chronic Illness

慢性疾病
  • 文章类型: Journal Article
    目的:构建中国老年慢性病患者的健康赋权框架。
    方法:选择了Strussian接地理论设计来生成理论框架。
    方法:通过半结构化访谈和参与观察,收集了2017年11月至2019年8月在中国居住的53名患有慢性病的社区老年人的数据。恒定比较法确定了关键类别。
    结果:\'责任赋予权力\',健康赋权核心主题,被定义为启动,通过自我之间的互动来履行和实现对健康的责任,家庭和社会。该框架丰富了健康赋权的含义,改变老年人的护理实践。
    OBJECTIVE: To construct a health empowerment framework for the Chinese older people with chronic conditions.
    METHODS: A Strussian grounded theory design was selected to generate the theoretical framework.
    METHODS: Data were collected from 53 community-dwelling older people with chronic conditions in China between November 2017 and August 2019, via semi-structured interviews and with participating observation. The constant comparative method identified the key categories.
    RESULTS: \'Responsibility endowing power\', the health empowerment core theme, was defined as initiating, performing and realizing responsibility towards health through the interaction between the self, family and society. The framework enriches the meaning of health empowerment, changing older people\'s nursing practice.
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  • 文章类型: Journal Article
    背景:为了分析心理资本等因素的影响和途径,家庭功能,并对老年慢性病患者的自我管理水平和生命意义来源进行分析,为今后制定相关护理干预措施提供依据。
    方法:采用便利抽样的方法,选取2023年3月至2023年10月在锦州市三家社区医院接受体检和会诊的老年慢性病患者,采用自行设计的一般资料问卷(GIS),老年人心理资本量表(PCE),家庭功能指数问卷(APGAR),老年人生命意义量表(SMSE)的来源,采用慢性病患者自我管理行为量表(SMCS)。使用SPSS26.0进行数据录入,单向分析,皮尔逊相关分析,并采用多元线性回归分析数据,采用Amos17.0构建结构方程模型。
    结果:共纳入355例老年慢性病患者,他们的自我管理得分为74.75±12.93,中等。影响因素分析结果显示,老年慢性病患者自我管理水平的影响因素有年龄,多年的疾病,心理资本,家庭功能,和生命意义的来源(p<0.05)。路径分析发现,生命意义的来源是心理资本与自我管理关系的部分中介,效应值为0.166(95%CI:0.042,0.391),占总效应的37.6%;生命意义是家庭功能和自我管理水平的部分中介,效应值为0.231(95%CI:0.040,0.452),占总效应的54.0%。占总效应的54.0%。
    结论:老年慢性病患者的自我管理能力处于中等水平。医护人员应从家庭方面积极实施整体医疗管理措施,帮助患者理解生命的意义,提高患者的心理资本水平,提高老年慢性病患者的自我管理水平。
    BACKGROUND: To analyze the effects and pathways of factors such as psychological capital, family functioning, and sources of meaning in life on the level of self-management in elderly patients with chronic diseases and to provide a basis for the development of relevant nursing interventions in the future.
    METHODS: Convenience sampling was used to select elderly patients with chronic diseases who underwent medical checkups and consultations at three community hospitals in Jinzhou city from March 2023 to October 2023, and the self-designed General Information Questionnaire (GIS), Psychological Capital of the Elderly Scale (PCE), Family Functioning Index Questionnaire (APGAR), Sources of Meaning of Life Scale for Older Adults(SMSE), and Self-Management Behavior of Chronic Patients Scale (SMCS) were used. SPSS 26.0 was used for data entry, one-way analysis, Pearson correlation analysis, and multiple linear regression were used to analyze the data, and Amos 17.0 was used to construct the structural equation model.
    RESULTS: A total of 355 elderly patients with chronic diseases were included, and their self-management score was 74.75 ± 12.93, which was moderate. The results of the influencing factor analysis showed that the influencing factors of the self-management level of elderly chronic disease patients were age, years of illness, psychological capital, family functioning, and sources of meaning in life (p < 0.05). Path analysis revealed that sources of meaning in life were a partial mediator of the relationship between psychological capital and self-management, with an effect value of 0.166 (95% CI: 0.042,0.391), accounting for 37.6% of the total effect; life meaning was a partial mediator of family functioning and self-management level, with an effect value of 0.231 (95% CI: 0.040,0.452), accounting for 54.0% of the total effect. accounting for 54.0% of the total effect.
