Online Social Networking

在线社交网络
  • 文章类型: Journal Article
    背景:对慢性疼痛的同伴支持越来越多地通过社交网络社区在社交媒体上进行。关于慢性疼痛发展和维持的几种理论强调了如何反思,灾难,消极的社会互动会导致不良的健康结果。然而,关于基于网络的健康讨论在发展与慢性疼痛相关的消极健康态度和积极健康态度中所起的作用知之甚少。
    目的:本研究旨在调查参与在线对等支持社区是如何影响疼痛表达的,方法是研究用户语言情感如何随着同伴互动而演变。
    方法:我们收集了199个随机抽样的Reddit的评论历史(Reddit,Inc)活跃于流行的点对点慢性疼痛支持社区超过10年的用户。对总共2种单独的自然语言处理方法进行了比较,以计算论坛上的用户评论的情绪(N=73,876)。然后,我们使用混合效应增长曲线建模对用户的语言情绪轨迹进行建模,并使用双变量小波分析测量用户与同伴的情感同步程度。
    结果:与混洗基线相比,我们发现有证据表明,用户夹带了他们的语言情感,以匹配他们与之互动的社区成员的语言(t198=4.02;P<.001;Cohend=0.40)。这种同步在数百次互动中展开的低频情绪变化中最为明显,而不是从评论到评论发生的反动变化(F2,198=17.70;P<.001)。我们还观察到所有用户的情绪有显著趋势(β=-.02;P=.003),随着用户继续与社区互动,他们越来越多地使用负面语言。值得注意的是,情感同步与社区保有权之间存在显著的相互作用(β=.02;P=.02),因此,更大的情感同步与短期用户之间的负面情绪轨迹和长期用户之间的正面情绪轨迹相关。
    结论:我们的结果与疼痛的社会交往模型一致,它描述了社交互动如何影响疼痛症状的表达。社区成员之间观察到的长期情感同步与短期情感同步的差异表明了情感共同调节和社会学习的过程。在Reddit上参与健康讨论似乎与情绪的消极和积极变化有关,具体取决于个人用户与同龄人的互动方式。因此,除了表征在线慢性疼痛社区中存在的情绪动态,我们的工作提供了对依赖在社交媒体平台上组织的支持社区的潜在好处和缺点的洞察。
    BACKGROUND: Peer support for chronic pain is increasingly taking place on social media via social networking communities. Several theories on the development and maintenance of chronic pain highlight how rumination, catastrophizing, and negative social interactions can contribute to poor health outcomes. However, little is known regarding the role web-based health discussions play in the development of negative versus positive health attitudes relevant to chronic pain.
    OBJECTIVE: This study aims to investigate how participation in online peer-to-peer support communities influenced pain expressions by examining how the sentiment of user language evolved in response to peer interactions.
    METHODS: We collected the comment histories of 199 randomly sampled Reddit (Reddit, Inc) users who were active in a popular peer-to-peer chronic pain support community over 10 years. A total of 2 separate natural language processing methods were compared to calculate the sentiment of user comments on the forum (N=73,876). We then modeled the trajectories of users\' language sentiment using mixed-effects growth curve modeling and measured the degree to which users affectively synchronized with their peers using bivariate wavelet analysis.
    RESULTS: In comparison to a shuffled baseline, we found evidence that users entrained their language sentiment to match the language of community members they interacted with (t198=4.02; P<.001; Cohen d=0.40). This synchrony was most apparent in low-frequency sentiment changes unfolding over hundreds of interactions as opposed to reactionary changes occurring from comment to comment (F2,198=17.70; P<.001). We also observed a significant trend in sentiment across all users (β=-.02; P=.003), with users increasingly using more negative language as they continued to interact with the community. Notably, there was a significant interaction between affective synchrony and community tenure (β=.02; P=.02), such that greater affective synchrony was associated with negative sentiment trajectories among short-term users and positive sentiment trajectories among long-term users.
