Habilitation

适应
  • 文章类型: Journal Article
    这项研究旨在检查与脑瘫(CP)学龄儿童的脑视力障碍(CVI)相关的问卷的心理测量特性。此外,它为职业治疗师提出了基于运动功能的应用流程。总共招募了288名CP儿童进行研究,并进行了CVI运动问卷(CVI-MQ)。使用CVI量表和功能视觉问卷(FVQ)评估儿童的日常视觉表现,并考虑儿童的行走状态。FVQ和从CVI清单中提取的两个因素显着预测了视觉功能。与CVI相关的具体问卷,考虑到粗大运动功能,可以是职业治疗师评估日常视觉表现的有价值的工具。
    This study aims to examine the psychometric properties of questionnaires related to cerebral visual impairment (CVI) in school-age children with cerebral palsy (CP). Additionally, it proposes an application process based on motor functionality for occupational therapists. A total of 288 children with CP were recruited for the study and administered the CVI Motor Questionnaire (CVI-MQ). The children\'s daily visual performance was assessed using the CVI Inventory and the Functional Vision Questionnaire (FVQ) considering the children\'s ambulatory status. The FVQ and the two factors extracted from the CVI Inventory significantly predicted visual functioning. Specific questionnaires related to CVI, applied with gross motor function in mind, can be valuable tools for occupational therapists to assess daily visual performance.
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  • 文章类型: Journal Article
    背景:FUNDES-Child-SE是用于衡量瑞典背景下残疾儿童的参与和独立性的代理评级问卷。它包括出勤频率的组成部分,参与和独立。原来,以前发现台湾FUNDES-Child7.0具有参与频率的四因素结构和独立的两因素结构。本研究的目的是测试FUNDES-Child-SE中的因子结构。要素结构是结构效度的重要组成部分。
    方法:163名6-18岁残疾儿童的照顾者参与了这项横断面研究。探索性因子分析用于找到参与的因素结构。验证性因子分析用于测试所有三个组成部分的因素结构。
    结果:参与频率的拟议因素结构(日常生活参与频率,流动参与频率,学习参与频率和社区参与频率)和独立性(日常生活独立性和社会参与独立性)与FUNDES-Child-SE的数据相符,排除了三到五个项目并添加了两到五个残差协方差。在接合组件中,两个因素,参与非正式活动和参与正式活动,被发现了。在排除一项并添加10个残差协方差后,因子结构与数据具有可接受的拟合。
    结论:要素结构的差异表明出勤和参与是参与的独立方面。在临床设置中使用FUNDES-Child-SE的数字分数之前,应对响应性和可解释性进行评估。
    BACKGROUND: FUNDES-Child-SE is a proxy rating questionnaire for measuring participation and independence in children with disabilities in a Swedish context. It includes the components of frequency of attendance, engagement and independence. The original, Taiwanese FUNDES-Child 7.0, has previously been found to have a four-factor structure for frequency of participation and a two-factor structure for independence. The aim of this study was to test the factor structure in FUNDES-Child-SE. The factor structure is an important part of construct validity.
    METHODS: Caregivers of 163 children with disabilities aged 6-18 years participated in this cross-sectional study. Exploratory factor analysis was used to find the factor structure for Engagement. Confirmatory factor analysis was used to test the factor structure for all three components.
    RESULTS: The proposed factor structure for frequency of participation (daily living participation frequency, mobility participation frequency, learning participation frequency and community participation frequency) and independence (daily living independence and social participation independence) fit with data from FUNDES-Child-SE after excluding three to five items and adding two to five covariances of residuals. In the engagement component, two factors, named engagement in informal activities and engagement in formal activities, were found. After excluding one item and adding 10 covariances of residuals, the factor structure had an acceptable fit to data.
    CONCLUSIONS: Differences in components\' factor structure indicate that attendance and engagement are separate aspects of participation. Before using numeric scores from FUNDES-Child-SE in clinical settings, responsiveness and interpretability should be evaluated.
