Mental disabilities

精神残疾
  • 文章类型: Journal Article
    背景:患有严重精神疾病(SMI)和智力障碍/发育障碍(ID/DD)的人发生COVID-19的风险更高,结果更严重。我们比较了针对马萨诸塞州(MA)患有SMI或ID/DD的人群的团体住宅(GHs)中量身定制的最佳实践COVID-19预防计划和一般最佳实践预防计划。
    方法:一项混合有效性实施整群随机对照试验,比较了四个组成部分的实施策略(量身定制的最佳实践:TBP)与标准预防指南(一般最佳实践:GBP)在六个MA行为卫生机构的GH中传播。英镑由预防COVID-19的标准最佳实践组成。TBP包括英镑以及四个组成部分,其中包括:(1)关于疫苗接种益处的可信赖信使同伴推荐;(2)动机性访谈;(3)关于预防实践的交互式教育;(4)GHs的保真度反馈仪表板。主要实施结果是完整的COVID-19疫苗接种率(基线:2021年1月1日至2021年3月31日)和保真度评分(基线:5/1/21-7/30/21),间隔3个月至15个月随访,直至2022年10月。主要有效性结果是COVID-19感染(基线:2021年1月1日至2021年3月31日),每3个月至15个月随访一次。使用Kaplan-Meier曲线估计疫苗接种的累积发生率。Cox脆弱模型评估疫苗接种摄取和次要结局的差异。线性混合模型(LMM)和泊松广义线性混合模型(GLMM)用于评估保真度评分和COVID-19感染发生率的差异。
    结果:GHs(n=415)随机分为TBP(n=208)和GBP(n=207),包括3,836名居民(1,041ID/DD;2,795SMI)和5,538名工作人员。TBP和GBP之间的保真度评分或COVID-19发病率没有差异,然而TBP有更大的可接受性,适当性,和可行性。TBP和GBP之间没有发现疫苗接种率的总体差异。然而,在未接种疫苗的智障家庭居民中,非白人居民在15个月时TBP(28.6%)比GBP(14.4%)高出一倍,达到完全疫苗接种状态.此外,与非西班牙裔白人居民相比,非白人居民TBP对疫苗接种的影响超过2倍(非白人和非西班牙裔白人TBP的HR比:2.28,p=0.03).
    结论:量身定做的COVID-19预防策略作为一种可行和可接受的实施策略是有益的,有可能减少非白人精神残疾患者亚组之间疫苗接受度的差异。
    背景:ClinicalTrials.gov,NCT04726371,2021年1月27日。https://clinicaltrials.gov/study/NCT04726371.
    BACKGROUND: People with serious mental illness (SMI) and people with intellectual disabilities/developmental disabilities (ID/DD) are at higher risk for COVID-19 and more severe outcomes. We compare a tailored versus general best practice COVID-19 prevention program in group homes (GHs) for people with SMI or ID/DD in Massachusetts (MA).
    METHODS: A hybrid effectiveness-implementation cluster randomized control trial compared a four-component implementation strategy (Tailored Best Practices: TBP) to dissemination of standard prevention guidelines (General Best-Practices: GBP) in GHs across six MA behavioral health agencies. GBP consisted of standard best practices for preventing COVID-19. TBP included GBP plus four components including: (1) trusted-messenger peer testimonials on benefits of vaccination; (2) motivational interviewing; (3) interactive education on preventive practices; and (4) fidelity feedback dashboards for GHs. Primary implementation outcomes were full COVID-19 vaccination rates (baseline: 1/1/2021-3/31/2021) and fidelity scores (baseline: 5/1/21-7/30/21), at 3-month intervals to 15-month follow-up until October 2022. The primary effectiveness outcome was COVID-19 infection (baseline: 1/1/2021-3/31/2021), measured every 3 months to 15-month follow-up. Cumulative incidence of vaccinations were estimated using Kaplan-Meier curves. Cox frailty models evaluate differences in vaccination uptake and secondary outcomes. Linear mixed models (LMMs) and Poisson generalized linear mixed models (GLMMs) were used to evaluate differences in fidelity scores and incidence of COVID-19 infections.
    RESULTS: GHs (n=415) were randomized to TBP (n=208) and GBP (n=207) including 3,836 residents (1,041 ID/DD; 2,795 SMI) and 5,538 staff. No differences were found in fidelity scores or COVID-19 incidence rates between TBP and GBP, however TBP had greater acceptability, appropriateness, and feasibility. No overall differences in vaccination rates were found between TBP and GBP. However, among unvaccinated group home residents with mental disabilities, non-White residents achieved full vaccination status at double the rate for TBP (28.6%) compared to GBP (14.4%) at 15 months. Additionally, the impact of TBP on vaccine uptake was over two-times greater for non-White residents compared to non-Hispanic White residents (ratio of HR for TBP between non-White and non-Hispanic White: 2.28, p = 0.03).
