Family involvement

家庭参与
  • 文章类型: Journal Article
    目的:探索疗养院工作人员在实践中实施自行设计的干预措施以促进与家庭的信任关系的经验。
    方法:这项定性研究使用参与式行动研究方法。
    方法:数据收集包括焦点组(n=15),访谈(n=28)和观察(n=5)。采用整体叙事方法进行数据分析,产生了共同构建的叙述,代表了疗养院工作人员在疗养院的五个荷兰痴呆症特殊护理单位中实施四种不同干预措施的经验。数据收集期从2021年8月开始,到2022年4月结束。
    结果:疗养院工作人员实施了自行设计的干预措施,以促进与家人的信任关系,包括发起非正式对话,分享居民\'\'快乐\'的时刻,讨论共同的期望,并且更加意识到家庭的情感负担。确定的促进者强调互惠的重要性,熟悉度,透明度,现实的目标设定和同理心。识别出的障碍与平衡竞争需求的道德不确定性有关,相互冲突的社会规范,将动手护理任务优先于家庭接触和缺乏采取行动的勇气。
    结论:疗养院工作人员得出结论,他们的干预措施对建立和维持与家庭的信任关系有积极的贡献。
    与同行分享养老院工作人员的叙述将支持他们实施干预措施以增进信任。定期的道德案例审议可以用来解决道德不确定性。疗养院工作人员之间的集体对话有助于建立优先考虑家庭参与的新社会规范。对话技能培训可以赋予疗养院工作人员权力。
    结论:实施干预措施可以提高养老院工作人员和家庭之间的信任。
    本报告遵循报告定性研究(COREQ)的标准。
    没有患者或公众捐款。
    OBJECTIVE: To explore experiences of nursing home staff in implementing self-designed interventions to foster trusting relationships with family in practice.
    METHODS: This qualitative study used a Participatory Action Research approach.
    METHODS: Data collection included focus groups (n = 15), interviews (n = 28) and observations (n = 5). A holistic narrative approach was used for data analysis, resulting in co-constructed narratives representing experiences of nursing home staff in implementing four different interventions in five Dutch dementia special care units in nursing homes. The data collection period began in August 2021 and ended in April 2022.
    RESULTS: Nursing home staff implemented self-designed interventions to foster trusting relationships with family, including initiating informal conversations, sharing residents\' \'happy\' moments, discussing mutual expectations, and being more aware of families\' emotional burdens. Identified facilitators emphasise the importance of reciprocity, familiarity, transparency, realistic goal setting and empathy. Identified barriers are related to moral uncertainty in balancing competing demands, conflicting social norms, prioritising hands-on care tasks over family contact and lack of courage to act.
    CONCLUSIONS: Nursing home staff conclude that their interventions contribute positively to building and maintaining a trusting relationship with families.
    UNASSIGNED: Sharing the narratives of nursing home staff with peers would support them in implementing interventions to foster trust. Regular Moral Case Deliberations can be used to address moral uncertainty. Collective dialogue among nursing home staff can be useful in establishing new social norms that prioritise family involvement. Conversation skills training can empower nursing home staff.
    CONCLUSIONS: Trust between nursing home staff and families can be improved by implementing the conducted interventions.
    UNASSIGNED: This report adheres to the standards for reporting qualitative research (COREQ).
    UNASSIGNED: No patient or public contribution.
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  • 文章类型: Journal Article
    2030年议程和企业社会责任(CSR)原则将公司和公共当局定义为社会变革共享目标的推动者,例如促进健康。个人发展和社会参与,在其他人中。老年人的养老院是应该特别意识到这些优先事项的组织的一个例子。因为他们与弱势群体合作,与家庭的合作对于确保居民的福祉至关重要。
    本研究的目的是分析影响位于韦斯卡(西班牙)省农村环境中的老年人护理院居民亲属满意度的因素。
    接受采访的51位亲戚对以下几点的评价非常积极:位置和可访问性,餐饮服务,医疗资源,与员工和管理团队的沟通。比例很高,然而,不知道志愿者工作和机构参与的渠道。一些与家庭与员工的互动和沟通以及他们对机构动态的潜在参与有关的社会心理指标在他们如何解释他们的满意度方面具有相当大的分量。这些结果可能会导致新的研究和干预路线,从而有助于提高此类资源的质量及其对可持续发展目标(SDG)和社会责任的承诺。
    UNASSIGNED: The 2030 Agenda and the principles of Corporate Social Responsibility (CSR) define companies and public authorities as agents for social change sharing objectives such as promotion of health, personal development and social engagement, among others. Care homes for the older adult are an example of organizations that should be particularly aware of these priorities. Since they work with vulnerable groups, collaboration with the families is essential in ensuring residents\' wellbeing.