    CONCLUSIONS: Our results are consistent with the social communication model of pain, which describes how social interactions can influence the expression of pain symptoms. The difference in long-term versus short-term affective synchrony observed between community members suggests a process of emotional coregulation and social learning. Participating in health discussions on Reddit appears to be associated with both negative and positive changes in sentiment depending on how individual users interacted with their peers. Thus, in addition to characterizing the sentiment dynamics existing within online chronic pain communities, our work provides insight into the potential benefits and drawbacks of relying on support communities organized on social media platforms.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    背景:虚假的健康相关新闻通过互联网迅速传播,对个人和社会造成伤害。尽管采取了干预措施,芬苯达唑丑闻最近在韩国肺癌患者中传播。适当干预以防止假新闻的传播至关重要。
    目的:本研究调查了干预措施的适当时机,以最大程度地减少假新闻的副作用。
    方法:使用易感感染恢复(SIR)模型进行了模拟,这是典型的病毒传播机制。我们将该模型应用于假新闻传播机制。参数设置类似于数字环境中的参数,芬苯达唑丑闻发生的地方。NetLogo,基于代理的模型,被用作分析工具。
    结果:假新闻在没有干预的情况下持续了278天。由于调整和分析了因芬苯达唑丑闻的干预时间,我们发现,更快的干预导致假新闻持续时间更短(54天的干预=持续210天的假新闻;16天的干预=持续187天的假新闻;10天的干预=持续157天的假新闻)。然而,在10天内进行干预时,没有观察到显著差异.
    结论:在10天内实施的干预措施有效地减少了假新闻传播的持续时间。我们的研究结果表明,及时的干预对于防止假新闻在数字环境中的传播至关重要。此外,应该开发一个可以检测假新闻的监控系统,以便做出快速反应。
    BACKGROUND: Fake health-related news has spread rapidly through the internet, causing harm to individuals and society. Despite interventions, a fenbendazole scandal recently spread among patients with lung cancer in South Korea. It is crucial to intervene appropriately to prevent the spread of fake news.
    OBJECTIVE: This study investigated the appropriate timing of interventions to minimize the side effects of fake news.
    METHODS: A simulation was conducted using the susceptible-infected-recovered (SIR) model, which is a representative model of the virus spread mechanism. We applied this model to the fake news spread mechanism. The parameters were set similarly to those in the digital environment, where the fenbendazole scandal occurred. NetLogo, an agent-based model, was used as the analytical tool.
    RESULTS: Fake news lasted 278 days in the absence of interventions. As a result of adjusting and analyzing the timing of the intervention in response to the fenbendazole scandal, we found that faster intervention leads to a shorter duration of fake news (intervention at 54 days = fake news that lasted for 210 days; intervention at 16 days = fake news that lasted for 187 days; and intervention at 10 days = fake news that lasted for 157 days). However, no significant differences were observed when the intervention was performed within 10 days.
    CONCLUSIONS: Interventions implemented within 10 days were effective in reducing the duration of the spread of fake news. Our findings suggest that timely intervention is critical for preventing the spread of fake news in the digital environment. Additionally, a monitoring system that can detect fake news should be developed for a rapid response.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Systematic Review
    背景:社会隔离在精神病患者中很常见,导致负面健康结果。包括在线社交网络(OSN)在内的干预措施可以克服一些与精神病相关的障碍,并促进社交互动。然而,目前证据很少,需要在系统评价中进行整理,以更好地了解有效性.
    方法:遵循PRISMA指南,这篇综述产生了9835个结果.十一份出版物,5项RCT和6项非对照研究的报告数据,符合纳入标准。两名独立审核员进行了数据提取和质量评估,结果以叙述方式综合。
    结果:这篇综述广泛地研究了干预措施,包括用于对等交互的目的构建平台或现有的OSN工具。然而,我们只确定了利用目的设计平台的干预措施。早期的小规模研究表明,OSN干预减少了社会孤立,但更大的有效性研究并未证实这些效果.没有发现生活质量结果的改善。
    结论:更高质量和更长期的研究不支持当前OSN干预措施在减少社会隔离或改善精神病患者生活质量方面的有效性。这些干预措施使用了专门构建的平台,并鼓励选定的个人之间的OSN,这可以解释这些结果。未来的研究可能会探索促进主流OSN平台的安全使用,以扩大精神病患者的社交网络。
    BACKGROUND: Social isolation is frequent in people with psychosis, contributing to negative health outcomes. Interventions including online social networking (OSN) may overcome some psychosis-related barriers and facilitate social interactions. However, evidence is currently sparse and needs to be collated in a systematic review to better understand effectiveness.
