self-management

自我管理
  • 文章类型: Journal Article
    背景:社区卫生中心(CHC)患者的慢性病患病率过高,并且在获得可能支持这些疾病管理的技术方面存在障碍。一种这样的技术包括用于远程患者监测(RPM)的工具,在COVID-19大流行期间,其使用激增。
    目的:本研究的目的是评估CHC在COVID-19大流行期间如何实施RPM计划。
    方法:这项回顾性案例研究使用了一种混合方法解释性序贯设计来评估CHC在COVID-19大流行期间对一套RPM工具的实施。分析使用电子健康记录提取的健康结果数据以及与CHC的工作人员和参与RPM计划的患者的半结构化访谈。
    结果:CHC招募了147名高血压患者RPM计划。RPM使用6个月后,平均收缩压(BP)降低13.4mmHg,平均舒张压降低6.4mmHg,与高血压控制(BP<140/90mmHg)从33.3%增加到81.5%相对应。相当大的努力致力于支持这个项目,通过慢性病管理的组织优先次序得到加强,以及一位支持项目实施的临床医生。注意到实施RPM计划的障碍是有限的初始培训,缺乏持续的支持,以及与RPM装置技术相关的复杂性。
    结论:虽然RPM技术有望解决慢性病管理问题,成功的RPM计划需要在实施支持和技术援助方面进行大量投资。
    BACKGROUND: Community health center (CHC) patients experience a disproportionately high prevalence of chronic conditions and barriers to accessing technologies that might support the management of these conditions. One such technology includes tools used for remote patient monitoring (RPM), the use of which surged during the COVID-19 pandemic.
    OBJECTIVE: The aim of this study was to assess how a CHC implemented an RPM program during the COVID-19 pandemic.
    METHODS: This retrospective case study used a mixed methods explanatory sequential design to evaluate a CHC\'s implementation of a suite of RPM tools during the COVID-19 pandemic. Analyses used electronic health record-extracted health outcomes data and semistructured interviews with the CHC\'s staff and patients participating in the RPM program.
    RESULTS: The CHC enrolled 147 patients in a hypertension RPM program. After 6 months of RPM use, mean systolic blood pressure (BP) was 13.4 mm Hg lower and mean diastolic BP 6.4 mm Hg lower, corresponding with an increase in hypertension control (BP<140/90 mm Hg) from 33.3% of patients to 81.5%. Considerable effort was dedicated to standing up the program, reinforced by organizational prioritization of chronic disease management, and by a clinician who championed program implementation. Noted barriers to implementation of the RPM program were limited initial training, lack of sustained support, and complexities related to the RPM device technology.
    CONCLUSIONS: While RPM technology holds promise for addressing chronic disease management, successful RPM program requires substantial investment in implementation support and technical assistance.
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  • 文章类型: Case Reports
    帕金森病(PD)是一种进行性神经退行性疾病,主要表现为僵硬的核心症状,姿势不稳定,震颤,和运动迟缓.不遵守规定的PD治疗可能会产生重大影响,例如症状控制不佳和更大的疾病负担。依从性差的原因是多方面的,特别是当药物治疗方案复杂且通常基于感知和实践障碍时。此外,让完全不坚持的患者参与研究是具有挑战性的,因为他们可能已经退出了服务提供,然而,他们的贡献对于充分理解不遵守的理由至关重要。本文旨在提供一个PD患者观点的案例研究,先前发表的一项定性研究的参与者调查了PD中药物依从性的障碍和促进因素。在本文中,描述了参与者的诊断旅程,总结了医疗咨询的经验,以解释他们不遵守任何英国PD标准治疗的原因。报告了参与者对使用维生素B1(硫胺素)注射来控制症状的偏好,并讨论了这样做的理由。我们通过行为科学的视角来考虑这个案例,借鉴健康心理学理论,理论域框架(TDF),告知审查和分析该参与者的数据时面临的实际挑战。对药学实践的影响,特别是,也是为了确保像威尔金森先生这样的患者有机会讨论治疗选择和对PD等长期疾病的自我管理。我们还讨论了在药物依从性研究中接触代表性不足的人群的重要性,包含平等原则,多样性,并纳入研究。
