Community healthcare

社区医疗保健
  • 文章类型: Journal Article
    从中国卫生规划者和政策制定者的角度来看,实现更高水平的社区医疗保健服务的可及性和公平性已成为卫生服务提供的主要关注点。
    在这项研究中,我们引入了一个全面的门到门(D2D)模型,将其与开放的ODAPI结果集成,以精确计算不同运输模式下社区医院的可及性。对于D2D公共交通模式,我们计算了一天中不同时间可达性的时间变化和标准偏差。此外,D2D骑行模式的可访问性值,D2D驱动模式,还计算了简单的驾驶模式进行比较。此外,我们引入Lorenz曲线和Gini指数来评估不同时间和交通方式下社区医疗公平性的差异.
    D2D公共交通模式根据一天中的时间在可及性和公平性方面表现出明显的波动。可达性和公平性受到上午8点至上午11点之间的交通流量的显著影响,而在下午12点到10点期间,在南京,社区医院的开放时间成为更重要的决定因素。整体空间布局最公平和最不公平的时刻是上午10点和下午10点,分别。在四种运输方式中,传统的简单驾驶模式表现出最小的股票指数,基尼系数仅为0.243。相比之下,D2D骑行模式,虽然广泛喜欢获得社区医疗保健服务,基尼值最高,达到0.472。
    所提出的方法将D2D模型与开放ODAPI结果相结合,对于实际运输模式的可访问性计算是有效的。社区医疗保健的空间可达性和公平性受时间变化的影响会出现重大波动。交通方式也是影响可达性和公平性的重要因素。这些结果有助于规划者和学者从不同时间尺度和多方式交通系统的角度建立全面的空间可达性和公平性模型,并优化公共服务设施的选址。
    UNASSIGNED: Achieving a higher level of accessibility and equity to community healthcare services has become a major concern for health service delivery from the perspectives of health planners and policy makers in China.
    UNASSIGNED: In this study, we introduced a comprehensive door-to-door (D2D) model, integrating it with the open OD API results for precise computation of accessibility to community hospitals over different transport modes. For the D2D public transit mode, we computed the temporal variation and standard deviation of accessibility at different times of the day. Additionally, accessibility values for D2D riding mode, D2D driving mode, and simple driving mode were also computed for comparison. Moreover, we introduced Lorenz curve and Gini index to assess the differences in equity of community healthcare across different times and transport modes.
    UNASSIGNED: The D2D public transit mode exhibits noticeable fluctuations in accessibility and equity based on the time of day. Accessibility and equity were notably influenced by traffic flow between 8 AM and 11 AM, while during the period from 12 PM to 10 PM, the open hours of community hospitals became a more significant determinant in Nanjing. The moments with the most equitable and inequitable overall spatial layouts were 10 AM and 10 PM, respectively. Among the four transport modes, the traditional simple driving mode exhibited the smallest equity index, with a Gini value of only 0.243. In contrast, the D2D riding mode, while widely preferred for accessing community healthcare services, had the highest Gini value, reaching 0.472.
    UNASSIGNED: The proposed method combined the D2D model with the open OD API results is effective for accessibility computation of real transport modes. Spatial accessibility and equity of community healthcare experience significant fluctuations influenced by time variations. The transportation mode is also a significant factor affecting accessibility and equity level. These results are helpful to both planners and scholars that aim to build comprehensive spatial accessibility and equity models and optimize the location of public service facilities from the perspective of different temporal scales and a multi-mode transport system.
