Directive Counseling

指令咨询
  • 文章类型: Journal Article
    非指向性原则仍然是遗传学的重要原则。然而,在过去的二十年里,这个概念受到了越来越多的批评。关于它在遗传学中的具体情况的适当性正在进行讨论,特别是考虑到基因医学最近的重大进步。尽管围绕非指导性的争论,明显缺乏最新的国际研究,从实际从事遗传咨询的人的角度对这一问题进行实证调查。解决这个差距,我们的文章探讨了德国和瑞士医学遗传学家的观点和经验。采用反身性主题分析对20次定性访谈进行了分析。参与者的回答显示,他们在理解和应用这一概念方面存在很大的不确定性和分歧。这似乎引起了困扰,因为许多遗传学家指出,由于基因组测试结果导致的治疗影响的可能性越来越大,该原则难以付诸实践,并且在道德上不再是合理的。我们的定性实证研究提供的见解与正在进行的关于定义的理论辩论一致,合法性,原则的可行性。对非指向性的充分细致的理解和应用似乎对于规避该原则固有的风险至关重要,同时促进患者的自主性和仁慈。
    The principle of non-directiveness remains an important tenet in genetics. However, the concept has encountered growing criticism over the last two decades. There is an ongoing discussion about its appropriateness for specific situations in genetics, especially in light of recent significant advancements in genetic medicine. Despite the debate surrounding non-directiveness, there is a notable lack of up-to-date international research empirically investigating the issue from the perspective of those who actually do genetic counselling. Addressing this gap, our article delves into the viewpoints and experiences of medical geneticists in Germany and Switzerland. Twenty qualitative interviews were analysed employing reflexive thematic analysis. Participants\' responses revealed substantial uncertainties and divergences in their understanding and application of the concept. It seems to cause distress since many geneticists stated that the principle was difficult to put into clinical practice and was no longer ethically justified given the increasing likelihood of therapeutic implications resulting from genomic testing outcomes. The insights provided by our qualitative empirical study accord with the ongoing theoretical debate regarding the definition, legitimacy, and feasibility of the principle. An adequately nuanced understanding and application of non-directiveness seems crucial to circumvent the risks inherent in the principle, while promoting patient autonomy and beneficence.
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  • 文章类型: Journal Article
    此综合综述综合了在诊断为癌症的育龄妇女进行肿瘤治疗之前进行生育保护咨询的科学证据。书目研究是在PubMed数据库上进行的,CINAHL,LILACS,EMBASE,Scopus,和WebofScience。审查问题的结构化搜索策略是“咨询和抗肿瘤剂和生育力保护”。受控描述符和关键字的使用适用于每个数据库。通过Rayyan平台的研究选择是独立的和盲目的。最终样本包括七项研究,强调澄清与肿瘤治疗和生育保存技术导致的不孕症风险相关的因素的重要性。比如成功率,怀孕率,成本,可用选项,和副作用,以及讨论收养和代孕的可能性。这项审查提供了证据,加强了对保留生育能力的咨询的重要性,促进面临肿瘤治疗的女性的母亲身份。将肿瘤学和生殖医学单位联系起来的有组织网络对于促进这些服务之间的患者转诊和跨专业沟通至关重要。
    This integrative review synthesizes the scientific evidence on fertility preservation counseling prior to oncological treatment for women of reproductive age diagnosed with cancer. Bibliographic research was conducted on databases PubMed, CINAHL, LILACS, EMBASE, Scopus, and Web of Science. The structured search strategy for the review question was \"counseling AND antineoplastic agents AND fertility preservation\". The use of controlled descriptors and keywords was adapted for each database. Study selection through the Rayyan platform was independent and blinded. The final sample comprised seven studies emphasizing the importance of clarifying factors related to the risk of infertility due to oncological treatment and fertility preservation techniques, such as success rate, pregnancy rate, cost, available options, and side-effects, as well as discussing the possibilities of adoption and surrogacy. This review provided evidence reinforcing the importance of counseling for fertility preservation, promoting motherhood for women who face oncological treatment. Organized networks linking oncology and reproductive medicine units are crucial to facilitate patient referral between these services and interprofessional communication.
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  • 文章类型: Journal Article
    OBJECTIVE: The aim of this study was to investigate choices of and reasoning behind chorionic villous sampling and opinions on non-invasive prenatal testing among women and men achieving pregnancy following preimplantation genetic testing (PGT) for hereditary disorders.
    METHODS: A questionnaire was electronically submitted to patients who had achieved a clinical pregnancy following PGT at the Center for Preimplantation Genetic Testing, Aalborg University Hospital, Denmark, between 2017 and 2020.
