health care decision-making

卫生保健决策
  • 文章类型: Journal Article
    背景:ChatGPT(OpenAI)是用于广泛任务的强大工具,从娱乐和创造力到医疗保健查询。该技术存在潜在的风险和益处。在有关ChatGPT和类似大型语言模型的部署的论述中,建议将它们主要用于人类用户可以准确执行的任务是明智的。当我们过渡到ChatGPT部署的后续阶段时,建立现实的性能期望和理解用户对与使用相关的风险的看法对于确定这种人工智能(AI)技术的成功集成至关重要。
    目的:本研究的目的是探讨感知工作量,满意,预期性能,风险收益感知会影响用户对ChatGPT的信任。
    方法:半结构化,我们对美国607名积极使用ChatGPT的成年人进行了基于网络的调查.调查问题改编自各种模型和理论中使用的结构,如技术接受模型,计划行为理论,接受和使用技术的统一理论,以及数字环境中的信任和安全研究。为了检验我们的假设和结构模型,采用偏最小二乘结构方程建模方法,一种广泛使用的多变量分析方法。
    结果:共有607人回答了我们的调查。很大一部分参与者至少持有高中文凭(n=204,33.6%),大多数人拥有学士学位(n=262,43.1%)。参与者使用ChatGPT的主要动机是获取信息(n=219,36.1%),娱乐(n=203,33.4%),和解决问题(n=135,22.2%)。一些参与者将其用于与健康相关的查询(n=44,7.2%),而其他一些人(n=6,1%)则将其用于诸如头脑风暴之类的杂项活动,语法验证,和博客内容创作。我们的模型解释了信任差异的64.6%。我们的分析表明(1)工作量和满意度之间存在显著关系,(2)信任和满足,(3)业绩预期和信任,(4)风险收益感知和信任。
    结论:研究结果强调了在基于AI的应用程序中确保用户友好的设计和功能以减少工作量并提高用户满意度的重要性。从而增加用户的信任。未来的研究应进一步探索AI聊天机器人背景下的风险收益感知与信任之间的关系。
    BACKGROUND: ChatGPT (OpenAI) is a powerful tool for a wide range of tasks, from entertainment and creativity to health care queries. There are potential risks and benefits associated with this technology. In the discourse concerning the deployment of ChatGPT and similar large language models, it is sensible to recommend their use primarily for tasks a human user can execute accurately. As we transition into the subsequent phase of ChatGPT deployment, establishing realistic performance expectations and understanding users\' perceptions of risk associated with its use are crucial in determining the successful integration of this artificial intelligence (AI) technology.
    OBJECTIVE: The aim of the study is to explore how perceived workload, satisfaction, performance expectancy, and risk-benefit perception influence users\' trust in ChatGPT.
    METHODS: A semistructured, web-based survey was conducted with 607 adults in the United States who actively use ChatGPT. The survey questions were adapted from constructs used in various models and theories such as the technology acceptance model, the theory of planned behavior, the unified theory of acceptance and use of technology, and research on trust and security in digital environments. To test our hypotheses and structural model, we used the partial least squares structural equation modeling method, a widely used approach for multivariate analysis.
    RESULTS: A total of 607 people responded to our survey. A significant portion of the participants held at least a high school diploma (n=204, 33.6%), and the majority had a bachelor\'s degree (n=262, 43.1%). The primary motivations for participants to use ChatGPT were for acquiring information (n=219, 36.1%), amusement (n=203, 33.4%), and addressing problems (n=135, 22.2%). Some participants used it for health-related inquiries (n=44, 7.2%), while a few others (n=6, 1%) used it for miscellaneous activities such as brainstorming, grammar verification, and blog content creation. Our model explained 64.6% of the variance in trust. Our analysis indicated a significant relationship between (1) workload and satisfaction, (2) trust and satisfaction, (3) performance expectations and trust, and (4) risk-benefit perception and trust.