    Parkinson\'s disease (PD) is a progressive neurodegenerative disease which primarily presents with the core symptoms of rigidity, postural instability, tremor, and bradykinesia. Non-adherence to prescribed PD treatments can have significant ramifications, such as poor symptom control and greater disease burden. Reasons for poor adherence are multifaceted, particularly when medication regimens are complex and often based on perceptual and practical barriers. Additionally, engaging fully non-adherent patients in research is challenging since they may have dropped out of service provision, yet their contribution is vital to fully understand the rationale for non-adherence. This paper aims to present a case study on the perspectives of one person with PD, a participant in a previously published qualitative study investigating the barriers and facilitators to medication adherence in PD. In this paper, the participant\'s diagnostic journey is described, and experiences of medical consultations are summarised to explain their reasons for not adhering to any of the standard UK PD treatments prescribed. The participant\'s preferences for using Vitamin B1 (thiamine) injections to manage the symptoms are reported and the rationale for doing so is discussed. We consider the case through the lens of a behavioural science approach, drawing on health psychology theory, the Theoretical Domains Framework (TDF), to inform the review and the practical challenges faced when analysing the data for this participant. Implications for pharmacy practice, in particular, are also put forward with view to ensuring that patients such as Mr. Wilkinson are provided with the opportunity to discuss treatment choices and self-management of long-term conditions such as PD. We also discuss the importance of reaching under-represented members of the population in medication adherence research, which embraces the principles of equality, diversity, and inclusion in research.
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  • 文章类型: Journal Article
    背景:许多有心理健康问题的人康复并重新建立自己的身份,并在生活中找到希望和意义,不管症状负担。可以通过学习和教育来支持恢复,旨在加强自我管理和应对能力。有生活经验的同龄人提供的这种教育很少见,也很少报道。目的是评估教育干预的感知价值,患者学校(PS),由有生活经验的受雇患者同行在精神病学组织内组织。
    方法:基于对有心理健康问题的人的访谈的定性案例研究(n=8),同行组织者(n=4)和医疗保健专业人员(n=4),并使用了时间表和教育材料等文件。首先,访谈采用归纳常规内容分析进行转录和分析。第二,这些发现被合成为一个计划理论,在逻辑模型中说明。
    结果:PS的感知价值与同伴组织者分享自己经验的意愿有关,一种归属感,与志同道合的新知识分享,实用技能,获得的角色和态度。这些经历赋予了力量,减少污名,并向用户参与者保证,一个人的身份不是由心理健康问题定义的。这种增强的自信为加强自我管理铺平了道路,并为更有效地利用医疗保健服务创造了潜力。
    结论:我们得出结论,由受薪同龄人在精神病学组织内组织,取得了与文献中报告的相同的积极成果,并显示了让同行组织者成为工作人员的一部分的价值。
    这项研究是在学术研究人员和有精神病服务用户体验的人员之间的合作中进行的,从事教育干预研究的重点。研究计划是共同设计的,并且对收集的数据进行了合作分析。具有用户体验的共同研究人员的参与使项目团队可以访问研究网站,为团队提供了对研究背景的见解,并为促进对研究结果的解释提供了理解。
    BACKGROUND: Many people with mental health issues recover and re-establish their identity and find hope and meaning in life, irrespective of symptom burden. Recovery can be supported through learning and education, aiming at strengthening self-management and coping skills. Such education offered by peers with lived experience is rare and scarcely reported. The aim was to assess the perceived value of an educational intervention, called the Patient School (PS), organized within a psychiatry organization by employed patient peers with lived experience.
    METHODS: A qualitative case study based on interviews with people with mental health issues (n = 8), peer-organizers (n = 4) and healthcare professionals (n = 4), and documents such as schedules and educational materials were used. First, the interviews were transcribed and analyzed using inductive conventional content analysis. Second, the findings were synthesized into a programme theory, illustrated in a logic model.