    CONCLUSIONS: The self-management of elderly patients with chronic diseases is intermediate. Healthcare professionals should actively implement holistic healthcare management measures from the family aspect to help patients understand the meaning of life and improve the level of patients\' psychological capital to improve the self-management level of elderly patients with chronic diseases.
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  • 文章类型: Journal Article
    目的:多症恢复力反映了老年人的应对能力,适应,并通过调动资源从其不利影响中反弹。本研究参考中国农村老年人的生活状况,基于多症韧性的生命历程模型,修正了多域多症韧性指数,测量了2018-2021年的多症韧性,并从生命历程理论的角度探讨了多症韧性的影响因素。
    方法:这项研究使用了在安徽收集的第七波和第八波纵向数据(2018-2021年),中国。选择了945名患有两种或两种以上慢性疾病的老年人,收集和研究了1201个(人年)的观察结果。混合线性模型检查了早期和后期因素对多浊度弹性的影响。
    结果:在COVID-19大流行爆发后,多症恢复力与年龄呈负相关,并随年龄下降更快。已婚老年人具有较高的多发病率弹性。当考虑后期因素时,暴露于饥饿与较低的多发病率弹性有关。15岁之前的自我报告健康状况,获得医疗资源,与多患病韧性呈正相关。此外,本研究验证了多病韧性与慢性病数量之间的关系,锻炼频率,宗教信仰,自我报告的健康状况,和经济满意度,在其他因素中。
    结论:生命过程因素与多症复原力之间的关联强调了早期生活经历的长期影响以及年龄增长的不利影响,尤其是在COVID-19大流行爆发之后。这些发现将从生命历程的角度推动政策制定,包括预防和后续治疗以促进积极衰老。
    Multimorbidity resilience reflects older adults\' ability to cope with, adapt to, and rebound from its adverse effects through mobilizing resources. This study revised the multidomain Multimorbidity Resilience Index based on the Lifecourse Model of Multimorbidity Resilience referring to the life situations of older adults in rural China to measure the multimorbidity resilience from 2018 to 2021 and to explore factors influencing multimorbidity resilience from the perspective of Life Course theory.
    This study used the seventh and eighth waves of longitudinal data (2018-2021) collected in Anhui, China. Older adults (945) with 2 or more chronic diseases were selected, and 1,201 (person-year) observations were collected and studied. A mixed linear model examined the effects of early- and later-factors on multimorbidity resilience.
    Multimorbidity resilience was negatively correlated with age and decreased faster with age after the outbreak of the coronavirus disease-2019 (COVID-19) pandemic. Married older adults have higher multimorbidity resilience. Exposure to hunger was associated with lower multimorbidity resilience when later factors were considered. Self-reported health before age 15, access to medical resources, and multimorbidity resilience were positively correlated. In addition, this study verified the relationship between multimorbidity resilience and the number of chronic diseases, exercise frequency, religious beliefs, self-reported health, and economic satisfaction, among other factors.
    The associations between life course factors and multimorbidity resilience emphasize the long-term impact of early-life experience and the adverse effects of increasing age, especially after the outbreak of the COVID-19 pandemic. The findings will drive policy development from a life course perspective encompassing prevention and follow-up treatment to promote active aging.
