背景:我们旨在分析西班牙青少年和年轻人肉瘤(AYA)的医疗保健服务。
方法:向所有西班牙癌症中心发送了一项调查,包括关于人口统计的问题,设施,以及过去两年中AYAs与肉瘤的治疗策略。
结果:35个单位参加了调查,17个儿科和15个成人单位。有三个专门的AYA单位。一线方案取决于治疗单位是否为儿科,对于骨肉瘤,横纹肌肉瘤,和非横纹肌肉瘤。相比之下,91.4%的尤因肉瘤按照EE2012进行治疗。在复发环境中,在所有肿瘤中,单位之间的差异更大。此外,48%的单位报告没有对该人群进行试验。
结论:成人单位和儿科单位在AYAs与肉瘤的治疗上存在主要差异。需要付出巨大的努力来使治疗均匀化并增加获得创新的机会。
BACKGROUND: We aimed to analyse health care services for adolescents and young adults (AYA) with sarcomas in Spain.
METHODS: A survey was sent to all Spanish cancer centres, including questions about demographic, facilities, and treatment strategies for AYAs with sarcomas in the last 2 years.
RESULTS: Thirty-five units participated in the survey, 17 paediatric and 15 adult units. There were three specialized AYA units. First line regimen varied depending on whether the treating unit was paediatric or not, for osteosarcomas, rhabdomyosarcomas, and non-rhabdomyosarcomas. By contrast, 91.4% of Ewing sarcomas were treated according to EE2012. In the relapse setting, differences between units were higher in all tumours. Additionally, 48% of the units reported not having trials for this population.
CONCLUSIONS: There are major differences in the treatment of AYAs with sarcomas between adult and paediatric units. Enormous efforts are needed to homogenize treatments and increase the access to innovation.