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  • 文章类型: Journal Article
    本报告总结了SMARTCLAP研究项目,它采用以用户为中心的设计方法来开发革命性的智能产品服务系统。该系统提供个性化的动机,以鼓励脑瘫儿童在职业治疗期间积极参与更多,同时为儿科职业治疗师提供最佳工具来监测儿童从一个疗程到另一个疗程的进展。开发的产品服务系统包括一个名为DigiClap的智能可穿戴设备,用于在增强现实环境中与严肃的游戏进行交互。该报告强调了用于将技术准备水平从4提高到6的研究方法,并承认了财团团队和资金来源的贡献。作为技术成熟过程的一部分,与目标用户一起评估了DigiClap和各自的严肃游戏,为了确定系统在支持儿童整体参与和手功能方面的影响,并收集职业治疗师和护理人员对这项新技术的反馈。讨论了这项研究的结果,强调局限性和经验教训。该报告还概述了未来的工作和进一步的资金,以实现该项目的可持续性,并覆盖其他有上肢限制的个人。最终,讨论了DigiClap的潜力和该项目的总体成就。
    This report summarises the SMARTCLAP research project, which employs a user-centred design approach to develop a revolutionary smart product service system. The system offers personalised motivation to encourage children with cerebral palsy to actively participate more during their occupational therapy sessions, while providing paediatric occupational therapists with an optimal tool to monitor children\'s progress from one session to another. The product service system developed includes of a smart wearable device called DigiClap used to interact with a serious game in an Augmented Reality environment. The report highlights the research methodology used to advance the technology readiness level from 4 to 6, acknowledging the contribution of the consortium team and funding source. As part of the technology\'s maturity process, DigiClap and the respective serious game were evaluated with target users, to identify the system\'s impact in supporting the children\'s overall participation and hand function, and to gather feedback from occupational therapists and caregivers on this novel technology. The outcomes of this study are discussed, highlighting limitations and lessons learned. The report also outlines future work and further funding for the sustainability of the project and to reach other individuals who have upper limb limitations. Ultimately, the potential of DigiClap and the overall achievements of this project are discussed.
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  • 文章类型: Journal Article
    文化意识提醒ABA服务提供商,在进行行为改变编程时考虑他人文化习俗的重要性。关于服务是否适当的决定可能很困难,然而,当客户的价值观与客户所属的文化价值观或从业者的文化偏见相冲突时。为了尽量减少这种冲突,我们提出了一个决策模型,整合了以客户为中心和以文化为中心的康复有效性评估。在整个拟议的评估过程中,行为分析师和服务的接收者合作,以完善计划目标,这将增加客户及其文化团体对增强者的访问。鉴于文化为个人安排了强化者和惩罚者,强调评估受服务影响的文化群体的康复和社会有效性是该模型的重要组成部分。我们通过分析可能涉及价值冲突的情况,说明了如何使用所提出的模型来建议适当的行动方案。
    Cultural awareness reminds ABA service providers of the importance of considering the cultural practices of others when programming for behavior change. Decisions about the appropriateness of services may be difficult, however, when the values of the client conflict with the values of the culture(s) to which the client belongs or with the cultural biases of the practitioner. To minimize such conflicts, we propose a decision-making model that integrates client-centered and culture-centered assessments of habilitative validity. Throughout the proposed evaluation process, the behavior analyst and the recipients of services collaborate to refine program goals that will increase access to reinforcers for the client and their cultural groups. Given that cultures arrange reinforcers and punishers for the individual, assessing habilitative and social validity for the cultural groups affected by services is emphasized as an essential component of the model. We illustrate how the proposed model could be used to suggest appropriate courses of action by analyzing a situation that may involve conflicts of values.
