lived experience

生活经验
  • 文章类型: Journal Article
    目的:本研究旨在捕捉和探索家庭护理人员在锁定期间照顾住院癌症患者的生活体验。
    背景:由于COVID-19导致的前所未有的封锁事件给医院就诊政策和护理实践带来了重大变化。作为住院预防措施的一部分,在上海医院,床边的同伴仅限于一名癌症患者的护理人员。
    方法:本研究采用描述性现象学方法。
    方法:于2022年5月从上海某三甲医院肿瘤科招募的20名家庭护理人员中收集数据,采用目的抽样方法,然后进行非结构化,开放式采访。使用Colaizzi的七步数据分析方法对数据进行分析,以揭示现象的紧急主题和副主题。
    结果:关于家庭照顾者的四个主题:“在封锁期间照顾住院癌症患者的生活经历,包括(1)对患者感到害怕;(2)生活在COVID-19监测下感到被困;(3)感觉被忽视和看不见;(4)增强韧性和欣赏。
    结论:封锁加剧了家庭护理人员在封锁期间照顾住院癌症患者的负担。然而,对生活经验的积极重构有助于他们应对充满挑战的局面。
    结论:这项研究的结果强调了在COVID-19大流行期间和之后,医疗保健提供者在改善家庭护理人员健康和支持他们方面可以发挥的潜在积极作用。
    本研究遵循相关的EQUATOR指南;本研究根据COREQ核对表进行报告。
    癌症患者的家庭照顾者参与了数据收集和成员检查记录和对他们的经历的解释。
    OBJECTIVE: This study aimed to capture and explore family caregivers\' lived experience of caring for hospitalised patients with cancer during the lockdown.
    BACKGROUND: The unprecedented lockdown episodes due to COVID-19 have brought significant changes in the hospital visiting policies and caregiving practices. As part of the precautionary measures for hospital visits, the bedside companion was restricted to one caregiver for patients with cancer in Shanghai hospitals.
    METHODS: This study adopted a descriptive phenomenological approach.
    METHODS: Data were collected among 20 family caregivers recruited from the Oncology department of a tertiary hospital in Shanghai in May 2022, using purposive sampling method and followed by unstructured, open-ended interviews. Colaizzi\'s seven-step data analysis method was used to analyse the data to reveal the emergent themes and subthemes of the phenomenon.
    RESULTS: Four themes were generated on family caregivers\' lived experience of caring for hospitalised patients with cancer during the lockdown, including (1) Feeling scared for the patient; (2) Living a life feeling trapped under COVID-19 surveillance; (3) Feeling neglected and unseen; (4) Growing resilience and appreciation.
    CONCLUSIONS: The lockdown exacerbated the burden of family caregivers when they cared for the hospitalised patients with cancer during the lockdown period. However, positive reframing of the lived experience facilitated their coping with the challenging situation.
    CONCLUSIONS: Findings from this study highlighted the potential proactive roles the healthcare providers could play in improving family caregivers\' health and supporting them during and beyond the COVID-19 pandemic.
    UNASSIGNED: The study adhered to relevant EQUATOR guidelines; the study was reported according to the COREQ checklist.
    UNASSIGNED: Family caregivers of patients with cancer were involved in data collection and member-checking of the transcripts and interpretations of their experiences.
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  • 文章类型: Systematic Review
    目的:青少年自残行为的发生率呈上升趋势。自我伤害行为后在急诊科寻求护理是他们发出信号寻求帮助的一种方式。这项系统评估的目的是综合有关年轻人在自我伤害行为后急诊就诊的经验以及他们对急诊医疗服务的需求的最佳可用定性研究证据。
    方法:从数据库建设到2022年2月4日,使用预定义的搜索词检索了11个数据库。根据纳入和排除标准和质量评估对文献进行筛选。
    结果:11项研究得出了55项发现,这些发现被归纳为8类,并汇总为3个综合陈述:(1)积极的急诊科经验;(2)消极的急诊科经验;(3)渴望帮助。
    结论:有自我伤害行为史的年轻人在急诊科的经验感是不同的。负面体验感使病人对医疗服务感到不满和失望,积极的经验可以帮助他们寻求进一步的帮助。急诊科应完善青少年自伤患者的诊疗模式,确保其获得有效优质的医疗资源。
    The incidence of self-injurious behavior in adolescents and young adults is on the rise. Seeking care in the emergency department after self-injurious behavior is one way they signal for help. The purpose of this systematic evaluation was to synthesize the best available qualitative research evidence on young people\'s experiences of emergency department visits following self-harm behaviors and their need for emergency medical services.
