paternalism

家长制
  • 文章类型: Journal Article
    背景:当一个人接近生命的尽头时,文化和种族越来越多地推动护理的偏好和优先事项。了解这些偏好和优先事项对于医疗保健专业人员的目标至关重要,即在整个生命阶段尊重决策并支持个人。在整个非洲,一些国家正处于在其新兴的医疗保健系统中实施姑息治疗服务的初始阶段。往前走,与西方世界相比,必须考虑文化的相似性和差异性,姑息治疗领域的发展,创建符合非洲文化的量身定制的姑息治疗方法。在姑息治疗中,了解文化偏好和优先事项需要患者和提供者之间的沟通,这是在非洲成功实施的关键一步。家长式的患者-提供者关系是撒哈拉以南非洲当前的主要模式。1目的:这篇叙述性综述探讨了家长式的普遍性,并探讨了其在撒哈拉以南非洲国家姑息治疗的当前应用中的适当性和必要性。方法:使用四个数据库以及从已选择的文章的参考文献中获取相关文章的手工搜索进行叙事回顾。共识别出730篇文章。14篇文章符合本叙述性审查的纳入/排除标准。结果:在撒哈拉以南非洲,主要的患者-提供者关系被确定为家长式。原因是语言,教育,文化规范和期望,缺乏时间,和仁慈。结论:姑息治疗的实施通常依赖于患者愿望和目标的沟通。需要考虑确定提供者如何在家长式关系中适当地了解这些因素。
    Background: As a person nears the end of their life, culture and ethnicity increasingly drive preferences and priorities for care. Understanding these preferences and priorities is fundamental to health care professionals\' goals to respect decision making and support the individual throughout this phase of life. Across Africa, several countries are in the initial stages of implementing palliative care services in their burgeoning health care systems. Moving forward, it is imperative to consider cultural similarities and differences when compared with the Western world, where the field of palliative care evolved, to create a tailored palliative care approach that is consistent with African culture. In palliative care, understanding cultural preferences and priorities requires communication between the patient and the provider and is a crucial step toward a successful implementation in Africa. A paternalistic patient-provider relationship is the current leading model in sub-Saharan Africa.1 Aim: This narrative review explores the prevalence of paternalism and explores its appropriateness and necessity in the current application of palliative care in sub-Saharan African countries. Methods: This narrative review was conducted using four databases as well as hand searching of relevant articles sourced from references of already selected articles. A total of 730 articles were identified. Fourteen articles met the inclusion/exclusion criteria set for this narrative review. Results: In sub-Saharan Africa, the leading patient-provider relationship was determined to be paternalistic. Reasons for this were language, education, cultural norms and expectations, lack of time, and benevolence. Conclusions: The implementation of palliative care often relies on communication of patient desires and goals. Consideration is needed to determine how a provider can appropriately know these factors in a paternalistic relationship.