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  • 文章类型: Journal Article
    学术上有强有力的科学证据,认知,社会,和情感上的好处对话文学聚会(DLG)不同的人在广泛的设置。然而,尚未研究将DLG转移到初级保健中心。为了解决这一差距,我们进行了一项案例研究,研究了初级医疗保健中心的DLG对参与者的心理健康和福祉的影响,这些影响来自参与者和参与其中的专业人员的看法。为此,四个日常生活故事和一个女性参与DLG的焦点小组,他们大多数75岁以上,没有受过高等教育,进行了,以及两次深入采访,一个是DLG主持人,一个是卫生中心主任。结果显示,由于DLG中对话的功能和类型,参与者认为他们的心理健康和幸福感得到了改善,促进友谊,支持和团结。与会者还报告说,通过意识到他们在DLG中的能力,他们成为家庭和环境中变革的代理人,将医疗保健专业人员和患者之间的关系变得更加平等。这些发现对公共卫生和医疗中心有影响。
    There is strong scientific evidence on the academic, cognitive, social, and emotional benefits of Dialogic Literary Gatherings (DLG) for diverse people in a wide range of settings. However, the transference of DLG to a primary healthcare centre has not yet been studied. To address this gap a case study was conducted on the impact of a DLG in a primary healthcare centre on participants\' mental health and wellbeing from the perception of participants and professionals involved in it. To that end, four daily life stories and a focus group with women participating in the DLG, most of them over 75 years old with no higher education, were conducted, as well as two in-depth interviews, one with the DLG facilitator and one with the director of the health centre. Results show that participants perceived their mental health and wellbeing improved thanks to the functioning and type of dialogue in the DLG, promoting friendships, support and solidarity. Participants also reported that, by being aware of their capabilities in the DLG, they became agents of transformation within their families and environments, turning relationships between healthcare professionals and patients more egalitarian. These findings hold implications for public health and healthcare centres.
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  • 文章类型: Journal Article
    目的:评估护理人员非传染性疾病危险因素的患病率,并对其进行预防教育。
    背景:护理人员是印度社区医疗保健系统的组成部分。最近的研究报告说,印度护理人员的非传染性疾病患病率很高。因此,护理人员非传染性疾病危险因素患病率的数据对于预防教育至关重要.
    方法:基于横断面数字调查的研究。
    方法:我们邀请了4435名护理人员参加我们的在线调查。我们使用定制的问卷进行数据收集,包括基于社区的评估清单表格的数字化版本。评分>4被认为是高风险的,需要进行筛查。
    结果:在682名护理人员中,70%的人从未接受过非传染性疾病筛查。男性护理人员非传染性疾病危险因素患病率明显高于男性护理人员。此外,Logistic回归分析显示,年龄,烟草和酒精的使用,增加腰围,缺乏身体活动和非传染性疾病家族史是护理人员的重要危险因素。
    结论:研究结果表明,护理人员对非传染性疾病的自我健康问题不够理想。这种情况需要继续医学教育,关于采用健康生活方式和促进健康的宣传运动。
    OBJECTIVE: To assess the prevalence of non-communicable disease risk factors among the nursing staff and educate them on prevention.
    BACKGROUND: Nursing staff is integral to the Indian community healthcare systems. Recent studies report a high prevalence of non-communicable diseases in Indian nursing staff. Therefore, data on the prevalence of non-communicable disease risk factors among nursing staff are crucial for education on prevention.
    METHODS: A cross-sectional digital survey-based study.
    METHODS: We invited 4435 nursing staff to attend our online survey. We used a customized questionnaire for data collection, including a digitized version of the Community-Based Assessment Checklist form. A score of >4 was considered high risk and warranted screening.
    RESULTS: Among 682 nursing staff who attended, 70% had never undergone screening for non-communicable diseases. The prevalence of non-communicable disease risk factors was significantly higher in male nursing staff. In addition, logistic regression analysis showed that age, tobacco and alcohol use, increased waist circumference, physical inactivity and family history of non-communicable diseases were significant risk factors among nursing staff.
    CONCLUSIONS: The study findings suggest that the nursing staff have suboptimal self-health concerns on non-communicable diseases. This situation warrants continued medical education, awareness campaigns on adopting a healthy lifestyle and health promotion.