    CONCLUSIONS: The findings underscore the importance of ensuring user-friendly design and functionality in AI-based applications to reduce workload and enhance user satisfaction, thereby increasing user trust. Future research should further explore the relationship between risk-benefit perception and trust in the context of AI chatbots.
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  • 文章类型: Journal Article
    背景:儿童急性胃肠炎(AGE)是急诊(ED)就诊的主要原因,导致大量的医疗保健费用和家庭和护理人员的压力。大多数儿科AGE病例是由病毒感染引起的,可以在家中使用预防脱水的策略进行管理。为了增加知识,并支持健康决策,儿科年龄,我们开发了一个知识翻译(KT)工具(完全自动化的基于Web的白板动画视频)。
    目的:本研究的目的是评估基于网络的KT工具在知识方面的潜在有效性,卫生保健决策,利用资源,以及感知的利益和价值。
    方法:在2020年12月18日至2021年8月10日之间招募了父母的便利样本。父母在儿科三级护理医院的ED中招募,并在ED访问后随访长达14天。资格标准包括年龄<16岁的儿童的父母或法定监护人因急性腹泻或呕吐而向急诊室就诊,用英语交流的能力,并同意通过电子邮件跟进。父母在ED访问期间随机接受有关AGE的基于网络的KT工具(干预)或假视频(对照)。主要结果是干预前的知识评估(基线),干预后立即,并在ED出院后4至14天随访。其他结果包括决定遗憾,医疗保健使用,和KT工具的可用性和满意度。干预组参与者被邀请参加半结构化访谈,以收集有关KT工具的其他反馈。
    结果:共有103位父母(干预:n=51,49.5%,和对照组:n=52,50.5%)完成基线和干预后评估。在这103位家长中,78(75.7%;干预:n=36,46%,和对照组:n=42,54%)完成了随访问卷。干预后的知识得分(平均8.5,SD2.6与平均6.3,SD1.7;P<.001)和随访时(平均9.1,SD2.7与平均6.8,SD1.6;P<.001)显着高于干预组。干预之后,干预组的父母对知识的信心高于对照组.在任何时间点都没有发现决策后悔的显著差异。在评估可用性和满意度的5个项目中,家长对KT工具的评价高于假视频。
    结论:基于Web的KT工具提高了父母对AGE的知识和对知识的信心,是行为改变的重要前兆。需要进一步的研究来了解哪些信息和交付格式以及其他因素会影响父母关于孩子健康的决策。
    背景:ClinicalTrials.govNCT03234777;https://clinicaltrials.gov/ct2/show/NCT03234777。
    RR2-10.1186/s40814-018-0318-0。
    BACKGROUND: Acute gastroenteritis (AGE) in children is a leading cause of emergency department (ED) visits, resulting in substantial health care costs and stress for families and caregivers. The majority of pediatric AGE cases are caused by viral infections and can be managed at home using strategies to prevent dehydration. To increase knowledge of, and support health decision-making for, pediatric AGE, we developed a knowledge translation (KT) tool (fully automated web-based whiteboard animation video).
    OBJECTIVE: The aim of this study was to assess the potential effectiveness of the web-based KT tool in terms of knowledge, health care decision-making, use of resources, and perceived benefit and value.
    METHODS: A convenience sample of parents was recruited between December 18, 2020, and August 10, 2021. Parents were recruited in the ED of a pediatric tertiary care hospital and followed for up to 14 days after the ED visit. The eligibility criteria included parent or legal guardian of a child aged <16 years presenting to the ED with an acute episode of diarrhea or vomiting, ability to communicate in English, and agreeable to follow-up via email. Parents were randomized to receive the web-based KT tool (intervention) about AGE or a sham video (control) during their ED visit. The primary outcome was knowledge assessed before the intervention (baseline), immediately after the intervention, and at follow-up 4 to 14 days after ED discharge. Other outcomes included decision regret, health care use, and KT tool usability and satisfaction. The intervention group participants were invited to participate in a semistructured interview to gather additional feedback about the KT tool.