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  • 文章类型: Journal Article
    需要一种工具来衡量残疾儿童的参与和独立性。FUNDES-Child-SE起源于参与问卷儿童和青少年参与量表。
    测试内部一致性和重测可靠性的心理测量特性。
    这项横断面研究包括163名6-18岁残疾儿童的照顾者,其中59人也包括在测试-重测研究中。描述性统计用于评估有效评级的比例。内部一致性和重测可靠性通过Cronbachα和类内相关系数进行测试。
    不相关/不适用评级的数量很大,但在项目和子域之间有所不同。内部一致性是可接受的(0.8-0.95),重测为优秀(0.73-0.95)。
    可靠性和内容有效性支持使用FUNDES-Child-SE来衡量残疾儿童的参与度和独立性。然而,由于样本量小和可能的选择偏差,因此应谨慎解释结果。减少不相关/不适用响应的修改应与仪器的响应性一起进行调查。
    FUNDES-Child-SE可用于促进参与和独立性的讨论,并计划在适应训练环境中的干预措施。
    UNASSIGNED: There is a need for an instrument to measure participation and independence in children with disabilities. FUNDES-Child-SE has its origin in the participation questionnaire Child and Adolescent Scale of Participation.
    UNASSIGNED: Test the psychometric properties of internal consistency and test-retest reliability.
    UNASSIGNED: This cross-sectional study included caregivers of 163 children with disability aged 6-18 years, 59 of whom were also included in the test-retest study. Descriptive statistics were used to evaluate the proportions of valid ratings. Internal consistency and test-retest reliability were tested through Cronbach\'s alpha and the intra-class correlation coefficient.
    UNASSIGNED: The amount of not relevant/not applicable ratings was substantial but varied between items and subdomains. Internal consistency was acceptable (0.8-0.95), and the test-retest was marginal to excellent (0.73-0.95).
    UNASSIGNED: The reliability together with the content validity support the use of the FUNDES-Child-SE to measure participation and independence in children with disabilities. However, results should be interpreted with caution due to the small sample size and possible selection bias. Modifications to reduce the not relevant/not applicable responses should be investigated together with the instrument\'s responsiveness.
    UNASSIGNED: FUNDES-Child-SE can be used to facilitate a discussion of participation and independence and to plan interventions in a habilitation setting.
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  • 文章类型: English Abstract
    小儿脑瘫是一个重大的医学社会问题和家庭经济负担,医疗保健系统和国家经济,因为这些儿童需要组织无障碍环境和终身康复维护。研究的目的是对俄罗斯联邦小儿脑瘫儿童医疗社会康复的规范性法律规定进行内容分析。对主要规范性法律文件的分析确定,医疗社会康复的实施符合国际立法规范,并受联邦法律和俄罗斯联邦及其主体的其他规范性法律规定的约束。已经确定,尽管取得了显着进展,但这一领域的立法存在许多重大缺陷,这些缺陷对脑瘫儿童获得高质量和有效的全面医疗社会康复服务产生了不利影响,需要改进。
    The infantile cerebral paralysis is a significant medical social problem and economic burden for family, health care system and state economy in general since such children require organization of accessible environment and life-long rehabilitation maintenance. The purpose of the study is content-analysis of normative legal regulation of medical social rehabilitation of children with infantile cerebral paralysis in the Russian Federation. The analysis of main normative legal documents established that medical social rehabilitation is implemented in concordance with norms of international legislation and is regulated by provisions of Federal laws and other normative legal acts of the Russian Federation and its subjects. It was established that despite noticeable progress the legislation in this area has a number of significant shortcomings that adversely affect accessibility for children with cerebral palsy of high-quality and effective services of comprehensive medical social rehabilitation and requires improvement.
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  • 文章类型: Journal Article
    背景:瑞典医疗保健中数字通信的使用有所增加,以使医疗保健更容易获得。在组织层面,对数字化的信任已经稳定,但是在医疗保健员工中似乎存在一定程度的对技术的怀疑。
    目的:本研究旨在探索医疗专业人员(HCP)在康复背景下与患者和同事进行数字通信的经验。
    方法:定性内容分析用于分析来自个人访谈的数据。
    结果:结果显示,对康复中心使用的数字格式有复杂的感觉。尽管对数字格式仍有一些怀疑,似乎对数字化的动机和好处有类似的理解。因此,积极的方面,例如增加医疗保健的可及性,已确定。然而,重点放在使数字咨询适合每个患者所需的考虑因素上。
    结论:管理受数字和物理需求之间平衡影响的工作日迫使HCP适应数字格式和新的工作方式。这要求HCP考虑数字手段是否适合在个别患者特定情况下进行通信。
    BACKGROUND: The use of digital communication in Swedish health care has increased in an effort to make health care more accessible. At the organizational level, trust in digitalization has stabilized, but a certain degree of skepticism regarding technology appears to exist among health care employees.