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  • 文章类型: Journal Article
    背景:随着全球人口老龄化对医疗保健构成挑战,尤其是在社区医疗方面,培训社区医疗保健专业人员仍然是全球教育挑战,包括在日本。虽然以前的研究表明,通过实践经验,学生对社区医疗保健的兴趣增加,重点主要是农村地区,在理解城市社区医学教育方面留下了空白。本研究旨在评估城市社区医学教育对学生对社区医疗保健的理解和态度的影响。
    方法:本研究在福冈市九州大学进行,日本第六大城市。对于五年级的医学生来说,以社区为基础的医学教育计划是强制性的,有一周的时间表,包括定向,有一天在诊所,在社区医院住了三天.该计划旨在让学生接触各种医疗机构,强调门诊护理,住院管理,家庭保健,家庭护理,和康复。在该计划之前和之后立即进行了一份参考医学教育模式核心课程的自我管理问卷,并使用学生t检验评估学生感知的差异。
    结果:来自188名学生完成项目前和项目后问卷的调查结果显示,学生对社区医疗保健相关知识和技能的看法有了显著改善。培训结束后,对社区医疗的态度发生了值得注意的积极转变,对初级保健医生作为职业选择的兴趣也在增加。尽管学生仍然偏爱城市地区,对农村环境有明显的倾向。该研究强调了该计划在城市背景下提高学生对社区医疗保健的理解和积极态度方面的成功。它挑战了先前关于职业选择中工作与生活平衡和城乡偏好的观念。
    结论:城市社区医学教育显著改善了学生对社区医疗的认知和态度。它为课程规划者提供了宝贵的见解,强调需要继续研究持续效应和更广泛的适用性。
    BACKGROUND:  With an aging global population posing healthcare challenges, especially in community healthcare, training professionals for community healthcare remains a global educational challenge, including in Japan. While previous research shows increased student interest in community healthcare through practical experiences, the focus has primarily been on rural areas, leaving a gap in understanding urban-based community medical education. This study aimed to evaluate the impact of urban community-based medical education on students\' understanding and attitudes toward community healthcare.
    METHODS:  This study was conducted at Kyushu University in Fukuoka City, the sixth-largest city in Japan. For fifth-grade medical students, a community-based medical education program is mandatory, with a one-week schedule that includes orientation, one day in a clinic, and three days in a community hospital. The program aimed to expose students to various healthcare settings, emphasizing outpatient care, inpatient management, home health care, home nursing, and rehabilitation. A self-administered questionnaire referencing the Model Core Curriculum for medical education was administered immediately before and after the program, and the differences in students\' perceptions were assessed using the Student\'s t-test.
    RESULTS:  Findings from 188 students completing both pre- and post-program questionnaires revealed significant improvements in perceptions of students\' knowledge and skills related to community healthcare. After the training, there was a noteworthy positive shift in attitudes toward community healthcare and increased interest in primary care physicians as a career choice. Although students maintained a preference for urban areas, there was a notable inclination towards rural settings. The study highlights the program\'s success in enhancing students\' understanding and positive attitudes toward community healthcare within an urban context. It challenges prior notions regarding work-life balance and urban-rural preferences in career choices.
    CONCLUSIONS:  Urban community-based medical education significantly improved students\' perceptions and attitudes toward community healthcare. It offers valuable insights for curriculum planners, emphasizing the need for continued research into sustained effects and broader applicability.
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  • 文章类型: Journal Article
    背景:医疗保健服务向社区护理的转变推动了发展社区护理劳动力的需求。然而,在吸引护理毕业生从事社区护理职业方面存在挑战。
    目的:研究新加坡一所大学不同学习年限的护理本科生对社区护理和安置偏好的看法。
    方法:本研究调查了不同研究年份护理本科生对社区护理和安置偏好的看法。使用“社区护理感知量表”(范围)进行了一项横断面研究。
    结果:在完成调查的501名护生中,只有31.3%倾向于社区护理安置。他们评估了晋升的机会,工作状况和热情的社区护理同事在SCOPE中得分相对较低。学生的安置偏好和学习年份是他们对社区护理护理看法的预测因素。与将急性护理作为首选位置的学生相比,表明他们在家庭护理(p<0.001)和中期长期护理(p<0.05)中的位置偏好的学生对社区护理的看法显着积极。尽管在第一年的队列中有预感到的想法,课程中的社区护理安置对2至4年级学生对社区护理的看法产生了影响。
    结论:这些发现确定了增加社区护理护理队伍的关键策略,包括促进更好地理解社区护士的角色,提供优质的社区安置机会,由良好的榜样,并培养乐观的职业前景和社区护理的进步。
    BACKGROUND: A shift of health care services towards community care has driven the need to develop the community care nursing workforce. However, challenges exist in attracting nursing graduates to a career in community care.
