Bioética

Bioetica
  • 文章类型: Journal Article
    在过去的几年中,皮肤科医生的功能和设备都有所增加,一些例子是化妆品皮肤病学,人工智能,远程皮肤病学,和社交媒体,这增加了制药业和化妆品销售已成为生物伦理冲突的根源。这篇叙述性综述的目的是确定日常皮肤病学实践中的生物伦理冲突,并强调提出的解决方案。因此,我们在PubMed进行了搜索,WebofScience和Scopus数据库。此外,西班牙和美国医生和皮肤科医生的主要道义学规范已经修订。作者建议在尊重患者自主权的同时宣布所有利益冲突,保密性,和隐私。化妆品皮肤病学,化妆品销售,人工智能,远程皮肤病学,只要应用相同的传统皮肤病学标准,社交媒体是可行的。尽管如此,与这些创新相关的道义学代码需要翻新。
    Both the functions and equipment of dermatologists have increased over the past few years, some examples being cosmetic dermatology, artificial intelligence, tele-dermatology, and social media, which added to the pharmaceutical industry and cosmetic selling has become a source of bioethical conflicts. The objective of this narrative review is to identify the bioethical conflicts of everyday dermatology practice and highlight the proposed solutions. Therefore, we conducted searches across PubMed, Web of Science and Scopus databases. Also, the main Spanish and American deontological codes of physicians and dermatologists have been revised. The authors recommend declaring all conflicts of interest while respecting the patients\' autonomy, confidentiality, and privacy. Cosmetic dermatology, cosmetic selling, artificial intelligence, tele-dermatology, and social media are feasible as long as the same standards of conventional dermatology are applied. Nonetheless, the deontological codes associated with these innovations need to be refurbished.
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  • 文章类型: Journal Article
    在过去的几年中,皮肤科医生的功能和设备都有所增加,一些例子是化妆品皮肤病学,人工智能,远程皮肤病学,和社交媒体,这增加了制药业和化妆品销售已成为生物伦理冲突的根源。这篇叙述性综述的目的是确定日常皮肤病学实践中的生物伦理冲突,并强调提出的解决方案。因此,我们在PubMed进行了搜索,WebofScience和Scopus数据库。此外,西班牙和美国医生和皮肤科医生的主要道义学规范已经修订。作者建议在尊重患者自主权的同时宣布所有利益冲突,保密性,和隐私。化妆品皮肤病学,化妆品销售,人工智能,远程皮肤病学,只要应用相同的传统皮肤病学标准,社交媒体是可行的。尽管如此,与这些创新相关的道义学代码需要翻新。
    Both the functions and equipment of dermatologists have increased over the past few years, some examples being cosmetic dermatology, artificial intelligence, tele-dermatology, and social media, which added to the pharmaceutical industry and cosmetic selling has become a source of bioethical conflicts. The objective of this narrative review is to identify the bioethical conflicts of everyday dermatology practice and highlight the proposed solutions. Therefore, we conducted searches across PubMed, Web of Science and Scopus databases. Also, the main Spanish and American deontological codes of physicians and dermatologists have been revised. The authors recommend declaring all conflicts of interest while respecting the patients\' autonomy, confidentiality, and privacy. Cosmetic dermatology, cosmetic selling, artificial intelligence, tele-dermatology, and social media are feasible as long as the same standards of conventional dermatology are applied. Nonetheless, the deontological codes associated with these innovations need to be refurbished.
