患有严重疾病的患者的父母经历心理困扰,这会影响父母的福祉,潜在的,他们照顾孩子的能力。父母的心理困扰可能受到儿童症状负担和家庭经济困难的影响。
这项研究调查了父母心理困扰之间的关联,父母报告的患者症状,和财政困难,寻求确定财务困难和患者症状与父母心理困扰的相对关联。
在美国7家儿童医院进行的前瞻性队列研究中,纳入了532名儿科姑息治疗患者的601名父母基线数据的横断面研究。数据包括自我报告的父母心理困扰和父母报告的儿童症状和家庭经济困难。我们使用普通最小二乘多元回归来检验心理困扰与症状评分之间的关联,在心理困扰和经济困难之间,以及经济困难程度是否改变了心理困扰与症状评分之间的关系。
大多数父母处于中度至重度痛苦(69%)或严重痛苦(17%),并经历了一定程度的经济困难(65%)。虽然儿童的症状评分和家庭经济困难共同解释了父母心理困扰的差异,而不是单独的任何一个变量,父母的痛苦关系更强烈,在更大程度上,经济困难,而不是单凭症状评分。
父母的心理困扰与父母报告的患者症状和经济困难有关。未来的工作应该纵向检查这些关系,以及改善症状管理和改善经济困难的干预措施是否可以改善父母的结局。
Parents of patients with a serious illness experience psychological distress, which impacts parents\' wellbeing and, potentially, their ability to care for their children. Parent psychological distress may be influenced by children\'s symptom burden and by families\' financial difficulty.
This study examined the associations among parent psychological distress, parent-reported patient symptoms, and financial difficulty, seeking to determine the relative association of financial difficulty and of patient symptoms to parent psychological distress.
Cross-sectional study of baseline data for 601 parents of 532 pediatric palliative care patients enrolled in a prospective cohort study conducted at seven US children\'s hospitals. Data included self-reported parent psychological distress and parent report of child\'s symptoms and family financial difficulty. We used ordinary least squares multiple regressions to examine the association between psychological distress and symptom score, between psychological distress and financial difficulty, and whether the degree of financial difficulty modified the relationship between psychological distress and symptom score.
The majority of parents were moderately to severely distressed (69%) or severely distressed (17%) and experienced some degree of financial difficulty (65%). While children\'s symptom scores and family financial difficulty together explained more of the variance in parental psychological distress than either variable alone, parental distress was associated more strongly, and to a larger degree, with financial difficulty than with symptom scores alone.
Parent psychological distress was associated with parent-reported patient symptoms and financial difficulty. Future work should examine these relationships longitudinally, and whether interventions to improve symptom management and ameliorate financial difficulties improve parental outcomes.