    RESULTS: The perceived value of the PS was related to the willingness of peer-organizers to share their own experiences, a sense of belonging, sharing with like-minded and new knowledge, practical skills, roles and attitudes acquired. These experiences were empowering, decreased stigma and reassured user participants that one\'s identity is not defined by mental health issues. This increased self-confidence paves the way for increased self-management and creates a potential for a more efficient use of healthcare services.
    CONCLUSIONS: We conclude that this PS, organized within a psychiatry organization by salaried peers, achieved the same positive results as those reported in the literature and showed the value of having peer-organizers being part of the staff.
    UNASSIGNED: This research was performed in a partnership between academic researchers and persons with user experience of psychiatric services, engaged in the educational intervention in the focus of the study. The research plan was co-designed, and the analysis of the data collected was performed in collaboration. The participation of the co-researchers with user experience gave the project team access to the study site, provided the team with insights into to study context and contributed with an understanding promoting the interpretation of the findings.
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  • 文章类型: Journal Article
    UNASSIGNED: To explore in a primary care setting the associations between patients\' daily self-measured blood pressure (BP) during eight weeks and concurrent self-reported values of wellbeing, lifestyle, symptoms, and medication intake. We also explore these associations for men and women separately.
    UNASSIGNED: The study is a secondary post-hoc analysis of the randomised controlled trial PERson-centeredness in Hypertension management using Information Technology (PERHIT). The trial was conducted in primary health care in four regions in Southern Sweden.
    UNASSIGNED: Participants (n = 454) in the intervention group in the PERHIT-trial used an interactive web-based system for self-management of hypertension for eight consecutive weeks. Each evening, participants reported in the system their wellbeing, lifestyle, symptoms, and medication adherence as well as their self-measured BP and heart rate.
    UNASSIGNED: Association between self-reported BP and 10 self-report lifestyle-related variables.
    UNASSIGNED: Self-reported less stress and higher wellbeing were similarly associated with BP, with 1.0 mmHg lower systolic BP and 0.6/0.4 mmHg lower diastolic BP (p < 0.001). Adherence to medication had the greatest impact on BP levels (5.2/2.6 mmHg, p < 0.001). Restlessness and headache were also significantly associated with BP, but to a lesser extent. Physical activity was only significantly associated with BP levels for men, but not for women.
    UNASSIGNED: In hypertension management, it may be important to identify patients with high-stress levels and low wellbeing. The association between medication intake and BP was obvious, thus stressing the importance of medication adherence for patients with hypertension.
    Associations between daily home blood pressure (BP) and self-reports of lifestyle and symptoms have not been previously well explored.Self-reported higher wellbeing, lower restlessness, less stress, and higher medication adherence were significantly associated with lower same-day BP levels.Physical activity was significantly associated with same-day BP for men, but not for women.Using a hypertension management system may be a valuable tool for communication between the patient and physician.
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  • 文章类型: Journal Article
    背景:与工作相关的压力和倦怠仍然是员工中常见的问题,导致健康受损和缺勤率上升。使用移动健康应用程序来促进福祉已经大幅增长,然而,这些应用程序对减轻压力和防止倦怠的影响是有限的。
    目的:本研究旨在评估STAPP@Work的有效性,基于移动的压力管理干预,在感知到的压力上,心理健康员工应对自我效能感与职业倦怠水平的关系。
    方法:该研究使用单案例实验设计来检查在没有已知倦怠诊断的心理健康员工中使用STAPP@Work的情况(n=63)。参与者每月重复使用该应用程序一周,为期六个月。使用反转设计,参与者共使用该应用6次,以评估复制的即时(使用后1周)和持续(使用后3周)效果.感知压力量表,使用应对自我效能量表和倦怠评估工具来衡量结果。线性混合模型用于分析数据。
    结果:在每月使用应用程序六个月后,参与者在感知压力(b=-0.38,95%CI-0.67至-0.09;P=.01,d=0.50)和倦怠症状(b=-0.31,95%CI-0.51至-0.12;P=.002,d=0.63)方面表现出统计学上的显着下降。随着时间的推移,长期使用该应用程序可持续减少倦怠症状,包括疲惫和情绪障碍的程度。
    结论:使用基于应用程序的压力管理干预措施已被证明可以减少精神卫生工作者的倦怠症状并增强应对自我效能。预防倦怠和最大限度地减少工作压力对保护员工健康和减少缺勤至关重要。
    背景:
    BACKGROUND: Work-related stress and burnout remain common problems among employees, leading to impaired health and higher absenteeism. The use of mobile health apps to promote well-being has grown substantially; however, the impact of such apps on reducing stress and preventing burnout is limited.
