■在姑息治疗中,乌得勒支症状日记-4维(USD-4D),荷兰适应和验证的患者报告的结果测量,通过识别和监测支持多维症状管理,以及关于症状和需求的对话。对于USD-4D,以最佳方式支持患者的自主权,了解患者需要使用它是至关重要的。
■本研究旨在确定患者在临床姑息治疗中使用USD-4D时需要什么。
■具有半结构化访谈的主要和次要分析的通用定性设计。
■患有生命限制性疾病的18岁患者被有目的地招募到临终关怀和家庭护理环境中,如果他们是在生命的最后一年,如令人惊讶的问题所确定。患者必须意识到他们的生命危险。在两个阶段中选择患者。在第一批中,患者必须至少完成一次USD-4D.第二部分包括在临床实践中不熟悉USD-4D的患者,并在先前关于USD-4D内容有效性的研究中接受了采访。访谈是逐字抄写的,并进行了主题分析。
■包括25名患者(14名男性,年龄44-87)。使用USD-4D时患者的需求总结为三个主题:(1)感觉邀请,(2)了解USD-4D的用途和功能,和(3)经历个人和非判断的方法。
■为了使患者从USD-4D中最佳受益,作为其在临床姑息治疗中的自主权的支持措施,他们感到被邀请使用它是至关重要的。医疗保健提供者的任务是为患者设定正确的先决条件,以便能够使用USD-4D。对于患者来说,这意味着医疗保健提供者在传达USD-4D的目的和功能以及与他们进行对话时,应始终适应他们的个人喜好。
UNASSIGNED: In palliative care, the Utrecht Symptom Diary - 4 Dimensional (USD-4D), a Dutch-adapted and validated patient-reported outcome measure, supports multidimensional symptom management through identification and monitoring of, as well as dialogue on symptoms and needs. For the USD-4D to optimally support patients\' autonomy, it is essential to know what patients need to use it.
UNASSIGNED: This study aims to identify what patients need when using the USD-4D in clinical palliative care.
UNASSIGNED: A generic qualitative design with primary and secondary analyses of semistructured interviews.
UNASSIGNED: Patients ⩾18 years with a life-limiting illness were purposefully recruited within hospice and home care settings if they were in their last year of life as identified by the surprise question. Patients had to be aware of their life-threatening condition. Patients were selected in two tranches. In the first tranche, patients had to have completed the USD-4D at least once. The second tranche consisted of patients who were not familiar with the USD-4D in clinical practice and were interviewed in a previous study on the content validity of the USD-4D. The interviews were transcribed verbatim and were subjected to thematic analysis.
UNASSIGNED: Twenty-five patients were included (14 men, ages 44-87). Patients\' needs when using the USD-4D were summarized in three themes: (1) feeling invited, (2) being aware of the purpose and function of the USD-4D, and (3) experiencing a personal and nonjudgmental approach.
UNASSIGNED: For patients to optimally benefit from the USD-4D as a supportive measure of their autonomy in clinical palliative care, it is essential that they feel invited to use it. Healthcare providers are tasked with setting the right preconditions for patients to want and to be able to use the USD-4D. For patients, this means healthcare providers should always be attuned to their personal preferences when communicating the purpose and function of the USD-4D and when they enter into dialogue with them.