    OBJECTIVE: To examine perceptions of community care and placement preference among undergraduate nursing students across different years of study in a Singapore university.
    METHODS: This study examined perceptions of community care and placement preference among undergraduate nursing students across different years of study. A cross-sectional study was conducted using the \'Scale on COmmunity care Perceptions\' (SCOPE).
    RESULTS: Only 31.3 % of the 501 nursing students who completed the survey preferred community care placement. They rated opportunities for advancement, work status and enthusiastic colleagues in community care with relatively lower scores in the SCOPE. Students\' placement preferences and year of study were predictive factors of their perceptions of community care nursing. Students who indicated their placement preference in home-based care (p < 0.001) and intermediate long-term care (p < 0.05) reported significantly positive perceptions towards community nursing as compared to students who indicated acute care as their preferred placement. Despite pre-perceived ideas among the year 1 cohort, the community care placement within their course curriculum had an impact on year 2 to 4 students\' perceptions of community care.
    CONCLUSIONS: These findings identified key strategies to increase the community care nursing workforce which include promoting a better understanding of the role of a community nurse, providing quality community placement opportunities supported by preceptors who are good role models and fostering an optimistic career outlook and advancement in community nursing.
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  • 文章类型: Case Reports
    背景:基于证据的牙科研究表明,牙髓切除术可以替代患有不可逆牙髓炎的成熟恒牙的根管治疗。然而,围绕这种治疗方式的成本评估和成本效益的证据尚未建立.在这种情况下,我们采用经济模型方法来评估牙髓切除术与根管治疗的成本效益,因为这可以帮助有效的临床决策。
    方法:使用TreeAgeProHealthcare2022,在18岁患者的一生中使用成熟的恒牙患有不可逆牙髓炎后,建立了马尔可夫模型。转移概率是根据现有文献估计的。根据私人付款人的观点,根据美国医疗保健估算了成本,并使用蒙特卡洛模拟解决了参数不确定性。该模型通过敏感性分析进行了内部验证,面部验证由经验丰富的牙髓医生和健康经济学家进行.
    结果:在基本情况下,根管治疗与额外的健康益处相关,但在个体的一生中费用增加(增加1.08年,增加311.20美元).概率敏感性分析显示,牙髓切除术在较低的支付意愿(WTP)值下具有成本效益(50美元时可接受99.9%),而增加WTP阈值根管治疗的值是一种具有成本效益的治疗(550美元时可接受99.9%)。
    结论:根据目前的证据,在较低的WTP值下,牙髓切除术是治疗成熟恒牙不可逆牙髓炎的一种具有成本效益的治疗选择。然而,通过增加WTP阈值,根管治疗在个体的一生中成为更具成本效益的治疗选择.
    BACKGROUND: Evidence-based dentistry suggests pulpotomy as a potential alternative to root canal treatment in mature permanent teeth with irreversible pulpitis. However, the evidence surrounding the cost-valuation and cost-efficacy of this treatment modality is not yet established. In this context, we adopted an economic modeling approach to assess the cost-effectiveness of pulpotomy versus root canal treatment, as this could aid in effective clinical decision-making.
    METHODS: A Markov model was constructed following a mature permanent tooth with irreversible pulpitis in an 18-year-old patient over a lifetime using TreeAge Pro Healthcare 2022. Transition probabilities were estimated based on existing literature. Costs were estimated based on the United States healthcare following a private-payer perspective and parameter uncertainties were addressed using Monte-Carlo simulations. The model was validated internally by sensitivity analyses, and face validation was performed by an experienced endodontist and health economist.
    RESULTS: In the base case scenario, root canal treatment was associated with additional health benefit but at an increased cost (1.08 more years with an incremental cost of 311.20 USD) over a period of an individual\'s lifetime. The probabilistic sensitivity analysis revealed pulpotomy to be cost-effective at lower Willingness-To-Pay (WTP) values (99.9% acceptable at 50 USD) whereas increasing the values of WTP threshold root canal treatment was a cost-effective treatment (99.9% acceptable at 550 USD).
