longitudinal qualitative research

纵向定性研究
  • 文章类型: Journal Article
    这项研究描述了女医学生的经历中的认识不公正现象,并提供了有关这些学生如何努力纠正这些不公正现象的说明。认识上的不公正既是基于个人的社会身份对个人知识的直接抹黑,也是持续忽略其他知识方式的可能性的行为。在八个月的时间里,使用批判性叙事采访和个人反思,22名医学院一年级的女学生描述了她们的知识和经验被抹黑和忽视的情况,然后是他们制定机构纠正这些不公正的方法。参与者描述了他们纠正不公正的三种不同方式:收回他们为什么属于医学,大声说出课程,互相鼓舞。这项研究对于将医学生视为具有生活历史和经验的整体个体具有启示意义,并倡导将医学生的观点视为有价值的知识来源。
    This study presents descriptions of epistemic injustice in the experiences of women medical students and provides accounts about how these students worked to redress these injustices. Epistemic injustice is both the immediate discrediting of an individual\'s knowledge based on their social identity and the act of persistently ignoring possibilities for other ways of knowing. Using critical narrative interviews and personal reflections over an eight-month period, 22 women students during their first year of medical school described instances when their knowledge and experience was discredited and ignored, then the ways they enacted agency to redress these injustices. Participants described three distinct ways they worked to redress injustices: reclaiming why they belong in medicine, speaking up and calling out the curriculum, and uplifting one another. This study has implications for recognizing medical students as whole individuals with lived histories and experiences and advocates for recognizing medical students\' perspectives as valuable sources of knowledge.
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  • 文章类型: Journal Article
    支持感染艾滋病毒(WLWH)的妇女在产后期间避免意外怀孕的能力,减少了新的儿科艾滋病毒感染的数量,降低妊娠相关发病率和死亡率,是消除母婴传播的具有成本效益的战略。然而,目前对感染艾滋病毒的母亲从怀孕过渡到产后的避孕意图和重新开始使用计划生育的经验知之甚少。
    为了(1)了解开普敦感染艾滋病毒的妇女在怀孕和产后的避孕轨迹,南非,(2)确定产后形成不同避孕轨迹的因素。
    30名孕妇WLWH在怀孕的第八个月接受了采访,并在产后6-8周和9-12个月完成了随访采访(n=81)。采访主题包括产后避孕意向,使用避孕药,以及获得计划生育服务的经验。在初始主题编码后,应用了避孕意图的轨迹分析。
    虽然在怀孕期间接受采访的妇女中有近一半表示打算在分娩后使用非注射避孕药(例如,宫内节育器,灭菌,口服避孕药),所有在产后1年接受调查的女性至少接受了一次注射.确定了三个主要的避孕轨迹。(1)产后避孕意向的实现;(2)产后避孕意向未实现;(3)避孕意向随时间的变化。供应商的影响力,协调服务,和低避孕库存被确定为影响参与研究的参与者避孕轨迹的潜在因素.
    WLWH在怀孕期间表达的避孕方法意图与产后获得的避孕方法之间的差异表明,对注射避孕药不满意的妇女仍然存在重大障碍。未能为产后感染艾滋病毒的母亲提供预期的计划生育方法,会破坏预防意外怀孕的努力,消除母婴传播的关键支柱。
    Supporting the ability of women living with HIV (WLWH) to avoid unintended pregnancy during the postpartum period decreases the number of new pediatric HIV infections, reduces pregnancy-related morbidity and mortality, and is a cost-effective strategy for the elimination of mother-to-child transmission. However, little is currently known about the contraceptive intentions and experiences of reinitiating family planning use among mothers living with HIV as they transition from pregnancy into postpartum.
    To (1) understand the contraceptive trajectories of women living with HIV during pregnancy and postpartum in Cape Town, South Africa, and (2) identify factors shaping differing contraceptive trajectories during the postpartum period.
    Thirty pregnant WLWH were interviewed during their eighth month of pregnancy and completed follow-up interviews at 6-8 weeks and 9-12 months postpartum (n = 81 total interviews). Interview topics included postpartum contraception intentions, contraceptive use, and experiences accessing family planning services. Trajectory analysis of contraceptive intentions was applied after initial thematic coding.
    While nearly half of women interviewed during pregnancy expressed an intention to utilize a non-injectable contraceptive option after childbirth (e.g. implant, IUD, sterilization, oral contraceptive pills), all women interviewed at one year postpartum had received at least one injection. Three main contraceptive trajectories were identified. (1) realization of contraceptive intentions postpartum; (2) unrealized contraceptive intentions postpartum; and (3) change in contraceptive intention over time. Provider influence, coordination of services, and low contraceptive inventory were identified as potential factors shaping the contraceptive trajectories of participants enrolled in the study.