    RESULTS: A total of 103 parents (intervention: n=51, 49.5%, and control: n=52, 50.5%) completed the baseline and postintervention assessments. Of these 103 parents, 78 (75.7%; intervention: n=36, 46%, and control: n=42, 54%) completed the follow-up questionnaire. Knowledge scores after the intervention (mean 8.5, SD 2.6 vs mean 6.3, SD 1.7; P<.001) and at follow-up (mean 9.1, SD 2.7 vs mean 6.8, SD 1.6; P<.001) were significantly higher in the intervention group. After the intervention, parents in the intervention group reported greater confidence in knowledge than those in the control group. No significant difference in decision regret was found at any time point. Parents rated the KT tool higher than the sham video across 5 items assessing usability and satisfaction.
    CONCLUSIONS: The web-based KT tool improved parental knowledge about AGE and confidence in their knowledge, which are important precursors to behavior change. Further research is needed into understanding what information and delivery format as well as other factors influence parents\' decision-making regarding their child\'s health.
    BACKGROUND: ClinicalTrials.gov NCT03234777; https://clinicaltrials.gov/ct2/show/NCT03234777.
    UNASSIGNED: RR2-10.1186/s40814-018-0318-0.
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  • 文章类型: Journal Article
    背景:在德国,让患者和公民参与医疗保健决策被认为越来越重要。参与式结构已经实施,尤其是在康复护理方面。然而,目前尚不清楚德国患者和公民是否以及在多大程度上希望参与超出自己医疗水平的决策。
    目的:本研究旨在调查医疗服务使用者在微康复护理决策中的参与偏好和相关因素,中观和宏观层面。
    方法:向3872名前康复者发送问卷。我们使用控制偏好量表或调整后的表格收集参与偏好。使用logistic回归模型检查可能的影响因素。
    结果:有效率为5.7%(n=217)。在所有决策层,联合决策是首选。在宏观层面,积极参与的偏好最高。决策级别之间的偏好显着相关。在微观层面,与心身适应症相比,骨科适应症显着降低了参与的愿望(比值比=0.44,p=.019)。
    结论:参与者希望作为专家同样参与决策。对宏观层面积极参与的更高偏好可能是由于对当前的医疗保健组织不满意以及对政客缺乏信任。与普通大众相比,我们的研究样本年龄较大(50~69岁时为73.3%),在文献中,与参与偏好增加相关的慢性病因素更常见.
    结论:与确定的偏好相反,参与德国医疗保健系统的机会很少。需要进一步研究参与偏好和结构,以实现有意义的参与。
    BACKGROUND: Involving patients and citizens in health care decision-making is considered increasingly important in Germany. Participatory structures have been implemented, especially in rehabilitative care. However, it is unknown whether and to what extent German patients and citizens want to participate in decisions that exceed their own medical treatment.
    OBJECTIVE: This study aimed to survey participation preferences and associated factors of health service users in decisions regarding rehabilitative care at micro, meso and macro levels.
    METHODS: A questionnaire was sent to 3872 former rehabilitants. We collected participation preferences using the Control Preference Scale or an adapted form. Possible influencing factors were examined using logistic regression models.
    RESULTS: The response rate was 5.7% (n = 217). At all decision-making levels, joint decision-making was preferred. At the macro level, preferences for actively participating were the highest. Preferences were significantly interrelated between decision-making levels. At the micro level, an orthopaedic indication significantly decreased the desire for participation compared to psychosomatic indications (odds ratio = 0.44, p = .019).
    CONCLUSIONS: Participants wanted to be equally involved in decision-making as experts. Higher preferences for active participation at the macro level might be due to dissatisfaction with the current health care organisation and lack of trust in politicians. Compared to the general public, our study sample was older (73.3% between 50 and 69 years) and more often chronically ill-factors associated with increased participation preferences in the literature.
    CONCLUSIONS: Contrary to the identified preferences, participation opportunities in the German health care system are rare. Further research on participation preferences and structures that enable meaningful involvement are needed.
