Follow-up care

后续护理
  • 文章类型: Journal Article
    早期诊断和护理的连续性对于心房颤动(AF)至关重要,减少中风;在低收入和中等收入国家(LMICs),人们对何时以及如何诊断和管理房颤的护理途径缺乏了解。我们旨在确定北部省份的房颤护理途径,斯里兰卡并确定COVID-19大流行如何影响护理途径。
    本描述性纵向研究使用两份定量问卷来评估房颤途径:第一份问卷(基线)用于确定房颤的诊断位置,第二份问卷(基线后3个月)用于确定房颤后续护理的位置和频率。第二份问卷中询问了COVID-19大流行如何影响护理途径。我们的目标是从Jaffna教学医院招募236名患有房颤的成年人(≥18岁)。数据收集于2020年10月至2021年6月之间,并使用描述性统计分析。
    招募了151名参与者(平均年龄57岁;70%为女性)。大多数参与者在事故和急诊(38%)或住院部门(26%)被诊断出,其次是门诊部(19%)或私人机构(16%)。在研究期间,几乎所有(97%)的参与者都接受了后续护理,每月平均每人1.3次与AF相关的医疗保健访问;大多数访问门诊部(88%)。COVID-19大流行对39%的参与者的护理产生了负面影响:医疗保健访问减少或,延迟或药物无法实现,血液测试之间的间隔时间较长;然而,24%的参与者能够通过救护车接受药物治疗,公共卫生人员或封锁期间的岗位。
    初级护理未参与房颤的诊断,表明大多数诊断发生在医疗紧急情况之后。血液检查的频率低于每月一次的指南建议,这可能部分是由于大流行的不利影响。加强初级和社区护理可以在未来的医疗保健危机期间和之后进行早期诊断并改善护理的连续性。
    UNASSIGNED: Early diagnosis and continuity of care is vital for atrial fibrillation (AF), to reduce stroke ; There is a lack of understanding of when and how AF is being diagnosed and managed the care pathway) in in low- and middle-income countries (LMICs). We aimed to identify the AF care pathway in Northern Province, Sri Lanka and determine how the COVID-19 pandemic impacted the care pathway.
    UNASSIGNED: This descriptive longitudinal study utilised two quantitative questionnaires to evaluate the AF pathway: The first questionnaire (baseline) was used to identify where AF was being diagnosed and the second questionnaire (3 months following baseline) was used to identify where and how often AF follow-up care was being received. How the COVID-19 pandemic impacted the care pathway was asked in the second questionnaire. We aimed to recruit 236 adults (≥18 years) with AF from Jaffna Teaching Hospital. Data were collected between October 2020 and June 2021 and analysed using descriptive statistics.
    UNASSIGNED: 151 participants were recruited (median age 57 years; 70% female). Most participants were diagnosed in the accident & emergency (38%) or inpatient department (26%), followed by an outpatient department (19%) or private facility (16%). Nearly all (97%) participants received follow-up care during the study period, with an average of 1.3 AF-related healthcare visits per person for a month; most visited an outpatient department (88%). The COVID-19 pandemic negatively impacted 39% of participants\' care: healthcare visits were reduced or, delayed or medications were unattainable, and longer intervals between blood tests were experienced; however, 24% of participants were able to receive their medication by ambulance, public health staff or post during lockdowns.
    UNASSIGNED: Primary care was not involved in the diagnosis of AF, indicating that most diagnoses occurr after a medical emergency. The frequency of blood tests was lower than the guideline recommendations of one per month which could in-part be due to the adverse impacts of the pandemic. Strengthening primary and community-based care may enable early diagnosis and improve continuity of care during and beyond future healthcare crises.