    Disparities between contraceptive method intentions articulated by WLWH during pregnancy and methods attained postpartum suggest that significant barriers remain for women who are unsatisfied with injectable contraception. Failing to provide postpartum mothers living with HIV their intended family planning method undermines efforts to prevent unintended pregnancy, a key pillar of elimination of mother-to-child transmission.
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  • 文章类型: Journal Article
    Longitudinal qualitative research (LQR) is an emerging methodology in health behavior and nursing research. Researchers are turning to LQR to understand experiences across time as well as identify facilitators and inhibitors of health/illness behaviors and transitions. Currently, a lack of information exists to guide researchers on LQR techniques and considerations. Our objective was to provide a methodological resource for health behavior and nursing researchers conducting LQR. LQR may be applied to understand any human experience, as well as the sequalae of the experience and is well suited for studying transitions and developmental or behavioral changes. Conducting LQR is resource intensive and requires flexibility and complex analyses. We discuss multiple components of LQR such as design considerations, analysis options, and our lessons learned. Despite complexities, LQR provides the opportunity to understand experiences across time within an individual and among a group resulting in holistic, in-depth understandings beyond a cross-sectional time point.
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  • 文章类型: Journal Article
    This paper explores the use of theory in longitudinal qualitative research, an approach to research which explores lived experiences as they unfold. The authors illustrate how the complexity of conducting qualitative research through time drives an understanding and use of theory that differs from other research approaches. Longitudinal qualitative research considers time as fluid, subjective, and unbounded-in contrast to the more common taken-for-granted understanding of time as fixed, objective, and linear. Furthermore, longitudinal qualitative research is predicated on a premise of trust in the context of enduring research relationships. Therefore, while subject-matter theories used to investigate topics of interest to health professions educators may be useful frameworks for other types of research, longitudinal qualitative research needs theories that accommodate the myriad of changes in lived experiences through time. The authors share their decade-long, longitudinal qualitative research story, highlighting their decision points and insights. In doing so, they foreground issues such as time as fluid as an important contribution to health professions education literature.
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  • 文章类型: Journal Article
    Longitudinal qualitative research can provide rich understanding of the life circumstances of vulnerable groups who experience health inequities, of whether, how and why these circumstances change, and of how these circumstances and processes of change impact health. But, this rich understanding is not automatic and requires systematic and thoughtful approaches to data collection and analysis. The purpose of this paper is to describe two longitudinal qualitative studies embedded in mixed-methods studies of social determinants of HIV in the United States and the Dominican Republic. We compare these two studies to critically reflect on specific techniques that facilitate longitudinal and iterative data collection, management, and analysis, in particular the use of participant-specific matrices and analytic summaries across the distinct phases of the research. We conclude that combining cross-sectional and longitudinal analysis that engages with both themes and processes of change can contribute to improved contextualization and understanding of social determinants of HIV.
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  • 文章类型: Journal Article
    BACKGROUND: Although preparedness for practice (P4P) has been variously described, little shared understanding exists about what P4P is across the health professions. How P4P is conceptualised matters, because this shapes how stakeholders think, talk about and act towards it. Further, multiple understandings can result in diverse expectations for graduate performance. This study therefore explores health care learners\' solicited and unsolicited conceptualisations of P4P over their early graduate transition.
    METHODS: We conducted longitudinal qualitative research including individual and group entrance interviews (phase 1: n = 35), longitudinal audio-diaries (phase 2: n = 30), and individual and group exit interviews (phase 3: n = 22) with learners from four disciplines (dietetics, medicine, nursing and pharmacy). We employed framework analysis to interrogate data cross-sectionally and longitudinally.
    RESULTS: We found 13 conceptualisations of P4P (eg knowledge, confidence), broadly similar across the disciplines. We found some conceptualisations dominant in both solicited and unsolicited talk (eg skills), some dominant only in solicited talk (eg competence) and others dominant only in unsolicited talk (eg experience). Although most conceptualisations appeared relatively stable across time, some appeared to dominate at certain time points only (eg employability and skills in phases 1 and 2, and competence in phase 3).
    CONCLUSIONS: This novel study extends previous uniprofessional work by illustrating a broader array of conceptualisations, differences between professions, solicited versus unsolicited talk and longitudinal cohort patterns. We encourage health care educators to discuss these different P4P understandings in graduate transition interventions. Further research is needed to explore other stakeholders\' conceptualisations, and over a duration beyond the early graduate transition.