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  • 文章类型: Journal Article
    2021年6月《安乐死条例组织法》生效,要求临床医生重新考虑其专业工作,面对一项新服务,该服务扩大了在此之前被认为正确的范围。这项新服务影响到整个医疗系统,尤其是初级保健专业人员。除了程序和道德方面,有必要重新考虑对表达死亡愿望的患者的评估。在这次审查中,我们从最近对加速死亡(WTHD)的定义开始,其原因,流行病学和鉴别诊断。然后,我们研究了在死亡过程中发现的不同的心理框架和“好死亡”的概念。最后,我们分析了在现行立法框架内可能导致提供死亡援助的途径。WTHD适用于“严重和晚期疾病”的情况下的请求,在法律所考虑的其他情况下。当在WTHD的上下文中面临激活死亡预演援助的请求时(即,在死亡附近),有必要增加病人的控制感,并开始处理悲伤。此外,面对一个必然漫长的行政过程,适应治疗努力和镇静应被视为可能的选择.我们理解,至关重要的是,不要对患者/家庭造成错误的期望,也不要让医疗保健专业人员承担徒劳的行政任务。面对对患者应始终享有的权利的要求,很难平衡这些权利。
    The entry into force of the Organic Law on the Regulation of Euthanasia in June 2021 obliges clinicians to reconsider their professional work, in the face of a new service that expands the limits of what was considered correct until then. This new service affects the entire healthcare system, but especially primary care professionals. Beyond the procedural and moral aspects, it is necessary to rethink the assessment of the patient who expresses a wish to die. In this review, we start with the relatively recent definition of the wish to hasten death (WTHD), its causes, epidemiology and differential diagnosis. Then, we examine the different mental frameworks found in the process of dying and the concept of a «good death». Finally, we analyse the paths that can lead to the provision of aid in dying within the framework of current legislation. The WTHD is specific to requests in case of «serious and advanced illness», not in other cases contemplated by the Law. When faced with a request to activate the Aid in Dying Prestation in the context of WTHD (that is, in the proximity of death), it becomes necessary to increase the patient\'s sense of control and begin to work on grief. Besides, in the face of an administrative process that will necessarily be long, adapting the therapeutic efforts and sedation should be considered as possible options. We understand that it is essential not to create false expectations for patients/families and not to overload healthcare professionals with administrative tasks that will be futile. It is difficult to balance these in the face of a request for a right to which the patient should always have access.
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  • 文章类型: English Abstract
    病史强调了道德在每次进步中的重要性,生物伦理学在应对数字健康(DH)中新兴的伦理挑战方面发挥着关键作用。本文考察了DH创新的伦理困境,专注于医疗保健系统,专业人士,和病人。人工智能(AI)引发了诸如机密性和算法偏差等问题。移动应用程序(App)增强了访问和数字素养的能力,但却带来了挑战。远程医疗(TM)可以实现民主化并降低医疗成本,但需要解决数字鸿沟和相互协商的困境;它需要高质量的标准,包括患者信息保护和对获取公平的关注。可穿戴设备和物联网(IoT)改变了医疗保健,但面临隐私和公平等道德挑战。21世纪的生物伦理学必须具有适应性,因为DH工具需要不断的审查和共识,需要卫生科学学院为即将到来的变化做好准备。
    The medical history underscores the significance of ethics in each advancement, with bioethics playing a pivotal role in addressing emerging ethical challenges in digital health (DH). This article examines the ethical dilemmas of innovations in DH, focusing on the healthcare system, professionals, and patients. Artificial Intelligence (AI) raises concerns such as confidentiality and algorithmic biases. Mobile applications (Apps) empower but pose challenges of access and digital literacy. Telemedicine (TM) democratizes and reduces healthcare costs but requires addressing the digital divide and interconsultation dilemmas; it necessitates high-quality standards with patient information protection and attention to equity in access. Wearables and the Internet of Things (IoT) transform healthcare but face ethical challenges like privacy and equity. 21st-century bioethics must be adaptable as DH tools demand constant review and consensus, necessitating health science faculties\' preparedness for the forthcoming changes.
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  • 文章类型: Multicenter Study
    BACKGROUND: The experience on informed consent form (ICF) readability at the Research Ethics Committee of the National Institute of Cancerology of Mexico (INCan) is described.
    OBJECTIVE: To evaluate the readability of a randomly-selected sample of ICFs submitted for review between March 1, 2022 and March 31, 2023. The number of pages, the time the reader takes to read the text and the level of education necessary to understand it were determined.