    RESULTS: Chorionic villous sampling was declined by approximately half of the patients. The primary reason for declining was the perceived risk of miscarriage due to the procedure. Nine out of 10 patients responded that they would have opted for a non-invasive prenatal test if it had been offered. Some patients were not aware that the nuchal translucency scan offered to all pregnant women in the early second trimester only rarely provides information on the hereditary disorder for which PGT was performed.
    CONCLUSIONS: Improved counseling on the array of prenatal tests and screenings available might be required to assist patients in making better informed decisions regarding prenatal testing. Non-invasive prenatal testing is welcomed by the patients and will likely increase the number of patients opting for confirmatory prenatal testing following PGT for hereditary disorders.
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  • 文章类型: Journal Article
    Vaccination in pharmacies has been a key component of national vaccination strategies to facilitate vaccination access. Qualitative data on the perspectives of professional stakeholders on vaccination in pharmacies and on the professional relations of pharmacists with physicians regarding increasing immunisation rates is limited. We conducted a qualitative study in Switzerland. The main aim was to gain further insight into professional stakeholders\' perspectives on vaccination counselling and administration conducted in pharmacies, and to further understand their views on physicians\' and pharmacists\' roles in increasing immunisation rates.
    We conducted semistructured qualitative interviews. We coded and analysed transcripts using thematic analysis.
    Face-to-face interviews took place in German-speaking and French-speaking regions of Switzerland.
    We interviewed 14 key vaccination stakeholders including health authorities, heads of pharmacy management and professional association boards. All participants had a background in medicine or pharmacy.
    Three main themes emerged from the qualitative data: (1) Participants viewed pharmacists as competent to provide vaccination counselling and administration based on their university training; (2) interprofessional cooperation between physicians and pharmacists on vaccination topics is limited and should be improved; and (3) pharmacists play an important role in increasing immunisation rates by facilitating vaccination access and through provision of vaccination counselling.
    By providing vaccination counselling and administering vaccines, pharmacists play an important public health role. Healthcare policies and health authorities should encourage more involvement of pharmacists and encourage interprofessional cooperation between physicians and pharmacists in order to improve vaccination counselling and increase immunisation rates.
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  • 文章类型: Journal Article
    The administration of antenatal corticosteroids has been widely adopted as the standard of care in the management of pregnancies at risk for preterm delivery before 37 weeks of gestation, with the primary goal of reducing neonatal morbidity. However, the long-term risks associated with antenatal corticosteroid use remain uncertain. The purpose of this Consult is to review the current literature on the benefits and risks of antenatal corticosteroid use in the late preterm period and to provide recommendations based on the available evidence. The recommendations by the Society for Maternal-Fetal Medicine are as follows: (1) we recommend offering a single course of antenatal corticosteroids (2 doses of 12 mg of intramuscular betamethasone 24 hours apart) to patients who meet the inclusion criteria of the Antenatal Late Preterm Steroids trial, ie, those with a singleton pregnancy between 34 0/7 and 36 6/7 weeks of gestation who are at high risk of preterm birth within the next 7 days and before 37 weeks of gestation (GRADE 1A); (2) we suggest consideration for the use of antenatal corticosteroids in select populations not included in the original Antenatal Late Preterm Steroids trial, such as patients with multiple gestations reduced to a singleton gestation on or after 14 0/7 weeks of gestation, patients with fetal anomalies, or those who are expected to deliver in <12 hours (GRADE 2C); (3) we recommend against the use of antenatal corticosteroids for fetal lung maturity in pregnant patients with a low likelihood of delivery before 37 weeks of gestation (GRADE 1B); (4) we recommend against the use of late preterm corticosteroids in pregnant patients with pregestational diabetes mellitus, given the risk of worsening neonatal hypoglycemia (GRADE 1C); (5) we recommend that patients at risk for late preterm delivery be thoroughly counseled regarding the potential risks and benefits of antenatal corticosteroid administration and be advised that the long-term risks remain uncertain (GRADE 1C).