    UNASSIGNED: The objective of this study is to analyse the factors that condition the satisfaction of relatives of residents in a care home for the older adult located in a rural environment in the province of Huesca (Spain).
    UNASSIGNED: The 51 relatives interviewed rated the following points very positively: location and accessibility, food service, medical resources, communication with the staff and management team. A high percentage, however, did not know about the channels for volunteer work and institutional involvement. Some psychosocial indicators related to families\' interaction and communication with the staff and their potential involvement in the dynamics of the institution have considerable weight in how they explain their satisfaction. These results may lead to new lines of research and intervention that contribute to improving the quality of this type of resources and their commitment to the Sustainable Development Goals (SDGs) and social responsibility.
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  • 文章类型: Journal Article
    背景:家庭参与精神保健是精神疾病管理中的一种治疗性干预措施。长期心理健康的全球关注是,当他们的亲人被接纳接受护理时,家庭很难接受精神疾病,治疗和康复。
    目的:描述护士在长期机构中让家庭成员参与心理健康护理使用者护理的看法。
    方法:采用定量描述性设计。人口包括在三个精神卫生机构(MHI)工作的护士。采用概率简单随机抽样方法选取360名受访者。使用自我管理问卷收集数据。
    结果:调查结果显示,大多数护士(86.9%)承认挑战会影响家庭在精神保健方面的参与。共有91.4%的护士抱怨家庭成员的参与不足,(80.6%)表明家庭接触不良会影响提供优质的精神卫生保健。因此,受访者认为,家庭的参与对精神疾病的管理有影响。
    结论:让家庭成员参与精神卫生保健有助于卫生专业人员和家庭参与以患者为中心的护理和精神卫生保健服务。然而,MHCU在家人参与时受益。贡献:该研究为心理健康护理做出了贡献,因为其结果可用于衡量卫生服务改善的质量,在亲人住院期间让家庭成员参与精神保健。
    BACKGROUND:  Family involvement in mental health care is a therapeutic intervention in the management of mental illness. The global concern in long-term mental health is that families find it difficult to accept mental illness when their loved ones are admitted to receive care, treatment and rehabilitation.
    OBJECTIVE:  To describe nurses\' perceptions of involving family members in the care of mental health care users in long-term institutions.
    METHODS:  A quantitative descriptive design was used. The population comprised nurses working at three mental health institutions (MHIs). Probability simple random sampling was used to select 360 respondents. Data were collected using self-administered questionnaires.
    RESULTS:  The findings revealed that most (86.9%) of the nurses acknowledged that challenges affect families\' involvement in mental health care. A total of 91.4% of nurses complained that family members\' involvement was insufficient and (80.6%) indicated that poor family contact affects the provision of quality mental health care. Therefore, the respondents believed that the families\' involvement has an impact on the management of mental illness.
    CONCLUSIONS:  Engaging family members in mental health care helps both health professionals and families to participate in patient-centred care and mental health care services. However, MHCUs benefit when their families are involved.Contribution: The study contributed to mental health nursing as its results can be used to measure the quality of health services improvements, by involving the family members during hospitalisation of their loved ones for mental health care.