    Eleven databases were retrieved with predefined search terms from database construction to February 4, 2022. Literature was screened according to inclusion and exclusion criteria and quality assessment.
    Eleven studies yielded fifty-five findings that were summarized into eight categories and aggregated into three composite statements: (1) positive emergency department experience; (2) negative emergency department experience; and (3) desire for help.
    Young people with a history of self-injurious behavior have a mixed sense of experience in the emergency department. The sense of negative experience makes patients feel dissatisfied and disappointed with healthcare services, and positive experiences can help them seek further help. The emergency departments should improve the diagnosis and treatment model of self-injured adolescent patients to ensure that they receive effective and high-quality medical resources.
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  • 文章类型: Review
    目的:探讨和分析鼻咽癌(NPC)治疗和康复的前景。
    方法:纳入33例不同治疗阶段的NPC患者。七人正在积极接受治疗,13人立即接受治疗后,13是长期的。根据对涵盖治疗过程不同阶段的文献的回顾,使用结构化问卷对患者进行了访谈。使用主题归纳-演绎方法对访谈进行记录和转录,以进行定性数据分析。
    结果:确定了包含NPC患者经验的三个主要领域;副作用,社会心理健康,以及医护人员的作用和支持。副作用是口服的,本地,系统的。口腔副作用(口腔黏膜炎,口干症,改变味道,吞咽困难)是NPC患者经历的最重要的挑战。本地,皮肤损伤(脱皮,纤维化,皮肤变黑,红斑,瘙痒,和颈部肿胀)和脱发,停止治疗后解决。治疗的全身副作用与全身无力有关,体重减轻和恶心。NPC患者的社会心理健康受到一系列问题的影响,包括支持(医护人员和家庭),疼痛管理,功能限制,营养需求,感知的信息水平,情感,和财务。
    结论:NPC患者的诊断受到显著影响,治疗和恢复阶段影响他们局部,系统性地,和心理上。家庭和医护人员的角色对整体治疗经验也有影响,他们在帮助患者治疗过程中发挥关键作用。
    结论:NPC治疗的口服和一般副作用对患者的身体和情绪健康有显著影响。对于医疗保健提供者来说,重要的是要了解这些信息,以便在患者的治疗过程和康复过程中了解和支持患者,并能够以同情心促进其临床管理。
    To explore and analyse the perspective of patients undergoing and recovering from nasopharyngeal carcinoma (NPC) therapy.
    Thirty-three NPC patients at different stages of treatment were enroled. Seven were actively undergoing treatment, 13 were immediately post-treatment, and 13 were long-term. Patients were interviewed using a structured questionnaire based on a review of the literature that covered different phases of their treatment journey. The interview was recorded and transcribed for qualitative data analysis using a thematic inductive-deductive approach.
    Three main domains embracing aspects of NPC patients\' experiences were identified; side effects, psychosocial well-being, and the role and support of healthcare workers. Side effects were experienced orally, locally, and systemically. Oral side effects (oral mucositis, xerostomia, altered taste, dysphagia) were the most significant challenge experienced by NPC patients. Locally, skin injury (desquamation, fibrosis, darkening of the skin, erythema, pruritus, and swelling around the neck region) and hair loss, resolved after cessation of therapy. Systemic side effects from the treatment were related to general weakness, weight loss and nausea. The psychosocial well-being of NPC patients was influenced by a range of issues including support (healthcare workers and family), pain management, functional limitations, nutritional needs, perceived level of information, emotion, and finances.