    METHODS: Following PRISMA guidelines, this review yielded 9835 results. Eleven publications, reporting data from five RCTs and six non-controlled studies, met the inclusion criteria. Two independent reviewers undertook data extraction and quality assessment, with results narratively synthesised.
    RESULTS: This review looked broadly at interventions including either purpose-build platforms for peer-to-peer interactions or existing OSN tools. Yet, we only identified interventions utilising purpose-designed platforms. Early small-scale studies suggested OSN interventions reduced social isolation, but larger effectiveness studies did not confirm these effects. No improvements in quality-of-life outcomes were identified.
    CONCLUSIONS: Higher quality and longer-term studies did not support effectiveness of current OSN interventions in reducing social isolation or improving quality of life of people with psychosis. These interventions used purpose-built platforms and encouraged OSN between selected individuals, which may explain these outcomes. Future research may explore promoting safe use of mainstream OSN platforms to expand the social networks of individuals with psychosis.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    我们开发了一个模拟框架,用于研究在线社交网络中传播的错误信息,该框架融合了基于代理的建模和自然语言处理技术。虽然在这个空间中存在许多其他基于代理的模拟,关于他们对现有网络的保真度和泛化的问题部分阻碍了他们推动政策相关决策的能力。为了部分解决这些问题,我们通过下载超过一万名用户的社交媒体历史记录,创建了一个已知的错误信息共享网络的“数字克隆”。我们解析这些历史,以提取网络的结构,并对信息在其成员之间共享和传播的微妙方式进行建模。与此领域中的许多其他基于代理的方法不同,在我们的框架中,用户之间的信息共享对讨论的话题很敏感,用户偏好,和在线社区动态。为了评估我们方法的保真度,我们用一组记录在基础网络中的帖子来播种我们的克隆网络,并比较两者之间的传播动态,在各种指标上观察孪生网络之间的合理协议。最后,我们探索克隆网络如何作为一个灵活的,用于错误信息对策评估和红色团队分析的低成本测试平台。我们希望这里探索的工具可以增强该领域的现有努力,并为错误信息对策评估提供新的机会,随着生成人工智能推动的错误信息活动的预期兴起,这一领域可能变得越来越重要。
    We develop a simulation framework for studying misinformation spread within online social networks that blends agent-based modeling and natural language processing techniques. While many other agent-based simulations exist in this space, questions over their fidelity and generalization to existing networks in part hinder their ability to drive policy-relevant decision making. To partially address these concerns, we create a \'digital clone\' of a known misinformation sharing network by downloading social media histories for over ten thousand of its users. We parse these histories to both extract the structure of the network and model the nuanced ways in which information is shared and spread among its members. Unlike many other agent-based methods in this space, information sharing between users in our framework is sensitive to topic of discussion, user preferences, and online community dynamics. To evaluate the fidelity of our method, we seed our cloned network with a set of posts recorded in the base network and compare propagation dynamics between the two, observing reasonable agreement across the twin networks over a variety of metrics. Lastly, we explore how the cloned network may serve as a flexible, low-cost testbed for misinformation countermeasure evaluation and red teaming analysis. We hope the tools explored here augment existing efforts in the space and unlock new opportunities for misinformation countermeasure evaluation, a field that may become increasingly important to consider with the anticipated rise of misinformation campaigns fueled by generative artificial intelligence.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    COVID大流行对人口的心理健康产生了重大影响,尤其是女性青少年。饮食失调和性别认同问题明显增加。在此期间,在线活动也大幅增长,占据了青少年的大部分时间。我们探索青春期男孩和女孩对社交网络和在线游戏的使用。我们讨论了面对大流行时,它们对男孩和女孩不同程度的心理困扰的可能影响。我们建议网络游戏,主要由年轻男孩使用,可能会通过与身体及其经验相关的机制为他们提供一些情感保护,竞争的群体动态,合作,和等级制度,表达侵略的可能性,以及构建更清晰、更稳定的身份。不带偏见地看待新技术是强制性的,如果我们要避免将我们的恐惧和期望投射到他们身上。