    OBJECTIVE: This study aims to assess the effectiveness of STAPP@Work, a mobile-based stress management intervention, on perceived stress, coping self-efficacy, and the level of burnout among mental health employees.
    METHODS: The study used a single-case experimental design to examine the use of STAPP@Work among mental health employees without a known diagnosis of burnout (N=63). Participants used the app for 1 week per month repeatedly for a period of 6 months. Using a reversal design, the participants used the app 6 times to assess replicated immediate (1 week after use) and lasting (3 weeks after use) effects. The Perceived Stress Scale, the Coping Self-Efficacy Scale, and the Burnout Assessment Tool were used to measure the outcomes. Linear mixed models were used to analyze the data.
    RESULTS: After 6 months of app use for 1 week per month, the participants showed a statistically significant decrease in perceived stress (b=-0.38, 95% CI -0.67 to -0.09; P=.01; Cohen d=0.50) and burnout symptoms (b=-0.31, 95% CI -0.51 to -0.12; P=.002; Cohen d=0.63) as well as a statistically significant improvement in problem-focused coping self-efficacy (b=0.42, 95% CI 0-0.85; P=.049; Cohen d=0.42). Long-term use of the app provided consistent reductions in burnout symptoms over time, including in the level of exhaustion and emotional impairment.
    CONCLUSIONS: The use of an app-based stress management intervention has been shown to reduce burnout symptoms and enhance coping self-efficacy among mental health workers. Prevention of burnout and minimization of work-related stress are of utmost importance to protect employee health and reduce absenteeism.
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  • 文章类型: Journal Article
    背景:孕妇血糖与妊娠结局相关。因此,支持1型和2型糖尿病孕妇的自我管理经验和偏好对于优化血糖控制和围产期结局至关重要.
    方法:本文描述了序贯比较案例研究的混合方法集成。目标有三个方面,我们在整体混合方法设计中整合了定量和定性数据:(1)确定妊娠期血糖控制的预测因素;(2)了解既往糖尿病女性的孕期经历和糖尿病自我管理支持需求;(3)评估自我管理和支持经验如何有助于解释妊娠期糖尿病女性的血糖控制.混合的目的是整合定量和定性数据,以开发丰富的描述性案例,说明怀孕期间1型和2型糖尿病女性的糖尿病自我管理和支持经验和偏好如何帮助解释血糖控制。使用叙述方法将统计数据和主题编织在一起,并将定量结果与定性主题直观地集成在一起,以显示数据集成。
    结果:定量结果发现,女性达到了“目标”血糖控制(第三次就诊时队列的平均A1C:6.36%[95%置信区间6.11%,6.60%])。定性发现表明,恐惧感导致孤立和精神疲惫的怀孕。定量数据还表明,妇女报告的自我效能水平很高,在整个怀孕期间都在增加。定性数据显示,在怀孕期间努力优化血糖的女性对自我管理充满信心。然而,他们缺乏医疗团队的支持,特别是在分娩和分娩期间糖尿病的自我管理。
    结论:怀孕期间实现最佳血糖是出于对妊娠并发症的恐惧,并以牺牲妇女的心理健康为代价。心理健康支持,允许女性自主,并且提供同伴支持可能会改善怀孕期间糖尿病自我管理的经验。今后的工作应重点发展,评估和实施支持这些偏好的干预措施。
    BACKGROUND: Maternal glycemia is associated with pregnancy outcomes. Thus, supporting the self-management experiences and preferences of pregnant women with type 1 and type 2 diabetes is crucial to optimize glucose control and perinatal outcomes.