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  • 文章类型: Journal Article
    人种学方法提供了一种思考实施的方法和方式。本手稿采用了特定的案例研究方法来描述实施利益相关者之间纵向相互作用的影响。从科学技术研究(STS)中成长出来,并借鉴了人种学方法所隐含的潜在考古敏感性,当一块物质文化是创新的重要组成部分时,STS案例研究是实施者使用的工具。
    我们对退伍军人事务部远程重症监护(Tele-CC)服务的临床实施进行了人种学过程评估。我们收集了现场笔记,并在虚拟和面对面的教育和计划活动中进行了参与者观察(n=101h)。在Go-Live和实施后6个月,我们对Tele-CC中心和3个合作的ICU进行了实地考察。我们对Go-Live的ICU工作人员进行了半结构化访谈(对65名参与者进行了43次访谈),并在实施后6个月对ICU和Tele-CC工作人员进行了访谈(对67名参与者进行了44次访谈)。我们使用了验证策略,包括方法论的一致性,适当的采样,同时收集和分析数据,从理论上思考,确保我们的数据收集和分析过程的可靠性和有效性。
    STS案例研究帮助我们认识到,我们必须以不同的方式思考如何注意到Tele-CC临床医生从公共空间移动到私密空间。为了了解对监督的看法如何影响员工的接受度,我们在工作人员讲述的关于摄像头的故事中绘制了监控变得重要的材料,按钮,钟声,电机,窗帘,和门铃。
    STS案例研究有助于实现科学中纵向资格研究(LQR)的文献,包括笔像和周期性反射。被材料锚定,STS案例研究的异质性产生了问题,并鼓励探索差异。开始得够早了,STS案例研究方法,像周期性的反射,可以为研究人员和实施者迭代地收集数据提供信息。下一步是系统地确定物质文化如何揭示实施障碍,并直接关注解决默契的潜在解决方案,对实践和技术创新的根深蒂固的挑战。
    Ethnographic approaches offer a method and a way of thinking about implementation. This manuscript applies a specific case study method to describe the impact of the longitudinal interplay between implementation stakeholders. Growing out of science and technology studies (STS) and drawing on the latent archaeological sensibilities implied by ethnographic methods, the STS case-study is a tool for implementors to use when a piece of material culture is an essential component of an innovation.
    We conducted an ethnographic process evaluation of the clinical implementation of tele-critical care (Tele-CC) services in the Department of Veterans Affairs. We collected fieldnotes and conducted participant observation at virtual and in-person education and planning events (n = 101 h). At Go-Live and 6-months post-implementation, we conducted site visits to the Tele-CC hub and 3 partnered ICUs. We led semi-structured interviews with ICU staff at Go-Live (43 interviews with 65 participants) and with ICU and Tele-CC staff 6-months post-implementation (44 interviews with 67 participants). We used verification strategies, including methodological coherence, appropriate sampling, collecting and analyzing data concurrently, and thinking theoretically, to ensure the reliability and validity of our data collection and analysis process.
    The STS case-study helped us realize that we must think differently about how a Tele-CC clinician could be noticed moving from communal to intimate space. To understand how perceptions of surveillance impacted staff acceptance, we mapped the materials through which surveillance came to matter in the stories staff told about cameras, buttons, chimes, motors, curtains, and doorbells.
    STS case-studies contribute to the literature on longitudinal qualitive research (LQR) in implementation science, including pen portraits and periodic reflections. Anchored by the material, the heterogeneity of an STS case-study generates questions and encourages exploring differences. Begun early enough, the STS case-study method, like periodic reflections, can serve to iteratively inform data collection for researchers and implementors. The next step is to determine systematically how material culture can reveal implementation barriers and direct attention to potential solutions that address tacit, deeply rooted challenges to innovations in practice and technology.
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  • 文章类型: Journal Article
    Limited research exists on the experiences of parents bereaved by suicide. Our earlier qualitative analysis examined the experiences of parents\' suicide bereavement at 6 and 12 months after their loss. The current study aimed to extend the analysis over 24 months, outlining the key themes of parents\' suicide bereavement experience. In the frames of a longitudinal study of suicide bereavement in Queensland, Australia, parents were interviewed at 6, 12, and 24 months after their loss. Thematic analysis was used to further explore new themes and three key themes identified in earlier analyses: searching for answers and sense-making, coping strategies and support, and finding meaning and purpose. Results at 24 months revealed a clearer differentiation between strategies adopted by mothers and fathers. Anger and blame had changed towards feelings of depression. A polarization was observed between parents still oscillating in brooding rumination and those who have shifted towards sense-making. The former more frequently reported depression symptoms, and the latter reported a more positive attitude towards life and acceptance of their loss. Consistent with the dual-process model, parents managed to reach acceptance after oscillating between sense-making and meaning making. Findings provide insights how suicide loss affects parents, with implications for postvention.