    The COVID pandemic has had a major impact on the mental health of the population, especially on female adolescents. Eating disorders and gender identity problems have increased markedly. Online activities have also grown enormously during this period occupying a large portion of adolescents\' time. We explore the use of social networking and online gaming by adolescent girls and boys. We discuss their possible influence on different levels of psychological distress in boys and girls in the face of the pandemic. We propose that online games, mainly used by young boys, might offer them some emotional protection through mechanisms related to the body and its experience, to the group dynamics of competition, collaboration, and hierarchy, to the possibility of expressing aggression, and to the construction of a clearer and more stable identity. An unprejudiced look at new technologies is mandatory, if we are to avoid projecting our fears and expectations onto them.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    人们倾向于与自己相似的人交朋友,产生一种叫做同质的模式。然而,现有的关于友谊模式的研究通常依赖于调查,这些调查评估了相对较少的参与者对他们友谊的看法,但没有衡量实际的友谊模式。这里,我们使用来自斯洛伐克一个大型在线社交网络的数据来评估性别的作用,年龄,以及超过40万用户的同性在线连接中的体重指数(BMI)。我们发现年龄和BMI同质发生在男性和女性的同性关系中,但在男性中更为强烈。然而,随着女性BMI的差异,他们的联系不太可能得到回报。我们讨论了人类联盟竞争的进化遗产(例如,战争)和女性的交配竞争或招募分配提供者可能会导致现代同性关系中的这些模式。例如,男性在体育活动中的参与可能会导致他们的同性同龄人中类似的强大水平。总之,我们的发现强调了特质相似性与同性友谊模式的重要性.
    People tend to befriend others similar to themselves, generating a pattern called homophily. However, existing studies on friendship patterns often rely on surveys that assess the perspective of relatively few participants on their friendships but do not measure actualized friendship patterns. Here, we used data from a large Slovakian online social network to assess the role of gender, age, and body mass index (BMI) in same-gender online connections among more than 400,000 users. We found that age and BMI homophily occurred in both men\'s and women\'s same-gender connections, but somewhat more strongly among men\'s. Yet, as women diverged in BMI, their connections were less likely to be reciprocated. We discuss how the evolutionary legacy of men\'s coalitional competition (e.g., warfare) and women\'s mating competition or recruitment of allocare providers might contribute to these patterns in modern same-gender relationships. For example, men\'s engagement in physical activities may lead to similar formidability levels among their same-gender peers. Altogether, our findings highlight the importance of trait similarity to same-gender friendship patterns.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    皮肤病是临床就诊的最常见原因之一。它们不仅可以对患者的美容外观产生深远的影响,但是他们也对他们的自尊有显著的影响,信心,和身体形象,最终造成心理困扰。随着社交网络平台成为新的公共讨论空间,患者已从亲自支持小组过渡到寻求在线建议,支持,和指导。我们在各种社交网络平台上进行了查询,以识别和分析活跃的社交网络支持小组的常见皮肤病。针对残疾调整寿命年(DALYs)最高的四大皮肤病,确定了36个在线支持小组。我们分析了,记录,并根据目标皮肤病情况对每组进行分类,社交网络平台,支持组主机,参与率,和帖子的内容。在确定的群体中,大多数患者由患者驱动(88.89%).在评估参与度和频率时,77.78%(n=28)的组每天发布帖子,22.22%(n=8)每周发布帖子。此外,我们发现Facebook和Reddit上的支持小组之间的一个显着特征是更具互动性和协作性。这强调了使皮肤病患者能够发表帖子并进行公开讨论的重要性,而不是从其他流行平台吸收单用户生成的内容。了解社交网络支持小组的现状可以帮助临床医生为患者传播信息和资源,以便与其他患者创建社区。
    Dermatological conditions are one of the most common reasons for clinical visits. Not only can they have a profound effect on patients\' cosmetic appearances, but they also have a notable impact on their self-esteem, confidence, and body image, ultimately causing psychological distress. As social networking platforms become the new public space for discussion, patients have transitioned from in-person support groups to seeking online advice, support, and guidance. We conducted queries across various social networking platforms to identify and analyze active social networking support groups for common dermatological conditions. Thirty-six online support groups were identified for the top four dermatological conditions with the highest disability-adjusted life years (DALYs). We analyzed, recorded, and categorized each group according to target dermatological condition, social networking platform, support group host, engagement rate, and content of posts. In the groups identified, the majority were patient-driven (88.89%). When evaluating the engagement activity and frequency, 77.78% (n = 