    NPC patients were significantly impacted based on the diagnosis, treatment and recovery phase affecting them locally, systemically, and psychologically. The role of family and healthcare staff was also influential in the overall treatment experience, and they have key roles to play in facilitating patients along their treatment journey.
    Oral and general side effects from NPC treatment have significant impact on patients physical and emotional well-being. It is important for healthcare providers to have insights of these so as to understand and support patients during their treatment journey and recovery and be able to empathetically facilitate their clinical management.
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  • 文章类型: Journal Article
    简介:大多数儿童在他们的生活中都有创伤事件的暴露,比如自然灾害,事故,和虐待。回顾受创伤儿童对创伤事件的看法,对于增进我们的理解并促进对这些儿童的适当量身定制的干预和支持具有重要作用。方法:在过去11年中,搜索了四个主要的与健康相关的电子数据库,以查找所有英文全文定性研究文章,以揭示受创伤儿童的最新可用观点/证据。PRISMA清单被用来指导审查进程。结果:从19项定性研究中总结并整合了有关儿童经历和对所遇到的创伤事件的观点的五个主题。其中包括与创伤有关的日常生活问题,对创伤的负面反应,感知到的健康需求,与创伤和压力有关的应对策略,从创伤经历中成长。结论:本系统评价提供了有关受创伤儿童的反应/影响和感知健康需求的证据,并告知护理人员培训可以采取的方向,通过早期识别和及时干预来帮助这些孩子。需要更多的研究来检查/比较受创伤儿童在不同创伤经历之间的反应和应对,暴露时间,以及这些孩子的社会人口特征。
    Introduction: Most children have exposure of traumatic events during their life, such as natural disasters, accidents, and abuses. A review of traumatised children\'s perspective on traumatic events plays an important role in enhancing our understanding and promoting appropriate tailor-made intervention and support to these children. Methods: Four main health-related electronic databases were searched for all English full-text qualitative research articles over the past 11 years to uncover the recent best available perspective/evidence from traumatised children. The PRISMA checklist was adopted to guide the review process. Results: Five themes about children\'s experiences and perspectives towards the traumatic events encountered were summarised and integrated from 19 qualitative studies identified. They included daily life problems related to trauma, negative responses to trauma, perceived health needs, coping strategies related to trauma and stress, and growth from traumatic experience. Conclusions: This systematic review provides evidence about responses/impacts and perceived health needs of traumatised children and informs the direction caregivers\' training can take, helping these children by early identification and timely intervention. More research is needed to examine/compare traumatised children\'s responses and coping between diverse traumatic experiences, time from exposure, and the sociodemographic characteristics of these children.
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  • 文章类型: Journal Article
    Self-harm, which affects the whole family system, is an international public health concern. Empirical evidence supports the efficacy of interventions incorporating a family/parent training component for self-injurious thoughts and behaviours, and a quantitative synthesis of these empirical studies has been undertaken and updated. A qualitative synthesis of the experiences of parents whose child self-harms remains limited. This report aimed to systematically review qualitative research about the experiences, preferences, and expectations of parents whose children self-harmed. A comprehensive search was conducted across ten databases and four grey literature sources, along with the manual search of reference lists and relevant websites. Study screening, data extraction, and quality appraisal were all performed by two independent researchers. Twenty-four articles, two of which were mixed-methods studies, were included and analysed using a meta-aggregation approach. Five synthesized findings were identified: initial negative reactions to the discovery of their child\'s self-harm, the ongoing impact of self-harm on parents and the wider family, parents\' various coping strategies, parents\' negative experiences with mental health professionals expectations, and the lack of and need for psychoeducational resources. Our review finds that parents express keen interest in engaging with the treatment process, and our results support family-based therapy. However, with the overwhelming emotions most parents experience, clinicians should approach them with sensitivity, empathy and finesse. Psychoeducational self-help resources should also be made readily available to parents who are reluctant to seek help.