    CONCLUSIONS: Tailored COVID-19 prevention strategies are beneficial as a feasible and acceptable implementation strategy with the potential to reduce disparities in vaccine acceptance among the subgroup of non-White individuals with mental disabilities.
    BACKGROUND: ClinicalTrials.gov, NCT04726371, 27/01/2021. https://clinicaltrials.gov/study/NCT04726371 .
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  • 文章类型: Journal Article
    目的:智力低下是一种社会耻辱,受这种情况影响的儿童总是需要爱和同情。宠物在人类生活中具有缓解压力和焦虑的积极作用。因此,宠物被认为是心理治疗的一个非常重要的方面。那些患有智力低下的孩子必须定期接受压力和焦虑缓解课程。因此,本研究旨在分析拥有宠物狗对智障儿童的心理社会影响。
    方法:共有112名儿童被纳入研究,并在儿科接受咨询,地区医院,阿姆利则.20例患者失访,52例患者获得宠物所有权。这项研究分为两组,顺从组(n=52)和不顺从组(n=40)。汉密尔顿焦虑量表(HAM-A)适用于所有宠物狗饲养前(PRE)和宠物狗饲养后3-6个月(POST)的儿童。记录所有患儿的前后得分,并进行统计分析。
    结果:拥有宠物之前的HAM-A评分具有可比性,在拥有宠物之前(p=.825),但在饲养宠物3-6个月后,依从性和非依从性组之间观察到显著差异(p<.001).此外,轻度智力低下(轻度MR)和中度智力低下(中度MR)患儿的HAM-A评分在3~6个月后显著低于不依从组.我们还观察到,在拥有本地品种和外国品种的儿童中,焦虑水平的降低是可比的。
    结论:这项短期随访研究强调了为有精神问题的青少年养狗在改善生活方面的潜在优势。这些长期收益中的许多可能归因于减轻家庭内部的紧张关系。
    OBJECTIVE: Mental retardation is a social stigma and children affected by this condition always require love and compassion. Pets have a positive role in human life to relieve stress and anxiety. Pets are therefore considered to be a very important aspect of psychological therapy. Those children who are suffering from mental retardation have to be given regular stress and anxiety-relieving sessions. Hence this study aims to analyze the psychosocial effects of pet dog ownership on mentally challenged children.
    METHODS: A total of 112 children were included in the study and were counseled at the Department of Pediatrics, District Hospital, Amritsar. Twenty patients were lost to follow up and pet ownership materialized in 52 patients. The study was divided into 2 groups, the compliant group (n=52) and the non-compliant group (n=40). Hamilton anxiety scale (HAM-A) was applied to all the children before pet dog ownership (PRE) and after 3-6 months with a pet dog (POST). The pre and post-scores of all the children were recorded and subjected to statistical analysis.
    RESULTS: The HAM-A score before pet ownership was comparable, before pet ownership (p=.825), but after 3-6 months of pet ownership significant difference was observed between compliant and non-compliant groups (p<.001). Also, the HAM-A score in children with mild mental retardation (mild MR) and moderate mental retardation (moderate MR) was significantly less than the non-compliant group after 3-6 months. We also observed that the decrease in the anxiety levels was comparable in children who owned local breeds and foreign breeds.
    CONCLUSIONS: This short-term follow-up research highlights the potential advantages of keeping a companion dog for youngsters with mental problems in terms of improving their lives. Many of these long-term gains might be attributed to lessening tensions within families.