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  • 文章类型: Journal Article
    背景:老年人慢性病发病率正在增加,这与人口老龄化的加速有关。不断发展的互联网技术可能有助于在加速衰老过程中预防和提供针对慢性病的干预措施。然而,日常使用互联网对慢性病发病率的影响尚不清楚。
    目的:本研究旨在探讨中老年人日常上网是否会抑制或促进慢性病的发生。
    方法:我们纳入了中国健康与退休纵向研究(CHARLS)的参与者,对中国45岁以上居民的纵向调查。我们评估了CHARLS从第1波(2011年6月至2012年3月)到第4波(2018年7月至9月)的8年数据。第4波的数据用于横断面研究,所有4个波的数据都用于纵向研究。自我报告的数据用于跟踪变量,包括互联网使用,使用频率,以及不同慢性病的发病率。在纵向研究中应用Cox比例风险模型来检验中老年人日常网络使用与慢性病之间的关系。同时调整社会人口统计学特征和健康行为。此外,纵向数据用于分析互联网使用趋势,并利用横断面数据对影响互联网使用的因素进行分析。
    结果:在纵向分析的20,113名参与者中,互联网使用显著增加,从2%到12.3%,2011年至2018年。调整后的模型发现,每天使用互联网与以下慢性疾病的较低发病率之间存在统计学上的显着关系:高血压(风险比[HR]0.78,95%CI0.65-0.95,P=0.01),慢性肺病(HR0.74,95%CI0.57-0.97,P=0.03),卒中(HR0.69,95%CI0.50-0.94,P=0.02),消化系统疾病(HR0.73,95%CI0.58-0.91,P=0.005),记忆相关疾病(HR0.58,95%CI0.37-0.91,P=0.02),关节炎或风湿病(HR0.60,95%CI0.48-0.76,P<.001),哮喘(HR0.52,95%CI0.33-0.84,P=.007),抑郁症(HR0.80,95%CI0.71-0.89,P<.001),和视力障碍(HR0.83,95%CI0.74-0.93,P=.004)。此外,我们的研究还表明,随着互联网使用频率的增加,一些慢性疾病的风险降低。
    结论:这项研究发现,与不使用互联网的人相比,使用互联网的中老年人患慢性病的风险降低。中老年人日常使用互联网的日益普遍可能会激发人们对互联网平台在未来慢性病预防研究中的潜在作用的思考。
    Chronic disease incidence among the elderly is increasing, which is correlated with the acceleration of population aging. Evolving internet technologies may help prevent and provide interventions for chronic diseases in an accelerating aging process. However, the impact of daily internet use on the incidence of chronic diseases is not well understood.
    This study aims to investigate whether daily internet use by middle-aged and older adults may inhibit or promote the occurrence of chronic diseases.
    We included participants from the China Health and Retirement Longitudinal Study (CHARLS), a longitudinal survey of Chinese residents aged ≥45 years. We assessed 8-year data from wave 1 (June 2011-March 2012) to wave 4 (July-September 2018) in CHARLS. Data from wave 4 were used for a cross-sectional study, and data from all 4 waves were used for a longitudinal study. Self-reported data were used to track variables, including internet use, use frequency, and the incidence of different chronic diseases. Cox proportional hazards modeling was applied in the longitudinal study to examine the relationship between daily internet use and chronic diseases among middle-aged and older adults, while adjusting for sociodemographic characteristics and health behaviors. In addition, longitudinal data were used to analyze internet usage trends, and cross-sectional data were used to analyze the factors influencing internet use.
    Among the 20,113 participants included in the longitudinal analyses, internet use increased significantly, from 2% to 12.3%, between 2011 and 2018. The adjusted model found statistically significant relationships between daily internet use and a lower incidence of the following chronic diseases: hypertension (hazard ratio [HR] 0.78, 95% CI 0.65-0.95, P=.01), chronic lung disease (HR 0.74, 95% CI 0.57-0.97, P=.03), stroke (HR 0.69, 95% CI 0.50-0.94, P=.02), digestive disease (HR 0.73, 95% CI 0.58-0.91, P=.005), memory-related disorders (HR 0.58, 95% CI 0.37-0.91, P=.02), arthritis or rheumatism (HR 0.60, 95% CI 0.48-0.76, P<.001), asthma (HR 0.52, 95% CI 0.33-0.84, P=.007), depression (HR 0.80, 95% CI 0.71-0.89, P<.001), and vision impairment (HR 0.83, 95% CI 0.74-0.93, P=.004). Moreover, our study also showed that with increasing frequency of internet use, the risk of some chronic diseases decreases.
    This study found that middle-aged and older adults who use the internet have a reduced risk of developing chronic diseases versus those who do not use the internet. The increasing prevalence of daily internet use among middle-aged and older adults may stimulate contemplation of the potential role of internet platforms in future research on chronic disease prevention.
