Digital tools

数字工具
  • 文章类型: Journal Article
    残疾人服务从业人员对信息和通信技术(ICT)使用的现有衡量标准通常将ICT的采用视为一个整体概念,忽视其在残疾领域的多面性。这项研究引入了一个阶梯式,捕捉这种复杂性的包容性方法,阐明在利用各种ICT方面的差异,现在与预期使用,以及不同临床人口统计学群体之间的差异。
    在香港进行了横断面调查,从324名跨不同学科和残疾服务的从业者那里收集有效数据。
    数据分析产生了一个三因素模型,将ICT工具分为(1)信息和通信工具,(2)筛查和监测工具,(3)治疗和康复工具。第一类被确定为目前使用的主要信通技术,后两类使用量预计会有显著增长。当前ICT采用的差异受到从业者角色的影响,客户,职位,附属机构,和教育造诣。
    这项研究为残疾人服务中采用ICT的关键维度提供了更深入的了解。它强调了为有效整合信通技术制定具体和定制战略的重要性,确保采取更有针对性的方法来满足残疾人领域的独特需求。
    未来的研究重点是信息和通信技术(ICT)采用或相关概念,例如电子健康和远程康复可以考虑采用适合当地情况的类似方法。未来在残疾服务中采用ICT的关注和投资应更多地集中在与临床和康复实践直接相关的领域,根据该领域的具体需求定制策略。迫切需要加强ICT培训,特别是对于社会心理和医疗专业人员,同时也增加了对非政府组织的投资。这种支持需要包括性别和年龄,确保它满足所有组织级别从业者的不同需求。
    UNASSIGNED: Existing measurements of the use of information and communication technologies (ICTs) among practitioners in disability services often treat ICT adoption as a monolithic concept, overlooking its multifaceted nature within the disability field. This study introduces a stepped, inclusive approach to capturing this complexity, elucidating disparities in the utilization of various ICT dimensions, the present vs. anticipated use, and variations among different clinical-demographic groups.
    UNASSIGNED: A cross-sectional survey was conducted in Hong Kong, gathering valid data from 324 practitioners spanning diverse disciplines and disability services.
    UNASSIGNED: Data analysis produced a three-factor model categorizing ICT tools into (1) information and communication tools, (2) screening and monitoring tools, and (3) treatment and rehabilitation tools. The first category was identified as the predominant ICT utilized currently, with significant projected growth in the latter two categories\' usage. Variances in current ICT adoption were influenced by practitioners\' roles, clientele, positions, affiliating agencies, and educational attainments.
    UNASSIGNED: This research provides a deeper understanding of the key dimensions of ICT adoption within disability services. It underscores the importance of devising specific and customized strategies for the effective integration of ICTs, ensuring a more tailored approach to meeting the unique demands of the disability field.
    Future studies focusing on information and communication technologies (ICTs) adoption or relevant concepts, such as e-health and telerehabilitation may consider employing similar methodological approaches accustomed to one’s local context.Future attention and investment in ICT adoption in disability services should focus more on domains directly relevant to clinical and rehabilitation practice, tailoring strategies to the specific needs of the field.There exists an urgent imperative to enhance ICT training, especially for psychosocial and medical professionals, while also increasing investments in non-governmental organizations.Such support needs to be gender- and age-inclusive, ensuring it meets the diverse needs of practitioners at all organizational levels.