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  • 文章类型: Journal Article
    与中部城市地区相比,居住在人口稀少地区的老年人获得听力学服务的机会往往有限。后续护理的地理可及性,特别是距离的影响,这可能会增加弃用助听器的风险。
    评估智利公共卫生系统中老年人的家庭到医疗保健校准中心距离与助听器放弃之间的关联。考虑了
    455名从两个地区的两家公立医院接受助听器的患者。使用具有稳健方差估计的单变量和多变量泊松回归模型来分析地理距离与助听器放弃之间的关联。考虑混杂效应。
    大约18%的样本放弃了助听器,大约50%的人报告每天使用助听器。家庭与听力中心之间的距离增加两倍,导致助听器放弃的风险增加了35%(RR=1.35;95%CI:1.04-1.74;p=0.022)。此外,第二个五分之一的人放弃助听器的风险是第一个五分之一的人(最多2.3公里)的2.17倍。假设患者居住在第一个五分之一的距离内,我们观察到弃用助听器的发生率有可能降低45%.观察到的风险在不同的统计模型中保持一致,以评估敏感性。
    住所与医疗中心之间的距离越远,就会增加弃用助听器的风险。这种关联可以用购买维护设备所需的用品的障碍来解释(电池,清洁元件,潜在的维修,或维护)。
    UNASSIGNED: Access to audiology services for older adults residing in sparsely populated regions is often limited compared to those in central urban areas. The geographic accessibility to follow-up care, particularly the influence of distance, may contribute to an increased risk of hearing aid abandonment.
    UNASSIGNED: To assess the association between the home-to-healthcare-calibration-center distance and hearing aid abandonment among older adults fitted in the Chilean public health system.
    UNASSIGNED: 455 patients who received hearing aids from two public hospitals in two regions were considered. Univariate and multivariate Poisson regression models with robust variance estimation were used to analyze the association between the geographical distance and hearing aid abandonment, accounting for confounding effects.
    UNASSIGNED: Approximately 18% of the sample abandoned the hearing aid, and around 50% reported using the hearing aid every day. A twofold increase in distance between home and the hearing center yielded a 35% (RR = 1.35; 95% CI: 1.04-1.74; p = 0.022) increased risk of hearing aid abandonment. Also, those in the second quintile had a 2.17 times the risk of abandoning the hearing aid compared to the first quintile (up to 2.3 km). Under the assumption that patients reside within the first quintile of distance, a potential reduction of 45% in the incidence of hearing aid abandonment would be observed. The observed risk remained consistent across different statistical models to assess sensitivity.
    UNASSIGNED: A higher distance between the residence and the healthcare center increases hearing aid abandonment risk. The association may be explained by barriers in purchasing supplies required to maintain the device (batteries, cleaning elements, potential repairs, or maintenance).
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  • 文章类型: Journal Article
    重症监护病房为一组先前存在的共病患者提供护理。重点已转移到改善与健康相关的生活质量,使更多的患者出院后幸存下来。评估随访干预措施的随机对照试验,为了改善身体恢复,没有表现出与健康相关的生活质量益处。定性研究可以提供背景,以了解重症监护幸存者在解决身体限制的后续护理期间的经历。
    综合定性研究并探索重症监护幸存者在后续护理背景下的身体症状的经验和观点。
    对电子数据库的系统搜索(MEDLINE,护理和相关健康文献的累积指数,WebofScience,应用社会科学索引和摘要,进行了OvidNursing和OvidEmcare)以确定同行评审的主要定性研究。未应用日期参数。纳入/排除标准指导筛选过程。
    来自符合条件的主要研究研究的数据被提取到NVivo(v12)中。
    关键评估是使用JoannaBriggs关键评估工具完成的。专题分析,布劳恩和克拉克(2022)告知数据综合。
    来自2457项研究,纳入了10项相关研究。确定了两个主要主题:1.恢复不确定;概述了重症监护病房幸存者在恢复期间所经历的不确定性。这个主题涉及系统级因素(医疗保健专业人员的作用和信息提供),为提供后续护理提供了背景。2.自我决定恢复;概述了确定恢复的个体特征,这些特征是由患者水平因素概念化的(动机,支持网络和健康感知)。
    对于重症监护幸存者,康复轨迹不确定,出院后急性期信息提供存在差距.患者自我决定康复是确保后续护理满足个体患者需求的重要考虑因素。预先存在的合并症和从随访护理中获益的患者亚组的影响仍然不确定。
    PROSPERO注册号。CRD420223555711。
    患者接受院后随访护理以改善重症监护幸存者身体康复的经验:定性研究的系统评价。
    UNASSIGNED: Intensive care units deliver care to a heterogeneous group of patients with pre-existing co-morbid disease. Focus has shifted to improving health related quality of life with more patients surviving beyond hospital discharge. Randomised controlled trials evaluating follow-up interventions, to improve physical recovery, have not demonstrated a health-related quality of life benefit. Qualitative research may provide the context to understand the experiences of intensive care survivors during follow-up care addressing physical limitations.