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  • 文章类型: Journal Article
    儿童发育迟缓仍然是全球公共卫生问题。在家庭和社区一级的决策主要由男性主导的环境中,关于妇女决策自主权对儿童成长的影响的文献很少。评估母亲自主性与儿童成长之间的关系,我们分析了来自加纳Bawku西区422名母亲和年龄在6-24个月的最小孩子的横断面研究的数据.衡量女性自主性的维度是决策权,流动自由和金融自主。然后,我们比较了每个维度如何与发育迟缓和浪费的可能性相关联。通过平均年龄Z评分(LAZ)和最低可接受(MAD)饮食来衡量儿童生长和饮食摄入量的重要预测因子,分别,使用多元回归模型确定。妇女自主性综合指数(CIWA)显示,有52·8%的妇女具有高度自主性,其中一半的妇女对自己和子女的健康具有更高的自主性。在调整(多元回归分析)潜在的混杂因素后,高自主性妇女所生子女的平均LAZ显著高于低自主性妇女所生子女的LAZ(β=0·132;95%CI0·19,0·95;P=0·004)。同样,高女性自主性是满足MAD的重要独立预测因子(AOR=1·59;CI1·09,2·34)。其中,在这项研究中衡量的女性自主性的维度,医疗保健自主性能更好地预测儿童的成长和饮食摄入。根据调查结果,提高妇女决策自主性的营养政策和干预措施可能对儿童成长结果产生积极影响.
    Childhood stunting remains a global public health concern. Little has been documented on the effect of women\'s decision-making autonomy on child growth in settings where decision-making at the household and community levels is largely dominated by men. To assess the relationship between maternal autonomy and child growth, we analysed data from a cross-sectional study of 422 mothers and their youngest child aged 6-24 months in the Bawku West District of Ghana. The dimensions of women\'s autonomy measured were decision-making power, freedom of mobility and financial autonomy. We then compared how each dimension was associated with the likelihood of stunting and wasting. The important predictors of child growth and dietary intake as measured by the mean length-for-age Z-score (LAZ) and minimum acceptable (MAD) diet, respectively, were determined using multivariable regression models. The overall composite index of women autonomy (CIWA) showed that 52⋅8 % of women were of high autonomy and half of them had higher autonomy regarding their own and their children\'s health. After adjusting (multiple regression analysis) for potential confounders, the mean LAZ of children born to women of high autonomy was significantly higher than LAZ of children born to women of low autonomy (β = 0⋅132; 95 % CI 0⋅19, 0⋅95; P = 0⋅004). Similarly, high women\'s autonomy was a significant independent predictor of meeting MAD (AOR = 1⋅59; CI 1⋅09, 2⋅34). Of all, the dimensions of women\'s autonomy measured in this study, health care autonomy better predicted child growth and dietary intake. Based on the findings, nutrition policies and interventions that enhance women\'s decision-making autonomy could have a positive impact on child growth outcomes.