    OBJECTIVE: This study aimed to explore health care professionals\' (HCPs) experiences of digital communication with patients and colleagues in a habilitation context.
    METHODS: Qualitative content analysis was used to analyze data derived from individual interviews.
    RESULTS: The results revealed that there were mixed feelings regarding the digital format used at the habilitation center. Although some skepticism remained regarding the digital format, there seemed to be a parallel understanding of the motives and benefits of digitalization. Hence, positive aspects, such as increased health care accessibility, were identified. However, emphasis was placed on the considerations required to make digital consultations appropriate for each patient.
    CONCLUSIONS: Managing a workday influenced by the balance between digital and physical demands forces HCPs to adjust to the digital format and new ways of working. This requires HCPs to consider whether digital means are appropriate for communication in individual patient-specific cases.
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  • 文章类型: Journal Article
    人工耳蜗是严重听力损失或耳聋儿童的标准康复选择,允许获得口语发展所必需的语音。然而,小儿人工耳蜗使用者的言语-语言结果差异很大,并不直接或完全与技术相关,而是与个体听力学的组合相关。个人,技术,和康复因素。这些组合可能不利于口语发展,这可能进一步与事先坚持口语学习的问题有关,并与语言剥夺的高风险有关。这里,我们从康复的角度讨论了人工耳蜗植入的结果,并为人工耳蜗植入后的沟通能力的发展而不是特定的听力的实现奠定了必要的努力和资源,语言,或言语技能,对社会情感和教育的贡献有限,不能保证独立或富有成效的生活。
    Cochlear implants are a standard rehabilitation option for children with severe hearing loss or deafness, allowing access to speech sounds necessary for the development of spoken language. However, the speech-language outcomes of pediatric cochlear implant users vary widely and are not directly or exclusively linked to technology but to combinations of individual audiological, personal, technical, and habilitational factors. These combinations may not favor spoken language development, which may further be linked to the issue of prior insistence on spoken language learning and associated with a high risk of language deprivation. Here, we discuss the outcomes of cochlear implantation from a habilitative perspective and lay down the efforts and resources necessary for the development of communication competence after cochlear implantation rather than the achievement of specific hearing, language, or speech skills that have limited socioemotional and educational contributions and do not guarantee an independent or productive life.
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  • 文章类型: English Abstract
    目的:学术生涯在医学中仍然发挥着重要作用。尽管博士学位对许多学生来说仍然很有趣,没有医学生的数据,例如,关于适应训练的兴趣。并行,良好的工作与生活/家庭平衡是年轻医疗专业人员的关键职业要素。目的是获得有关医学生学术生涯的最新意见。
    方法:使用在线调查,德国所有学期的医学生都被问及学术生涯的主题,指导,以及2017年10月至2018年12月的工作与生活平衡。为此,通过电子邮件邀请医学生参与并回答匿名在线问卷.
    结果:共有来自德国38个医学院的1,775名参与者(68.3%为女性;年龄23.3±4.0岁)被纳入。几乎一半的参与者可以设想毕业后在分支机构工作。虽然职业生涯对绝大多数人(70.8%)来说似乎很重要,休闲时间被认为更为重要(84.3%),工作与生活的平衡显然优先考虑个人生活(41.2%)而不是职业(9.6%)。获得头衔对一个人的职业生涯有53.6%的评价。然而,虽然获得博士学位仍然是88.0%受访者的选择,成功适应后,学术头衔的情况有很大不同。尽管适应训练的重要性被评为高到非常高(66.1%),助理教授的头衔(“是”:13.0%),副教授(6.0%)或大学教授(7.0%)被医学生考虑的可能性要小得多,因此被评为“可能”和“否”。然而,近60%的人希望在未来的工作领域获得更好的信息和建议。
    结论:医学职业正在经历一种转变,在这种转变中,休闲/家庭和工作的更好兼容性不再是唯一的焦点。相反,寻求工作与生活的融合,作为工作和生活之间的联系。因此,为了使科学和研究工作再次具有吸引力,对于专业和特别是学术职业而言,变革是必要的。
    OBJECTIVE: Academic careers still play a significant role in medicine. Although the doctorate remains interesting for many students, there are no data available from medical students, for example, with regard to the interest in habilitation. In parallel, a good work-life/family balance is a key career element for young medical professionals. The aim was to obtain an up-to-date opinion on the academic career of medical students.