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  • 文章类型: Journal Article
    背景:慢性自发性荨麻疹(CSU)是不可预测的,可严重损害患者的生活质量。CSU患者需要一个方便的,用户友好的平台,在他们的移动设备上完成患者报告的结果测量(PROMs)。CRUSE®,慢性荨麻疹自我评估应用程序,旨在解决这个未满足的需求。
    方法:CRUSE®由国际荨麻疹专家指导委员会制定。根据CSU的最新发现,该应用程序的优先级被定义为允许患者跟踪和记录他们的症状和药物使用情况,并发送照片。CRUSE®应用程序收集患者数据,如年龄、性别,疾病发作,触发器,药物,以及可以安全发送给医生的CSU特征,提供实时见解。此外,CRUSE®包含用于评估疾病活动和控制的PROM,根据患者概况和临床表现个性化。
    结果:CRUSE®于2022年3月在德国推出,现已在17个国家免费提供。它适用于当地语言,并显示特定国家/地区的可用荨麻疹药物列表。英语和乌克兰语版本可在全球范围内使用。从2022年7月到2023年6月,2540名用户记录了25,710次观察;72.7%是女性,平均年龄39.6岁。在基线,93.7%和51.3%的用户有风团和血管性水肿,分别。使用第二代抗组胺药的天数为74.0%。
    结论:来自CRUSE®的初始数据显示了有效跟踪患者疾病活动和控制的广泛用途和效用,为CSU的个性化管理铺平道路。
    BACKGROUND: Chronic spontaneous urticaria (CSU) is unpredictable and can severely impair patients\' quality of life. Patients with CSU need a convenient, user-friendly platform to complete patient-reported outcome measures (PROMs) on their mobile devices. CRUSE® , the Chronic Urticaria Self Evaluation app, aims to address this unmet need.
    METHODS: CRUSE® was developed by an international steering committee of urticaria specialists. Priorities for the app based on recent findings in CSU were defined to allow patients to track and record their symptoms and medication use over time and send photographs. The CRUSE® app collects patient data such as age, sex, disease onset, triggers, medication, and CSU characteristics that can be sent securely to physicians, providing real-time insights. Additionally, CRUSE® contains PROMs to assess disease activity and control, which are individualised to patient profiles and clinical manifestations.
    RESULTS: CRUSE® was launched in Germany in March 2022 and is now available for free in 17 countries. It is adapted to the local language and displays a country-specific list of available urticaria medications. English and Ukrainian versions are available worldwide. From July 2022 to June 2023, 25,710 observations were documented by 2540 users; 72.7% were females, with a mean age of 39.6 years. At baseline, 93.7% and 51.3% of users had wheals and angioedema, respectively. Second-generation antihistamines were used in 74.0% of days.
    CONCLUSIONS: The initial data from CRUSE® show the wide use and utility of effectively tracking patients\' disease activity and control, paving the way for personalised CSU management.
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  • 文章类型: Journal Article
    背景:数字技术的发展和开放式创新方法的演变使各种虚拟组织和企业的创建能够主要在线协调其活动。名为“国际自然产品科学工作组”(INPST)的开放式创新平台成立于2018年,旨在将对自然产品科学研究感兴趣的个人和组织聚集在一起。并通过使用数字通信工具增强他们的互动能力。
    方法:在这项工作中,我们介绍了INPST活动的总体概述,并展示了Twitter作为强大的网络工具的具体用途,该工具用于举办为期一周的“2021INPSTTwitter网络活动”(从2021年5月31日至2021年6月6日)基于Twitter标签#INPST的应用。
    结论:使用SymplurSignals(https://www。symburl.com/),总共披露了6036条推文,由686个用户共享,总共产生了65,004,773次印象(相应推文的视图)。这个网络事件取得了很高的知名度和参与率展示了一个令人信服的例子,说明这个社交媒体平台如何被用作举办基于虚拟Twitter的国际生物医学研究活动的高效工具。
    BACKGROUND: The development of digital technologies and the evolution of open innovation approaches have enabled the creation of diverse virtual organizations and enterprises coordinating their activities primarily online. The open innovation platform titled \"International Natural Product Sciences Taskforce\" (INPST) was established in 2018, to bring together in collaborative environment individuals and organizations interested in natural product scientific research, and to empower their interactions by using digital communication tools.
    METHODS: In this work, we present a general overview of INPST activities and showcase the specific use of Twitter as a powerful networking tool that was used to host a one-week \"2021 INPST Twitter Networking Event\" (spanning from 31st May 2021 to 6th June 2021) based on the application of the Twitter hashtag #INPST.
    CONCLUSIONS: The use of this hashtag during the networking event period was analyzed with Symplur Signals (https://www.symplur.com/), revealing a total of 6,036 tweets, shared by 686 users, which generated a total of 65,004,773 impressions (views of the respective tweets). This networking event\'s achieved high visibility and participation rate showcases a convincing example of how this social media platform can be used as a highly effective tool to host virtual Twitter-based international biomedical research events.
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