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  • 文章类型: Journal Article
    医疗保健覆盖决策可能会采用许多不同的考虑因素,它们分为两个阶段。评估阶段检查现有的科学证据,比如成本效益,的技术。然后,评估将这些证据上下文化,以达成(建议的)承保决定,但很少有人知道这是如何做到的。在荷兰,评估是为了实现社会权衡而建立的,并且是使用与需求和团结相关(“必要性”)论证的主要场所。为了阐明荷兰评估委员会如何“构建必要性”,我们分析了国家卫生保健研究所两次评估委员会会议的观察和记录,相应的文件(五),以及对委员会成员和政策制定者的采访(12次采访中有13次受访者),注意特定的必要性论证。荷兰评估委员会在四个阶段构建了必要性:(1)允许明确的标准来指导流程;(2)允许患者(代表)做出贡献来挑战流程;(3)从外部引入新的论证并将其编织在一起;(4)向社会利益相关者提出建议。我们认为,在这些方面,评估委员会实现了社会权衡的合理性,委员会积极利用社会的争论,并将决策结果嵌入社会。
    Health care coverage decisions may employ many different considerations, which are brought together across two phases. The assessment phase examines the available scientific evidence, such as the cost-effectiveness, of the technology. The appraisal then contextualises this evidence to arrive at an (advised) coverage decision, but little is known about how this is done.In the Netherlands, the appraisal is set up to achieve a societal weighing and is the primary place where need- and solidarity-related (\'necessity\') argumentations are used. To elucidate how the Dutch appraisal committee \'constructs necessity\', we analysed observations and recordings of two appraisal committee meetings at the National Health Care Institute, the corresponding documents (five), and interviews with committee members and policy makers (13 interviewees in 12 interviews), with attention to specific necessity argumentations.The Dutch appraisal committee constructs necessity in four phases: (1) allowing explicit criteria to steer the process; (2) allowing patient (representative) contributions to challenge the process; (3) bringing new argumentations in from outside and weaving them together; and (4) formulating recommendations to societal stakeholders. We argue that in these ways, the appraisal committee achieves societal weighing rationality, as the committee actively uses argumentations from society and embeds the decision outcome in society.
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  • 文章类型: Journal Article
    决策者越来越多地要求快速回答临床或公共卫生问题。为了节省时间,人员,和财政资源,快速审查简化了系统审查过程的方法步骤。我们旨在探索快速审查方法的有效性,该方法结合了大量缩写的文献检索与使用三个案例研究的摘要和全文的单审稿人筛选。
    我们使用了三个正在进行的Cochrane评论的便利样本作为参考标准。两篇评论涉及肿瘤学主题,一篇评论涉及公共卫生主题。对于这三个主题中的每一个,三位审稿人独立筛选了这些文献。我们的主要结果是快速评论和相应的Cochrane评论之间的结论变化。如果快速方法错过了研究,我们重新计算了主要结局的荟萃分析,并询问Cochrane综述作者,与参考标准相比,新的证据是否会改变他们的原始结论.此外,我们评估了快速审查方法与原始Cochrane审查结果的敏感性.
    对于两个肿瘤学主题(案例研究1和2),这三个快速综述各自得出了与Cochrane综述相同的结论.然而,在案例研究2中,作者对他们的结论不太确定。对于案例研究3,公共卫生主题,三个快速评价中只有一个得出了与Cochrane评价相同的结论.另外两个快速评论提供的信息不足以使作者得出结论。使用快速审查方法,病例研究1的敏感性为100%(3/3).对于案例研究2,三个快速审查确定了40%(10个中的4个),50%(5/10),和60%(10个中的6个)的纳入研究,案例研究3分别为38%(21个中的8个),43%(21个中的9个),和48%(21个中的10个)。
    在这些案例研究的限制下,对于重点关注的临床问题,将简写的文献检索与单一审查者筛选相结合的快速审查方法可能是可行的.对于复杂的公共卫生主题,敏感性似乎不够。
    Decision-makers increasingly request rapid answers to clinical or public health questions. To save time, personnel, and financial resources, rapid reviews streamline the methodological steps of the systematic review process. We aimed to explore the validity of a rapid review approach that combines a substantially abbreviated literature search with a single-reviewer screening of abstracts and full texts using three case studies.
    We used a convenience sample of three ongoing Cochrane reviews as reference standards. Two reviews addressed oncological topics and one addressed a public health topic. For each of the three topics, three reviewers screened the literature independently. Our primary outcome was the change in conclusions between the rapid reviews and the respective Cochrane reviews. In case the rapid approach missed studies, we recalculated the meta-analyses for the main outcomes and asked Cochrane review authors if the new body of evidence would change their original conclusion compared with the reference standards. Additionally, we assessed the sensitivity of the rapid review approach compared with the results of the original Cochrane reviews.
