals following discharge from care is limited. Survivors seek advice from alternative sources. This study critically synthesised the English language diet and physical activity guidance available online for CRC survivors.
    METHODS: We conducted an internet search to identify national cancer organisations (NCO) in countries with high CRC incidence rates. We searched NCO website content for guidance related to diet and physical activity. Recommendations were categorised by cancer phase (prevention/survivorship), cancer type, and the intended outcome (health or cancer-control-CRC recurrence/CRC-specific mortality). A synthesised guideline was derived from recommendations consistently made by at least half of the sources.
    RESULTS: We identified 12 NCOs from six countries, by whom 27 diet and physical activity recommendations were made. For CRC prevention, over 80% of recommendations were aimed at improving cancer-control outcomes. For CRC survivorship, less than 40% of recommendations were aimed at improving cancer-control outcomes. Physical activity was the only recommendation present on more than 50% of NCO websites aimed at improving cancer-control outcomes for CRC survivorship.
    CONCLUSIONS: Diet and physical activity guidance for CRC survivors on NCO websites is limited and primarily based on recommendations for improving general health, not improving cancer-control outcomes. NCO websites frequently refer survivors to primary prevention guidance, potentially reflecting the lack of evidence specific to CRC survivorship. There is a need for diet and physical activity advice for survivors that is evidence-based, comprehensive, and consistent across organisations and tailored to specific cancer sites.
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  • 文章类型: Journal Article
    背景:通过互联网在受灾地区癌症患者中寻求健康信息的研究不足。
    目的:这项研究不仅旨在评估2011年福岛三重灾难受灾地区癌症患者中基于网络的健康信息获取的程度和方式,还将这些模式与没有癌症的患者进行比较。识别影响他们基于网络的健康信息行为的独特和共同的因素。
    方法:我们调查了Minamisoma市总医院外科门诊的404例患者(263例和141例无癌),从2016年10月到2017年1月。调查包括有关互联网和数字设备使用的自我管理问题。进行了描述性分析,以检查数字设备和互联网的使用模式及其对不同年龄段的癌症患者和非癌症患者寻求健康信息的影响。多变量逻辑回归用于检查与基于网络的健康信息寻求相关的因素,通过癌症诊断进行分层。
    结果:癌症患者和非癌症患者在互联网上寻求健康信息的参与者比例相当(19%vs17.4%;P=.71)。数字设备的使用随着年龄的增长而显著变化,在两组中最年轻的队列中,智能手机使用高峰。多变量逻辑回归显示,每天使用智能手机或平板电脑的癌症患者更有可能收集基于网络的健康信息(智能手机的比值比[OR]3.73,95%CI1.58-8.80;或平板电脑5.08,95%CI1.27-20.35)。对机构网站的信任也显着影响了癌症患者基于网络的健康信息收集(OR2.87,95%CI1.13-7.25)。相反,在没有癌症的患者中,失业与寻求基于网络的健康信息的可能性较低相关(OR0.26,95%CI0.08-0.85),而对机构网站和个人网站的信任显著增加了这种可能性(对于机构网站,OR为6.76,95%CI2.19-20.88;对于个人网站,OR为6.97,95%CI1.49-32.58).
    结论:这项研究表明,一小部分癌症患者和非癌症患者都通过互联网寻求健康信息,受年龄影响,数字设备使用,以及对机构网站的信任。鉴于数字素养的日益普及,应制定战略,以增强可访问和可靠的基于网络的健康信息,特别是对于灾后癌症患者。未来的努力应侧重于针对这些人群的独特需求的量身定制的健康传播策略。
    BACKGROUND: Health information seeking via the internet among patients with cancer in disaster-affected areas is underresearched.
    OBJECTIVE: This study aims not only to assess the extent and means of web-based health information seeking among patients with cancer living in the disaster-affected area of the 2011 Fukushima triple disaster but also to compare these patterns with those without cancer, identifying distinct and shared factors influencing their web-based health information behaviors.
    METHODS: We surveyed 404 patients (263 with and 141 without cancer) from the surgery department outpatient office at Minamisoma Municipal General Hospital, from October 2016 to January 2017. The survey included self-administered questions on internet and digital device use. Descriptive analyses were performed to examine the use patterns of digital devices and the internet and their impact on health information seeking across different age groups of patients with and without cancer. Multivariable logistic regression was used to examine factors associated with web-based health information seeking, stratifying by cancer diagnosis.
