对道德的态度,对来自中国30个省、自治区的402家遗传服务提供者进行了遗传研究和实践中的法律和社会问题调查。这是使用已在37个国家/地区发行的有关道德和遗传学的国际调查问卷的中文版本完成的。总之,255名研究参与者完成了问卷调查(63%)。大多数受访者(89%)表示,他们同意中国现行的有关遗传异常和非医学指征终止妊娠的法律法规,在考虑人口控制和计划生育的基础上。超过一半的受访者反对在没有X连锁疾病的情况下通过产前诊断进行性别选择。然而,他们中的大多数(86%)更喜欢指导咨询。超过一半的人会同意向有风险的亲属披露遗传信息,并允许第三方如执法机构,配偶/伴侣,血亲,涉及公共安全的雇主,生命和健康保险公司在未经同意的情况下访问存储的DNA。大多数人(73%-98%)还认为,被定罪或被指控犯罪的囚犯应该需要进行DNA指纹识别,武装部队成员和所有新生儿。虽然这些只是我们国际调查结果的第一部分,它们为在中国进行有关伦理学和遗传学的国际讨论提供了初步基础。
Attitudes towards ethical, legal and social issues in genetic research and practice were investigated in 402 genetic services providers from 30 provinces and autonomous regions in
China. This was done using a Chinese version of an international survey questionnaire on ethics and genetics that has been circulated in 37 nations. In all, 255 study participants completed questionnaires (63%). The majority of the respondents (89%) reported that they agreed with the current Chinese laws and regulations on termination of pregnancy for genetic abnormalities and non-medical indications, on the basis of considerations of population control and family planning. More than half the respondents opposed sex selection by prenatal diagnosis in the absence of an X-linked disorder. However, most of them (86%) would prefer directive counseling. More than half would agree to disclose genetic information to relatives at risk, and would permit third parties such as law enforcement agencies, spouse/partner, blood relatives, employers involving public safety, life and health insurers to access stored DNA without consent. The majority (73%-98%) also thought that DNA fingerprinting should be required for prisoners convicted of or charged with crimes, members of armed forces and all newborns. Although these are only the first part of the results of our international survey, they provide an initial basis for international discussion on ethics and genetics in
China.