目的:综合和解释现有的关于具有复杂护理需求的儿童兄弟姐妹的生存经验的定性研究。
方法:NobletandHare的解释性元民族志。
方法:该研究已在国际前瞻性系统评价注册(PROSPERO)中注册。遵循Nablet和Hare的7步程序,并执行相互翻译以分析数据并开发参数综合线。
方法:对五个数据库进行全面系统的文献检索,随着大量的手动搜索,于2022年11月完成。最终样本包括2010年至2022年发表的18项研究。
结果:一行参数,通过一个总体隐喻来表达,“在人生的阶梯上平衡”,说明了兄弟姐妹对生存幸福的波动经历的核心发现,并概括了四个三阶主题:兄弟姐妹的情感动荡,家庭生活中断,兄弟姐妹努力做自己,兄弟姐妹努力应对。
结论:与一个有复杂护理需求的兄弟姐妹一起长大,让孩子们感到看不见,孤独,努力寻找勇气去应对。通过采用生活世界的方法,护士可以意识到健康兄弟姐妹的未满足需求。未来需要研究护士如何为兄弟姐妹的生存幸福做出贡献,在初级和二级医疗保健环境中。
结论:该研究提供了对兄弟姐妹的生存经验和改善其幸福感的因素的见解,使护士能够提供更优化的生活世界主导的临床实践。
结论:医疗保健,护理教育和实践应了解存在的问题。护士处于有利地位,可以与家庭一起工作,提供以家庭为中心的护理。我们的发现对根据患有慢性病的兄弟姐妹的儿童的需求量身定制的健康政策具有影响。
■本评论遵循赤道和改进的元人种学(eMERGe)指南报告。
■没有患者或公众捐款,因为数据包含以前发表的研究。
OBJECTIVE: To synthesize and interpret existing qualitative research on the existential experiences of siblings of children with complex care needs.
METHODS: Noblit and Hare\'s interpretive meta-ethnography.
METHODS: The study has been registered in the international prospective register for systematic reviews (PROSPERO). Noblit and Hare\'s 7-step procedure was followed and reciprocal translation was performed to analyse the data and develop a line of argument synthesis.
METHODS: A comprehensive systematic literature search of five databases, along with extensive manual searches, was completed in November 2022. The final sample comprised 18 studies published between 2010 and 2022.
RESULTS: A line of argument, expressed through an overarching metaphor, \"balancing on life\'s ladder\", illustrates the core findings of siblings\' fluctuating experiences of existential well-being, and encapsulates four third-order themes: the emotional turmoil of siblings, interrupted family life, siblings strive to be themselves and siblings struggle to cope.
CONCLUSIONS: Growing up with a sibling with complex care needs made children feel invisible, lonely and struggling to find the courage to cope. By adopting a lifeworld approach, nurses can become aware of healthy siblings\' unmet needs. Future research is needed on how nurses can contribute to siblings\' existential well-being, in primary - and secondary health care settings.
CONCLUSIONS: The study provides insight into siblings\' existential experiences and factors improving their well-being, enabling nurses to provide a more optimized lifeworld-led clinical practice.
CONCLUSIONS: Healthcare, nursing education and practice should be informed by the knowledge of existential issues. Nurses are well-positioned to work alongside families to provide family-centered care. Our findings have implications for health policies tailored to the needs of children with chronically ill siblings.
UNASSIGNED: This review adheres to the Equator and improving reporting of meta-ethnography (eMERGe) guidelines.
UNASSIGNED: No patient or public contribution, because the data comprised previously published studies.