Advance care plan

预先护理计划
  • 文章类型: Journal Article
    预先护理计划(ACP)是一个讨论的过程,反思和沟通,能够规划未来的医疗。尽管有证据表明ACP对患者有益,家庭和医疗保健系统,许多人在没有机会进行这种对话的情况下死亡,特别是那些患有进行性非恶性疾病的人。2020年推出的皇家全科医师学院和玛丽居里水仙花标准为初级保健提供了改善临终关怀的结构。包括ACP的交付。主动识别患者是该方法不可或缺的。我们报告了一个质量改进项目,该项目旨在使用“对您重要的事情”(WMTY)框架评估及时和个性化ACP对话的一般实践中的接受率和可接受性。并确保包括不同的诊断和人口统计学群体。以前没有ACP并且可能在生命的最后一年的患者被提供了ACP对话;一项调查寻求反馈。81%的人接受了这个提议,在大多数情况下,在格洛斯特郡使用公认的格式记录未来的护理指导,以记录ACP对话,急诊护理和治疗(ReSPECT)计划的推荐摘要。临床医生和患者满意度很高。我们得出的结论是,使用“WMTY”格式的ACP讨论对于大多数人来说是高度可接受的。随着公认的推动者到位,已知的障碍最小化,有价值的个性化对话发生。把谈话的焦点放在某人想要如何生活上,同时包括他们对死亡的优先考虑,可能会改变临床医生和公众对这种对话的看法。它可以消除负面关联(例如将这些对话与即将死亡联系起来),这可能会增加所有人发起讨论的动力。ACP对话是证明的最佳实践,并且可以通过调整实践过程和临床医师教育而成为一般实践的常规;水仙花标准促进了持续的质量改进。
    Advance care planning (ACP) is a process of discussion, reflection and communication, enabling planning for future medical treatment. Despite evidence of benefits of ACP to patients, families and the healthcare system, many die without an opportunity for such conversations, particularly those living with progressive non-malignant conditions. The Royal College of General Practitioners and Marie Curie Daffodil Standards launched in 2020 provide primary care with a structure for improving end-of-life care, including delivery of ACP. Proactive identification of patients is integral to the approach.We report on a quality improvement project which aimed to assess the take-up rate and acceptability in general practice of a timely and personalised ACP conversation using a \'What matters to you\' (WMTY) framework, and to ensure that different diagnostic and demographic groups were included.Patients without previous ACP and potentially in the last year of life were offered an ACP conversation; a survey sought feedback.81% accepted the offer and in most cases, future care guidance was documented using the recognised format in Gloucestershire for recording ACP conversations, the Recommended Summary for Emergency Care and Treatment (ReSPECT) plan. Clinician and patient satisfaction was high.We concluded that an ACP discussion using a \'WMTY\' format was highly acceptable to most. With recognised enablers in place and known barriers minimised, valuable personalised conversations occurred. Reframing the conversation to focus on how someone wants to live, while including their priorities for death, could alter how such conversations are perceived by clinicians and the public. It could remove negative associations (such as linking these conversations with an imminent death), which may increase motivation for all to initiate discussions.ACP conversations are evidenced best practice and could become routine in general practice with adjustments to practice processes and clinician education; the Daffodil Standards facilitate continued quality improvement.
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  • 文章类型: Journal Article
    目的:本研究旨在确定人口统计学因素,基于区域的社会健康决定因素(SDOH),以及与儿科院外心脏骤停(OHCA)后医疗决策相关的临床特征。
    方法:这是一个回顾性研究,探索性,对2011年至2022年OHCA后入住儿科重症监护病房(ICU)的<18岁患者(n=217)在城市三级护理中的描述性分析,独立儿童医院。感兴趣的结果包括:(1)是否在住院期间订购了新的预先护理计划(ACP)(定义为书面预先指示,包括不复苏和/或不插管),(2)患者是否使用新的医疗技术(定义为气管造口术和/或饲管)出院。Logistic回归模型确定了与这些结果相关的特征。
    结果:在217名患者中,78例患者(36%)在入院期间放置了新的ACP。在幸存者中,26%(27/102)采用新医疗技术出院。与ACP相关的因素是小儿脑功能分类(PCPC)评分的变化更大(aOR=1.49,95%CI[1.28-1.73],p值<0.001)和姑息治疗咨询(aOR=2.39,95%CI[1.16-4.89],p值0.018)。与新医疗技术相关的因素是PCPC评分变化较低(aOR=0.76,95%C.I.[0.61-0.95],p值=0.015)和姑息治疗咨询(aOR=7.07,95%CI[3.01-16.60],p值<0.001)。基于地区的SDOH与结果之间没有关联。
    结论:了解OHCA后与ACP决策相关的因素对于优化家庭咨询至关重要。有必要进行多机构研究,以确定这些发现是否具有普遍性。
    OBJECTIVE: This study aims to identify demographic factors, area-based social determinants of health (SDOH), and clinical features associated with medical decision-making after pediatric out-of-hospital cardiac arrest (OHCA).