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  • 文章类型: Journal Article
    许多相关量表已被开发并应用于测量患者的药物依从性,但对量表的心理测量特征的研究仍需进一步研究。本研究旨在通过Rasch分析对GMAS量表进行进一步验证,并为量表改进提出有针对性的建议。
    这是一项使用次要数据的横断面研究。从天津的两家三级医院和一家社区卫生服务中心招募了312名中国成年患者,以完成包含GMAS的问卷,2020年1月至6月。参与者包括至少有一种慢性疾病,并且服用药物超过3个月。但排除了患有严重危及生命的疾病的患者(例如心力衰竭,cancer),认知障碍阻止清晰的表达和显著的沟通困难。Rasch分析用于探索GMAS量表的心理测量学特性。关键指标,包括维度,效度和信度,验证了微分项功能和与Rasch模型的拟合程度。
    首次拟合Rasch模型后,删除了56个拟合模型较差的样本。剩余的256个样品用于Rasch分析。结果表明,GMAS能够很好地拟合Rasch模型,这证明该量表具有良好的心理测量特征。但是有些项目在患者是否有合并症方面具有不同的项目功能。
    GMAS被发现可作为筛选工具,用于治疗报告的患者药物依从性问题,除了一些需要进一步改进规模的问题。
    Many related scales have been developed and applied to measure patients\' medication adherence, but the research on the psychometric characteristics of the scale still requires further studies. This study aims to provide further validation of the GMAS scale by using Rasch analysis and to make targeted recommendations for scale improvement.
    This is a cross-sectional study using secondary data. 312 Chinese adult patients were recruited from two tertiary hospitals and one community health service center in Tianjin to complete a questionnaire containing the GMAS, from January to June 2020. Participants included to have at least one chronic condition and also have been on medication for more than 3 months, but excluded patients with major life-threatening illnesses (e.g. heart failure, cancer), cognitive impairments preventing clear expression and significant communication difficulties. Rasch analysis was used to explore the psychometric properties of the GMAS scale. Key indicators including unidimensionality, validity and reliability, differential item functioning and degree of fit with Rasch model are validated.
    After fitting the Rasch model for the first time, 56 samples poorly fitting the model were deleted. The remaining 256 samples were used for Rasch analysis. The results show that GMAS can fit the Rasch model well, which proves that the scale has favourable psychometric characteristics. But some items had differential item functioning in whether patients have comorbidities.
    The GMAS was found to be useful as a screening tool for patients\' medication adherence problems reported, except some issues to be addressed for further improvement of the scale.
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  • 文章类型: Meta-Analysis
    背景:长期患病的老年患者通常容易受到有害健康后果的影响,并且可预防的再入院风险增加。利用电信和监视技术的远程护理干预措施有助于监测患者出院后的状况,以防止负面的健康结果。
    目的:本系统评价和荟萃分析旨在确定和综合现有证据,证明远程转换护理干预措施对急性再次入院高危老年人各种健康结局的有效性。
    方法:已发布,未发表的研究和灰色文献通过搜索PubMed,Medline,Embase,PsycINFO,科克伦图书馆,CINAHL,Scopus,ProQuest论文和论文以及Google学者从成立到2021年12月。仅包括以英语发表的随机对照试验,该试验评估了高危老年人的护理干预措施的远程过渡。使用RevMan5.4中的随机效应模型进行Meta分析。进行敏感性和亚组和叙事分析。
    结果:纳入14项研究,其中13项被考虑进行荟萃分析。远程过渡护理干预措施可有效降低再入院率(RR=0.59,95CI0.50-0.69,z=6.28,p<0.00001),死亡率(RR=0.72,95CI0.53-0.98,z=2.12,p=0.03),改善健康相关生活质量(SMD=0.24,Z=2.04,p=0.04)。然而,干预后未观察到急诊就诊减少(RR=1.10,95CI0.59-2.06,z=0.31,p=0.76)和功能状态改善(SMD=-0.06,Z=0.19,p=0.85).亚组分析发现,即使在干预后,远程转换护理干预的积极作用仍持续到180天。
    结论:本系统综述和荟萃分析得出的结论是,护理干预措施的远程过渡对再入院具有良好的影响,死亡率和健康相关生活质量。护理干预的远程过渡具有成本效益,适合在医疗机构中大规模实施。
    背景:该协议已在PROSPERO(CRD42022295665)上注册。
    结论:系统评价表明,监测再次入院高风险的老年患者,出院后,使用电信和监视技术可以大大降低再入院率和死亡率,并提高其生活质量。
    BACKGROUND: Chronically ill older patients are often vulnerable to detrimental health outcomes and have increased risk of preventable readmission. Tele-transitions of care interventions utilizing telecommunications and surveillance technologies help monitor patients\' conditions after discharge to prevent negative health outcomes.