28) of groups had daily posts and 22.22% (n = 8) posted weekly. Additionally, we discovered a notable feature among support groups on Facebook and Reddit being more interactive and collaborative. This underscores the importance of enabling patients with dermatological conditions to generate posts and engage in open discourse, rather than absorbing single-user generated content from other popular platforms. Understanding the current landscape of social networking support groups can aid clinicians in disseminating information and resources for patients to create communities with other patients.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • DOI:
    文章类型: English Abstract
    OBJECTIVE: Social media allows individuals to access a vast amount of health-related information immediately and anonymously, a fact that is turning these platforms into one of the primary sources of reference in this area, especially for younger generations. Given this reality, the objective of determining the impact of social media on digital health literacy in the general Spanish population was proposed.
    METHODS: A cross-sectional descriptive study was carried out in 2023. Using a non-probabilistic sampling, the population residing in Spain, over eighteen years old, and users of social networks were included, obtaining a sample of 1,307 participants. An adaptation of the validated eHEALS questionnaire on digital health literacy was used. This questionnaire, created in Microsoft Forms, was disseminated through an anonymous link via the research team\'s social networks and collaborators. A descriptive and inferential statistical analysis was performed using SPSS 22.0, assuming a significance level with a value of p<0.05.
    RESULTS: All participants affirmed having consumed health information through social networks, but 72.1% stated they had actively used these platforms to search for this health information. Regarding digital health literacy, a median score of 24 out of 40 points was obtained on the questionnaire, being significantly higher among those who claimed to use social networks as a source of health information (p=0.0001).
    CONCLUSIONS: Actively employing social media as a source of health information is associated with a higher level of digital health literacy.
    OBJECTIVE: Las redes sociales permiten a las personas acceder de manera inmediata y anónima a una cantidad ingente de información sobre aspectos de salud, hecho que está provocando que se estén convirtiendo en una de las fuentes de referencia en este ámbito, sobre todo para las generaciones más jóvenes. Atendiendo a esta realidad se planteó el objetivo de determinar el impacto de las redes sociales en la alfabetización digital en salud en la población general española.
    METHODS: Se realizó un estudio descriptivo transversal en el año 2023. Mediante un muestreo no probabilístico, se incluyó población residente en España, mayor de dieciocho años y usuaria de redes sociales, obteniendo una muestra de 1.307 participantes. Se utilizó una adaptación del cuestionario validado eHEALS sobre alfabetización digital en salud. Dicho cuestionario, elaborado en Microsoft Forms, fue difundido mediante un enlace anónimo a través de las redes sociales del equipo investigador y colaboradores. Se realizó un análisis estadístico descriptivo e inferencial mediante SPSS 22.0, asumiendo un nivel de significación con un valor de p<0,05.
    RESULTS: La totalidad de los participantes afirmaron haber consumido información sobre salud a través de redes sociales, pero fue el 72,1% el que afirmó haber usado estas plataformas activamente para buscar esta información sobre salud. Con respecto a la alfabetización digital en salud, se obtuvo una puntuación mediana en el cuestionario de 24 sobre 40 puntos, siendo significativamente mayor entre los que afirmaron usar las redes sociales como fuente de información sobre salud (p=0,0001).