    METHODS: This is a retrospective, exploratory, descriptive analysis of patients < 18 years old admitted to the pediatric intensive care unit (ICU) after OHCA from 2011 to 2022 (n = 217) at an urban tertiary care, free-standing children\'s hospital. Outcomes of interest included: (1) whether a new advance care plan (ACP) (defined as a written advance directive including do not resuscitate and/or do not intubate) was ordered during hospitalization, and (2) whether the patient was discharged with new medical technology (defined as tracheostomy and/or feeding tube). Logistic regression models identified features associated with these outcomes.
    RESULTS: Of the 217 patients, 78 patients (36%) had a new ACP placed during their admission. Of the survivors, 26% (27/102) were discharged home with new medical technology. Factors associated with ACP were greater change in Pediatric Cerebral Performance Category (PCPC) score (aOR = 1.49, 95% CI [1.28-1.73], p-value < 0.001) and palliative care consultation (aOR = 2.39, 95% CI [1.16-4.89], p-value 0.018). Factors associated with new medical technology were lower change in PCPC score (aOR = 0.76, 95% C.I. [0.61-0.95], p-value = 0.015) and palliative care consultation (aOR = 7.07, 95% CI [3.01-16.60], p-value < 0.001). There were no associations between area-based SDOH and outcomes.
    CONCLUSIONS: Understanding factors associated with decision-making related to ACP after OHCA is critical to optimize counseling for families. Multi-institutional studies are warranted to identify whether these findings are generalizable.
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  • 文章类型: Journal Article
    提前护理计划使人们能够记录他们未来的健康和护理愿望,并任命某人为倡导者。如果一个人丧失行为能力,可以发出预先指示,这样他们的愿望仍然得到满足。肾脏病学团队的信念可能会影响患者的选择和签署预先指令的意愿。为了增加已签署预先指示的透析患者的数量,有必要对肾脏病医务人员进行教育。
    探讨肾脏科医务人员签署预先指令的意向及其相关因素。
    使用了横截面和相关设计。这项研究招募了160名肾脏科医务人员。数据通过使用Windows的社会科学统计软件包21.0进行分析。
    结果发现,某人作为肾病医务人员的一部分工作时间越长,他们对预先指令的了解越多。这导致他们更有可能想要为自己签署预先指令。
    为了提高肾脏病学医务人员对预先指令的认识和认识,医院管理者应该就这一主题进行继续教育。
    UNASSIGNED: Advance care planning enables people to record their future health and care wishes and appoint someone as an advocate. An advance directive can be made in the event that a person is incapacitated, so that their wishes are still upheld. The beliefs of the nephrology team might affect patients\' choices and willingness to sign an advance directive. To increase the number of dialysis patients who have signed an advance directive, it is necessary to educate the nephrology medical staff.
    UNASSIGNED: To explore the intention to sign an advance directive and its related factors among nephrology medical staff.
    UNASSIGNED: A cross-sectional and correlational design was used. This study recruited 160 nephrology medical staff. Data were analysed by using the Statistical Package for Social Science 21.0 for Windows.
    UNASSIGNED: The results found that the longer someone has worked as part of the nephology medical staff, the more knowledgeable they were about an advance directive. This led to them being more likely to want to sign an advance directive for themselves.
    UNASSIGNED: In order to improve the knowledge and awareness of advance directives among nephrology medical staff, hospital managers should provide continuing education on this topic.
