self-perceived burden

自我感知的负担
  • 文章类型: Journal Article
    目的:癌症诊断会破坏患者甚至护理人员的和平生活和计划,当病人被别人照顾时,他们很容易感到负担。然而,自我感知负担(SPB)的影响因素尚未归纳,相关研究尚处于起步阶段。本文探讨了与癌症患者SPB相关的因素,并确定了未来的研究方向。
    方法:系统搜索,包括浏览六个电子数据库,对2003年1月至2022年4月期间以英文和中文发表的文章进行了识别,使用与癌症患者“他人负担”相关的关键术语;还对文章“参考列表”进行了手动搜索。
    结果:确定了33篇文章。内容分为三组:患者相关因素,照顾者相关因素,和家庭相关(财务)因素。尽管存在异质性,患者身体/疾病因素,心理因素,社会因素,护理人员类型,提供的护理质量,照顾者的身体和心理状况,财务因素均与SPB相关。
    结论:这篇文献综述显示,SPB给癌症患者带来了巨大的负担,癌症患者的SPB受患者相关因素的影响,照顾者相关因素,和家庭因素。这些影响因素直接或间接影响SPB。此外,SPB是复杂的,与其因素相关的研究值得根据患者的实际情况进行进一步的详细分析,以使结果更加准确和相关。
    OBJECTIVE: A cancer diagnosis disrupts the peaceful lives and plans of patients and even their caregivers, and patients can easily feel burdened when they are being cared for by others. However, the influencing factors of self-perceived burden (SPB) have not been summarized, and related research is still in its infancy. This review explores factors related to the SPB of cancer patients and identifies future research directions.
    METHODS: A systematic search, including trolling through six electronic databases, was conducted to identity articles published in English and Chinese from January 2003 to April 2022, using key terms related to cancer patients\' burden on others; a manual search was also performed on the articles\' reference lists.
    RESULTS: Thirty-three articles were identified. The content was described into three groups: patient-related factors, caregiver-related factors, and family-related (financial) factors. Despite the heterogeneity, patients\' physical/disease factors, psychological factors, social factors, caregiver type, quality of care provided, caregiver physical and psychological status, and financial factors were all correlated with SPB.
    CONCLUSIONS: This literature review shows that SPB imposes a huge burden on cancer patients, and that SPB in cancer patients is influenced by patient-related factors, caregiver-related factors, and family factors. These influencing factors directly or indirectly affect SPB. In addition, SPB is complex and studies related to its factors deserve a further detailed analysis based on the actual situation of the patients in order to make the results more accurate and relevant.
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  • 文章类型: Journal Article
    自我感知负担(SPB)对于癌症患者及其护理人员来说是一种痛苦的经历。然而,SPB的干预和应对策略尚未系统总结。这项工作回顾了干预措施和应对策略对SPB的影响。
    系统搜索,包括通过六个电子数据库进行拖网,进行了鉴定2003年1月至2023年2月发表的英文和中文文章。与他人负担有关的关键术语,干预,并对癌症患者采取应对措施。还应用了手动搜索。
    确定了30篇文章。干预措施以三个维度呈现:物理,心理,财务/家庭。从应对态度和行为方面提出了应对策略。功能锻炼和心理调节等干预措施可以在上述三个维度上改善SPB,从而缓解SPB。不同应对方式的患者对预后有不同的影响。此外,护理人员对患者的影响及其提供的应对方式值得关注。
    本文回顾了癌症患者对SPB的干预措施以及患者和护理人员的应对策略。针对SPB的干预措施可以通过改善患者的身体状况来缓解SPB,心理状态,和财务/家庭情况。然而,患者和照顾者的应对态度和行为取决于个体的认知和感知;不同的应对策略产生不同的结果。为了实现SPB的改进,干预措施应纳入应对策略。应根据应对SPB的共性来构建适当的患者-护理人员双重干预措施。
    UNASSIGNED: Self-perceived burden (SPB) is a painful experience for patients with cancer and their caregivers. However, the intervention and coping strategies for SPB have not been systematically summarized. This work reviews the effects of interventions and coping strategies on SPB.