    METHODS: This paper describes the mixed methods integration of a sequential comparative case study. The objectives are threefold, as we integrated the quantitative and qualitative data within the overall mixed methods design: (1) to determine the predictors of glycemic control during pregnancy; (2) to understand the experience and diabetes self-management support needs during pregnancy among women with pre-existing diabetes; (3) to assess how self-management and support experiences helpe to explain glycemic control among women with pre-existing diabetes in pregnancy. The purpose of the mixing was to integrate the quantitative and qualitative data to develop rich descriptive cases of how diabetes self-management and support experiences and preferences in women with type 1 and type 2 diabetes during pregnancy help explain glucose control. A narrative approach was used to weave together the statistics and themes and the quantitative results were integrated visually alongside the qualitative themes to display the data integration.
    RESULTS: The quantitative results found that women achieved \"at target\" glucose control (mean A1C of the cohort by the third visit: 6.36% [95% Confidence Interval 6.11%, 6.60%]). The qualitative findings revealed that feelings of fear resulted in an isolating and mentally exhausting pregnancy. The quantitative data also indicated that women reported high levels of self-efficacy that increased throughout pregnancy. Qualitative data revealed that women who had worked hard to optimize glycemia during pregnancy were confident in their self-management. However, they lacked support from their healthcare team, particularly around self-management of diabetes during labour and delivery.
    CONCLUSIONS: The achievement of optimal glycemia during pregnancy was motivated by fear of pregnancy complications and came at a cost to women\'s mental health. Mental health support, allowing women autonomy, and the provision of peer support may improve the experience of diabetes self-management during pregnancy. Future work should focus on developing, evaluating and implementing interventions that support these preferences.
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  • 文章类型: Journal Article
    UNASSIGNED: To explore the feasibility of a non-pharmacological cough control therapy (CCT) customized for a client with interstitial lung disease (ILD).
    UNASSIGNED: An 83-year-old female with hypersensitivity pneumonitis, and chronic cough for 18 years treated previously with pharmacological treatment for the underlying lung disease and gastroesophageal reflux disease, as well as lozenges and breathing and relaxation strategies.
    UNASSIGNED: Four cough education and self-management sessions (45-60 minutes each) facilitated by a physiotherapist and speech-language pathologist via videoconference were conducted. Session topics included mechanisms of cough in ILD, breathing and larynx role in cough control, trigger identification, cough suppression and control strategies, and psychosocial support towards behaviour change using motivational interviewing.
    UNASSIGNED: The following assessments were conducted prior to and one week after the intervention: semi-structured interviews, Leicester Cough Questionnaire, King\'s Brief Interstitial Lung Disease questionnaire, Functional Assessment of Chronic Illness Therapy Fatigue Scale, modified Borg Scale for severity and intensity of cough, and the Global Rating of Change Questionnaire.
    UNASSIGNED: Implementing the CCT was feasible. The client reported increased perceived cough control, a reduction in exhaustion from coughing bouts, and a better understanding of the mechanisms behind cough management and suppression. Improvements were also observed in cough-related quality of life, severity, and intensity.
    UNASSIGNED: explorer la faisabilité d’un traitement non pharmacologique de contrôle de la toux adapté à une cliente atteinte de Pneumopathie interstitielle (PPD).
    UNASSIGNED: une femme de 83 ans atteinte d’une Pneumopathie d’hypersensibilité et d’une toux chronique depuis 18 ans, soignée auparavant par un traitement pharmacologique de la Pneumopathie sous-jacente et du reflux gastro-œsophagien pathologique, de même que par des pastilles et des stratégies de respiration et de relaxation.