    CONCLUSIONS: Based on current evidence, pulpotomy was a cost-effective treatment option at lower WTP values for the management of irreversible pulpitis in mature permanent teeth. However, by increasing the WTP threshold, root canal treatment became a more cost-effective treatment option over a period of lifetime of an individual.
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  • 文章类型: Journal Article
    背景:日本加班时间过长的文化最近尚未得到解决。关于工作时间的新立法,包括限制医生的最大加班时间,将于2024年实施。进行这项研究是为了阐明专职医院医生的工作条件并讨论各种政策含义。
    方法:2022年7月进行了关于医生工作条件的设施调查和医生调查。设施调查被发送到日本的所有医院,医生调查被发送给一半医院的所有医生。要求医生报告2022年7月11日至17日的工作时间。除了描述性统计,对导致工作时间长的因素进行多因素logistic回归分析.
    结果:总计,11,466名全职医院医生被纳入分析。全职医院医生每周工作50.1小时。他们在主要医院花费了45.6小时(90.9%),进行了4.6小时(9.1%)的工作。他们在临床工作上花费了43.8小时(87.5%),在临床工作以外的活动上花费了6.3小时(12.5%),比如研究,教学,和其他活动。神经外科医生工作时间最长,其次是外科医生和急诊医生。总的来说,估计20.4%的医生超过960小时的年度加班限制,估计有3.9%超过1860小时的限制。仅在其基层医院中,总共有13.3%和2.0%超过了这一水平,在不包括执行辅助工作的时间后。Logistic回归分析显示,男性,年龄较小,在大学医院工作,在临床实践领域工作,工作时间长,在控制其他因素后,接受专业培训与长时间工作有关。
    结论:随着对医生的加班规定的临近应用,观察到工作时间有所减少。然而,许多医生的工作时间仍然超过指定的加班上限。必须进一步推进工作改革,精简工作,转移任务,在保障高校医院科研等职能的同时,教育,并支持社区的医疗保健。
    The culture of excessively long overtime work in Japan has not been recently addressed. New legislation on working hours, including a limitation on maximum overtime work for physicians, will be enforced in 2024. This study was performed to elucidate the working conditions of full-time hospital physicians and discuss various policy implications.
    A facility survey and a physician survey regarding physicians\' working conditions were conducted in July 2022. The facility survey was sent to all hospitals in Japan, and the physician survey was sent to all physicians working at half of the hospitals. The physicians were asked to report their working hours from 11 to 17 July 2022. In addition to descriptive statistics, a multivariate logistic regression analysis on the factors that lead to long working hours was conducted.
    In total, 11,466 full-time hospital physicians were included in the analysis. Full-time hospital physicians worked 50.1 h per week. They spent 45.6 h (90.9%) at the main hospital and 4.6 h (9.1%) performing side work. They spent 43.8 h (87.5%) on clinical work and 6.3 h (12.5%) on activities outside clinical work, such as research, teaching, and other activities. Neurosurgeons worked the longest hours, followed by surgeons and emergency medicine physicians. In total, 20.4% of physicians were estimated to exceed the annual overtime limit of 960 h, and 3.9% were estimated to exceed the limit of 1860 h. A total of 13.3% and 2.0% exceeded this level only at their primary hospital, after excluding hours performing side work. Logistic regression analysis showed that male, younger age, working at a university hospital, working in clinical areas of practice with long working hours, and undergoing specialty training were associated with long working hours after controlling for other factors.
    With the approaching application of overtime regulations to physicians, a certain reduction in working hours has been observed. However, many physicians still work longer hours than the designated upper limit of overtime. Work reform must be further promoted by streamlining work and task-shifting while securing the functions of university hospitals such as research, education, and supporting healthcare in communities.