    RESULTS: More than half the ICFs from internal investigations were shown to be somewhat or very difficult to read; the level of education required to understand them was up to 9.9 years, and the reading time was short. The ICF texts from international multicenter investigations were aimed at an average education level of 5.5 years and had normal readability. Most ICFs from external trials require a reading time of more than 60 minutes per ICF.
    CONCLUSIONS: It is necessary to have tools that provide objectivity to the evaluation of ICFs under investigation by ethics committees, which should be indicators of their comprehension, such as readability of the documents.
    BACKGROUND: Se describe la experiencia sobre la legibilidad de los formatos de consentimiento informado (FCI) del Comité de Ética en Investigación del Instituto Nacional de Cancerología de México.
    OBJECTIVE: Evaluar la legibilidad de una muestra seleccionada aleatoriamente de FCI sometidos para revisión entre el 1 de marzo de 2022 y el 31 de marzo de 2023. Se determinó el número de páginas, el tiempo que el lector invierte para leer el texto y el grado de escolaridad necesario para comprenderlo.
    RESULTS: Más de la mitad de FCI de investigaciones internas mostraron ser algo o muy difíciles de leer, la escolaridad necesaria para comprenderlos fue hasta de 9.9 años y el tiempo de lectura fue corto. Los textos de los FCI de investigaciones internacionales multicéntricas estuvieron dirigidos a un nivel escolar promedio de 5.5 años y tuvieron una legibilidad normal. La mayor parte de los ensayos externos requiere un tiempo de lectura superior a los 60 minutos por FCI.
    UNASSIGNED: Es necesario disponer de herramientas que den objetividad a la evaluación de los FCI en investigación por parte de los comités de ética y sean indicadores de su comprensión, tales como la legibilidad de los documentos.
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  • 文章类型: Journal Article
    目的:风湿性疾病患者终止妊娠是有争议的,很少进行生物伦理学分析。在这项研究中,我们分析了妊娠狼疮性肾炎患者对治疗无反应的情况,对于那些考虑终止妊娠的人。
    方法:综合模型是结合不同的规范伦理理论应用的。
    结果:从功利的角度来看,终止妊娠是合理的,为最大数量的利益相关者寻求最大的利益。道义证明终止和继续怀孕是合理的,专注于行动本身和自主性。在美德伦理学中,决定的重要性在于执行寻求繁荣的行动的人;终止妊娠是合理的。
    结论:根据综合模型,中断妊娠是一个合理的解决方案。范式病例的生物伦理学分析对于确保采取最佳行动至关重要,并作为风湿病学未来类似情况的先例。
    OBJECTIVE: Termination of pregnancy in patients with rheumatic diseases is controversial and a bioethical analysis is rarely performed. In this study we analysed the case of a pregnant patient with lupus nephritis unresponsive to treatment, for whom termination of pregnancy is considered.
    METHODS: The integrative model was applied combining different normative ethical theories.
    RESULTS: From a utilitarian perspective, termination of pregnancy is justifiable, seeking the greatest benefit for the greatest number of stakeholders. Deontology justifies both terminating and continuing the pregnancy, focusing on the action itself and on autonomy. In virtue ethics the importance of decisions rests with the person who performs the action seeking flourishing; termination of pregnancy would be justifiable.
    CONCLUSIONS: Interruption of pregnancy is a justifiable solution following the integrative model. Bioethical analysis of paradigmatic cases is essential to ensure the best possible action and as a precedent for future similar situations in rheumatology.
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  • 文章类型: English Abstract
    目的:要了解知识,通才护士知情同意的实施和意见,专家和初级保健居民。
    方法:使用在线自我管理的“临时”问卷进行描述性横断面研究。
    方法:马德里的初级护理护士,从2020年11月到2021年3月。
    方法:114名护士样本:91名通才,20名专家和3名居民。
    方法:社会人口统计学,知识,实施和意见。
    结果:有效率为27.7%。作为一般规则,48.2%表示知情同意书是口头收集的,根据法律规定,发现类别之间的差异,这一比例在专家和居民中更高(P=0.004),以及由内部住院医师(IRN)获得专长的专家(P<0.0001)。此外,专家和居民是最确定规范知情同意的法律规范的人(P<0.0001).在执行和意见方面,所有组获得了相似的结果.