    UNASSIGNED: To synthesise qualitative studies and explore Intensive Care survivors\' experiences and perspectives of physical symptoms in the context of follow-up care.
    UNASSIGNED: A systematic search of electronic databases (MEDLINE, Cumulative Index of Nursing and Allied Health Literature, Web of Science, Applied Social Sciences Index and Abstracts, Ovid Nursing and Ovid Emcare) was conducted to identify peer-reviewed primary qualitative studies. No date parameters were applied. Inclusion/exclusion criteria guided the screening process.
    UNASSIGNED: The data from eligible primary research studies was extracted into NVivo (v12).
    UNASSIGNED: Critical appraisal was completed using the Joanna Briggs Critical Appraisal Tool. Thematic analysis, guided by Braun and Clarke (2022), informed the data synthesis.
    UNASSIGNED: From 2457 studies, ten relevant studies were included. Two main themes were identified: 1. Recovery as uncertain; which outlines the uncertainty experienced by intensive care unit survivors during recovery. This theme pertained to system-level factors (role of healthcare professional and information provision) which provides the context for delivering follow-up care. 2. Self-determination of recovery; outlines individual characteristics in determining recovery which is conceptualised by patient-level factors (motivation, support network and perception of health).
    UNASSIGNED: For intensive care survivors, the recovery trajectory is uncertain with a gap in information provision during the acute phase following hospital discharge. Patients\' self-determination of recovery is an important consideration to ensure follow-up care addresses the needs of individual patients. The impact of pre-existing co-morbid disease and subgroups of patients deriving benefit from follow-up care remains uncertain.
    UNASSIGNED: PROSPERO Registration no. CRD42022355711.
    UNASSIGNED: Patients\' experiences of post-hospital follow-up care to improve physical recovery for intensive care survivors: A Systematic Review of Qualitative Research.
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  • 文章类型: Journal Article
    BACKGROUND: Muscle injuries are common in football. Imaging diagnostics have a major role in establishing a diagnosis. The main diagnostic procedures are MRI and ultrasound. Both diagnostics have advantages and disadvantages, which should be balanced against each other.
    UNASSIGNED: The role of MRI as the gold standard is increasingly being replaced by high-resolution ultrasound techniques, and MRI imaging is not always useful. To detect complications in the early stages it is advised to perform regular ultrasound-imaging check-ups. The healing process can be monitored, and it offers additional options for ultrasound-guided interventions such as hematoma punctures and targeted infiltrations.
    UNASSIGNED: However, ultrasound imaging is highly user dependent. Experienced operators can eliminate this disadvantage, which makes ultrasound a superior imaging system in many areas, especially for dynamic examinations. Nevertheless, MRI imaging remains a necessary imaging method in certain areas.
    UNASSIGNED: HINTERGRUND: Im Fußballsport sind Muskelverletzungen ein häufiges Verletzungsmuster. Die Bildgebung ist ein zentrales Element zur Diagnosestellung. Hierfür werden hauptsächlich die MRT und der Ultraschall eingesetzt. Beide Verfahren haben Vor- und Nachteile, welche abgewogen werden sollten.