    OBJECTIVE: This systematic review and meta-analysis aimed to identify and synthesize available evidence on the effectiveness of tele-transitions of care interventions on various health outcomes in older adults at high risk for readmission discharged from acute setting.
    METHODS: Published, unpublished studies and gray literatures were identified through searching PubMed, Medline, Embase, PsycINFO, Cochrane Library, CINAHL, Scopus, ProQuest Dissertations and theses and Google Scholar from inception to December 2021. Only randomized controlled trials published in English language assessing tele-transitions of care interventions on high-risk older adults were included. Meta-analyses were performed using random-effects model in RevMan 5.4. Sensitivity and subgroup and narrative analyses were conducted.
    RESULTS: Fourteen studies were included, of which thirteen were considered for meta-analyses. Tele-transitions of care interventions were effective in reducing readmission rate (RR = 0.59, 95%CI 0.50-0.69, z = 6.28, p < 0.00001), mortality rate (RR = 0.72, 95%CI 0.53-0.98, z = 2.12, p = 0.03), and improving health-related quality of life (SMD = 0.24, Z = 2.04, p = 0.04). However, reduction of emergency department visit (RR = 1.10, 95%CI 0.59-2.06, z = 0.31, p = 0.76) and improvement of functional status (SMD = -0.06, Z = 0.19, p = 0.85) was not observed following intervention. Subgroup analysis found that the positive effects of tele-transitions of care interventions persist up to 180 days even after the intervention.
    CONCLUSIONS: This systematic review and meta-analysis concluded that tele-transitions of care interventions have promising effects on readmission, mortality rate and health-related quality of life. Tele-transitions of care interventions are cost-effective and suitable for large-scale implementation in healthcare settings.
    BACKGROUND: The protocol was registered on PROSPERO (CRD42022295665).
    CONCLUSIONS: Systematic review demonstrates that monitoring older patients at high risk of readmission, following discharge from hospital, using telecommunication and surveillance technologies significantly reduces readmission and mortality rates and improves their quality of life.
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  • 文章类型: Journal Article
    目的:探讨患者激活(患者参与疾病管理的主观能动性)与自我保健、社会支持,老年冠心病患者的自我效能感和在线健康信息查询。
    方法:基于横截面和调查的设计。
    方法:2021年7月至11月,从青岛4个社区招募451名老年冠心病患者,中国。我们使用患者激活措施收集数据,社会支持评定量表,自我效能感量表和在线健康信息搜索量表。我们进行了结构方程建模来分析数据。
    结果:最终模型显示出良好的模型拟合。患者激活直接影响在线健康信息寻求(β=.39,p<.05),并通过自我效能间接影响(β=.17,p<.05)。社会支持直接影响在线健康信息寻求(β=.23,p<.05),并通过自我效能感间接影响(β=.03,p<.05)。自我效能直接影响在线健康信息搜索(β=.26,p<.05)。
    结论:我们确定了患者激活的相互关系,社会支持和自我效能感对老年冠心病患者在线健康信息查询的影响.我们的发现为开发和评估干预措施以增强老年冠心病患者的在线健康信息提供了理论基础。
    结论:这些发现增加了对患者激活之间关系的更好理解,社会支持,老年冠心病患者的自我效能感和在线健康信息查询,并帮助社区卫生工作者在疾病诊断的早期阶段进行干预。
    OBJECTIVE: To explore the relationship between patient activation (subjective initiative of patients to participate in disease management in self-health care), social support, self-efficacy and online health information seeking among older patients with coronary heart disease.
    METHODS: A cross-sectional and survey-based design.
    METHODS: A total of 451 older patients with coronary heart disease were recruited from July to November 2021 from four communities in Qingdao, China. We collected data using the Patient Activation Measure, Social Support Rating Scale, Self-Efficacy Scale and Online Health Information Seeking Scale. We performed structural equation modelling to analyse the data.
    RESULTS: The final model showed good model fit. Patient activation influenced online health information seeking directly (β  = .39, p  < .05) and indirectly through self-efficacy (β  = .17, p  < .05). Social support influenced online health information seeking directly (β  = .23, p  < .05) and indirectly through self-efficacy (β  = .03, p  < .05). Self-efficacy directly influenced online health information seeking (β  = .26, p  < .05).
