目的:探讨和分析鼻咽癌(NPC)治疗和康复的前景。
方法:纳入33例不同治疗阶段的NPC患者。七人正在积极接受治疗,13人立即接受治疗后,13是长期的。根据对涵盖治疗过程不同阶段的文献的回顾,使用结构化问卷对患者进行了访谈。使用主题归纳-演绎方法对访谈进行记录和转录,以进行定性数据分析。
结果:确定了包含NPC患者经验的三个主要领域;副作用,社会心理健康,以及医护人员的作用和支持。副作用是口服的,本地,系统的。口腔副作用(口腔黏膜炎,口干症,改变味道,吞咽困难)是NPC患者经历的最重要的挑战。本地,皮肤损伤(脱皮,纤维化,皮肤变黑,红斑,瘙痒,和颈部肿胀)和脱发,停止治疗后解决。治疗的全身副作用与全身无力有关,体重减轻和恶心。NPC患者的社会心理健康受到一系列问题的影响,包括支持(医护人员和家庭),疼痛管理,功能限制,营养需求,感知的信息水平,情感,和财务。
结论:NPC患者的诊断受到显著影响,治疗和恢复阶段影响他们局部,系统性地,和心理上。家庭和医护人员的角色对整体治疗经验也有影响,他们在帮助患者治疗过程中发挥关键作用。
结论:NPC治疗的口服和一般副作用对患者的身体和情绪健康有显著影响。对于医疗保健提供者来说,重要的是要了解这些信息,以便在患者的治疗过程和康复过程中了解和支持患者,并能够以同情心促进其临床管理。
To explore and analyse the perspective of patients undergoing and recovering from nasopharyngeal carcinoma (NPC) therapy.
Thirty-three NPC patients at different stages of treatment were enroled. Seven were actively undergoing treatment, 13 were immediately post-treatment, and 13 were long-term. Patients were interviewed using a structured questionnaire based on a review of the literature that covered different phases of their treatment journey. The interview was recorded and transcribed for qualitative data analysis using a thematic inductive-deductive approach.
Three main domains embracing aspects of NPC patients\' experiences were identified; side effects, psychosocial well-being, and the role and support of healthcare workers. Side effects were experienced orally, locally, and systemically. Oral side effects (oral mucositis, xerostomia, altered taste, dysphagia) were the most significant challenge experienced by NPC patients. Locally, skin injury (desquamation, fibrosis, darkening of the skin, erythema, pruritus, and swelling around the neck region) and hair loss, resolved after cessation of therapy. Systemic side effects from the treatment were related to general weakness, weight loss and nausea. The psychosocial well-being of NPC patients was influenced by a range of issues including support (healthcare workers and family), pain management, functional limitations, nutritional needs, perceived level of information, emotion, and finances.
NPC patients were significantly impacted based on the diagnosis, treatment and recovery phase affecting them locally, systemically, and psychologically. The role of family and healthcare staff was also influential in the overall treatment experience, and they have key roles to play in facilitating patients along their treatment journey.
Oral and general side effects from NPC treatment have significant impact on patients physical and emotional well-being. It is important for healthcare providers to have insights of these so as to understand and support patients during their treatment journey and recovery and be able to empathetically facilitate their clinical management.