    UNASSIGNED: A systematic search, including trawling through six electronic databases, was performed to identify the articles published from January 2003 to February 2023, both in English and in Chinese. The key terms related to burden on others, intervention, and coping of patients with cancer were adopted. Manual search was also applied.
    UNASSIGNED: Thirty articles were identified. Interventions were presented in three dimensions: physical, psychological, and financial/family. Coping strategies were presented in terms of coping attitudes and behaviors. Interventions such as functional exercise and psychological adjustment can improve SPB in the three dimensions mentioned above and thus alleviate SPB. Patients with different coping styles have different implications for prognosis. In addition, the impact of caregivers on patients and the coping they provided were worthy of attention.
    UNASSIGNED: This article reviewed interventions for SPB in patients with cancer and the coping strategies from patients and caregivers. The interventions targeting on SPB can alleviate SPB by improving patients\' physical condition, psychological status, and financial/family situation. However, the coping attitudes and behaviors of both patients and caregivers were depending on the individual cognitions and perceptions; different coping strategies produced different outcomes. To achieve improvements in SPB, interventions should incorporate the coping strategies. Appropriate patient-caregiver dyad interventions should be constructed based on the commonalities in coping with SPB.
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  • 文章类型: Journal Article
    背景:癌症是世界上主要的死亡原因。癌症患者的高自我感受负担(SPB)患病率很高,这可能给癌症患者的身心健康带来不良后果。如果治疗不好会导致自杀.本文旨在确定癌症患者中SPB的患病率及其危险因素。
    方法:2021年9月之前出版的期刊,来自五个数据库(PubMed,ScienceDirect,Springer,科克伦,和CNKI)根据关键字检索。使用的关键词包括癌症患者,绝症患者,癌症,SPB,自我感知的负担,自我负担,自我感知,因素,预测器,相关因素,决定因素,危险因素,预后因素,协变量,自变量,和变量。纳入和排除标准的质量由三名研究人员独立审查。
    结果:在12,712篇文章中,有22项研究符合资格标准.在马来西亚,癌症患者中SPB的患病率为73.2%至100%,中国,和加拿大。他们中的大多数患有中度SPB。在报告的因素中,年龄,性别,婚姻状况,种族,residence,教育水平,职业状况,家庭收入,主要照顾者,付款方式,疾病相关因素,心理因素,和身体因素大部分是在整个研究报告。
    结论:结论:癌症患者的SPB患病率很高。因此,医院,非政府组织,相关政策制定者,社区可针对高危人群提供特殊方案进行心理指导或设计相应的干预措施,降低患者SPB水平,提高生活质量。
    BACKGROUND: Cancer is the leading cause of death in the world. There was a high prevalence of high self-perceived burden (SPB) among cancer patients and this could bring adverse consequences to the physical and mental health of cancer patients, which can lead to suicide if not treated well. This review aims to determine the prevalence of SPB among cancer patients and its risk factors.
    METHODS: Published journals before September 2021, from five databases (PubMed, ScienceDirect, Springer, Cochrane, and CNKI) were retrieved according to the keywords. The keywords used included cancer patients, terminally ill patients, cancer, SPB, self-perceived burden, self-burden, self-perceived, factor, predictor, associated factor, determinants, risk factor, prognostic factor, covariate, independent variable, and variable. The quality of the inclusion and exclusion criteria was independently reviewed by three researchers.
    RESULTS: Out of 12,712 articles, there are 22 studies met the eligibility criteria. The prevalence of SPB among cancer patients ranged from 73.2 to 100% in Malaysia, China, and Canada. Most of them had moderate SPB. Out of the reported factors, age, gender, marital status, ethnicity, residence, educational level, occupational status, family income, primary caregiver, payment methods, disease-related factors, psychological factors, and physical factors were mostly reported across the studies.
    CONCLUSIONS: In conclusion, SPB prevalence is high in cancer patients. Therefore, hospitals, non-governmental organizations, relevant policymakers, and communities can provide special programs for high-risk groups to provide psychological guidance or design corresponding interventions to reduce the SPB level of patients and improve the quality of life.
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