    CONCLUSIONS: Emplear de manera activa las redes sociales como fuente de información sobre salud parece tener relación con un mayor nivel de alfabetización digital en salud.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    背景:在线论坛广泛用于心理健康同伴支持。然而,它们的安全性和有效性的证据是混合的。进一步的研究侧重于阐明论坛使用产生积极和消极影响的背景,以便为实施创新提供信息。
    目的:本研究旨在开发一种现实主义程序理论来解释在线心理健康同伴支持论坛对用户的影响。
    方法:我们对2019年至2023年之间发表的文献进行了现实主义综合,并对论坛工作人员进行了18位利益相关者访谈。
    结果:对102个证据来源和18个访谈的综合产生了一个包含22个上下文-机制-结果配置的总体程序理论。研究结果表明,用户对心理安全的看法和论坛内容的个人相关性是持续参与的基础。提供便利获取信息和建议的安全和活跃的论坛可以改善心理健康自我效能。在欢迎和非评判性社区的背景下,用户可能会受益于与同龄人一起探索个人困难的机会,体验减少了心理健康体验的孤立和正常化,并相互鼓励。程序理论强调了主持人在创造便利的在线空间中的重要作用,刺激社区参与,并限制对令人痛苦的内容的访问。对于举办心理健康论坛的组织来说,一个关键挑战在于平衡论坛的开放性和匿名性以及执行规则的必要性。例如限制用户可以讨论的内容,促进社区安全。
    结论:这是在线心理健康同伴支持论坛的第一个现实主义综合。新颖的计划理论强调了成功的实施如何取决于建立增强安全性的协议和维护用户参与以促进论坛可持续性的策略。
    背景:PROSPEROCRD42022352528;https://www.crd.约克。AC.uk/prospro/display_record.php?RecordID=352528。
    BACKGROUND: Online forums are widely used for mental health peer support. However, evidence of their safety and effectiveness is mixed. Further research focused on articulating the contexts in which positive and negative impacts emerge from forum use is required to inform innovations in implementation.
    OBJECTIVE: This study aimed to develop a realist program theory to explain the impacts of online mental health peer support forums on users.
    METHODS: We conducted a realist synthesis of literature published between 2019 and 2023 and 18 stakeholder interviews with forum staff.
    RESULTS: Synthesis of 102 evidence sources and 18 interviews produced an overarching program theory comprising 22 context-mechanism-outcome configurations. Findings indicate that users\' perceptions of psychological safety and the personal relevance of forum content are foundational to ongoing engagement. Safe and active forums that provide convenient access to information and advice can lead to improvements in mental health self-efficacy. Within the context of welcoming and nonjudgmental communities, users may benefit from the opportunity to explore personal difficulties with peers, experience reduced isolation and normalization of mental health experiences, and engage in mutual encouragement. The program theory highlights the vital role of moderators in creating facilitative online spaces, stimulating community engagement, and limiting access to distressing content. A key challenge for organizations that host mental health forums lies in balancing forum openness and anonymity with the need to enforce rules, such as restrictions on what users can discuss, to promote community safety.
    CONCLUSIONS: This is the first realist synthesis of online mental health peer support forums. The novel program theory highlights how successful implementation depends on establishing protocols for enhancing safety and strategies for maintaining user engagement to promote forum sustainability.