    RESULTS: The proportion of participants who sought health information on the internet was comparable between patients with cancer and patients without cancer (19% vs 17.4%; P=.71). Digital device use varied significantly with age, with peak smartphone use occurring among the youngest cohorts for both groups. Multivariable logistic regression revealed that patients with cancer using smartphones or tablets daily were significantly more likely to gather web-based health information (odds ratio [OR] for smartphones 3.73, 95% CI 1.58-8.80; OR for tablets 5.08, 95% CI 1.27-20.35). Trust in institutional websites also significantly influenced web-based health information gathering among patients with cancer (OR 2.87, 95% CI 1.13-7.25). Conversely, among patients without cancer, unemployment was associated with a lower likelihood of seeking web-based health information (OR 0.26, 95% CI 0.08-0.85), whereas trust in both institutional and personal websites significantly increased this likelihood (OR for institutional websites 6.76, 95% CI 2.19-20.88; OR for personal websites 6.97, 95% CI 1.49-32.58).
    CONCLUSIONS: This study reveals that a small proportion of both patients with cancer and patients without cancer engage in health information seeking via the internet, influenced by age, digital device use, and trust in institutional websites. Given the growing prevalence of digital literacy, strategies to enhance accessible and reliable web-based health information should be developed, particularly for patients with cancer in postdisaster settings. Future efforts should focus on tailored health communication strategies that address the unique needs of these populations.
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  • 文章类型: Journal Article
    简介纤维肌痛,以慢性肌肉骨骼疼痛和相关症状为特征,在诊断和管理方面提出了重大挑战。虽然像TikTok这样的社交媒体平台已经成为流行的健康信息来源,它们的可变内容质量需要批判性评估。这项研究旨在评估与纤维肌痛相关的TikTok视频的质量和可靠性,从而增强对患者教育和自我管理的影响的认识。方法2024年6月进行了一项横断面观察研究,使用“纤维肌痛”等搜索词分析了150个TikTok视频,“纤维肌痛症状”,和“纤维肌痛治疗”。根据相关性和语言(英语)对视频进行了评估,通过采用全球质量量表(GQS)和消费者健康信息质量标准(DISCERN)评分进行评估。使用IBMSPSSStatisticsv21.0(IBMCorp.,Armonk,NY).使用了Kruskall-Wallis测试,并且p值小于0.05被认为具有统计学意义。结果在最初审查的150个视频中,96(64%)符合纳入标准。内容类别包括疾病描述(34,35.42%),症状(81,84.38%),管理层(64,66.67%),和个人经历(63,65.63%)。视频由医生上传(8,8.33%),患者(63,65.63%),医护人员(7.29%),和其他(18,18.75%)。平均GQS评分因上传者类型而异:医生(4.63±0.52),医护人员(3.43±0.79),患者(2.37±0.81),和其他(2.11±0.47)(p<0.001)。DISCERN评分遵循类似的趋势:医生(3.88±0.64),医护人员(2.14±1.46),患者(1.08±0.27),和其他(1.61±0.50)(p<0.001)。结论TikTok是纤维肌痛相关话语的关键平台,主要由患者生成的内容塑造。然而,尽管它提供了对症状和管理策略的见解,在全面的医疗指导和预防措施方面存在差距。该研究强调了医疗保健专业人员在增强社交媒体上的内容可靠性和教育价值方面的关键作用。未来的研究应该探索文化和语言的多样性,以扩大健康信息在TikTok等平台上的可及性和相关性。
    Introduction Fibromyalgia, characterized by chronic musculoskeletal pain and associated symptoms, poses significant challenges in diagnosis and management. While social media platforms like TikTok have emerged as popular sources of health information, their variable content quality necessitates critical evaluation. This study aimed to assess the quality and reliability of TikTok videos related to fibromyalgia, thereby enhancing the understanding of their impact on patient education and self-management. Methods A cross-sectional observational study was conducted in June 2024, which analyzed 150 TikTok videos using search terms like \"Fibromyalgia\", \"Fibromyalgia Symptoms\", and \"Fibromyalgia Treatment\". Videos were evaluated for inclusion based on relevance and language (English), by employing the Global Quality Scale (GQS) and Quality Criteria for Consumer Health Information (DISCERN) score for assessment. Statistical analysis was performed by using IBM SPSS Statistics v21.0 (IBM Corp., Armonk, NY). The Kruskall-Wallis test was employed, and a p-value less than 0.05 was deemed statistically significant. Results Of the 150 videos initially reviewed, 96 (64%) met the inclusion