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  • 文章类型: Journal Article
    经常观察到利益相关者之间缺乏共识,导致严重冲突,因为他们各自在ICU的报废(EOL)决策中的作用。由于这些决定的负担在于个人,他们的意见必须由医生知道,司法,立法,和政府当局。解决出现的问题的部分方法是审查和理解不同社会中人民的观点。因此,在这次系统审查中,我们评估了医生的态度,护士,家庭,以及公众对谁应该参与决策和影响因素。为此,我们搜索了三个电子数据库,即,PubMed,CINAHL(护理和相关健康累积指数),和Embase。开发了一个矩阵,讨论,接受,并由两名独立的研究者用于数据提取。使用纽卡斯尔-渥太华量表评估研究质量。数据由一名研究人员提取,并由另一名研究人员双重检查,与第三位研究员讨论了任何差异。根据系统审查和荟萃分析(PRISMA)指南的首选报告项目对数据进行描述性分析和综合。33项研究符合我们的纳入标准。大多数涉及医疗保健专业人员,并报告了不同时间范围内的地理差异。虽然家长式的特征已经被观察到,医生总体上表现出了合作决策的倾向。相应地,护理人员,家庭,公众对病人和亲属的参与是一致的,护士也表达了自己的参与。确定了六类影响因素,具有高影响因素,包括人口统计,害怕诉讼,和监管相关的。调查结果描绘了三个关键点。首先,整体利益相关者对ICU中EOL决策的看法似乎倾向于更协作的决策方向。其次,为了减少冲突并达成共识,医疗保健专业人员和政府/监管机构都需要多方面的努力。最后,由于主题的多因素复杂性,与人口和监管因素直接相关,应该在区域一级更广泛地寻求这些努力。
    A lack of consensus resulting in severe conflicts is often observed between the stakeholders regarding their respective roles in end-of-life (EOL) decision-making in the ICU. Since the burden of these decisions lies upon the individuals, their opinions must be known by medical, judicial, legislative, and governmental authorities. Part of the solution to the issues that arise would be to examine and understand the views of the people in different societies. Hence, in this systematic review, we assessed the attitudes of the physicians, nurses, families, and the general public toward who should be involved in decision-making and influencing factors. Toward this, we searched three electronic databases, i.e., PubMed, CINAHL (Cumulative Index to Nursing & Allied Health), and Embase. A matrix was developed, discussed, accepted, and used for data extraction by two independent investigators. Study quality was evaluated using the Newcastle-Ottawa Scale. Data were extracted by one researcher and double-checked by a second one, and any discrepancies were discussed with a third researcher. The data were analyzed descriptively and synthesized according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Thirty-three studies met our inclusion criteria. Most involved healthcare professionals and reported geographic variations in different timeframes. While paternalistic features have been observed, physicians overall showed an inclination toward collaborative decision-making. Correspondingly, the nursing staff, families, and the public are aligned toward patient and relatives\' participation, with nurses expressing their own involvement as well. Six categories of influencing factors were identified, with high-impact factors, including demographics, fear of litigation, and regulation-related ones. Findings delineate three key points. Firstly, overall stakeholders\' perspectives toward EOL decision-making in the ICU seem to be leaning toward a more collaborative decision-making direction. Secondly, to reduce conflicts and reach a consensus, multifaceted efforts are needed by both healthcare professionals and governmental/regulatory authorities. Finally, due to the multifactorial complexity of the subject, directly related to demographic and regulatory factors, these efforts should be more extensively sought at a regional level.
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  • 文章类型: English Abstract
    UNASSIGNED:尊重自主性是医学和护理伦理学的指导原则之一。疗养院居民是一个特别相关的目标群体,其自主权可能受到威胁或侵犯。
    UNASSIGNED:该研究旨在确定危害或违反疗养院居民自治的因素,并确定这些因素所在的特定生活情况和环境。
    UNASSIGNED:根据JoannaBriggs研究所的方法进行了范围审查。纳入了2000-2021年发表期期刊论文的实证结果。对文章进行了定性内容分析。
    UNASSIGNED:最终共有75篇文章被纳入审查。确定的危及和侵犯自主权的因素被分配到行为者一级的主题领域,(关心)关系和结构。在居民的整个日常生活中发现了可能侵犯或危害居民自治的因素。
    UNASSIGNED:在各种行为者和结构层面上对已确定的危害/违法行为的本地化表明,需要全面保护和促进养老院居民的自主权。
    UNASSIGNED: Respecting autonomy is one of the guiding principles of medical and nursing ethics. Nursing home residents represent a particularly relevant target group whose autonomy can be endangered or violated.
    UNASSIGNED: The study aimed to identify factors that endanger or violate the nursing home residents\' autonomy and to determine specific life situations and contexts in which these factors are located.
    UNASSIGNED: A scoping review was carried out according to the Joanna Briggs Institute-method. Empirical results from journal articles from the publication period 2000-2021 were included. The articles were analyzed using qualitative content analysis.
    UNASSIGNED: A total of 75 articles were finally included in the review. Identified factors of the endangerment and violation of autonomy are assigned to topic areas located at the level of actors, (care) relationships and structures. Factors that can violate or endanger the residents\' autonomy were found in the entire everyday life of the residents.