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  • 文章类型: Journal Article
    Little is known about the impact of giant cell arteritis (GCA) and its treatment on patient-reported physical, mental, and psychic quality of life (QoL). In this monocentric study, a questionnaire was sent to the 100 last patients diagnosed with GCA and followed-up in a single tertiary center. Their physical, mental and psychic status were self-assessed via close-ended questions, the 12-item short form survey (SF-12) and the 15-item geriatric depression scale (GDS). We aimed to identify parameters that were significantly associated with moderate-to-severe disability in both physical and mental domains. Ninety patients were analyzable. Moderate to severe physical disability was found in 41 (46%) patients. In multivariate analysis, walking difficulties (OR, 95% CI 8.42 [2.98-26.82], p <0.0001), muscle mass and strength reduction (OR, 95% CI 4.38 [1.37-16.31], p = 0.01) and age >80 (OR, 95% CI 4.21 [1.44-13.61], p = 0.008) were independent findings associated with moderate to severe physical disability. Moderate to severe mental disability was found in 30 (33%) patients. In multivariate analysis, depressive mood (OR, 95% CI 11.05 [3.78-37.11], p < 0.0001), felt adverse events attributable to glucocorticoids (OR, 95% CI 10.54 [1.65-213.1], p = 0.01) and use of immune-suppressants (OR, 95% CI 3.50 [1.14-11.87], p = 0.03) were independent findings associated with moderate to severe mental disability. There was a statistically significant negative correlation between GDS and the physical and/or mental disability scores (GDS and PCS-12: r = -0.33, p = 0.0013; GDS and MCS-12: r = -0.36, p = 0.0005). In conclusion, this study identified via a self-assessment of patients with GCA some medical and modifiable findings that significantly affect their physical and mental quality of life. A better knowledge of these factors may help improve the care of GCA patients.
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  • 文章类型: Journal Article
    目的:我们收集了被诊断患有创伤后应激障碍(PTSD)的退伍军人的自然心率数据,以研究各种因素对心率的影响。
    背景:PTSD在美国退伍军人中普遍存在。虽然创伤后应激障碍和心率之间存在正相关,PTSD症状发作期间的具体心率特征仍未知.
    方法:在2017年和2018年的五次自行车比赛中招募了退伍军人,使用腕部佩戴设备记录静息和活动相关的心率数据。该设备还记录了自我报告的PTSD过度唤醒事件。对人口统计学和行为协变量进行回归分析,包括性别,锻炼,抗抑郁药,吸烟习惯,睡眠习惯,报告的过度觉醒事件期间的平均心率,年龄,糖皮质激素消费,和酒精消费。使用自回归综合移动平均(ARIMA)分析了自我报告的PTSD过度唤醒事件期间的心率模式。还将心率数据与开放式非PTSD代表性病例进行了比较。
    结果:在99名患有PTSD的退伍军人中,91名参与者报告了至少一次过度觉醒事件,共有1023个事件;构成回归分析子集的38名参与者的人口统计学信息是完整的.结果表明,包括吸烟在内的因素,睡觉,性别,和药物显著影响静息心率。此外,就平稳性而言,与PTSD症状相关的独特心率模式,自相关,并确定了波动特征。
    结论:我们的发现显示了PTSD过度觉醒事件期间可区分的心率模式和特征。
    结论:这些发现显示了未来检测PTSD症状发作的工作前景。
    OBJECTIVE: We collected naturalistic heart rate data from veterans diagnosed with post-traumatic stress disorder (PTSD) to investigate the effects of various factors on heart rate.
    BACKGROUND: PTSD is prevalent among combat veterans in the United States. While a positive correlation between PTSD and heart rate has been documented, specific heart rate profiles during the onset of PTSD symptoms remain unknown.
    METHODS: Veterans were recruited during five cycling events in 2017 and 2018 to record resting and activity-related heart rate data using a wrist-worn device. The device also logged self-reported PTSD hyperarousal events. Regression analyses were performed on demographic and behavioral covariates including gender, exercise, antidepressants, smoking habits, sleep habits, average heart rate during reported hyperarousal events, age, glucocorticoids consumption, and alcohol consumption. Heart rate patterns during self-reported PTSD hyperarousal events were analyzed using Auto Regressive Integrated Moving Average (ARIMA). Heart rate data were also compared to an open-access non-PTSD representative case.
    RESULTS: Of 99 veterans with PTSD, 91 participants reported at least one hyperarousal event, with a total of 1023 events; demographic information was complete for 38 participants who formed the subset for regression analyses. The results show that factors including smoking, sleeping, gender, and medication significantly affect resting heart rate. Moreover, unique heart rate patterns associated with PTSD symptoms in terms of stationarity, autocorrelation, and fluctuation characteristics were identified.
    CONCLUSIONS: Our findings show distinguishable heart rate patterns and characteristics during PTSD hyperarousal events.
    CONCLUSIONS: These findings show promise for future work to detect the onset of PTSD symptoms.
