背景:每年,欧洲有150多万人中风,以及许多经验障碍导致活动和参与限制。家庭康复是中风康复的推荐方法,与国际上向综合护理的转变相一致。尽管如此,康复通常侧重于人的身体机能,不是整个生活的情况和机会过积极的生活。鉴于今天的康复通常在人的家中提供,有必要开发新的模式,将康复过程视为中风患者的日常生活环境。这个项目是基于我们正在进行的研究的经验,我们研究家庭环境对中风患者健康和参与的重要性,在家里康复。这项研究显示了未满足的需求,导致康复效果欠佳。需要研究如何在家庭环境中利用环境资源来优化中风康复。
目的:该项目的总体目标是开发一种新的康复实践模式,以个人需求为起点,并考虑环境。
方法:该项目将与中风患者合作进行,重要的其他人,卫生保健专业人员,和护理经理。文献综述的结果将成为与利益相关者访谈的基础,其次是共同设计研讨会,旨在创建一个新的实践模式。将举行焦点小组,将讲习班的成果完善为实践模式。
结果:这个为期4年的项目于2023年1月开始,将持续到2026年12月。文献综述的结果是,截至2024年4月,目前正在分析。面试和共同设计阶段的道德操守申请于2023年10月获得批准,数据收集工作将在2024年春季进行。我们的目标是与利益相关者一起开发实践模型,并与护理经理和决策者一起完善它。成果是新的实践模式和实施方案,这将在2026年秋季实现。
结论:该项目通过增加对用户参与的强烈关注以及整合环境的不同方面,为优化康复过程提供了一个突出的缺失难题。目标是提高中风后生活的一大群人的生活质量并增加重返社会的机会。通过与多个利益相关者共同设计,我们希望该模型是可行和可持续的。该项目的知识还将有助于提高人们对自然环境对可持续保健的重要性的认识。这些发现将为未来的升级举措奠定基础。
■DERR1-10.2196/56996。
BACKGROUND: Each year, more than 1.5 million people in Europe have a stroke, and many experience disabilities leading to activity and participation restrictions. Home-based rehabilitation is the recommended approach for stroke rehabilitation, in line with the international shift to integrated care. Despite this, rehabilitation often focuses on the person\'s physical functions, not the whole life situation and opportunities to live an active life. Given that rehabilitation today is often provided in the person\'s home, there is a need to develop new models that consider the rehabilitation process as situated in the everyday living environment of persons with stroke. This project is grounded in experiences from our ongoing research, where we study the importance of the home environment for health and participation among persons with stroke, rehabilitated at home. This research has shown unmet needs, which lead to suboptimal rehabilitation outcomes. There is a need for studies on how to use environmental resources to optimize stroke rehabilitation in the home setting.
OBJECTIVE: The overarching objective of the project is to develop a new practice model for rehabilitation where the needs of the person are the starting point and where the environment is considered.
METHODS: The project will be conducted in partnership with persons with stroke, significant others, health care professionals, and care managers. Results from a literature review will form the base for interviews with the stakeholders, followed by co-designing workshops aiming to create a new practice model. Focus groups will be held to refine the outcome of the workshops to a practice model.
RESULTS: This 4-year project commenced in January 2023 and will continue until December 2026. The results of the literature review are, as of April 2024, currently being analyzed. The ethics application for the interviews and co-design phase was approved in October 2023 and data collection is ongoing during spring 2024. We aim to develop a practice model with stakeholders and refine it together with care managers and decision makers. The outcome is a new practice model and implementation plan, which will be achieved in autumn 2026.
CONCLUSIONS: The project contributes with a prominent missing puzzle to optimize the rehabilitation process by adding a strong focus on user engagement combined with integrating different aspects of the environment. The goal is to improve quality of life and increase reintegration in society for the large group of people living with the aftermath of a stroke. By co-designing with multiple stakeholders, we expect the model to be feasible and sustainable. The knowledge from the project will also contribute to an increased awareness of the importance of the physical environment for sustainable health care. The findings will lay the foundation for future upscaling initiatives.
UNASSIGNED: DERR1-10.2196/56996.