    UNASSIGNED: un physiothérapeute et un orthophoniste ont facilité quatre séances d’éducation et d’autogestion de la toux (de 45 à 60 minutes chacune) par visioconférence. Les séances ont porté sur les mécanismes de la toux en cas de PPD, le rôle de la respiration et du larynx pour le contrôle de la toux, la détermination des déclencheurs, des stratégies de suppression et de contrôle de la toux et le soutien psychosocial pour un changement de comportement au moyen d’entrevues motivationnelles.
    UNASSIGNED: les évaluations suivantes ont été effectuées avant l’intervention, puis une semaine après: entrevues semi-structurées, questionnaire de Leicester sur la toux, court questionnaire de King sur la Pneumopathie interstitielle, échelle d’évaluation de la fatigue fonctionnelle découlant d’une maladie chronique, l’échelle de Borg modifiée pour la gravité et l’intensité de la toux et le questionnaire d’évaluation globale du changement.
    UNASSIGNED: la mise en œuvre du traitement de contrôle de la toux était faisable. La cliente avait la perception de mieux contrôler sa toux, d’être moins épuisée à cause des crises de toux et de mieux comprendre les mécanismes de gestion et de suppression de la toux. Elle a également observé des améliorations à sa qualité de vie liée à la toux ainsi qu’une diminution de la gravité et de l’intensité de la toux.
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  • DOI:
    文章类型: Journal Article
    目的:探讨自我管理手册结合个案管理模式在鼻咽癌放疗术后管理中的应用价值。
    方法:回顾性纳入2020年5月至2022年4月鹰潭市人民医院收治的84例鼻咽癌患者。分为实验组(接受自我管理手册结合病例管理模式方案,n=42)和对照组(接受常规鼻咽癌放疗后的持续管理,n=42)根据模式差异。癌症相关性疲劳[癌症疲劳量表(CFS)]舒适度状况[一般舒适度问卷(GCQ)],自我管理效能[人们促进健康的中国策略(C-SUPPH)],自我护理能力(自我护理能力测量),疼痛评分[视觉模拟评分(VAS)],放疗4周后,比较两组患者的生活质量[欧洲癌症研究和治疗组织QLQ-C30(EORTCQLQ-C30)]。记录两组患者的不良反应发生情况。结合定期审查和跟踪记录,分析两组患者的预后因素。
    结果:治疗后,身体疲劳评分(12.83±1.10),情绪疲劳(9.78±1.32),认知疲劳(5.62±1.31),实验组CFS总分(28.24±2.26)为12.83±1.10。对照组身体疲劳(13.90±1.25)分,情绪疲劳(10.55±1.40)分,认知疲劳(6.80±1.75)分,两组患者总CFS(31.33±2.59)分均低于治疗前。实验组低于对照组(P<0.05)。生理,心理,精神,社会文化,试验组环境评分高于对照组(均P<0.05)。健康知识的得分,自我护理技能,自我照顾的责任,实验组患者的自我概念评分均高于对照组(均P<0.05)。干预后,实验组VAS评分低于对照组(P<0.05)。干预后,与干预前相比,两组的EORTCQLQ-C30评分均显著升高.实验组评分明显高于对照组[(80.05±10.72)vs(68.11±12.10),P<0.05]。试验组术后(各种)不良反应均低于对照组(均P<0.05)。影响鼻咽癌患者预后的因素有年龄,肿瘤分期,干预模式经Cox模型分析(均P<0.05)。
    结论:自我管理手册结合个案管理模式可缓解癌症疲乏,提高术后自我管理能力,自理能力,鼻咽癌放疗患者的生活质量,减少不良反应的发生,改善患者预后。值得在临床上推广。
    OBJECTIVE: To explore the application value of the self-management manual combined with the case management model in postoperative management of nasopharyngeal carcinoma after radiotherapy.