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  • 文章类型: Journal Article
    在由于COVID-19对澳门主要行业赌博的损害而促进澳门高等教育产业化的背景下,本研究采用现象学心理学来探索教师在具有新自由主义愿景和使命的大学中接受教育的生活经验。使用一般结构,调查结果显示,教师在教学方面遇到了挑战。这些挑战的出现不仅是由于大学的企业管理,但更重要的是,由于观念的转变——学生变得像顾客,教师变得自私——这使得教学关系难以建立。此外,当教师的教学行为或意图与新自由主义相冲突时,他们会产生负面情绪。研究结果表明,高等教育中的教育学正在受到挑战和转变。
    Against a background of promoting the industrialization of higher education in Macau due to COVID-19\'s damage to the territory\'s major industry-gambling, the present study adopted phenomenological psychology to explore teachers\' lived experience of being pedagogical in a university with a neoliberal vision and mission. Using a general structure, the findings revealed that teachers encountered challenges being pedagogical. These challenges emerged not only due to the university\'s corporate management, but more importantly because of a shift in perceptions-where students became like customers and teachers became self-interested-which made pedagogical relationships difficult to establish. Furthermore, teachers were found to develop negative emotions when their pedagogical actions or intentions conflicted with neoliberalism. The findings suggest that pedagogy in higher education is being challenged and transformed.
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  • 文章类型: Journal Article
    慢性乙型肝炎(CHB)是一种普遍的疾病,具有各种负面后果。本研究探讨了慢性乙型肝炎患者应对和康复的生活经验。对一名从慢性乙型肝炎中康复10年的参与者进行了半结构化访谈。使用解释现象学分析对数据进行分析。出现了五个上级主题,包括在死亡焦虑的阴影下挥之不去,自我功能减弱,采取高度自律的生活方式,接受社会支持,带着伤疤的自我回归。研究结果表明,这种疾病与道德立场密切相关,这意味着慢性乙型肝炎的诊断可能意味着中国人的道德面孔的丧失。我们的研究结果表明,需要增加有关慢性乙型肝炎的知识,将疾病从道德角度脱钩,并提供一个支持性的环境。
    Chronic hepatitis B (CHB) is a prevalent disease with various negative consequences. The lived experience of coping and recovery of a patient with Chronic hepatitis B was explored in this study. A semistructured interview was conducted with one participant who had been recovered from Chronic hepatitis B for 10 years. Data were analyzed using interpretative phenomenological analysis. Five superordinate themes emerged, including lingering in the shadow of death anxiety, diminished functioning of the self, adopting a highly disciplined lifestyle, receiving social support, and the return of the self with scars. The findings revealed that the disease is deeply associated with moral standing, which means the diagnosis of Chronic hepatitis B might imply a loss of moral face for Chinese people living with the condition. Our findings point to the need for increasing knowledge about chronic hepatitis B, decoupling the disease from a moral standpoint, and providing a supportive environment.
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  • 文章类型: Journal Article
    进行了定性系统评价,以描述男性在护理中的生活经验。
    定性研究的系统综述。
    五个数据库(Scopus,CINAHL,MEDLINE,系统地搜索了PsycINFO和Embase)。PRISMA指南用于报告不同阶段的文献检索情况,和关键评估技能计划,定性研究清单,用于评估符合纳入标准的研究。Thomas和Harden的定性研究主题分析方法用于数据综合。
    纳入了6项定性研究。出现了与男性护理生活经验相关的五个分析主题:护理价值,性别的双刃剑,在护理专业中被接受,护理的吸引力和应对策略。
    This qualitative systematic review was conducted to describe the lived experience of men in nursing.
    A systematic review of qualitative studies.
    Five databases (Scopus, CINAHL, MEDLINE, PsycINFO and Embase) were systematically searched. The PRISMA guideline was used for reporting the literature search in different phases, and the Critical Appraisal Skills Program, a qualitative research checklist, was used to evaluate the studies that met the inclusion criteria. Thomas and Harden\'s thematic analysis approach for qualitative research was used for data synthesis.