    UNASSIGNED: Die Rolle der MRT als Goldstandard wird zunehmend durch neue Techniken des hochauflösenden Ultraschalls abgelöst und nicht immer ist eine MRT-Bildgebung sinnvoll. Auch während der Reha-Phase empfehlen sich regelmäßige Ultraschallbildgebungen, um Komplikationen frühzeitig zu erkennen. Hierbei kann der Heilungsverlauf monitorisiert werden, und es besteht die Möglichkeiten für ultraschallnavigierte Interventionen, wie Hämatompunktionen und gezielte Infiltrationsbehandlungen.
    UNASSIGNED: Ein Nachteil der Ultraschalldiagnostik ist jedoch die Nutzerabhängigkeit. Bei erfahrenen Anwendern wird diese durch die zahlreichen Vorteile des modernen Ultraschalls ausgeglichen, womit er der MRT in vielen Bereichen – speziell auch mit der Möglichkeit eines dynamischen Ultraschalls – überlegen ist. Dennoch bleibt die MRT bei bestimmten Fragestellungen eine sinnvolle und notwendige Untersuchungsmethode.
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  • 文章类型: Journal Article
    背景:副作用可在开始服用抗抑郁药物后数小时至数天内发生,而对情绪的全面治疗益处通常需要长达四周。伤害时间和受益滞后之间的不匹配通常会导致抗抑郁药的过早停药,这种现象可以通过早期医患沟通和随访得到部分逆转。我们调查了相关护理连续性之间的关系-家庭医生照顾老年患者的年数-与处方抗抑郁药的患者的早期随访护理之间的关系。
    方法:对安大略省居民进行了回顾性队列研究,加拿大66岁或以上,他们在2016年4月1日至2019年3月31日期间通过省级药物保险计划分配了第一份抗抑郁药处方。该研究利用多变量回归来估计关系连续性与处方家庭医生30天随访之间的关系。分别对居住在城市的老年人进行了估计,非主要城市,和农村社区。
    结果:该研究发现,处方家庭医生为患者分配了第一个抗抑郁药处方(RRR=1.005;95%CI=1.004,1.006),护理的关系连续性与后续护理之间存在小的正相关关系。这种关系是由患者的住所位置调节的,对于居住在非主要城市(RRR=1.009;95%CI=1.007,1.012)和农村社区(RRR=1.006;95%CI=1.002,1.011)的老年人,影响更大。
    结论:我们的研究结果并没有提供强有力的证据证明护理的连续性和抗抑郁药处方的高质量管理之间的关系。然而,这种关系在获得持续初级保健和专业精神卫生服务较为有限的农村社区中更为明显.这可能支持在农村社区招募和保留初级保健提供者的持续需求。
    BACKGROUND: Side effects can occur within hours to days of starting antidepressant medications, whereas full therapeutic benefit for mood typically takes up to four weeks. This mismatch between time to harm and lag to benefit often leads to premature discontinuation of antidepressants, a phenomenon that can be partially reversed through early doctor-patient communication and follow-up. We investigated the relationship between relational continuity of care - the number of years family physicians have cared for older adult patients - and early follow-up care for patients prescribed antidepressants.
    METHODS: A retrospective cohort study was conducted on residents of Ontario, Canada aged 66 years or older who were dispensed their first antidepressant prescription through the provincial drug insurance program between April 1, 2016, and March 31, 2019. The study utilized multivariable regression to estimate the relationship between relational continuity and 30-day follow-up with the prescribing family physician. Separate estimates were generated for older adults living in urban, non-major urban, and rural communities.