criteria. Content categories included disease description (34, 35.42%), symptoms (81, 84.38%), management (64, 66.67%), and personal experiences (63, 65.63%). The videos were uploaded by doctors (8, 8.33%), patients (63, 65.63%), healthcare workers ( 7, 7.29%), and others (18, 18.75%). Mean GQS scores varied significantly by uploader type: doctors (4.63 ± 0.52), healthcare workers (3.43 ± 0.79), patients (2.37 ± 0.81), and others (2.11 ± 0.47) (p<0.001). DISCERN scores followed a similar trend: doctors (3.88 ± 0.64), healthcare workers (2.14 ± 1.46), patients (1.08 ± 0.27), and others (1.61 ± 0.50) (p<0.001). Conclusions TikTok serves as a pivotal platform for fibromyalgia-related discourse, predominantly shaped by patient-generated content. However, even though it provides insights into symptoms and management strategies, gaps exist in comprehensive medical guidance and preventive measures. The study underscores the critical role of healthcare professionals in enhancing content reliability and educational value on social media. Future research should explore cultural and linguistic diversity to broaden the accessibility and relevance of health information on platforms like TikTok.
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  • 文章类型: Journal Article
    儿童心理健康问题涉及全世界大量儿童,是一项重大的公共卫生挑战。父母和照顾者缺乏这方面的知识阻碍了有效的管理。赋予家庭权力可以增强他们解决子女困难的能力,提高健康素养,促进积极的变化。然而,由于恐惧,寻求可靠的心理健康信息仍然具有挑战性,污名,以及对信息来源的不信任。
    这项研究评估了网站的接受度,CléPsy,旨在为关注儿童心理健康和育儿的家庭提供可靠的信息和实用工具。
    这项研究检查了用户特征并评估了易用性,有用性,可信度,以及使用网站的态度。平台用户可以通过邮件列表访问自我管理的问卷,社交网络,和2022年5月至7月之间的海报。
    研究结果表明,317名响应者中的大多数同意或有些同意,该网站使与专业人士(n=264,83.3%)或其亲属(n=260,82.1%)的有关心理健康的讨论更容易。根据方差分析,受教育程度和感知信任(F6=3.03;P=.007)以及使用频率和感知有用性(F2=4.85;P=.008)之间存在显著影响。
    该研究强调了用户体验和设计在基于Web的健康信息传播中的重要性,并强调了对可访问和基于证据的信息的需求。虽然这项研究有局限性,它为网站的可接受性和实用性提供了初步支持。未来的努力应侧重于与用户的包容性共建,并解决来自不同文化和教育背景的家庭的信息需求。
    UNASSIGNED: Childhood mental health issues concern a large amount of children worldwide and represent a major public health challenge. The lack of knowledge among parents and caregivers in this area hinders effective management. Empowering families enhances their ability to address their children\'s difficulties, boosts health literacy, and promotes positive changes. However, seeking reliable mental health information remains challenging due to fear, stigma, and mistrust of the sources of information.
    UNASSIGNED: This study evaluates the acceptance of a website, CléPsy, designed to provide reliable information and practical tools for families concerned about child mental health and parenting.
    UNASSIGNED: This study examines user characteristics and assesses ease of use, usefulness, trustworthiness, and attitude toward using the website. Platform users were given access to a self-administered questionnaire by means of mailing lists, social networks, and posters between May and July 2022.
    UNASSIGNED: Findings indicate that the wide majority of the 317 responders agreed or somewhat agreed that the website made discussions about mental health easier with professionals (n=264, 83.3%) or with their relatives (n=260, 82.1%). According to the ANOVA, there was a significant effect between educational level and perceived trust (F6=3.03; P=.007) and between frequency of use and perceived usefulness (F2=4.85; P=.008).
    UNASSIGNED: The study underlines the importance of user experience and design in web-based health information dissemination and emphasizes the need for accessible and evidence-based information. Although the study has limitations, it provides preliminary support for the acceptability and usefulness of the website. Future efforts should focus on inclusive co-construction with users and addressing the information needs of families from diverse cultural and educational backgrounds.
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