    For the two oncological topics (case studies 1 and 2), the three rapid reviews each yielded the same conclusions as the Cochrane reviews. However, the authors would have had less certainty about their conclusion in case study 2. For case study 3, the public health topic, only one of the three rapid reviews led to the same conclusion as the Cochrane review. The other two rapid reviews provided insufficient information for the authors to draw conclusions. Using the rapid review approach, the sensitivity was 100% (3 of 3) for case study 1. For case study 2, the three rapid reviews identified 40% (4 of 10), 50% (5 of 10), and 60% (6 of 10) of the included studies, respectively; for case study 3, the respective numbers were 38% (8 of 21), 43% (9 of 21), and 48% (10 of 21).
    Within the limitations of these case studies, a rapid review approach that combines abbreviated literature searches with single-reviewer screening may be feasible for focused clinical questions. For complex public health topics, sensitivity seems to be insufficient.
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  • 文章类型: Journal Article
    1986年的《紧急医疗和积极劳动法》旨在结束“病人倾倒”事件。\"然而,由于各种联邦立法条款的混淆,面临移民患者长期未报销护理前景的医院,无论是否在美国合法存在,在某些情况下,这些患者被运送到另一个国家。这些转移通常在未经患者同意的情况下进行。在概述了有效鼓励这种患者转移的法律制度缺陷之后,本文使用一个临床案例来展示医生如何与跨学科团队和家庭成员合作,以确保移民患者的最大利益得到满足。最后,本文呼吁医生倡导制定医院政策和实践,以保护患者免受国际患者倾销的影响。
    The Emergency Medical Treatment and Active Labor Act in 1986 was intended to bring an end to incidents of \"patient dumping.\" However, due to the conflation of various federal legislative provisions, hospitals faced with the prospect of long-term unreimbursed care of an immigrant patient, whether legally present in the United States or not, are in some cases having such patients transported to another country. These transfers are often being effectuated without patient consent. After an overview of the flaws in the legal system that have effectively encouraged such patient transfers, this essay uses a clinical case to demonstrate how physicians can collaborate with an interdisciplinary team and with family members to ensure that the best interests of immigrant patients are met. Finally, the essay calls on physicians to advocate for the development of hospital policies and practices that will protect patients from international patient dumping.
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  • 文章类型: Journal Article
    在研究和临床场景中通常需要的各种披露中,风险信息数字突出。一个关键问题是,理性的人会想知道什么样的风险信息?我会争辩说,然而,合理的人构造一直无法解决这个问题。在解析了理性人的模糊如果不是“无内容”的性格之后,我将解释西方法院如何真正裁定“疏忽保密”案件,“也就是说,患者-原告声称他们的知情同意权因他们的健康提供者未能告知他们随后出现的合理可预见的风险而受到侵犯。为了支持我的论点,我将审查英国最高法院在蒙哥马利诉拉纳克郡卫生局案中的具有里程碑意义的决定,特别是,BrendaHale法官同意.
    Among various kinds of disclosures typically required in research as well as in clinical scenarios, risk information figures prominently. A key question is, what kinds of risk information would the reasonable person want to know? I will argue, however, that the reasonable person construct is and always has been incapable of settling this very question. After parsing the nebulous if not \"contentless\" character of the reasonable person, I will explain how Western courts have actually adjudicated cases of \"negligent nondisclosure,\" that is, cases in which patient-plaintiffs allege that their informed consent rights were violated by the failure of their health providers to inform them of reasonably foreseeable risks that subsequently materialized. To support my argument, I will scrutinize the landmark decision by the United Kingdom\'s Supreme Court in Montgomery v. Lanarkshire Health Board and, in particular, Justice Brenda Hale\'s concurrence.