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  • 文章类型: Journal Article
    关于丙型肝炎的直接抗病毒治疗的信息如何通过注射毒品的人的同伴网络传播,知之甚少。在这项研究中,我们旨在探讨什么以及如何在接受治疗的人和他们的同龄人之间共享与治疗相关的信息。
    参与者来自两个全科诊所和基于社区的丙型肝炎治疗和预防研究。之前对每位参与者(N=20)进行了半结构化访谈,治疗期间和之后。访谈探讨丙型肝炎的治疗经验,DAA信息的关键来源以及接收和共享知识的影响。进行了归纳主题分析。生成时间序列矩阵以了解主题随时间的变化。
    在墨尔本的七个野外地点对20名参与者进行了54次采访,澳大利亚。关键主题是:“同行作为来源治疗信息”,\'一起做\'和\'成为治疗倡导者\'。同行是一个重要的可信赖的信息来源。积极的治疗轶事对于建立对开始治疗的信心和动机很重要。许多参与者在他们密切的同伴网络中扮演了“治疗倡导者”的角色,这被描述为赋权。一些参与者描述了与他们的紧密网络成员一起进行治疗的好处。
    研究结果说明了亲密同伴在塑造治疗观念和参与方面的重要性。这在设计健康促进信息和干预措施以增加治疗吸收方面将是重要的。
    Little is known about how information on direct-acting antiviral treatment for hepatitis C circulates through peer networks of people who inject drugs. In this study we aimed to explore what and how treatment-related information is shared between people undergoing treatment and their peers.
    Participants were recruited from two general practice clinics and the community-based hepatitis C Treatment and Prevention Study. Semi-structured interviews were conducted with each participant (N = 20) before, during and following treatment. Interviews explored hepatitis C treatment experiences, key sources of DAA information and the impact of receiving and sharing knowledge. Inductive thematic analysis was conducted. Time sequential matrices were generated to understand thematic change over time.
    Fifty-four interviews were conducted with 20 participants across seven field-sites in Melbourne, Australia. Key themes were: \'peers as a source treatment information\', \'do it together\' and \'becoming a treatment advocate\'. Peers were a crucial trusted source of information. Positive treatment anecdotes were important for building confidence in and motivation to initiate treatment. Many participants adopted a \'treatment advocate\' role in their close peer networks, which was described as empowering. Some participants described benefits of undertaking treatment alongside members of their close network.
    Findings illustrate the importance of close peers in shaping treatment perceptions and engagement. This will be important in designing health promotion messaging and interventions to increase treatment uptake.
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  • 文章类型: Journal Article
    If technologies are to support aging in place, then it is important to develop fundamental knowledge on what causes stability and changes in the use of technologies by seniors. However, longitudinal studies on the long-term use of technologies that have been accepted into the home (i.e., post-implementation use) are very scarce. Many factors potentially could influence post-implementation use, including life events, age-related decline, changes in personal goal orientation, and various types of social influences. The aforementioned factors are likely to be interrelated, adding to the complexity. The goal of this study is to better understand changes and stability in the use of technologies by independent-living seniors, by using a dynamical systems theory approach.
    A longitudinal qualitative field study was conducted involving home visits to 33 community-dwelling seniors in the Netherlands, on three occasions (2012-2014). Interviews were held on technology usage patterns, including reasons for stable, increased, declined and stopped use. Technologies were included if they required electric power in order to function, were intended to be used in or around the home, and could support activities of daily living, personal health or safety, mobility, communication, and physical activity. Thematic analysis was employed, using constant case comparison to better understand dynamics and interplay between factors. In total, 148 technology use patterns by 33 participants were analyzed.
    A core of six interrelated factors was closely linked to the frequency of technology use: emotional attachment, need compatibility, cues to use, proficiency to use, input of resources, and support. Additionally, disruptive forces (e.g., social influences, competition with alternative means, changes of personal needs) could induce change by affecting these six factors. Furthermore, long-term technology use was in some cases more resilient to disruption than in other cases. Findings were accumulated in a new framework: Dynamics In Technology Use by Seniors (DITUS).
    Similar to aging, the use of technologies by older people is complex, dynamic and personal. Periods of stability and change both occur naturally. The DITUS framework can aid in understanding stability and instability of technology use, and in developing and implementing sustainable technological solutions for aging in place.
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