    CONCLUSIONS: We identified the interrelationships of patient activation, social support and self-efficacy and their influence on the online health information seeking of older patients with coronary heart disease. Our findings provide a theoretical basis for developing and evaluating interventions to enhance online health information seeking for older patients with coronary heart disease.
    CONCLUSIONS: These findings add a better understanding of the relationship between patient activation, social support, self-efficacy and online health information seeking in older patients with coronary heart disease, and help community health workers to intervene in the early stage of disease diagnosis.
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  • 文章类型: Journal Article
    目的:儿童慢性病对整个家庭有严重影响。由于人们对家庭如何适应儿童慢性病的诊断知之甚少,这种定性的元综合旨在进一步了解我们对弹性过程的认识。
    方法:使用9个电子数据库PubMed(MEDLINE)进行了一项荟萃综合综述,以探讨儿童慢性病诊断后家庭的弹性过程。WebofScience,Cochrane图书馆,Scopus,PsycINFO,CINAHL,万芳,CBM,和CNKI从每个数据库的开始到2020年12月31日。进行雪球采样和人工搜索以确定其他相关研究。
    方法:17项定性研究符合纳入标准,并进行荟萃综合分析。
    结果:在研究中确定了三个关键的元主题:(a)解体和脆弱性:情绪波动和家庭混乱;(b)调整和适应:与家庭需求斗争;(c)恢复和重建:增长和期望。
    结论:家庭对儿童慢性疾病的适应是一个复杂的,多方面的动态过程。确定家庭过程的特征为患有慢性病的家庭提供了一些实用的干预措施。
    结论:所有卫生专业人员和社会护理服务机构都需要了解被诊断患有慢性病的儿童的家庭适应经验。有必要针对家庭调整过程的不同时期进行具体干预,以帮助家庭从危机中恢复过来并更好地应对挑战。
    OBJECTIVE: Childhood chronic illness has a serious effect on the whole family. As there is yet little known about how the families adjust to the diagnosis of childhood chronic illness, this qualitative meta-synthesis aims to further our knowledge regarding the resilient process.
    METHODS: A meta-synthesis review was conducted to explore the resilient process of the family after diagnosis of childhood chronic illness using nine electronic databases PubMed (MEDLINE), Web of Science, the Cochrane Library, SCOPUS, PsycINFO, CINAHL, Wan Fang, CBM, and CNKI from each database\'s inception to December 31,2020. Snowball sampling and manual search were performed to identify other relevant studies.
    METHODS: Seventeen qualitative studies met the inclusion criteria and were analyzed into meta-synthesis.
    RESULTS: Three key meta-themes were identified across the studies: (a) disintegration and vulnerability: emotional fluctuation and household chaos; (b) adjustment and adaptation: struggle with family needs; (c) recovery and reconstruction: growth and expectation.
    CONCLUSIONS: Family adjustment to childhood chronic illness presents a complex, multifaceted and dynamic process. Identifying characteristics of family processes provides some practical interventions for families with a chronically ill child.
    CONCLUSIONS: There is a need for all health professionals and social care services to be aware of the experience of family adjustment of children diagnosed with chronic illness. The specific intervention targeted at different periods of the family adjustment process is warranted to help families to recover from crises and deal better with challenges.
