背景:患者报告结果(PRO)正在成为乳腺癌护理提供的质量标志。患者报告经验(PRE)同样重要,但定性研究和文献方面的挑战导致有关肿瘤增生保乳手术(OPBCS)的数据有限.这项定性研究旨在探讨接受OPBCS的患者的经历。
方法:对2015年至2021年在乌普萨拉大学医院乳腺科接受OPBCS的女性进行纵向随访。所有参与者都被邀请通过日记分享他们在PRO之外的经验。\“患者\”护理经验,术前和术后,以及他们认为重要的其他见解和想法被记录下来并进行了分析。叙事研究方法,随着主题分析,被雇用。
结果:在122名女性中,60人(49.2%)希望进一步阐述他们在专业人员相关方面之外的经验。最常见的主题包括术后副作用,应对问卷的挑战,辅助治疗的不良反应,影响术前和术后整体健康状况的外部因素,以及对手术和医务人员的满意度。具体来说,26.7%的受访者表示,他们认为专业人员不够具体,有进一步的思考。
结论:根据手术技术,患者没有报告不同的经历。他们的经验集中在PRO问卷中对整体性和潜在歧义的看法。记录PRE至关重要,因为它可以在乳腺癌治疗后进行个性化评估,从而加强以病人为中心的护理。
BACKGROUND: Patient-reported outcomes (
PROs) are emerging as a quality marker for breast cancer care provision. Patient-reported experience (PRE) is equally important, but challenges in qualitative research and documentation have resulted in limited data on oncoplastic breast-conserving surgery (OPBCS). This qualitative study aimed to explore the experiences of patients who underwent OPBCS.
METHODS: Women who underwent OPBCS between 2015 and 2021 at the Breast Unit of Uppsala University Hospital were followed up longitudinally using
PROs. All participants were invited to share their experiences beyond
PROs through a \"diary.\" Patients\' experiences with care, pre- and postoperatively, and other insights and thoughts that they considered important were documented and analyzed. A narrative research methodology, along with thematic analysis, was employed.
RESULTS: Of the 122 women, 60 (49.2 %) desired to further elaborate on their experiences beyond
PROs-related aspects. The most common themes included postoperative side effects, challenges responding to questionnaires, adverse effects of adjuvant treatment, external factors contributing to the preoperative and postoperative overall health status, and satisfaction with the surgery and medical staff. Specifically, 26.7 % of the respondents stated that they felt that
PROs were not adequately specific and had further reflections.
CONCLUSIONS: Patients did not report different experiences depending on the operative technique. Their experience focused on the perception of wholeness and potential ambiguities in the PRO questionnaires. Documenting PRE is crucial, as it enables individualized assessment following breast cancer treatment, thereby strengthening patient-centered care.