    METHODS: Using an online survey, medical students of all semesters in Germany were questioned on the topics of academic career, mentoring, and work-life balance from October 2017 to December 2018. For this purpose, the medical students were invited by e-mail to participate and answer an anonymized online questionnaire.
    RESULTS: A total of 1,775 participants from all 38 German medical faculties (68.3% female; age 23.3 ± 4.0 years) were included. Almost half of the participants could envision working in a branch office after graduation. While a professional career appeared important to a clear majority (70.8%), leisure time was rated as even more important (84.3%), and work-life balance clearly prioritized personal life (41.2%) over career (9.6%). Acquiring a title was rated as important to one\'s career by 53.6%. However, while the acquisition of a doctorate was still an option for 88.0% of the respondents, the situation is significantly different for academic titles following a successful habilitation. Although the significance of a habilitation is rated as high to very high (66.1%), the titles of assistant professor (\"yes\": 13.0%), associate professor (6.0%) or university professor (7.0%) are much less likely to be considered by medical students and are therefore rated as \"maybe\" and \"no\". Nevertheless, almost 60% wished for better information and advice in their future field of work.
    CONCLUSIONS: Careers in medicine are undergoing a transformation where better compatibility of leisure/family and work is no longer the sole focus. On the contrary, work-life blending is sought, as a connection between work and life. Changes are therefore necessary for professional and especially academic careers in order to make working in science and research attractive again.
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  • 文章类型: Comparative Study
    这项研究的目的是比较母亲在妊娠早期接受甲状腺功能障碍治疗的婴儿与母亲未在产前使用药物的婴儿的轻度精神运动延迟的发生率。样本包括200个4个月大的婴儿。一半的婴儿接受了儿科理疗师的检查,而另一半是从初级儿科诊所随机选择的。进行二元逻辑回归以评估因素对精神运动延迟的影响。该模型包含来自双变量分析和临床相关性的七个独立变量。结果显示,如果母亲有药物代偿的甲状腺功能障碍,婴儿精神运动延迟的机会高出5.53倍。较小的胎龄增加了每孕周延迟2.12次的可能性。每减少1克出生体重,精神运动延迟的可能性也增加了1%。我们发现孕期母体药物代偿性甲状腺功能障碍与婴儿精神运动延迟之间存在强烈的正线性相关。其他地方没有报道过。这区分了重要和常见的产前危险因素,并为更快地启动处于危险中的婴儿的康复奠定了基础。这些见解为计划国家神经筛查计划提供了基础。
    The aim of this study was to compare the incidence of mild psychomotor delay in infants whose mothers were treated for thyroid dysfunction regardless of the cause during first trimester of pregnancy with those whose mothers did not use medications prenatally. The sample included 200 infants up to 4 months of age. Half of the infants were examined by a pediatric physiatrist, while the other half were chosen randomly from the primary pediatric clinic. Binary logistic regression was performed to assess the impact of factors on psychomotor delay. The model contained seven independent variables derived from bivariate analyses and clinical relevance. Results showed that the infant\'s chance of having psychomotor delay was 5.53 times higher if the mother had drug-compensated thyroid dysfunction. Younger gestational age increased the likelihood of delay 2.12 times per each gestational week. The likelihood of psychomotor delay also rose by 1% per 1 g of birth weight reduction. We found strong positive linear correlation between maternal drug-compensated thyroid dysfunction during pregnancy and psychomotor delay in infants, which has not been reported elsewhere. This differentiates an important and common prenatal risk factor and lays the foundation for faster initiation of habilitation of infants at risk. These insights provide a basis for planning the National Screening Program for Neurorisk Infants.
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