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  • 文章类型: Journal Article
    家庭成员以复杂的方式参与老年痴呆症患者的生活。本范围综述综合了有关家庭参与晚期痴呆症疗养院居民护理的现有研究。使用Arksey和O\'Malley范围审查框架,PubMed的电子搜索,EBSCO\'sCINAHL完成,并在Ovid平台上进行了APAPsychInfo。28项研究符合纳入标准。通过专题分析获得了参与的新主题和定义,包括:(1)接触(通过探视,呼叫,或写信);(2)参与护理活动(工具/日常生活活动);(3)规划和监测护理(了解健康和治疗变化,与护理人员的伙伴关系,确保充分的护理,和决策);和(4)支持居民(倡导,社会情感支持,和财政支持)。此外,存在有限的心理测量工具来衡量家庭参与。这些局限性阻碍了针对家庭参与的研究的进展。
    Family members are involved in the lives of older adults with dementia in complex ways. This scoping review synthesizes existing research on family involvement in the care of nursing home residents with advanced dementia. Using the Arksey and O\'Malley scoping review framework, electronic searches of PubMed, EBSCO\'s CINAHL Complete, and APA PsychInfo on the Ovid platform were conducted. Twenty-eight studies met inclusion criteria. Emergent themes and definitions of involvement were obtained through thematic analysis, including: (1) contact (through visitation, calling, or writing letters); (2) engagement in care activities (instrumental/activities of daily living); (3) planning and monitoring care (being aware of health and treatment changes, partnership with care staff, ensuring adequate care, and decision-making); and (4) supporting the resident (advocacy, socioemotional support, and financial support). Moreover, limited psychometrically sound instruments exist to measure family involvement. These limitations stall the progression of research targeting family involvement.
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  • 文章类型: Journal Article
    让家庭参与精神保健可以为服务使用者提供福利,他们的家人和临床医生。然而,家庭参与既不是统一的,也不是例行公事。了解这种参与的复杂性对于改进应用程序至关重要。这项研究旨在增加有关服务用户的意见和家庭参与精神保健的机会的当前知识。通过10次个人半结构化访谈,每次约30分钟,从总共10名成年参与者中收集数据。根据COREQ和EQUATOR指南报告调查结果。主题分析确定了几个一致的主题:尊重服务用户对家庭参与的意见;家庭参与的机会;消极和积极的服务用户对家庭参与的意见。我们的发现支持先前对常规家庭参与护理的呼吁,但断言重要的是,与服务用户进行习惯性讨论,询问他们对这种参与的意见,这一点很重要。在治疗开始之前建立这种对话有可能减轻或解决服务用户的担忧,并有可能改善和/或增加家庭的参与方式。
    Involving families in mental health care can provide benefits to service users, their families and clinicians. However, family involvement is neither uniform nor routine. Understanding the complexities of this involvement is critical to improving application. This study sought to increase current knowledge about service users\' opinions and opportunities for family involvement in mental health care. Data were collected from a total of 10 adult participants through 10 individual semi-structured interviews of approximately 30 min each. Findings are reported in accordance with COREQ and EQUATOR guidelines. Thematic analysis identified several consistent themes: respect for service user opinions of family involvement; opportunities for family involvement; negative and positive service user opinions of family involvement. Our findings support previous appeals for routine family involvement in care but extend this charge with the assertion that as important is a customary discussion with service users to ask their opinions about this involvement. Establishing this dialogue prior to treatment commencement has the potential to alleviate or resolve service user concerns and potentially improve and/or increase how families are engaged.
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  • 文章类型: Journal Article
    目的:本研究对护士实施以家庭为中心的护理(FCC)的障碍和促成因素进行了系统评价。FCC,已经证明了有益的结果,被认为是某些儿科单位的关键质量衡量标准。然而,并不是所有的护士都将FCC纳入他们的实践。
    方法:于2023年1月至6月进行了系统评价,遵循系统评价和荟萃分析(PRISMA)指南的首选报告项目。使用各种医学主题标题关键字和术语来搜索电子数据库,目的是综合和评估结果。
    结果:确定了23篇文章以供审查。这些研究大多是在西方国家进行的。他们揭示了护士在照顾患病儿童时实施FCC的几个促进因素和障碍。其中一些因素与护士的个人属性有关,而其他人则与家庭和医疗保健系统本身的特征有关。
    结论:护士面临多层次的障碍,阻碍了他们实施FCC实践的能力。这项系统评价确定了利用护士属性的必要性,培养有效的护士-客户关系,促进组织变革。
    结论:护士需要理解并努力改变影响FCC交付的因素。本综述的发现可供医疗保健组织领导人和政策制定者使用,以定制干预措施并分配资源以促进FCC实践。需要在不同文化背景下进行进一步研究,以检查有关已确定的障碍和促进者对FCC实践的影响的因果关系。此外,需要进行实验研究以评估护士对FCC实践的循证干预措施的有效性。
    OBJECTIVE: This study presents a systematic review of the obstacles to and enablers of family-centered care (FCC) implementation by nurses. FCC, which has demonstrated beneficial outcomes, is regarded as a crucial quality measure in certain pediatric units. However, not all nurses incorporate FCC into their practice.