    Six qualitative studies were included. Five analytical themes related to lived experiences of men in nursing emerged: value in nursing, the double-edged sword of gender, being accepted in the nursing profession, attractions of nursing and coping strategies.
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  • 文章类型: Journal Article
    目的:我们旨在探讨在中国COVID-19封锁的早期阶段,寻求定期产前检查的孕妇非正式照顾者的生活经历以及应对挑战的潜在措施。
    方法:这是现象学的定性研究。
    方法:本研究在中国西南某顶尖教学医院进行。
    方法:在中国启动全市范围内的COVID-19封锁和其他控制措施后约6个月,我们为健康孕妇招募了15名非正式护理人员,其中包括10名男性和5名具有不同人口背景的女性。
    UNASISIGNED:研究团队开发了一个人口统计表格和一个包含关键问题的访谈大纲,与非正式护理人员进行了半结构化访谈,并使用Colazzie\的方法分析数据。揭示了生活经历的五个主题,即,增加护理负担,扰乱家庭生活中的日常生活,缺乏准确的信息和知识,积极的角色调整,在困难时期积极的态度和应对。一些护理人员对封锁的经历做出了积极的反应,并将其视为重新思考生活和改善家庭关系的机会。
    结论:非正式照顾者的身体和心理负担增加。策略,如采用不太频繁的产前检查时间表,使用远程医疗技术,提供准确的信息和知识可能有助于减轻增加的非正式护理负担。心理咨询,特别针对孕妇及其非正式照顾者的社区服务和救灾政策也可能是宝贵的资源。
    结论:在COVID-19封锁期间,应注意孕妇的非正式照顾者群体,包括护理和其他相关专业人员提供的专业援助。需要采取措施尽量减少接触机会,例如采用新的产前护理时间表和远程医疗技术。应提供具有可靠信息的患者教育,最好由护理人员和医生。包括专业心理咨询在内的社会支持工作可能会增加,并与社区服务和政策制定者等其他资源合作。
    OBJECTIVE: We aimed to explore the lived experiences of informal caregivers for pregnant women seeking scheduled antenatal care during the early stage of China\'s COVID-19 lockdown and potential measures to address the challenges.
    METHODS: This is a phenomenological qualitative study.
    METHODS: The study was carried out in a leading teaching hospital in Southwest China.
    METHODS: We recruited 15 informal caregivers for healthy pregnant women on routine antenatal visits about six months after China launched the city-wide lockdown and other control measures for COVID-19, including 10 males and 5 females with diverse demographic backgrounds.
    UNASSIGNED: The research team developed a demographic form and an interview outline with key questions, conducted semi-structured interviews with the informal caregivers, and analyzed the data using the Colazzie\'s method. Five themes of lived experiences were revealed, i.e., increased caregiving burdens, disruption of routines in family life, lack of accurate information and knowledge, active role adjustment, and positive attitudes and coping in a difficult time. Some caregivers reacted positively to the lockdown experience and saw it as an opportunity to rethink their lives and improve family relations.
    CONCLUSIONS: The informal caregivers experienced increased physical and psychological burdens. Strategies such as adoption of a less frequent prenatal visit schedule, use of tele-medicine technologies, and provision of accurate information and knowledge may help to ease the increased informal caregiving burdens. Psychological counseling, community services and disaster response policies specially targeting pregnant women and their informal caregivers may also be valuable resources.
    CONCLUSIONS: Attention should be drawn to the group of informal caregivers for pregnant women during a COVID-19 lockdown, including professional assistance delivered by nursing and other related professionals. Measures are called for to minimize exposure opportunities such as adoption of a new prenatal care schedule and tele-medicine technologies. Patient education with reliable information should be provided, preferably by nursing staff and physicians. Social support efforts including professional mental counseling may added and work with other resources such as community services and policy makers.
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  • 文章类型: Journal Article
    暂无摘要。
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