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  • 文章类型: Journal Article
    背景:本研究旨在确定影响香港中国血友病患者健康相关生活质量(HRQoL)的因素,并检查治疗依从性和HRQoL结果之间的关联。方法:来自非政府组织的血友病A或B患者使用经过验证的工具报告了他们的HRQoL和对预防性治疗的治疗依从性。使用单变量检验和多变量回归分析比较不同临床相关亚组的结果差异。结果:纳入56例患者(平均年龄30.4[17.4]岁;大多数血友病A:75%;中度至重度:88%)。与接受按需治疗的患者相比,接受预防性治疗的患者报告的工作/学校问题较少(25.8[18.9]对51.5[26.3];p=0.001)。多变量模型显示,年龄(B=0.42,95%CI=0.093-0.75)和居住在公共住房(B=10.24,95%CI=0.70-19.77)与较差的HRQoL相关。年龄较大与治疗不依从性相关(r=0.66,p<0.0001)。依从性差的患者倾向于报告运动/休闲功能较差(r=0.31,p=0.033)。结论:我们的结果表明,年龄较大的患者,受教育程度较低,接受按需治疗的人对他们的健康感知较差。提高依从性可能会导致更好的HRQoL。未来的工作包括前瞻性地评估该人群的职业需求。
    Background: This study aims to identify factors affecting health-related quality of life (HRQoL) in Chinese patients with hemophilia in Hong Kong, and to examine the association between treatment adherence and HRQoL outcomes. Methods: Patients with hemophilia A or B from a non-governmental organization reported their HRQoL and treatment adherence to prophylactic therapy using validated tools. Univariate tests and multivariable regression analysis were used to compare differences in outcomes across clinically relevant subgroups. Results: Fifty-six patients were recruited (mean age 30.4 [17.4] years; majority hemophilia A: 75%; moderate-to-severe severity: 88%). Patients who received prophylactic treatment reported fewer work/school problems (25.8 [18.9] versus 51.5 [26.3]; p = 0.001) than those who received on-demand therapy. The multivariable model showed that older age (B = 0.42, 95% CI = 0.093−0.75) and living in public housing (B = 10.24, 95% CI = 0.70−19.77) were associated with worse HRQoL. Older age was associated with treatment non-adherence (r = 0.66, p < 0.0001). Patients with poor adherence tended to report worse functioning in sports/leisure (r = 0.31, p = 0.033). Conclusions: Our results suggest that patients who were older, had lower education attainment and received on-demand treatment had poorer perception of their health. Improving adherence may lead to better HRQoL. Future work includes evaluating the occupational needs prospectively in this population.
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  • 文章类型: Journal Article
    提高患者的满意度和就医体验是我国公立医院综合改革的一个基本目标。本研究旨在调查患者体验及其影响因素,并比较有和没有慢性病的患者的医疗经验,以期为提高我国公立医院质量提供建议。
    一项横断面比较研究,涉及浙江省台州医院出院的102名患者,中国的一家三级公立医院,进行了。患者被邀请参加包含Picker患者体验问卷(PPE-15)的调查,和总体满意度评价(1-10分)。根据是否患有慢性病,将患者分为两组,比较两组患者的就医经验和总体满意度。描述性统计(频率,中位数,mean),卡方分析,和Mann-WhitneyU检验用于分析数据。
    有慢性病和无慢性病患者的总体满意度无统计学意义。但患者体验评分存在差异。慢性病对患者的护理协调体验和对患者偏好的尊重有负面影响。在PPE-15的七个维度中,情感支持和尊重患者偏好的得分在两组中最低,在所有项目中,“希望更多地参与有关护理和治疗的决策”得分最低。
    医院管理者和工作人员应更加关注患者的情感支持和偏好。对于慢性病患者,应加强医疗护理的标准化和患者对医疗过程的参与。医院还应细分患者群体,确定患者的需求和期望,并开展有针对性的评估和干预措施。
    Improving the satisfaction and medical experience of patients is a basic goal of the comprehensive reform of public hospitals in China. This study aimed to investigate the patient experience and its influencing factors, and to compare medical experiences between patients with and without chronic disease, with a view to providing suggestions for improving the quality of public hospitals in China.
    A cross-sectional comparative study involving 102 patients discharged from Taizhou Hospital of Zhejiang Province, a tertiary public hospital in China, was conducted. The patients were invited to participate in a survey comprising the Picker Patient Experience Questionnaire (PPE-15), and an overall satisfaction evaluation (on a scale of 1-10). The patients were divided into two groups according to whether or not they had a chronic disease, and the medical experience and overall satisfaction of the groups were compared. Descriptive statistics (frequency, median, mean), chi-square analysis, and Mann-Whitney U tests were used to analyze the data.
    No statistical significance was found in overall satisfaction between patients with and without chronic diseases, but there were differences in the patient experience score. Chronic illness had negative impacts on the experience of care coordination for patients and respect for patient preferences. Of the seven dimensions of the PPE-15, the scores for emotional support and respect for patient preferences were the lowest in both groups, and the item \"want to be more involved in decisions made about care and treatment\" scored the lowest among all items.
    Hospital managers and staff members should pay more attention to the emotional support and preferences of patients. For patients with chronic diseases, the standardization of medical care and patient participation in the medical process should be strengthened. Hospitals should also subdivide patient groups, ascertain the demands and expectations of patients, and carry out targeted evaluation and intervention measures.
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