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  • 文章类型: Journal Article
    介绍变性人患者面临巨大的系统性医疗障碍和提供者的护理不足,他们经常在变性人社区的医疗需求方面表现出临床差距。提供探索确认跨性别医疗保健的干预措施,对于提供合格的跨性别患者护理和建立富有同情心的医患关系至关重要。宾夕法尼亚州东北部(NEPA)跨健康会议的成立是为了满足对跨性别者可以表达自己的叙述的教育论坛的日益增长的需求。在这项教育干预研究中,知识的变化,态度,在一年级本科医学生中,对跨性别社区的心理社会和医疗需求的信念进行了检查。材料和方法在2018年和2019年的春末,一年级医学生参加了NEPA跨健康会议,由盖辛格联邦医学院(GCSOM)主办。学生知识,态度,和信仰,关于跨性别社区的医疗需求在会议之前和之后进行了评估(干预).尽管这些调查在主题上有相似之处,2018年和2019年的调查是不同的,因此没有比较使用。结果2018年,35.24%的一年级医学生(37/105参与者)完成了前后调查。总的来说,62.5%(5/8)的调查项目差异显著。2019年,25.5%,一年级医学生(28/110参与者)完成了调查前和调查后,47.6%(9/21)的调查项目取得了显著结果。总的来说,尽管大多数一年级医学生在干预前对跨性别者表现出积极的态度,学生们还表现出了更多的知识,同理心,以及对干预后跨性别医疗保健叙事的理解。结论在医学课程中为医学生提供以跨性别者为重点的人文干预,除了他们过去和现在的医疗保健经验,在学术内容和为所有患者提供包容性性别确认医疗保健之间架起了桥梁。
    Introduction Transgender patients face substantial systemic healthcare barriers and inadequate care from providers who often demonstrate clinical gaps in the medical needs of the transgender community. Providing interventions in which affirming transgender healthcare is explored, is crucial to delivering competent transgender-patient care and building compassionate physician-patient relationships. The Northeast Pennsylvania (NEPA) Trans Health Conference was established to address the growing need for an educational forum where transgender people could voice their narratives. In this educational intervention study, changes in the knowledge, attitudes, and beliefs about the psychosocial and medical needs of the transgender community in first-year undergraduate medical students were examined pre- and post-trans health conference attendance. Materials and methods In the late spring of both 2018 and 2019, first-year medical students attended the NEPA Trans Health Conference, hosted by the Geisinger Commonwealth School of Medicine (GCSOM). Student knowledge, attitudes, and beliefs, regarding the healthcare needs of the transgender community were evaluated prior to and directly after the conference (intervention). Though the surveys shared thematic similarities, the 2018 and 2019 surveys were different and thus were not used comparatively. Results In 2018, 35.24% of first-year medical students (37/105 participants) completed both the pre- and post-survey. Overall, 62.5% (5/8) of survey items yielded significant differences. In 2019, 25.5%, of first-year medical students (28/110 participants) completed both the pre- and post-survey and 47.6% (9/21) of survey items yielded significant results. Overall, although the majority of first-year medical students displayed positive attitudes toward trans people pre-intervention, the students also demonstrated increased knowledge, empathy, and understanding of the transgender healthcare narrative post-intervention. Conclusion Providing medical students with a humanistic intervention within the medical curriculum that is focused on the transgender person, in addition to their past and present healthcare experiences, offers a bridge between academic content and providing inclusive gender-affirming healthcare to all patients.
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  • 文章类型: Case Reports
    背景关于核灾难后社区恢复的作用的信息很少。这里,我们报道了2011年福岛核灾难后居住在重新安置的地区的一对年长夫妇的病例,他们接受了门诊康复。病例介绍一名84岁的妇女在照顾患有阿尔茨海默病的丈夫时跌倒并遭受股骨转子骨折后接受了全髋关节置换术(THA)。85岁的丈夫在妻子住院后经历了痴呆(BPSD)的行为和心理症状恶化。这对夫妇使用班车服务在附近村庄的门诊设施接受了康复治疗。患者术后焦虑缓解,身体功能改善。此外,丈夫的BPSD症状减轻。结论妻子和丈夫在THA和BPSD减轻后表现出身体功能的改善。分别,康复后。在灾后,资源稀缺的地区,老年人可能会受益于利用周边地区的门诊康复服务。
    BackgroundLittle information is available on the role of community-based rehabilitation after a nuclear disaster. Here, we report the case of an older couple living in an area repopulated after the Fukushima nuclear disaster of 2011 who received outpatient rehabilitation.Case presentationAn 84-year-old woman underwent total hip arthroplasty (THA) after she fell and sustained a trochanteric fracture while caring for her husband with Alzheimer\'s disease. The 85-year-old husband experienced worsening behavioral and psychological symptoms of dementia (BPSD) following his wife\'s hospitalization. The couple received rehabilitation at an outpatient facility in a nearby village using a shuttle service. The woman\'s postoperative anxiety was relieved and her physical function improved. Moreover, the husband\'s BPSD symptoms decreased.ConclusionA wife and husband showed improvement in physical function after THA and alleviation of BPSD, respectively, following rehabilitation. In post-disaster, resource-scarce areas, older adults may benefit from utilizing the outpatient rehabilitation services available in the surrounding area.