    RESULTS: The study found a small positive relationship between relational continuity of care and follow-up care by the prescribing family physician for patients dispensed a first antidepressant prescription (RRR = 1.005; 95% CI = 1.004, 1.006). The relationship was moderated by the patients\' location of dwelling, where the effect was stronger for older adults residing in non-major urban (RRR = 1.009; 95% CI = 1.007, 1.012) and rural communities (RRR = 1.006; 95% CI = 1.002, 1.011).
    CONCLUSIONS: Our findings do not provide strong evidence of a relationship between relational continuity of care and higher quality management of antidepressant prescriptions. However, the relationship is slightly more pronounced in rural communities where access to continuous primary care and specialized mental health services is more limited. This may support the ongoing need for the recruitment and retention of primary care providers in rural communities.
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  • 文章类型: Journal Article
    背景髋部骨折是全球范围内的公共卫生问题,由于其相关的并发症,它构成了医疗保健领域最大的挑战之一。目的本研究的目的是调查喀土穆州成年患者的生活质量,苏丹,在他们使用伽玛钉治疗股骨近端骨折后。方法学这项基于医院的横断面描述性研究是在易卜拉欣·马利克进行的,Omdurman,和Bahri教学医院超过六个月,2022年4月至10月。数据是使用涵盖研究相关方面的访谈问卷收集的。使用IBMSPSSStatisticsforWindows分析数据,V.26.0(IBM公司,Armonk,NY).这项研究得到了苏丹医学专业委员会的批准,并获得了道德许可。结果本研究共纳入患者37例。超过一半的患者(59.5%,n=22)是女性。病例的平均年龄为66.7岁(标准差,±15.6)。从骨折到手术的平均时间为8天(±15)。23(62.2%,n=23)(JRB1)的患者在术后第二天开始负重。关于健康相关的生活质量,21.6%的患者有良好的健康相关生活质量,67.6%的人有健康相关的生活质量,10.8%的人与健康相关的生活质量较差。没有一个患者报告了良好的生活质量。根据牛津髋关节评分,54.1%的患者关节功能满意,29.7%有轻度至中度髋关节功能,13.5%有中重度髋关节功能障碍,1例(2.7%)有严重的髋关节功能问题。结论在本研究中,绝大多数接受伽玛钉手术治疗髋部骨折的患者术后生活质量评分在正常到良好的范围内.结果表明,在苏丹,钉扎术与生活质量有关,是股骨骨折手术的可接受选择。
    Background Hip fracture is a public health problem globally, and it poses one of the biggest challenges in healthcare due to its associated complications. Objectives The aim of this study is to investigate the quality of life in adult patients in Khartoum State, Sudan, after they have undergone treatment using a gamma nail for proximal femoral fractures. Methodology This cross-sectional descriptive hospital-based study was conducted at Ibrahim Malik, Omdurman, and Bahri Teaching Hospitals over six months, from April to October 2022. The data were collected using an interview questionnaire that covered relevant aspects of the study. The data were analyzed using IBM SPSS Statistics for Windows, V. 26.0 (IBM Corp., Armonk, NY). The study was approved by the Sudan Medical Specialization Board, and ethical clearance was obtained. Results The study included 37 patients. More than half of the patients (59.5%, n=22) were women. The mean age of cases was 66.7 years (standard deviation, ±15.6). The mean time from the time of the fracture to the time of surgery was eight days (±15). Twenty-three (62.2%, n=23) (JRB1) of the patients started weight bearing on the second postoperative day. Regarding the health-related quality of life, 21.6% of the patients had a good health-related quality of life, 67.6% had a fair health-related quality of life, and 10.8% had a poor health-related quality of life. None of the patients reported an excellent quality of life. Based on the Oxford Hip Score, 54.1% of the patients had satisfactory joint function, 29.7% had mild to moderate hip joint function, 13.5% had moderate to severe hip joint function disturbance, and one patient (2.7%) had severe hip joint function problems. Conclusion In this study, the vast majority of the patients who underwent gamma nail surgery for hip fracture had quality of life scores in the fair to good range afterward. The results indicate that nailing is associated with good outcomes regarding quality of life and is an acceptable option for femoral fracture surgeries in Sudan.