    METHODS: A systematic review was conducted from January to June 2023, adhering to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Various medical subject heading keywords and terms were used to search electronic databases, with the aim of synthesizing and evaluating the results.
    RESULTS: Twenty-three articles were identified for review. Most of these studies were carried out in Western countries. They revealed several facilitators and obstacles to FCC implementation by nurses when caring for sick children. Some of these factors are linked to the personal attributes of the nurses, while others are associated with the characteristics of the families and the healthcare system itself.
    CONCLUSIONS: Nurses face multi-level barriers that hinder their ability to implement FCC practice. This systematic review identifies the need to leverage nurses\' attributes, foster effective nurse-client relationships, and promote organizational changes.
    CONCLUSIONS: Nurses need to comprehend and work toward altering the factors that influence the delivery of FCC. The findings of this review can be used by healthcare organization leaders and policymakers to customize interventions and allocate resources to promote FCC practice. Further research in diverse cultural contexts is needed to examine the cause-and-effect relationship concerning the influence of the identified barriers and facilitators on FCC practice. In addition, experimental studies are required to evaluate the effectiveness of evidence-based interventions on FCC practice by nurses.
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  • 文章类型: Journal Article
    作者调查了促进家庭参与精神卫生服务的实践障碍,专注于患有严重精神疾病的人,他们的家人,和心理健康提供者。此外,作者试图确定促进家庭参与精神卫生提供的策略,以突出日常实践中的参与过程,并为组织建立家庭友好型环境提出未来方向.
    在PsycInfo中对1990年1月至2023年3月发表的文献进行了系统搜索,PubMed,CINAHL,社会学文摘,和Scopus数据库。还使用了灰色文献搜索以及前后滚雪球策略。
    回顾了46篇文章,揭示阻碍家庭参与的背景和参与实践。家庭参与的不一致源于组织文化,社会态度,和提供者否定家庭专业知识。关于保密政策的不确定性和缺乏实践指南给提供者带来了挑战。精神卫生系统中家庭的负面经历以及可变的承诺也阻碍了参与。由于隐私问题和对参与程度的不同期望,一些服务用户拒绝了家庭参与。促进共同的家庭工作文化,整合实践标准,从事专业发展活动成为关键战略。
    在实施家庭参与心理健康治疗的政策和实践之间存在差距。如果没有支持与家庭合作的文化和组织转变,家庭参与做法的吸收仍将不足。每个利益相关者对家庭参与的障碍有不同的看法,如果没有就其重要性达成共识,家庭参与仍将难以捉摸。
    UNASSIGNED: The authors investigated barriers to practices that promote family involvement in mental health services, focusing on individuals with severe mental illness, their families, and mental health providers. Additionally, the authors sought to identify strategies to facilitate family involvement in mental health provision to highlight the engagement process in routine practice and propose future directions for organizations to establish a family-friendly environment.
    UNASSIGNED: Systematic searches for literature published from January 1990 to March 2023 were conducted in PsycInfo, PubMed, CINAHL, Sociological Abstracts, and Scopus databases. Gray literature searches and backward and forward snowballing strategies were also used.
    UNASSIGNED: Forty-six articles were reviewed, revealing contextual backgrounds and engagement practices that hindered family involvement. Inconsistencies in family involvement stemmed from organizational culture, societal attitudes, and providers\' negating of family expertise. Uncertainty regarding confidentiality policies and the absence of practice guidelines posed challenges for providers. Negative experiences of families within the mental health system along with variable commitment also hampered involvement. Some service users declined family involvement because of privacy concerns and differing expectations regarding the extent of involvement. Promoting a shared culture of family work, integrating practice standards, and engaging in professional development activities emerged as key strategies.