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  • 文章类型: Journal Article
    远程医疗已被采用作为亲自进行初级保健的替代方案。有多个参与者可以远程加入,远程医疗可以促进阿尔茨海默病相关疾病(ADRD)患者的提前护理计划(ACP)的讨论和记录。我们测量了住院相关的利用结果,住院和90天再住院的实例来自付款人的管理数据库,并通过电子健康记录验证数据。我们使用内华达州立住院患者数据集估算了住院相关费用,并比较了2021年有和没有ACP文件的ADRD患者之间的估计费用。与没有ACP文件的ADRD患者相比,有ACP记录的患者住院的可能性较小(平均值:0.74;标准差:0.31;p<0.01),出院后90天内再入院的可能性较小(平均值:0.16;标准差:0.06;p<0.01).有ACP文件的ADRD患者的住院相关费用估计(平均值:149,722美元;标准差:80,850美元)低于没有ACP文件的患者(平均值:200,148美元;标准差:82,061美元;p<0.01)。需要进一步的老年医学劳动力培训,以增强ADRD患者的ACP能力,特别是在提供者短缺的地区,远程医疗起着相对更重要的作用。
    Telehealth has been adopted as an alternative to in-person primary care visits. With multiple participants able to join remotely, telehealth can facilitate the discussion and documentation of advance care planning (ACP) for those with Alzheimer\'s disease-related disorders (ADRDs). We measured hospitalization-associated utilization outcomes, instances of hospitalization and 90-day re-hospitalizations from payors\' administrative databases and verified the data via electronic health records. We estimated the hospitalization-associated costs using the Nevada State Inpatient Dataset and compared the estimated costs between ADRD patients with and without ACP documentation in the year 2021. Compared to the ADRD patients without ACP documentation, those with ACP documentation were less likely to be hospitalized (mean: 0.74; standard deviation: 0.31; p < 0.01) and were less likely to be readmitted within 90 days of discharge (mean: 0.16; standard deviation: 0.06; p < 0.01). The hospitalization-associated cost estimate for ADRD patients with ACP documentation (mean: USD 149,722; standard deviation: USD 80,850) was less than that of the patients without ACP documentation (mean: USD 200,148; standard deviation: USD 82,061; p < 0.01). Further geriatrics workforce training is called for to enhance ACP competencies for ADRD patients, especially in areas with provider shortages where telehealth plays a comparatively more important role.
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  • 文章类型: Journal Article
    中国正在进入人口老龄化时代,这类人群的死亡率上升。健康专业学生对死亡的态度直接影响他们未来职业生涯中姑息治疗的质量。因此,重要的是了解他们的死亡态度和相关因素,以指导未来的教育和培训发展。
    本研究旨在调查中国卫生专业学生的死亡态度并分析相关因素。
    在这项横断面研究中,从14所医学院校招收了1,044名卫生专业学生。使用中文版的死亡态度修订版(DAP-R)来评估他们的死亡态度。采用多元线性回归模型分析死亡态度的影响因素。
    健康专业的学生倾向于更中立地接受死亡。多因素分析显示,其消极死亡态度与年龄(β=-0.31,p<0.001)和宗教信仰(β=2.76,p=0.015)有关。而积极的死亡态度与年龄相关(β=-0.42,p<0.001),听力预先护理计划(ACP)(β=2.21,p=0.001),参加葬礼/追悼会(β=2.69,p=0.016)。
    我们的研究强调了在中国卫生专业学生的医疗保健课程中纳入死亡和姑息治疗教育的重要性。将ACP教育与葬礼/追悼会的经验结合起来,可能有助于促进卫生专业学生对死亡的积极态度,并提高其未来职业生涯中姑息治疗的质量。
    China is entering an era of aging population with an increased mortality rate among this category of population. Health professional students\' attitudes toward death directly affect their quality of palliative care in their future careers. It is thus important to understand their death attitudes and associated factors to guide future educational and training development.
    This study aimed to investigate death attitudes and analyze the associated factors among health professional students in China.
    In this cross-sectional study, 1,044 health professional students were recruited from 14 medical colleges and universities. The Chinese version of the Death Attitude Profile-Revised (DAP-R) was used to evaluate their death attitudes. A multiple linear regression model was used to analyze the influencing factors of attitudes toward death.