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  • 文章类型: Journal Article
    环境和社会因素,包括缺乏哮喘治疗,导致历史上处于边缘地位的小鼠群体的哮喘结局持续不平等.远程医疗,在2019年冠状病毒病(COVID-19)大流行期间迅速扩大,可能是增加儿童哮喘治疗的一种方法。
    我们试图描述患有哮喘的儿科(0-17岁)远程医疗用户的特征,并描述整个COVID-19大流行的使用趋势。
    我们使用在加州大学看到的哮喘患儿的电子健康记录数据进行了回顾性分析,洛杉矶,医疗中心在2019年3月至2022年3月之间描述远程医疗用户特征,与哮喘相关的远程医疗使用趋势,以及用户特征与远程医疗访问之间的关联。
    在6,777名哮喘患者中,与哮喘相关的远程医疗访问的百分比在大流行的早期达到顶峰,占访问量的74.3%,前下降至2022年的13.6%。与白人患者相比,黑人患者哮喘远程医疗就诊的几率较低(优势比[OR],0.49;95%置信区间[CI],0.26、0.94)。那些有公共保险的人(或者,1.7;95%CI,1.19,2.43),重度持续性哮喘(OR,3.03;95%CI,1.70,5.42),或合并症(或,1.59;95%CI,1.08,2.33)的赔率较高。将至少有一次远程医疗就诊的患者与没有远程医疗就诊的患者进行首次急诊科就诊和住院的时间相似。
    自COVID-19大流行以来,更多的小儿哮喘患者正在使用远程医疗,特别是那些有医疗复杂性和合并症的人,结果似乎相似。然而,我们机构的黑人患者使用远程医疗的几率较低。
    UNASSIGNED: Environmental and social factors, including lack of access to asthma care, contribute to persistent inequities in asthma outcomes among children from historically marginalized ethnoracial groups. Telemedicine, which expanded rapidly during the coronavirus disease 2019 (COVID-19) pandemic, may be an approach to augment access to pediatric asthma care.
    UNASSIGNED: We sought to describe characteristics of pediatric (0-17 years) telemedicine users with asthma and characterize use trends throughout the COVID-19 pandemic.
    UNASSIGNED: We conducted a retrospective analysis using electronic health record data of pediatric patients with asthma seen at University of California, Los Angeles, Medical Center between March 2019 to March 2022 describing telemedicine user characteristics, trends of asthma-related telemedicine use, and associations between user characteristics and having a telemedicine visit.
    UNASSIGNED: Among 6,777 patients with asthma, the percentage of asthma-related telemedicine visits peaked early in the pandemic, comprising 74.3% of visits, before decreasing to 13.6% in 2022. Compared to White patients, Black patients had lower odds of an asthma telemedicine visit (odds ratio [OR], 0.49; 95% confidence interval [CI], 0.26, 0.94). Those with public insurance (OR, 1.7; 95% CI, 1.19, 2.43), severe persistent asthma (OR, 3.03; 95% CI, 1.70, 5.42), or comorbidities (OR, 1.59; 95% CI, 1.08, 2.33) had higher odds. Time to first emergency department visit and hospitalization comparing those with at least one telemedicine visit to those with none were similar.
    UNASSIGNED: More pediatric asthma patients are using telemedicine since the COVID-19 pandemic, particularly those with medical complexity and comorbidities, and outcomes appear similar. However, Black patients at our institution have lower odds of using telemedicine.