    结论:以前没有研究分析知情同意的这些方面,比较不同的类别。来自其他医疗保健和地理区域的研究表明,护士拥有更多的知识,尽管参与这项研究的护士对生物伦理学和生物法的具体培训的需求更大。
    结论:护士对知情同意有足够的了解,在临床实践中使用它,并对它有一个适当的概念,在专科护士IRN和住院医师的某些项目中,较高。
    To know the knowledge, implementation and opinion on informed consent of generalist nurses, specialists and primary care residents.
    Descriptive cross-sectional study using an online self-administered \'ad hoc\' questionnaire.
    Primary care nurses in Madrid, from November 2020 to March 2021.
    Sample of 114 nurses: 91 generalist, 20 specialists and 3 residents.
    Sociodemographics, knowledge, implementation and opinion.
    The response rate was 27.7%. As a general rule, 48.2% indicated that informed consent was collected verbally, as established by law, with differences being found between categories, this percentage being higher in specialists and residents (P=0.004), and within specialists in those who had obtained their speciality by internal resident nurse (IRN) (P<0.0001). In addition, specialists and residents were those who most identified the legal norm regulating informed consent (P<0.0001). In terms of implementation and opinion, all groups obtained similar results.
    There are no previous studies that have analysed these aspects of informed consent comparing the different categories. Studies from other healthcare and geographical areas show that nurses have greater knowledge, although the demand for specific training in bioethics and biolaw is greater in the nurses participating in this study.
    Nurses have adequate knowledge about informed consent, use it in clinical practice and have an appropriate conception of it, being higher in some items in specialist nurses IRN and in residents.
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  • 文章类型: Observational Study
    背景:临床伦理咨询服务(CEC)是伦理咨询的有用模型,尽管在欧洲国家很少实施。本文分享了西班牙最早的道德咨询服务之一的经验。
    方法:这项工作是回顾性的,CEC服务机构在LaPrincesa大学医院(马德里,西班牙)从2019年9月1日到2021年8月31日。人口统计,logistic,并对案例的伦理变量进行了分析。
    结果:共分析63例病例,共发现124例伦理冲突。41%的病例(n=26)是紧急咨询,38%(n=24)是优先咨询。在50例(79%)中进行了24小时的初步评估。咨询最多的部门是重症监护病房(9;14%)。首选的接触方法是通过传呼机(36;57%),电子病历系统(13;21%),或与咨询团队直接对话(7;11%)。最常见的道德冲突是与治疗措施的充分性有关的冲突(24;19%),拒绝治疗(19;15%),与患者或其家人的沟通(29;23%),或患者的能力(13;11%)。
    结论:CEC服务提供快速,有效地帮助解决日常实践中的道德问题。它们在西班牙的实施是可行的。
    BACKGROUND: Clinical ethics consultation services (CEC) are useful model for ethical counselling, albeit with scarce implementation in European countries. This article shares the experience of one of the first ethics consultation services in Spain.
    METHODS: This work is a retrospective, observational study of all consultations received by the CEC service at La Princesa University Hospital (Madrid, Spain) from September 1, 2019 to August 31, 2021. The demographic, logistic, and ethical variables of the cases were analyzed.
    RESULTS: A total of 63 cases were analyzed in which a total of 124 ethical conflicts were identified. Forty-one percent of the cases (n = 26) were emergency consultations and 38% (n = 24) were preferential inquiries. An initial evaluation was performed with 24 h in 50 cases (79%). The department that consulted most often was the Intensive Care Unit (9; 14%). The preferred contact methods were via pager (36; 57%), the electronic medical record system (13; 21%), or direct conversations with consulting team (7; 11%). The most common ethical conflicts were those related to the adequacy of treatment measures (24; 19%), refusal of treatment (19; 15%), communication with the patient or his/her family (29; 23%), or the patient\'s capacity (13; 11%).