    Health professional students tended to accept death more neutrally. Multivariate analysis showed that their negative death attitudes were associated with age (β = -0.31, p < 0.001) and religious belief (β = 2.76, p = 0.015), while positive death attitudes were associated with age (β = -0.42, p < 0.001), hearing of Advance Care Plan (ACP) (β = 2.21, p = 0.001), and attending funeral/memorial services (β = 2.69, p = 0.016).
    Our study stresses the importance of including death and palliative care education in healthcare courses among health professional students in China. Incorporation of ACP education along with experiences of funeral/memorial services may help promote health professional students\' positive attitudes toward death and improve the quality of palliative care in their future careers.
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  • 文章类型: Case Reports
    CL是一名94岁的男性,由于新的虚弱发作和精神状态改变,他从辅助生活设施被带到急诊室。他通常处于中等补偿健康状态,由于医疗虚弱和先前的右脑CVA伴有残留的轻度左侧无力,因此需要大多数日常生活活动的帮助。入学那天,工作人员发现他昏昏欲睡,迷失方向。家人要求进行经皮外科咨询,内窥镜,胃造口术(PEG)管放置。对患者记录的回顾显示,患者在最近两次住院期间拒绝使用PEG管。在上次录取时,医院医生记录说,病人一再拒绝营养支持,他说:“如果这是我的时间,我过着充实的生活。我准备死了,和我的妻子一起。\“没有预先护理计划(\“生前遗嘱”),但CL之前确实签署了一份“代理决策者选择”表格,指派他的侄子作为主要代理人。在多个家庭成员的压力下,包括指定的代理人,主治医生要求进行手术咨询。手术团队确定患者没有能力和计划的CL进行PEG管放置。护理团队担心患者先前(和一贯)陈述的愿望与家人的愿望之间的冲突;要求进行道德咨询。
    CL is a 94-year-old male who is brought to the Emergency Department from an assisted living facility due to a new onset of weakness and altered mental status. He was in his usual state of moderately compensated health, requiring assistance for most activities of daily living due to medical frailty and a previous right brain CVA with residual mild left sided weakness. On the day of admission, the staff found him lethargic and disoriented. The family requested a surgical consult for percutaneous, endoscopic, gastrostomy (PEG) tube placement. A review of the patient\'s records showed that the patient had refused a PEG tube during his last two hospitalizations. During the last admission, the hospitalist documented that the patient repeatedly refused nutritional support stating \"if it\'s my time, I\'ve lived a full life. I\'m ready to die and join my wife.\" There was no advance care plan (\"living will\"), but CL did sign a \"Selection of Surrogate Decision-maker\" form previously, assigning his nephew as primary surrogate. Under pressure from multiple family members, including the designated surrogate, the attending requested a surgical consultation. The surgical team determined that the patient did not have capacity and scheduled CL for PEG tube placement. The care team had concerns regarding the conflict between the patient\'s previously (and consistently) stated desires and the family\'s wishes; an ethics consult was requested.
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  • 文章类型: Journal Article
    背景:访问泰国急诊科(ED)的姑息患者的特征和结果,一个没有标准姑息治疗系统的国家,没有得到全面的研究。我们旨在报告ED姑息患者的特征,并调查与死亡率相关的因素。
    方法:在Siriraj医院进行了一项前瞻性观察研究,曼谷,泰国,在2019年3月至2021年2月之间,通过采访姑息患者和/或其护理人员和病历审查。包括患有无法治愈的癌症或其他晚期慢性病的姑息患者。
    结果:共纳入182例患者。他们的平均年龄是73岁,61.5%是女性,53.8%患有不治之症。其中,20.3%的人以前去过姑息诊所。大约60%有先进的指令,4.9%有生前遗嘱,27.5%的人对他们首选的死亡地点有计划。最常见的主诉是呼吸困难(43.4%),ED就诊的主要原因是“无法控制症状”(80%)。在ED,17%的患者曾被姑息治疗小组看过,23.1%死亡。虽然51%被录取,48.9%不能存活出院。癌症,接受了吗啡,姑息表现量表>30和ED姑息咨询与住院死亡率独立相关.