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  • 文章类型: Journal Article
    目的:本研究的目的是探讨卵巢癌患者对后续护理的偏好,特别是,使用患者报告的结果测量(PROM)作为个性化随访护理的方法。
    方法:在2021年5月至6月之间,对卵巢癌患者进行了半结构化访谈,他们至少在6个月前完成了主要治疗,并在我们中心接受随访治疗。访谈被逐字转录,并使用归纳专题方法进行分析。创建了描述交互主题的主题流程图。
    结果:采访了17名患者,其中11人熟悉PROM。数据中出现了两个关键主题:需要放心和希望个性化护理。使用PROM的后续计划被确定为具有个性化护理潜力的单独主题。提到了PROM的几个障碍和促进者。
    结论:卵巢癌患者希望获得个性化的后续护理并寻求安慰。PROM可能能够支持这两种需求。未来的研究需要确定最有效的,以患者为中心的方式来实现它们。
    结论:通过了解患者对后续护理的偏好,可以设置更多举措来个性化后续护理,通过它可以减少患者的焦虑和不满。
    OBJECTIVE: The purpose of this study was to explore ovarian cancer patients\' preferences regarding follow-up care and, in particular, the use of patient-reported outcome measures (PROMs) as an approach to personalise follow-up care.
    METHODS: Between May and June 2021, semi-structured interviews were conducted with ovarian cancer patients, who had finished their primary treatment at least 6 months prior and were receiving follow-up care at our centre. Interviews were transcribed verbatim and analysed using an inductive thematic approach. A thematic flow chart was created describing interacting themes.
    RESULTS: Seventeen patients were interviewed, of which 11 were familiar with PROMs. Two key themes emerged from the data: the need for reassurance and the wish for personalised care. A follow-up scheme using PROMs was identified as a separate theme with the potential to personalise care. Several barriers and facilitators of PROMs were mentioned.
    CONCLUSIONS: Ovarian cancer patients have a desire for personalised follow-up care and seek reassurance. PROMs may be able to support both of these needs. Future research is needed to determine the most effective, patient-centred way to implement them.
    CONCLUSIONS: By understanding what patients\' preferences are regarding follow-up care, more initiatives can be set up to personalise follow-up care, through which patient anxiety and dissatisfaction can be reduced.
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  • 文章类型: Journal Article
    背景:这项研究的目的是调查在COVID-19大流行期间及之后,癌症患者自我报告的痛苦(焦虑/抑郁)与对虚拟随访(VFU)护理的满意度和愿望之间的关系。
    方法:在多伦多城市癌症中心接受VFU的乳腺癌和前列腺癌患者,加拿大完成了一项关于他们社会人口的在线调查,临床,和技术,VFU的特点、经验和看法。EQ5D-5L用于评估窘迫。根据年龄调整的统计模型,性别,教育,收入和互联网信心。
    结果:在352名参与者中,平均年龄65岁,48%是女性,79%在治疗完成后5年内,84%的人接受过大学/学院教育,74%的人对互联网用户充满信心。几乎,所有(98%)通过电话进行了虚拟访问,而22%通过视频进行了虚拟访问。大多数患者(86%)对VFU感到满意,70%的患者同意他们在COVID-19大流行后喜欢VFU选择。报告痛苦和不自信使用互联网用于健康目的的参与者对VFU满意的可能性显着降低(OR=0.4;95%CI:0.2-0.8和OR=0.19;95%CI:0.09-0.38,分别),并且在COVID-19大流行后不太可能希望VFU选择(OR=0.49;95%CI:0.30-0.82和OR=0.41;95%CI:0.23)。
    结论:大多数受访者对VFU感到满意,并希望在COVID-19大流行后选择VFU。未来的研究应该确定如何优化使用虚拟护理技术的癌症患者的VFU选择。
    BACKGROUND: The purpose of this study was to investigate associations between self-reported distress (anxiety/depression) and satisfaction with and desire for virtual follow-up (VFU) care among cancer patients during and beyond the COVID-19 pandemic.
    METHODS: Breast and prostate cancer patients receiving VFU at an urban cancer centre in Toronto, Canada completed an online survey on their sociodemographic, clinical, and technology, characteristics and experience with and views on VFU. EQ5D-5 L was used to assess distress. Statistical models adjusted for age, gender, education, income and Internet confidence.