    UNASSIGNED: A gap exists between implementing policies and practices for family involvement in mental health treatment. Without cultural and organizational shifts in support of working with families, the uptake of family involvement practices will remain inadequate. Each stakeholder has different perceptions of the barriers to family involvement, and family involvement will remain elusive without a shared agreement on its importance.
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  • 文章类型: Journal Article
    以家庭为中心的护理(FCC)是一种护理规定模式,将患者的亲人视为医疗保健团队的重要合作伙伴,并积极影响患者和亲人的心理安全。
    本评论旨在概述有影响力的出版物,作者,机构,期刊,国家,研究了FCC在21世纪的应用领域和发展趋势,并提出了进一步研究的建议。
    在2000年1月至2023年12月之间,在FCC上搜索了WebofScience数据库的出版物。在筛选重复项之后,VOSViewer和CiteSpace用于分析和可视化数据。
    对FCC的科学兴趣不断增长,并导致来自103个不同国家的4,836种出版物的科学产出。基于频繁的作者关键词,FCC对新生儿科和儿科最感兴趣,护理,重症监护,临终关怀和姑息治疗,和患者相关的结果。最近的研究热点是“患者参与,“\”定性研究,“和”健康素养。\"
    FCC已获得认可,并从儿童到成人姑息治疗,密集,临终和老年护理设置。这是一个非常令人放心的发展,因为成年人,尤其是年纪大的时候,想要并需要他们的社会支持系统的帮助。最近的研究方向包括患者参与FCC策略的发展,健康素养干预措施和远程医疗解决方案的采用。
    UNASSIGNED: Family-centered care (FCC) is a model of care provision that sees a patient\'s loved ones as essential partners to the health care team and positively influences the psychological safety of patients and loved ones.
    UNASSIGNED: This review aims to present an overview of impactful publications, authors, institutions, journals, countries, fields of application and trends of FCC in the 21st century as well as suggestions on further research.
    UNASSIGNED: The Web of Science Database was searched for publications on FCC between January 2000 and Dezember 2023. After screening for duplicates, VOS Viewer and CiteSpace were used to analyze and visualize the data.
    UNASSIGNED: Scientific interest in FCC has grown and resulted in the scientific output of 4,836 publications originating from 103 different countries. Based on the frequent author keywords, FCC was of greatest interest in neonatology and pediatrics, nursing, critical and intensive care, end-of-life and palliative care, and patient-related outcomes. The recent research hotspots are \"patient engagement,\" \"qualitative study,\" and \"health literacy.\"
    UNASSIGNED: FCC has gained recognition and spread from the pediatric to the adult palliative, intensive, end-of-life and geriatric care settings. This is a very reassuring development since adults, especially when older, want and need the assistance of their social support systems. Recent research directions include the involvement of patients in the development of FCC strategies, health literacy interventions and the uptake of telemedicine solutions.
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  • 文章类型: Journal Article
    神经发育障碍可以从两个不同的角度进行研究:内部方法,它检查了这些疾病的原因和后果;以及上下文方法,其中考虑了家庭在儿童和青少年生活中的作用。研究表明,家庭参与抚养患有NDD的孩子的家庭的最重要形式是通过家庭作业。这种参与已被证明对患有ADHD或阅读障碍等神经发育障碍的儿童产生情感影响。这项研究的目的是回顾发表的关于家庭作业和神经发育障碍的文章,特别关注家庭的作用以及儿童和家庭的情绪健康。
    方法:审查遵循PRISMA指南。最终样本由11篇文章组成,样本范围从不到30名参与者到国际上超过100名参与者。
    结果:结果证明了最终样品的复杂方法学和文献计量学图片,以及影响家庭作业和神经发育障碍之间关系的许多情绪和上下文变量。
    结论:未来的研究应该考虑情绪健康如何影响患有神经发育障碍的儿童家庭的参与。
    Neurodevelopmental disorders can be studied from two distinct perspectives: an internal approach, which examines the causes and consequences of these disorders; and a contextual approach, which considers the role of the family in the lives of children and adolescents. Research has demonstrated that the most significant form of family involvement in families raising a child with NDD is through homework. This involvement has been shown to have an emotional impact on children with neurodevelopmental disorders such as ADHD or dyslexia. The objective of this study is to review published articles on homework and neurodevelopmental disorders, with particular attention to the role of the family and the emotional health of children and families.