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  • 文章类型: Journal Article
    昆士兰州政府发布了一项政策指令,要求在2013年锁定所有急性成人公共精神卫生住院病房。尽管受到专业机构的批评和对替代方案的倡导,这项政策一直保留到今天。在没有个性化考虑安全性的情况下,在锁定环境中治疗所有精神病住院患者的一揽子指令与限制性最少的康复护理不一致。这违反了《联合国残疾人权利公约》的原则,澳大利亚是其签署国。这也违反了《2016年精神健康法》(Qld)的主要目标。昆士兰州卫生部报告说,在实行锁定病房政策后,精神病住院病房的“未经许可而缺勤”有所减少;但是,没有对这一政策的后果进行深入分析。有人认为,与从精神健康病房“逃离”的患者相比,延迟返回或未从批准的休假中返回是更常见的事件,然而,所有这些都可能被视为“未经许可缺席”事件。对国际文献的回顾发现,几乎没有证据表明从锁定病房潜逃的减少。锁定病房住院患者的缺点包括自尊心和自主性降低,和一种排斥感,禁闭和耻辱。锁定病房也与较低的服务满意度和较高的药物拒绝率相关。相反,有重要的国际证据表明,像Safewards这样的护理模式和开放政策可以改善住院单位的环境,并可能减少对遏制和限制性做法的需求。我们建议根据人权原则和国际证据对锁定病房政策进行审查。
    The Queensland Government issued a policy directive to lock all acute adult public mental health inpatient wards in 2013. Despite criticism from professional bodies and advocacy for an alternative, the policy has been retained to this day. A blanket directive to treat all psychiatric inpatients in a locked environment without individualised consideration of safety is inconsistent with least restrictive recovery-oriented care. It is against the principles of the United Nations Convention on the Rights of Persons with Disabilities, to which Australia is a signatory. It is also contrary to the main objects of the Mental Health Act 2016 (Qld). Queensland Health has reported a reduction in \'absences without permission\' from psychiatric inpatient wards after the introduction of the locked wards policy; however, no in-depth analysis of the consequences of this policy has been conducted. It has been argued that patients returning late or not returning from approved leave is a more common event than patients \'escaping\' from mental health wards, yet all may be counted as \'absent without permission\' events. A review of the international literature found little evidence of reduced absconding from locked wards. Disadvantages for inpatients of locked wards include lowered self-esteem and autonomy, and a sense of exclusion, confinement and stigma. Locked wards are also associated with lower satisfaction with services and higher rates of medication refusal. On the contrary, there is significant international evidence that models of care like Safewards and having open door policies can improve the environment on inpatient units and may lead to less need for containment and restrictive practices. We recommend a review of the locked wards policy in light of human rights principles and international evidence.
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  • 文章类型: Journal Article
    目标:尽管正式的法定协调护理计划中的用户参与和共同决策被描述为核心,它们仍有待实施。这项研究的目的是探索如何在与智障人士的正式护理计划活动中实现社会服务中的协作和共同决策。
    方法:我们与12名用户和17名护理人员进行了8次研讨会,以调查参与协调护理计划的现有障碍和可能的解决方案。
    结果:来自参与式设计的研讨会格式和技术产生了丰富的研究材料,说明了用户和护理人员在护理计划工作中当前遇到的挑战,以及应对这些挑战的各种解决方案。他们还说明了如何理解参与以及实现用户和护理人员之间共享决策所需的条件方面的差异。
    结论:出现了改进的协调个人计划(CIP)流程,基于用户和护理人员的积极参与。这个过程对于用户和护理人员来说是一个熟悉和透明的过程,反映用户在各个阶段的需求和偏好。它需要仔细的准备和与用户的协作,以及照顾者的灵活性。
    OBJECTIVE: Although user participation and shared decision-making in formal statutory coordinated care planning are described as central, they remain to be implemented. The aim of this study is to explore how collaboration and shared decision-making in the social services can be realized in formal care planning activities with people with mental disabilities.
    METHODS: We conducted eight workshops with 12 users and 17 caregivers to investigate existing barriers to and possible solutions for participation in coordinated care planning.
    RESULTS: Workshop formats and techniques from participatory design generated rich research materials illustrating challenges currently experienced by users and caregivers in care planning work, as well as a large variety of solutions to these challenges. They also illustrated differences in how participation is understood and the conditions required to realize shared decision-making between users and caregivers.
    CONCLUSIONS: An improved coordinated individual plan (CIP) process emerged, based on the active participation of users and caregivers. This process is a familiar and transparent process for users and caregivers, reflecting the needs and preferences of users at all stages. It requires careful preparation and collaboration with the users, as well as caregiver flexibility.