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  • 文章类型: Journal Article
    合成糖皮质激素因其抗炎和免疫抑制作用而被广泛使用。糖皮质激素治疗可能的不良影响是抑制下丘脑-垂体-肾上腺轴,会导致肾上腺功能不全.影响糖皮质激素诱导的肾上腺功能不全(GI-AI)风险的因素包括糖皮质激素治疗的持续时间,管理模式,糖皮质激素的剂量和效力,伴随药物干扰糖皮质激素代谢,和个体易感性。使用外源性糖皮质激素的患者可能会出现库欣综合征的特征,随后,糖皮质激素戒断综合征时,治疗逐渐减少。糖皮质激素戒断的症状可能与潜在疾病的症状重叠,以及GI-AI。需要谨慎的糖皮质激素减量方法和适当的患者咨询,以确保成功减量。在肾上腺功能恢复之前,不应完全停止糖皮质激素治疗。在这次审查中,我们讨论了影响GI-AI风险的因素,提出糖皮质激素锥度的方案,并对肾上腺功能恢复的评估提出建议。我们还描述了目前在GI-AI患者管理方面的差距,并为糖皮质激素戒断综合征的方法提出了建议。糖皮质激素治疗的慢性管理,以及对患者和提供者的GI-AI教育。
    Synthetic glucocorticoids are widely used for their anti-inflammatory and immunosuppressive actions. A possible unwanted effect of glucocorticoid treatment is suppression of the hypothalamic-pituitary-adrenal axis, which can lead to adrenal insufficiency. Factors affecting the risk of glucocorticoid induced adrenal insufficiency (GI-AI) include the duration of glucocorticoid therapy, mode of administration, glucocorticoid dose and potency, concomitant drugs that interfere with glucocorticoid metabolism, and individual susceptibility. Patients with exogenous glucocorticoid use may develop features of Cushing\'s syndrome and, subsequently, glucocorticoid withdrawal syndrome when the treatment is tapered down. Symptoms of glucocorticoid withdrawal can overlap with those of the underlying disorder, as well as of GI-AI. A careful approach to the glucocorticoid taper and appropriate patient counseling are needed to assure a successful taper. Glucocorticoid therapy should not be completely stopped until recovery of adrenal function is achieved. In this review, we discuss the factors affecting the risk of GI-AI, propose a regimen for the glucocorticoid taper, and make suggestions for assessment of adrenal function recovery. We also describe current gaps in the management of patients with GI-AI and make suggestions for an approach to the glucocorticoid withdrawal syndrome, chronic management of glucocorticoid therapy, and education on GI-AI for patients and providers.
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  • 文章类型: Practice Guideline
    To provide guidance on culturally competent contraception counselling that is free of coercion and promotes shared decision-making and patient autonomy.
    Individuals of reproductive age who seek contraception or counselling for family planning.
    Contraception counselling is provided within a rights-based family planning framework, where the individual\'s beliefs, culture, preferences, and ability to use the chosen method are respected.
    To promote patient autonomy in decision-making surrounding family planning, including the right to access and use their contraceptive method of choice, to decline contraception or use less effective methods of contraception, and to freely choose to discontinue a method of contraception, as well as the right to unbiased, non-coercive contraception counselling and evidence-based information from their health care provider BENEFITS, HARMS, AND COSTS: Implementation of these recommendations would reduce real or perceived coercive contraceptive care, particularly among vulnerable populations, resulting in improved patient autonomy and a better patient experience in health care settings.
    Databases searched: MEDLINE, Cochrane, PubMed, and CanLII. Medical terms used: contraception, family planning services, informed consent, coercion, decision making, sterilization, permanent contraception, counselling. Legal terms searched: forced sterilization, and aboriginal. Initial search conducted in 2020 and updated in 2021.
    This committee opinion is intended for health care providers (obstetricians, gynaecologists, family physicians, general surgeons, nurse practitioners, nurses, midwives, undergraduate/postgraduate medical trainees, and other health care providers) who provide sexual and reproductive health services.
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  • 文章类型: Journal Article
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  • 文章类型: Journal Article
    探索动机访谈中的质量方面和客户的言语行为如何与自我决定理论中描述的基本心理需求的辅导员支持相对应,我们进行了一项混合方法研究,对来自咨询会议的转化定性数据进行了定量分析.编码手册确定咨询是否符合动机访谈和基本心理需求的支持。该研究支持动机访谈(MI)和自我决定理论(SDT)之间的概念关系,除了在两种方法中概念化不同的自治支持。SDT和MI中的关系支持彼此紧密相关,并且与其他MI一致和促进性顾问的言语行为也密切相关。SDT中的客户动机与MI中的变更谈话呈负相关,客户在SDT中的自主动机与MI中的改变谈话有关。辅导员强调关系支持,综合运用决策平衡,但提供能力支持的频率较低。咨询是,然而,对客户行为变化的动机调节敏感。
    To explore how quality aspects and clients\' verbal behaviors in Motivational Interviewing sessions correspond with counsellors\' support of basic psychological needs described in Self-determination Theory, we conducted a mixed method study with quantitative analyses of transformed qualitative data from counselling sessions. Coding manuals identified if the counselling was consistent with Motivational Interviewing and the support of basic psychological needs. The study supported a conceptual relationship between motivational interviewing (MI) and self-determination theory (SDT), except for autonomy support which was conceptualized differently in the two approaches. Relational support in SDT and MI were closely linked to each other and were also strongly related to other MI-congruent and promotive counselors\' verbal behavior. Client amotivation in SDT and change talk in MI were negatively correlated, and clients\' autonomous motivation in SDT was related to change talk in MI. Counselors emphasized relational support, using decisional balance comprehensively, but offered competence support less often. The counseling was, however, sensitive to the clients\' motivational regulation of behavior change.
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  • 文章类型: Letter
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