    METHODS: The review followed the PRISMA guidelines. The final sample consisted of 11 articles, with samples ranging from less than 30 participants to more than 100 at the international level.
    RESULTS: The results demonstrate the complex methodological and bibliometric picture of the final sample, as well as the many emotional and contextual variables that influence the relationship between homework and neurodevelopmental disorders.
    CONCLUSIONS: Future research should consider how emotional health affects the engagement of families with children with neurodevelopmental disorders.
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  • 文章类型: Journal Article
    背景:在乌干达等资源匮乏的地区,严重精神疾病的负担很高。但是,由于部门资金和训练有素的精神卫生专业人员不足,大多数受影响的人没有得到治疗。迄今为止,药物治疗一直是世界范围内严重精神疾病的主要治疗方法。然而,人们越来越认识到,使用以社区为基础的资源为导向的干预措施,如家庭参与,更有效,更适合资源不足的环境。但是关于其在乌干达的适用性的信息很少。
    方法:我们基于Masaka地区转诊医院精神卫生部门的干预,涉及30名SMI患者,60名家庭成员和朋友,和6名心理健康临床医生。它是通过5名患者的每月例会交付的,10个看护人,各2名临床医生,六个月了.15名患者的故意样本,15个看护人,6名临床医师在6个月后参与了这项定性评价研究.数据是通过深入访谈收集的。阿特拉斯。在数据分析中使用Ti(7.0.82版)计算机软件。先验代码和接地代码都用于对数据进行编码。
    结果:我们评估了感知的可行性,在乌干达背景下进行干预的可接受性和影响。调查结果基本上是积极的。可行性主要是由:培训小组主持人,现场支持和监督,参与者之间的先前关系,以及会议的安排和时间安排。可接受性得到了支持:对精神疾病知识的预期,会议的过程和内容,会议环境安全,以及参与者和地点的选择。影响主要在以下领域:关于精神疾病的知识,精神疾病的社会心理方面,网络和粘合,和患者的生活质量。干预的成功将因其权力下放和群体的统一组成而得到进一步加强。
    结论:干预措施有望促进精神卫生服务的以下主要方面的改善:由于会议环境比临床环境更加中立和友好,因此可及性;精神疾病的知识;认识到家庭在精神疾病管理中的重要作用;采用整体方法治疗精神疾病;和患者的生活质量。
    BACKGROUND: The burden of severe mental illness is high in low-resource settings like Uganda. But most affected people are not treated due to inadequacy of sectoral funding and trained mental health professionals. Medication has hitherto been the main method of treatment for severe mental illness worldwide. However, there is a growing realization that the use of community-based resource-oriented interventions like the family involvement are more effective and suitable for under-resourced settings. But there is a paucity of information about its applicability in Uganda.
    METHODS: We based the intervention at the mental health unit of Masaka Regional Referral Hospital, involving 30 patients with SMI, 60 family members and friends, and 6 mental health clinicians. It was delivered through regular monthly meetings of 5 patients, 10 caretakers, and 2 clinicians each, for six months. A purposive sample of 15 patients, 15 caretakers, and 6 clinicians participated in this qualitative evaluation study after 6 months. Data was collected using in-depth interviews. Atlas.Ti (version 7.0.82) computer software was used in data analysis. Both priori and grounded codes were used to code data.
    RESULTS: We evaluated perceived feasibility, acceptability and impact of the intervention in the Ugandan context. The findings were largely positive. Feasibility was mainly driven by: the training of group facilitators, field support and supervision, prior relationship between participants, and scheduling and timing of meetings. Acceptability was supported by: anticipation of knowledge about mental illness, process and content of meetings, safety of meeting environment, and choice of participants and venue. Impact was majorly in domains of: knowledge about mental illness, psychosocial aspects of mental illness, networking and bonding, and patients\' quality of life. The success of the intervention would further be enhanced by its decentralization and homogenized composition of groups.
    CONCLUSIONS: The intervention promises to spur improvement in the following main aspects of mental health services: accessibility since the meeting environment is more neutral and friendlier than the clinical setup; knowledge of mental illness; recognition of the important role of the family in management of mental illness; adoption of holistic approaches to mental illness; and quality of life of patients.
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