    结论:对姑息治疗的认可和利用在很大程度上是不够的,特别是对于非癌症患者。从ED到家庭护理的姑息治疗系统的改进和推广是强制性的,以提高姑息患者的生活质量。
    BACKGROUND: The characteristics and outcomes of palliative patients who visited the Emergency Department (ED) in Thailand, a country in which no standard palliative care system existed, have not been comprehensively studied. We aimed to report the characteristics of ED palliative patients and investigate factors associated with mortality.
    METHODS: A prospective observational study was conducted at Siriraj Hospital, Bangkok, Thailand, between March 2019 and February 2021 by means of interviewing palliative patients and/or their caregivers and medical record review. Palliative patients with either incurable cancer or other end-stage chronic diseases were included.
    RESULTS: A total of 182 patients were enrolled. Their mean age was 73 years, 61.5% were female, and 53.8% had incurable cancer. Of these, 20.3% had previously visited the palliative clinic. Approximately 60% had advanced directives, 4.9% had a living will, and 27.5% had plans on their preferred place of death. The most common chief complaint was dyspnea (43.4%), and the main reason for ED visits was \'cannot control symptoms\' (80%). At the ED, 17% of the patients had been seen by the palliative care team, and 23.1% died. Although 51% were admitted, 48.9% could not survive to discharge. Cancer, having received morphine, a palliative performance scale > 30, and ED palliative consultation were independently associated with hospital mortality.
    CONCLUSIONS: The recognition and utilization of palliative care were largely inadequate, especially for non-cancer patients. An improvement and promotion in the palliative care system from the ED through home care are mandatory to improve the quality of life of palliative patients.
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  • 文章类型: Journal Article
    背景:南国的每个卫生提供者/机构,新西兰,以前有自己的表格和流程来记录和传达计划的治疗范围;这个项目试图巩固和简化这些可变的过程,成为一个可操作的医疗秩序,在所有设置有效。目的:假设干预措施将减少生命最后一年的不必要住院。设计:临床医嘱联合治疗范围(COAST)表格是单页医疗医嘱,旨在记录和传达据信在生命最后一年的成年患者的复苏状态和医疗范围,如对惊喜问题的“否”回应所证明。这项分三个阶段的倡议于2019年5月至2020年1月在南国试行了COAST表格的使用。结果:183名COAST患者同意参加研究。61%的人被诊断为恶性。在COAST表格实施之前的12个月内,急诊科(ED)的平均人数为每人1.5,平均每人住院人数为2.2.这分别降低到0.5和0.5,在COAST实施后的12个月内(p=0.00)。三名患者在COAST实施前的12个月内没有ED报告/入院。与沿海实施后的29个相比,66.7%的患者在2019年5月至2021年2月期间死亡。结论:COAST表格的患者在实施后的12个月内,ED报告和住院人数明显减少。
    Background: Each health provider/agency in Southland, New Zealand, previously had its own forms and processes to document and communicate the planned scope of treatment; this project attempted to consolidate and streamline these variable processes into one actionable medical order that is valid in all settings. Aim: The hypothesis was that the intervention would reduce unnecessary hospitalizations in the final year of life. Design: The Clinical Order Articulating Scope of Treatment (COAST) form was a single-page medical order designed to document and communicate the resuscitation status and scope of medical treatment for adult patients believed to be in the final year of life, as evidenced by a \"no\" response to the Surprise Question. This three-phase initiative piloted the use of the COAST form in Southland from May 2019 to January 2020. Results: One hundred eighty-three patients with COAST forms consented to study participation. Sixty-one percent had a malignant primary diagnosis. The average number of emergency department (ED) presentations in the 12 months before COAST form implementation was 1.5 per person, and the average number of hospital admissions per person was 2.2. This was reduced to 0.5 and 0.5, respectively, in the 12 months following COAST implementation (p = 0.00). Three patients had no ED presentations/hospital admissions in the 12 months before COAST implementation, compared with 29 following COAST implementation, and 66.7% of patients died between May 2019 and February 2021. Conclusions: Patients with a COAST form had significantly fewer ED presentations and hospital admissions in the 12 months following implementation.