    RESULTS: Of 352 participants, average age was 65 years, 48% were women,79% were within 5 years of treatment completion, 84% had college/university education and 74% were confident Internet users. Nearly, all (98%) had a virtual visit via phone and 22% had a virtual visit via video. The majority of patients (86%) were satisfied with VFU and 70% agreed that they would like VFU options after the COVID-19 pandemic. Participants who reported distress and who were not confident using the Internet for health purposes were significantly less likely to be satisfied with VFU (OR = 0.4; 95% CI: 0.2-0.8 and OR = 0.19; 95% CI: 0.09-0.38, respectively) and were less likely to desire VFU option after the COVID-19 pandemic (OR = 0.49; 95% CI: 0.30-0.82 and OR = 0.41; 95% CI: 0.23-0.70, respectively).
    CONCLUSIONS: The majority of respondents were satisfied with VFU and would like VFU options after the COVID-19 pandemic. Future research should determine how to optimize VFU options for cancer patients who are distressed and who are less confident using virtual care technology.
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  • 文章类型: Journal Article
    癌症生存计划于2001年在宾夕法尼亚大学癌症中心成立。癌症中心于2002年更名为宾夕法尼亚大学的艾布拉姆森癌症中心,此后的生存计划被称为ACC生存计划。从2001年到2004年,该计划部分得到了兰斯·阿姆斯特朗基金会(LAF)的种子资助。LIVESTRONG幸存者卓越网络中心由LAF于2005年创建,ACC幸存者计划于2007年加入该网络。组成该网络的七个全国性癌症中心在2015年之前得到了LAF的支持。专注于临床护理,研究,和教育主导了ACC生存计划的发展。该计划目前由高级实践提供商(APP)领导,并由医疗人员组成,外科,和放射肿瘤学APP和合作的肿瘤学家。该计划为小儿癌症的成年幸存者提供护理,以及成年癌症的幸存者,如乳腺癌,泌尿生殖系统/前列腺,淋巴瘤头部和颈部,胃肠,胸廓,肉瘤,和中枢神经系统。已经制定了针对特定癌症诊断幸存者的研究方案,并导致了合作研究,出版物,和会议介绍。尽管患者强烈支持服务,但维持ACC生存计划一直具有挑战性,家庭,和提供者。挑战包括成本限制等障碍,改变癌症中心的优先事项,减少了肿瘤学的劳动力,全国各地经历的问题必须在未来几年加以解决。
    The Cancer Survivorship Program was established at the University of Pennsylvania Cancer Center in 2001. The Cancer Center was renamed the Abramson Cancer Center of the University of Pennsylvania in 2002 and the survivorship program was henceforth known as the ACC Survivorship Program. The program was supported from 2001 to 2004 in part by a seed grant from the Lance Armstrong Foundation (LAF). The LIVESTRONG Survivorship Centers of Excellence Network was created by the LAF in 2005 and the ACC Survivorship Program joined the Network in 2007. The seven nationwide Cancer Centers that comprised the Network were supported by the LAF through 2015. A focus on clinical care, research, and education led the development of the ACC Survivorship Program. The program is currently led by an advanced practice provider (APP) and staffed by medical, surgical, and radiation oncology APPs and collaborating oncologists. This program provides care to adult survivors of pediatric cancers, as well as survivors of adult-onset cancers such as breast, genitourinary/prostate, lymphoma, head and neck, gastrointestinal, thoracic, sarcoma, and central nervous system. Research protocols for survivors of specific cancer diagnoses have been developed and have resulted in collaborative research, publications, and conference presentations. Sustaining the ACC Survivorship Program has been challenging despite strong endorsement of services by patients, families, and providers. Challenges include barriers such as cost restraints, changing cancer center priorities, and a reduced oncology workforce, issues experienced across the country that must be addressed in the years to come.
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