    UNASSIGNED: The localization of the identified endangerments/violations on various actor and structural levels indicates the need for comprehensive preservation and promotion of residents\' autonomy in nursing homes.
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  • 文章类型: Journal Article
    目的:回顾迄今为止有关实施预先保健指示的全球文献,以及必须围绕提前护理计划展开讨论的医疗保健专业人员的经验,以及支持患者的最终决定。
    背景:爱尔兰的《2015年辅助决策(能力)法》使高级医疗保健指令合法化。它促进了个人的自主权,并使他们能够根据自己的意愿和喜好接受治疗。然而,在如何支持和整合辅助决策方面存在专业不确定性。
    结果:纳入了以卫生保健专业人员观点为特征的16项研究,并使用“效益与挑战”的框架进行了评估。
    在审查过程中明确出现了四个主题:能力和谁来决定的概念;医疗保健专业人员/患者/家庭护理人员三合会之间的自主权与家长制冲突;推进指令的障碍;和时间问题。
    结论:提前的医疗保健指令对所有各方都有显著的好处,包括减少患者和家庭的压力,为幸存的亲属减少负担和剩余罪恶感,以及对“危机”决策的全面预防。
    结论:这篇综述强调了护士在赋予患者表达意愿和偏好方面的核心作用。支持患者对自己的护理做出决定的能力,发起临终护理讨论,并倡导承认提前的医疗保健指令。此外,它确定了所有护士管理人员在执行这项新任务时面临的挑战。
    OBJECTIVE: To review the global literature on the implementation of advance health care directives to date, and the experiences of the health care professionals who must initiate the discussions around advance care planning, as well as support patients\' ultimate decisions.
    BACKGROUND: Ireland\'s Assisted Decision-Making (Capacity) Act 2015 legalizes advance health care directives. It promotes the autonomy of the person and enables them to have treatment in accordance with their will and preferences. However, there is professional uncertainty on how to support and integrate assisted decision-making.
    RESULTS: 16 studies featuring the views of health care professionals are included and evaluated using a framework of \'benefits versus challenges\'.
    UNASSIGNED: Four themes clearly emerge during the review process: the concept of capacity and who decides; autonomy versus paternalism-conflict among the health care professional/patient/family caregiver triad; barriers to advance directives; and timing issues.
    CONCLUSIONS: Significant benefits of advance health care directives exist for all parties including less stress for patients and families alike, less burden and less residual guilt for surviving relatives, and an over-arching prevention of \'crisis\' decision-making.
    CONCLUSIONS: This review highlights the central role of the nurse in empowering patients to express their wills and preferences, supporting patients\' capacity to make decisions about their own care, initiating end-of-life care discussions and advocating to have advance health care directives acknowledged. Moreover, it identifies the challenges ahead for all nurse managers in implementing this new mandate.
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  • 文章类型: Journal Article
    Nudging is the purposeful alteration of choices presented to people that aims to make them choose in predicted ways. While nudging has been used to assure high uptake and good outcome of screening programs, it has been criticized for being paternalistic, undermining free choice, and shared decision making. Accordingly, the objective of this study is to explore a) nudging strategies identified in screening, b) arguments for and against nudging; and on basis of this, to c) suggest a tentative conclusion on how to handle nudging in screening.
    Literature searches in Ovid MEDLINE and PsycINFO for combinations of screening and nudging. Screening based on content analysis of titles, abstracts, and articles.
    239 references were identified and 109 were included. Several forms of nudging were identified: framed information, default bias, or authority bias. Uptake and public health outcome were the most important goals. Arguments for nudging were bounded rationality, unavoidability, and beneficence, while lack of transparency, crowding out of intrinsic values, and paternalism were arguments against it. The analysis indicates that nudging can be acceptable for screenings with (high quality) evidence for high benefit-harm ratio (beneficence), where nudging does not infringe other ethical principles, such as justice and non-maleficence. In particular, nudging should not only focus on attendance rates, but also on making people \"better choosers.\"
    Four specific recommendations follow from the review and the analysis: 1) Nudging should be addressed in an explicit and transparent manner. 2) The means of nudging have to be in proportion to the benefit-harm ratio. 3) Disagreement on the evidence for either benefits or harms warrants special care. 4) Assessing and assuring the intended outcome of nudging appears to be crucial, as it can be context dependent.