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  • 文章类型: Journal Article
    ED是启动姑息治疗的日益重要的场所。我们试图描述这些观点,经验,对新西兰奥特罗阿(新西兰)的急诊室工作人员进行培训和教育,了解新西兰急诊室环境中姑息治疗的具体方面。
    所有NZFACEM都亲自通过电子邮件发送了一个简单的非结构化的16部分调查,询问有关启动姑息治疗的问题,照顾的目标,提前护理计划的启动和可用性,脆弱的筛查,姑息治疗专业知识的可用性,培训和教育,员工的文化安全和牧养。联系了所有ED,并为希望参加的非FACEMED员工提供了链接。对主要主题的自由文本评论进行了分析。
    所有新西兰ED都有至少一名参与者。高级医务人员的参与度很高,有60%的NZFACEM参加。该小组有300多条自由文本评论可用于主题分析。共有93%的NZFACEM受访者同意姑息治疗应该能够在ED中开始。只有25%的人知道在ED中进行严重疾病对话的培训,而只有34%的人在为毛利人及其whanau(家庭)提供临终护理时感到有文化能力。对ED员工的牧师护理似乎是临时性的。时间和隐私限制是常见的主题。
    ED在启动和提供姑息治疗方面存在改善质量的重要机会。需要注意各部门如何为员工提供牧师护理。
    The ED is an increasingly important venue for the initiation of palliative care. We sought to characterise the opinions, experience, training and education of ED staff in Aotearoa/New Zealand (NZ) with regard to specific aspects of palliative care in the NZ ED setting.
    All NZ FACEMs were personally emailed a simple unstructured 16-part survey asking questions about initiating palliative care, goals of care, initiation and availability of advance care plans, frailty screening, availability of palliative expertise, training and education, cultural safety and pastoral care of staff. All EDs were contacted and a link provided for non-FACEM ED staff who wished to participate. Free-text comments were analysed for dominant themes.
    All NZ EDs had at least one participant. There was a high level of senior medical staff engagement with 60% of NZ FACEMs participating. More than 300 free-text comments from this group were available for theme analysis. A total of 93% of NZ FACEM respondents agree that palliative care should be able to be initiated in the ED. Only 25% of this group knew of training in serious illness conversations in the ED while only 34% felt culturally competent when providing end-of-life care for Māori and their whanau (family). Pastoral care for ED staff appears to be ad hoc. Time and privacy limitations were common themes.
    There is significant opportunity for quality improvement in the initiation and provision of palliative care from the ED. Attention to how departments provide pastoral care to their staff is needed.
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  • 文章类型: Journal Article
    在社区中,很大一部分患者得到了临终关怀(EoL)的支持,其中许多是地区护理(DN)案件量所熟知的。随着时间的推移,社区专科医师地区护理(CSPDN)团队与患者建立治疗关系,他们擅长提供EoL护理。他们现在还积极和例行地进行死亡核查(VoD)。因此,他们处于促进和促进患者及其家人社区组织捐赠的主要位置。政府认识到有必要促进器官和组织捐赠,实施器官捐赠(视为同意)法(2019年),因此,现在考虑每个18岁以上的人进行器官和组织捐赠,并期望更多的接受者接受改变生活的组织移植。DN团队似乎缺乏对法律变化的认识,因此,在实践中没有积极推广。Further,没有可用的以社区为中心的指导或培训来支持DN进行这些困难而复杂的对话,从而能够探索患者在促进组织捐赠方面的愿望。因此,需要指导和教育,以改善整体推荐,希望他们能增加捐款。
    A high proportion of patients are being supported with end-of-life (EoL) care in the community, many of which are known to district nursing (DN) caseloads. Over time, community specialist practitioner district nursing (CSPDN) teams build therapeutic relationships with patients, and they are adept at providing EoL care. They are also now actively and routinely undertaking verification of death (VoD). Thus, they are in a prime position to promote and facilitate community tissue donation among patients and their families. The Government has recognised a need to promote organ and tissue donation, implementing the Organ Donation (Deemed Consent) Act (2019), whereby every person over the age of 18 years is now considered for organ and tissue donation with the anticipation of more recipients receiving life-changing tissue transplantation. DN teams seem to lack awareness of the change in law and, therefore, are not actively promoting this in practice. Further, there is no available community-focused guidance or training to support DNs to have these difficult and complex conversations enabling exploration of patients\' wishes with regard to promote tissue donation. Therefore, guidance and education are needed in order to improve overall referrals, in the hope that they lead to an increase in donation.
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