    CONCLUSIONS: CEC services provide quick, efficient assistance for resolving ethical problems in daily practice. Their implementation in Spain is feasible.
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  • 文章类型: Journal Article
    背景:神经性厌食症构成了一个重要的生物伦理困境,由于患者经常拒绝治疗,尽管这对他们的健康构成了危险,尚不清楚他们的决定是自主的。这项研究的目的是调查精神科医生和临床心理学家对神经性厌食症患者的能力和非自愿住院的看法/表现。
    方法:七名精神科医生,四位临床心理学家,并采访了一名三年级的住院医师。采用基于扎根理论的定性研究方法。
    结果:数据分析表明,这些专业人员围绕一个主要类别-将住院作为最后手段和寻求自愿,这意味着通常的医疗保健动态发生了变化。围绕这个中心类别,出现了一些重要的概念:角色压力,非正式胁迫,体重,家庭和慢性。
    结论:得出的结论是,难以调和专业需求会损害护理质量和工作满意度本身,这突出了需要反思和研究承担的责任的基础。
    BACKGROUND: Anorexia nervosa poses an important bioethical dilemma, since patients often refuse treatment despite the danger that this poses to their health, and it is not clear that their decision is autonomous. The aim of this study was to investigate the perceptions/performance of psychiatrists and clinical psychologists regarding the capacity and involuntary hospitalisation of patients with anorexia nervosa.
    METHODS: Seven psychiatrists, four clinical psychologists, and one third-year resident psychologist were interviewed. A qualitative research approach based on grounded theory was used.
    RESULTS: The data analysis showed that these professionals articulate patient care around one main category - hospitalisation as a last resort and the search for voluntariness, which implies a change in the usual healthcare dynamics. Around this central category, some important concepts emerge: role stress, informal coercion, weight, family and chronicity.
    CONCLUSIONS: It is concluded that the difficulty of reconciling professional demands can undermine the quality of care and job satisfaction itself, which highlights the need for reflection and research into the foundations of the responsibilities assumed.
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  • 文章类型: Journal Article
    BACKGROUND: Bioethics, as a reference framework for collective decision-making in plural societies, represents a valuable tool for the development, implementation and evaluation of public policies in order to address structural deficiencies and contexts of vulnerability that disproportionately affect certain sectors of the population.
    OBJECTIVE: To provide guidelines for the strengthening of actions, programs and public policies aimed at addressing the ethical dilemmas and challenges faced by health personnel.
    METHODS: A documentary research process was carried out on the moral context faced by health personnel at the federal level.
    RESULTS: Health budget programs show important gaps in their design, implementation or evaluation, which give rise to various ethical and human rights problems.
    CONCLUSIONS: Given the difficulty for reaching agreements or generating common understanding with regard to public health problems, bioethics contributes to a systematic approach to the challenges of the National Health System, for the safeguarding of the human rights of users, as well as of the integrity of its institutions.
    UNASSIGNED: La bioética como marco referencial para la toma de decisiones colectivas en sociedades plurales representa una valiosa herramienta para el desarrollo, implementación y evaluación de las políticas públicas a fin de abordar deficiencias estructurales y contextos de vulnerabilidad que afectan desproporcionalmente a ciertos sectores de la población.
    OBJECTIVE: Brindar pautas para el fortalecimiento de las acciones, programas y políticas públicas orientadas al abordaje de los dilemas y desafíos éticos que enfrenta el personal de salud.
    UNASSIGNED: Se llevó a cabo un proceso de investigación documental sobre el contexto moral que enfrenta el personal de salud a nivel federal.
    RESULTS: Los programas presupuestarios en salud presentan lagunas importantes en su diseño, implementación o evaluación, que dan lugar a diversos problemas éticos y de derechos humanos.
    CONCLUSIONS: Ante la dificultad de alcanzar acuerdos o generar entendimiento común en relación con problemas públicos en salud, la bioética contribuye al abordamiento sistemático de los desafíos del Sistema Nacional de Salud, para la salvaguarda de los derechos humanos de los usuarios, como también de la integridad de sus instituciones.
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