    BACKGROUND: PROSPERO CRD42022352528; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=352528.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    社交媒体已经在我们的日常生活中确立了自己的地位,特别是随着COVID-19大流行的到来。它已成为各种主题的皮肤病学素养的主要信息来源,从皮肤病到当今数字时代的日常护肤和美容目的。越来越多的证据表明,准确的医疗内容仅占数字平台上呈指数级增长的皮肤病学信息的一小部分。强调患者在社交媒体上获取循证信息的需求未得到满足。然而,土耳其最近没有当地出版物分析和评估提高患者皮肤病学素养和数字通信意识的关键因素.据我们所知,这项研究是卫生保健专业人员与医学文献中的社交媒体专家之间的首次合作。此外,它代表了第一个作者发起的实施科学尝试,专注于使用社交媒体解决皮肤病学问题,主要终点是提高健康素养和患者获益。多学科专家小组由4位皮肤科医生组成,他们具有学术资格,在公共卫生和数字平台上的患者中具有重要影响力。一个社交媒体专家,在伊斯坦布尔技术大学担任“社交媒体如何运作”的客座讲师,土耳其,被邀请作为数字通信专家参加小组。小组成员举行了启动会议,以确定讨论要点的背景。在5个标题下概述了咨询委员会会议的背景。两周后,小组成员展示了他们的社交媒体账户统计数据,定义了皮肤病患者在社交媒体上的主要特征,并讨论了他们在数字平台上与患者的经验。这些讨论是在预定义的标题下组织的,并符合当前的文献。我们旨在收集专家意见,以确定对皮肤病学主题感兴趣的个人的主要特征,并提供建议,以帮助皮肤科医生在社交媒体上增加基于证据的皮肤病学内容。此外,专家们讨论了皮肤科外展的范例,以及皮肤科医生在减少土耳其数字平台上误导性信息方面的作用。这项研究的主要结论是,皮肤科医生应该通过在数字平台上应用患者与医生沟通的原则,同时保持专业立场,来增强他们的社交媒体影响力,以增加循证知识。为了实现这一目标,皮肤科医生在增加对数字渠道操作规则的了解后,应该分享有针对性的科学内容。这包括正确确定在社交媒体上寻求信息的人的需求,并准备可持续的社交媒体传播计划。这一观点反映了土耳其皮肤科医生在本地数字平台上搜索皮肤病学信息的个人经验;因此,建议的适用性可能有限,应仔细考虑。
    Social media has established its place in our daily lives, especially with the advent of the COVID-19 pandemic. It has become the leading source of information for dermatological literacy on various topics, ranging from skin diseases to everyday skincare and cosmetic purposes in the present digital era. Accumulated evidence indicates that accurate medical content constitutes only a tiny fraction of the exponentially growing dermatological information on digital platforms, highlighting an unmet patient need for access to evidence-based information on social media. However, there have been no recent local publications from Turkey analyzing and assessing the key elements in raising dermatological literacy and awareness in digital communication for patients. To the best of our knowledge, this study is the first collaborative work between health care professionals and a social media specialist in the medical literature. Furthermore, it represents the first author-initiated implementation science attempt focusing on the use of social media in addressing dermatological problems, with the primary end point of increasing health literacy and patient benefits. The multidisciplinary expert panel was formed by 4 dermatologists with academic credentials and significant influence in public health and among patients on digital platforms. A social media specialist, who serves as a guest lecturer on \"How social media works\" at Istanbul Technical University, Turkey, was invited to the panel as an expert on digital communication. The panel members had a kickoff meeting to establish the context for the discussion points. The context of the advisory board meeting was outlined under 5 headlines. Two weeks later, the panel members presented their social media account statistics, defined the main characteristics of dermatology patients on social media, and discussed their experiences with patients on digital platforms. These discussions were organized under the predefined headlines and in line with the current literature. We aimed to collect expert opinions on identifying the main characteristics of individuals interested in dermatological topics and to provide recommendations to help dermatologists increase evidence-based dermatological content on social media. Additionally, experts discussed paradigms for dermatological outreach and the role of dermatologists in reducing misleading information on digital platforms in Turkey. The main concluding remark of this study is that dermatologists should enhance their social media presence to increase evidence-based knowledge by applying the principles of patient-physician communication on digital platforms while maintaining a professional stance. To achieve this goal, dermatologists should share targeted scientific content after increasing their knowledge about the operational rules of digital channels. This includes correctly identifying the needs of those seeking information on social media and preparing a sustainable social media communication plan. This viewpoint reflects Turkish dermatologists\' experiences with individuals searching for dermatological information on local digital platforms; therefore, the applicability of recommendations may be limited and should be carefully considered.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

公众号