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  • 文章类型: Journal Article
    这项研究旨在评估护士对患者及其家人讨论不复苏(DNR)和撤回生命维持治疗(LST)的态度的经验和因素。在台湾一家三级医院进行了横断面调查。随机招募了负责急性住院护理的年龄≥20岁的护士。使用半结构化问卷评估参与者对晚期患者的DNR和LST退出讨论的经验和态度。对协变量进行校正的Logistic回归用于分析与参与者对患者和家属在未来治疗中对DNR和LST退出讨论的态度相关的因素。参与者是132名护士。与患者家属相比,他们对DNR和LST戒断的讨论明显更多。回归分析显示,过去有与患者或患者家属积极发起DNR讨论经验的参与者在未来治疗终末期患者时更有可能与患者讨论DNR。但40.0~60.0岁的参与者进行DNR讨论的可能性明显低于20.0~29.9岁的参与者.与患者家属积极发起DNR或LST讨论的经验明显更有可能与患者家属讨论DNR,但年龄为40.0~60.0岁的人群进行DNR讨论的可能性也明显低于年龄为20.0~29.9岁的人群.积极发起与患者家属讨论LST戒断的经验,作为男性,并且拥有高于大学的教育水平与将来与绝症患者或其家人的LST退出讨论显着相关。总之,需要与患者进行更多关于DNR和LST戒断的讨论.为了保护患者的自主权及其对DNR和LST做出决定的权利,需要采取措施促进DNR和LST与患者的讨论,以确保更好的临终护理.
    This study aimed to evaluate nurses\' experiences and factors related to their attitudes regarding discussions of do-not-resuscitate (DNR) and withdrawal of life-sustaining treatment (LST) with patients and their families. A cross-sectional survey was conducted in a tertiary hospital in Taiwan. Nurses aged ≥ 20 years who were in charge of acute inpatient care were randomly recruited. A semi-structured questionnaire was used to evaluate participants\' experiences and attitudes regarding discussions of DNR and LST withdrawal for terminal patients. Logistic regression with adjustment for covariates was used to analyze factors related to participants\' attitudes toward discussions about DNR and LST withdrawal with patients and families in the future care of terminal patients. The participants were 132 nurses. They had significantly more discussions about DNR and LST withdrawal with patients\' families than with patients. Regression analysis showed that participants who had past experiences in actively initiating DNR discussions with patients or patients\' families were significantly more likely to discuss DNR with patients in the future care of terminal patients, but participants aged 40.0 to 60.0 years were significantly less likely to have DNR discussions than those aged 20.0 to 29.9 years. Experiences of actively initiated DNR or LST discussions with patients\' families were significantly more likely to discuss DNR with patients\' families, but those aged 40.0 to 60.0 years were also significantly less likely to have DNR discussions than those aged 20.0 to 29.9 years. Experience in actively initiating discussions about LST withdrawal with patients\' families, being male, and possessing an education level higher than university were significantly related to LST withdrawal discussions with terminal patients or their families in the future. In conclusion, there need to be more discussions about DNR and LST withdrawal with patients. To protect patients\' autonomy and their rights to make decisions about their DNR and LST, measures are needed to facilitate DNR and LST discussions with patients to ensure better end-of-life care.
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  • 文章类型: Journal Article
    Walking outdoors supports health and well-being, but some people living with dementia are at increased risk of getting lost and of harm while missing. Electronic monitoring can potentially play an important preventative role by enabling the person\'s location to be continuously monitored by caregivers. However, there are considerable ethical concerns arising from electronic monitoring. This paper explores these thematically, drawing attention to its implications for autonomy and liberty; privacy; dignity; the rights and needs of caregivers and families; beneficence and nonmaleficence. Following from this, key questions for consideration in social work assessment are identified. The ethical issues necessitate assessment of the person\'s unique circumstances and preferences and that of their caregivers, and careful ethical deliberation in decision-making. Social work can play an important role in facilitating inclusive assessment and decision-making, leading to consensus on intervening with electronic monitoring. The need for the ongoing review following implementation is discussed to track whether decisions need modification in light of the experience of usage. In conclusion, while legislative instruments and professional codes of ethics frame social work practice responses, there is need for a nuanced debate about ethical use of electronic monitoring and specific guidance to inform assessment, decision-making, and review.
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