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  • 文章类型: Journal Article
    This study aimed to evaluate the utility of a novel, more cost-effective driving simulator, Assetto Corsa (AC), in detecting differences in driving performance between individuals with and without ADHD. Driving simulators are a useful means of assessing driving performance in those with attention-deficit hyperactivity disorder (ADHD); however, they are frequently expensive and thus unavailable to many researchers. A total of 87 participants (16 with ADHD, 71 without) completed an AC driving simulator task. They also completed computerized measures of attention and executive functioning and a questionnaire assessing self-reported driving behaviors and anger, ADHD and related symptoms, and mind wandering. Relative to those without ADHD, participants with ADHD reached higher average ground speeds and more greatly utilized the throttle. They also applied higher maximum pressure to the throttle and brake pedals. Within the full sample, greater mind wandering was associated with average and maximum throttle pressure and maximum ground speed. Findings confirm prior works indicative of a deleterious effect of ADHD diagnosis on simulator performance and may be attributed to a combination of impulsivity and mind wandering.
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  • 文章类型: Journal Article
    Purpose: In Kenya, the employment rate for persons with disabilities is about 1% compared to 73.8% for the general population, and the situation is even worse for persons with mental disabilities. Persons with mental disabilities are often regarded as \"mad\", and stand little or no chance of employment. We undertook an exploratory study with employers and potential employers to understand factors that hinder or facilitate their employment and to gain insight into employers\' perceptions of mental disability.Materials and methods: We adopted a mixed method study design, including in-depth interviews (n = 10) and questionnaires (n = 158) with (potential) employers in Kenya to explore the barriers and facilitators of employment for persons with mental disabilities.Results: Out of the 158 employers who completed the questionnaire, only 15.4% had ever employed persons with mental disabilities. The perceptions that these persons are not productive and may be violent was associated with an unwillingness to employ them (OR: 10.11, 95%CI: 2.87-35.59 and OR: 3.6, 95%CI: 1.34-9.64, respectively). The possession of skills was the highest reported facilitator of employing persons with mental disabilities. Employers suggested that information about mental illness and the disclosure by prospective employees with mental disabilities are relevant for the provision of reasonable accommodation in the workplace.Conclusion: Possession of skills and disclosure by persons with mental disabilities could improve their employability. Information targeted at all actors including employers, employees, government, and policymakers is necessary for balancing employers and employees expectations.Implications for rehabilitationDisabled persons\' organisations or mental disability programs that seek to improve the employment of persons with mental disabilities should incorporate methods that address employer expectations through dialogue to find mutual benefits.Employers require essential information about mental illness, and guidance and support in order to provide reasonable accommodation in the workplace for persons with mental disabilities.Disabled persons\' organisations and inclusive employment programs should share the positive experiences of employers of persons with mental disabilities with employers who are unaware of the work abilities of persons with mental disabilities to stimulate adoption of inclusive practices.
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  • 文章类型: Journal Article
    This study examined the relationship between eight dimensions of spirituality (and religion) and people with four different types of disability status: hearing, vision, physical mobility, and emotional or mental disabilities. The overarching aim was to identify specific spiritual-religious profiles within each disability population relative to the general population. To conduct this cross-sectional examination, the authors used nationally representative data from the General Social Survey in the United States. The results reveal unique spiritual and religious profiles across the four types of disability status examined, although people with emotional or mental disabilities may have the most distinct profile. Compared with their counterparts among the general public, people with hearing, physical, and emotional disabilities were more likely to report praying several times a day; people with all four types of disability were more likely to report having a turning point when they became less committed to religion. Understanding which spiritual and religious dimensions are disproportionately more likely to exist among a given population with a particular disability helps practitioners provide more effective services to members of that group.
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  • 文章类型: Journal Article
    越来越多的儿童和成年人患有精神残疾(包括患有阿尔茨海默病或其他形式的与年龄相关的痴呆症的老年人),由于各种原因在农村和城市地区迷路。在最初的72小时内确定他们的位置是至关重要的,因为迷路的人暴露于各种不利条件下,在老年人的情况下,如果需要处方药,这种情况会进一步恶化。在这里,我们描述了一种非侵入性的,持续运行的低成本电子设备,跟踪时间,地理位置和使用它的主体的识别。原型是使用商业低成本电子组件制成的。该电子设备在开放和封闭区域中显示出高连接性,并且识别丢失对象的地理位置。我们免费提供原型的软件和技术图。
    There are a growing number of small children-as well as adults-with mental disabilities (including elderly citizens with Alzheimer\'s disease or other forms of age-related dementia) that are getting lost in rural and urban areas for various reasons. Establishing their location within the first 72 h is crucial because lost people are exposed to all kinds of adverse conditions and in the case of the elderly, this is further aggravated if prescribed medication is needed. Herein we describe a non-invasive, low-cost electronic device that operates constantly, keeping track of time, the geographical location and the identification of the subject using it. The prototype was made using commercial low-cost electronic components. This electronic device shows high connectivity in open and closed areas and identifies the geographical location of a lost subject. We freely provide the software and technical diagrams of the prototypes.
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