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  • 文章类型: Journal Article
    有一个孩子患有限制生命的疾病是一种相对罕见的情况,代表了家庭的多维负担。儿科姑息治疗(PPC)旨在维持患病儿童和家庭的生活质量。传统上,大多数PPC都是在专业医疗保健级别提供的,但是研究表明,大多数家庭都希望花尽可能多的时间在家。然而,我们对社区医疗保健的PPC知识有限,尤其是从父母的角度来看。这些知识对于提供最佳的基于家庭的PPC非常重要。
    在社区医疗保健系统中探索父母对PPC的体验。
    具有解释性描述性设计的定性研究。
    总之,儿童死亡后,使用半结构化访谈指南对11名患有不同生命限制性疾病的儿童的父母进行了访谈。使用系统的文本凝聚对数据进行分析。遵循报告定性研究(QOREQ)的综合标准。
    父母的经历被记录在五个主要主题中:(i)“与医院和社区服务的互动”,(ii)“父母并不总是得到他们需要的帮助”,(iii)“孩子的需求变得越来越复杂”,(iv)“当结局到来时”和(v)“父母要求在不寻常的情况下过上普通的生活”。每个主要主题由两个次主题进一步阐述。
    总的来说,父母在社区中经历了PPC的有限和脆弱,由于缺乏灵活性,协调能力和专业能力关系到儿童的复杂需求。通过改善医院和社区医疗保健服务之间的护理协调,PPC似乎有可能得到改善,在疾病轨迹的早期时间点涉及社区医疗保健系统,包括以家庭为中心,并提供可访问性,社区服务的灵活性和护理协调。
    该研究已在研究项目的机构系统中注册(RETTE;ID号F2082)。
    UNASSIGNED: Having a child with a life-limiting illness is a situation that is relatively rare and represents a multidimensional burden on the family. Paediatric palliative care (PPC) aims to maintain the quality of life for the ill child and the family. Traditionally, most PPC has been provided at a specialist healthcare level, but research indicates that most families wish to spend as much time at home as possible. However, we have limited knowledge of PPC in community healthcare, especially from the parent\'s perspective. This knowledge is important to provide optimal home-based PPC.
    UNASSIGNED: To explore parents\' experiences of PPC within the community healthcare system.
    UNASSIGNED: Qualitative study with an interpretive descriptive design.
    UNASSIGNED: In all, 11 parents of children with different life-limiting illnesses were interviewed after the child\'s death using a semi-structured interview guideline. Data were analysed using systematic text condensation. Consolidated criteria for reporting qualitative research (QOREQ) was followed.
    UNASSIGNED: The parents\' experiences were captured in five main themes: (i) \'Interaction with hospital and community services\', (ii) \'Parents did not always get the help they needed\', (iii) \'The child\'s needs became increasingly complex\', (iv) \'When the end came\' and (v) \'The parents asked for an ordinary life in an unordinary situation\'. Each main theme was further elaborated by two subthemes.
    UNASSIGNED: Overall, the parents experienced PPC in the community as limited and fragile, and as lacking flexibility, coordination and professional competence related to the children\'s complex needs. There appears to be potential for improvement in PPC through improved care coordination between the hospital and the community healthcare services, involving the community healthcare system at an early timepoint in the illness trajectory, including a family focus, and providing accessibility, flexibility and care coordination of community services.
    UNASSIGNED: The study is registered in the institutional system for research project (RETTE; ID number F2082).
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