    METHODS: Eighty-four patients with nasopharyngeal carcinoma admitted to Yingtan People\'s Hospital from May 2020 to April 2022 were retrospectively included in this study. They were divided into the experimental group (receiving self-management manual combined with case management mode scheme, n=42) and the control group (receiving continuous management after conventional nasopharyngeal carcinoma radiotherapy, n=42) according to mode differences. The cancer-related fatigue [Cancer Fatigue Scale (CFS)], comfort status [General Comfort Questionnaire (GCQ)], self-management efficacy [Chinese Strategies Used by People to Promote Health (C-SUPPH)], self-care ability (self-care ability measurement), pain score [Visual analogue scale (VAS)], and quality of life [European Organization for Research and Treatment of Cancer QLQ-C30 (EORTC QLQ-C30)] were compared between the two groups after 4 weeks of radiotherapy. The adverse reactions of the two groups were recorded. Combined with periodic review and follow-up records, the prognostic factors of the two groups of patients were analyzed.
    RESULTS: After treatment, the scores of physical fatigue (12.83±1.10), emotional fatigue (9.78±1.32), cognitive fatigue (5.62±1.31), and total score of CFS (28.24±2.26) in the experimental group were 12.83±1.10. The control group physical fatigue (13.90±1.25) points, emotional fatigue (10.55±1.40) points, cognitive fatigue (6.80±1.75) points, and total CFS (31.33±2.59) points in both groups were lower than before treatment. The experimental group was lower than the control group (ALL P<0.05). The physiological, psychological, spiritual, socio-cultural, and environmental scores of the experimental group were higher than those of the control group (all P<0.05). The scores of health knowledge, self-care skills, self-care responsibility, and self-concept score of patients in the experimental group were higher than the control group (all P<0.05). After intervention, the VAS score of the experimental group was lower than that of the control group (P<0.05). After intervention, the EORTC QLQ-C30 score of both groups increased significantly as compared with pre-intervention. The score in the experimental group was significantly higher than that in the control group [(80.05±10.72) vs (68.11±12.10), P<0.05]. Postoperative (various) adverse reactions in the experimental group were lower than the control group (all P<0.05). The factors influencing the prognosis of nasopharyngeal carcinoma patients were age, tumor stage, and intervention mode by Cox model analysis (all P<0.05).
    CONCLUSIONS: The self-management manual combined with the case management mode can alleviate cancer fatigue, improve postoperative self-management ability, self-care ability, and quality of life of patients with nasopharyngeal cancer radiotherapy, reduce the occurrence of adverse reactions and improve the prognosis of patients. It is worth promoting in clinical settings.
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  • 文章类型: Case Reports
    在脑震荡后持续症状的个体中,颈部被认为是头晕和头痛等症状的潜在发生器。解剖学上,颈部也可能是自主神经或脑神经症状的潜在触发因素。支配上咽的舌咽神经是一种可能的自主神经触发因素,可能会受到上颈椎的影响。
    这是一个病例系列,包括三个患有持续性创伤后头痛(PPTH)和自主神经失调症状的人,他们也有与某些颈部位置或运动相关的间歇性舌咽神经刺激的迹象。将生物力学原理应用于舌咽神经路径的解剖学研究,关于上颈椎和硬脑膜,缓解这些间歇性症状。为患者提供了技术,用作立即缓解间歇性吞咽困难的工具,这同时也缓解了持续的头痛。作为整体长期管理计划的一部分,患者还接受了每日锻炼,以改善上颈椎和硬脑膜的稳定性和活动能力。
    结果是间歇性吞咽困难减少,头痛,脑震荡后PPTH患者的长期自主神经症状。
    自主和吞咽困难症状可能为PPTH患者亚组的症状起源提供线索。
    The neck has been implicated as a potential generator of symptoms such as dizziness and headache in individuals with persistent symptoms post concussion. Anatomically, the neck could also be a potential trigger for autonomic or cranial nerve symptoms. The glossopharyngeal nerve which innervates the upper pharynx is one possible autonomic trigger that might be affected by the upper cervical spine.
