目的:许多老年人不认为自己是“病人”,而是希望尽可能积极地生活。然而,大多数健康相关的生活质量(HRQL)指标是为临床人群开发的.该项目的目的是填补这一空白,供国际使用,衡量老年人随着年龄的增长和寻求保持尽可能活跃的因素,老年人积极生活(OPAL)。
方法:对于内容开发,对来自加拿大的老年人进行了关于积极生活的采访,美国,英国,和英语中的荷兰,法语,西班牙语和荷兰语,分别与随后的主题分析和协调。
结果:对148名老年人的转录本的分析表明,积极生活是一种“存在方式”,而不仅仅是进行活动。达到饱和度,总共确定了59个内容区域。在将类似的“方式”组合在一起并对重要性进行共识评级之后,剩下19种独特而重要的“方式”。在某些语言中,对于19个中的三个来说,制定是具有挑战性的,导致两个英语单词的变化,并删除了另外两个单词,产生17种“存在方式”的最终列表,用4种语言统一措辞。
结论:这项研究强调了倾听老年人的重要性,并强调了在测量发展中考虑语言和文化细微差别的重要性。
OBJECTIVE: Many older persons do not think of themselves as \"patients\" but as persons wishing to live as actively as possible for as long as possible. However, most health-related quality of life (HRQL) measures were developed for use with clinical populations. The aim of this project was to fill that gap and to develop, for international use, a measure of what matters to older persons as they age and seek to remain as active as possible, Older Persons for Active Living (OPAL).
METHODS: For content development, interviews about active living were conducted with older persons from Canada, USA, UK, and the Netherlands in English, French, Spanish and Dutch, respectively with subsequent thematic analysis and harmonization.
RESULTS: Analyses of transcripts from 148 older persons revealed that active living was a \"way of being\" and not merely doing activities. Saturation was reached and a total of 59 content areas were identified. After grouping similar \"ways\" together and after conducting a consensus rating of importance, 19 unique and important \"ways\" remained. In some languages, formulating was challenging for three of the 19, resulting in changes to two English words and dropping two other words, yielding a final list of 17 \"ways of being\" with harmonized wording in 4 languages.
CONCLUSIONS: This study underscores the significance of listening to older adults and highlights the importance of considering linguistic and cultural nuances in measure development.