    This is a case series of three individuals with persistent post-traumatic headache (PPTH) and symptoms of autonomic dysregulation who also had signs of intermittent glossopharyngeal nerve irritation associated with certain neck positions or movements. Biomechanical principles were applied to anatomical research on the path of the glossopharyngeal nerve, in relation to the upper cervical spine and the dura mater, to alleviate these intermittent symptoms. The patients were provided techniques to be used as tools to immediately alleviate the intermittent dysphagia, which also alleviated the constant headache at the same time. As part of the overall long-term management program, patients were also taught daily exercises to improve upper cervical and dural stability and mobility.
    The result was a decrease in intermittent dysphagia, headache, and autonomic symptoms in the long term in persons with PPTH following concussion.
    Autonomic and dysphagia symptoms may provide clues as to the origin of symptoms in a subgroup of individuals with PPTH.
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  • 文章类型: Journal Article
    背景:提高印度尼西亚儿童和年轻人的心理健康素养(IMPeTU)干预措施是共同制作的,基于证据的数字干预,旨在改善11-15岁人群的焦虑和抑郁心理健康素养和自我管理,印度尼西亚。本研究旨在评估可用性,我们干预的可行性和初步影响。
    方法:混合方法,基于变革理论的多站点案例研究。对一系列结果进行前后评估,并与儿童和年轻人进行定性访谈/焦点小组(CYP),父母和促进者。干预措施在8个卫生部门实施,跨Java的学校和社区网站,印度尼西亚(Megelang,雅加达和茂物)。描述性分析了旨在了解评估干预措施的影响和可行性的定量数据,这些数据是从78名使用干预措施的CYP收集的。来自56个CYP的访谈和焦点小组的定性数据,使用框架分析法对49名父母/照顾者和18名促进者进行了分析。
    结果:定性数据分析表明界面美学具有很高的可用性和可接受性,个性化,消息演示和导航。参与者报告了最小的负担,没有与干预相关的负面结果。CYP,父母和促进者确定了一系列干预措施参与的直接和溢出效应,其中一些在研究开始时没有预料到。定量数据强调了干预评估的可行性,在整个学习时间点具有高水平的招聘和保留。干预前后的结果变化最小,这可能部分是由于对定性数据中指出的干预机制缺乏量表相关性和/或敏感性。
    结论:数字心理健康素养应用可能是预防印度尼西亚CYP常见心理健康问题负担的一种可接受且可行的方法。在进行最终评估之前,我们的干预和评估过程将得到进一步完善。
    BACKGROUND: The Improving Mental Health Literacy Among Children and Young People in Indonesia (IMPeTUs) intervention is a co-produced, evidence-based digital intervention designed to improve anxiety and depression focused mental health literacy and self-management among people aged 11-15 in Java, Indonesia. This study aimed to evaluate the usability, feasibility and preliminary impact of our intervention.
    METHODS: Mixed methods, multi-site case studies based on a theory of change. Pre-and post-assessments of a range of outcomes and qualitative interviews/focus groups with children and young people (CYP), parents and facilitators. The intervention was implemented in 8 health, school and community sites across Java, Indonesia (Megelang, Jakarta and Bogor). Quantitative data designed to understand the impact of and feasibility of evaluating the intervention collected from 78 CYP who used the intervention were analysed descriptively. Qualitative data from interviews and focus groups collected from 56 CYP, 49 parents/caregivers and 18 facilitators were analysed using framework analysis.
    RESULTS: Qualitative data analysis indicated high levels of usability and acceptability for the interface aesthetic, personalisation, message presentation and navigation. Participants reported minimal burden and no negative outcomes associated with the intervention. CYP, parents and facilitators identified a range of direct and spill over effects of interventions engagement, some of which were not anticipated at study outset. Quantitative data highlighted the feasibility of intervention evaluation, with high levels of recruitment and retention across study time points. Minimal changes were identified in outcomes pre-to-post intervention, which may in part be due to a lack of scale relevance and/or sensitivity to the intervention mechanisms indicated in the qualitative data.
    CONCLUSIONS: Digital mental health literacy applications are potentially an acceptable and feasible way to prevent burdens of common mental health problems amongst CYP in Indonesia. Our intervention and evaluative processes will be further refined prior to definitive evaluation.
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