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  • DOI:
    文章类型: Journal Article
    As medical technology has advanced, the question of medical futility has become a topic of intense debate both within the medical community and within society as a whole. However, a unanimous definition thereof is yet to be decided-some commentators are sceptical as to whether an agreement will ever be reached-and this continues to lead to difficulties, tension, and even legal action when a treating physician disagrees with a patient and/or a patient\'s family regarding care and treatment options. Although living in a pluralistic society presents one of the major reasons as to why, despite 30 years of intense discussion, no consensus has been made; the issue of medical futility will always be complex as it is, by nature, multifaceted, and numerous elements-including possible risks, evidence of the probability of benefit, the wishes of the patient (and family), professional standards, and cost-interact. Nevertheless, the global medical community has seen the development of two distinctly different approaches to medical futility: one in which the autonomy of patients is of paramount importance in the decision whether or not to pursue a treatment; and one in which beneficence and primum non nocere-first do no harm-are almost entirely the clinician\'s prerogative, and whereby he/she has a duty to refuse any treatment for which the potential risks outweigh the potential benefits for the patient. Recently, however, there has been a rejection of this dichotomous view of medical futility and the apparent \"power struggle\" between physician and patient, and a positive movement towards a more collaborative decision-making process that highlights the necessity of communication, aiming to result in the obtainment of the best possible outcome for each patient as an individual.
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  • 文章类型: Journal Article
    In this article we will review the benefits of a system built on partnership of physicians and their patients, highlight some of the factors which impede this transition, and propose ways to address these factors. Also, we are going to analyze the educational environment in Bosnia and Herzegovina and Croatia concerning ethics and communication skills. Personal responsibility of patients for their health should be reflected in their joint involvement in health decisions with their physicians. Patients, insecure about their individual competence surrounding their health decisions, tend to shy away from responsibility, whereas physicians, pressured by the responsibilities of the profession, do not always show sensitivity to all of the patient\'s concerns. They often treat illnesses instead of patients. A more open and collaborative relationship between the patient and the physician through shared decision making would be a better alternative. In the end, the patient ultimately decides whether a health intervention was satisfactory in fulfilling his or her specific needs. Transition from a paternalistic to a mutual relationship between doctors and patients has already begun. In an era of intense information sharing, shared decision making is a sensitive, ethical, legal, and political concept which needs empathic doctors with well-developed communication skills to integrate their clinical knowledge with patient-centered care.
    CONCLUSIONS: Transition from paternalistic to partner relation between physicians and patients is moving slowly ahead in Croatia and Bosnia and Herzegovina. Educational environment is improving but needs intense efforts to develop further.
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  • DOI:
    文章类型: Letter
    暂无摘要。
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  • 文章类型: Journal Article
    This paper offers a non-paternalistic justification for prospective research review as providing a credible social assurance that the institutions of scientific advancement respect and affirm the moral equality of all community members and as creating a \"market\" in which stakeholders working to advance diverse ends also advance the common good.
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  • 文章类型: Journal Article
    The main trends of the bioethics development in Belarus have been analyzed on the basis of the materials collected by the Ethics Documentation Center (ISEU, Minsk, Belarus). A critical review of the most important publications in the field since 2000 suggests that development of bioethics in Belarus has occurred in two parallel directions distantly connected to each other: a theoretical direction and a practical one. Despite there are objective and subjective reasons for introducing bioethics in Belarus as an institutionally-organized system based on liberal values such as individual rights and freedom, a range of essential problems could be identified. Non-equivalent regulation of ethical issues in health care and other fields of biomedical research has been emphasized, as well as the problem of unclear hierarchical relationships among institutions dealing with various aspects of bioethics in the country and low ethical and educational level of the social and professional groups involved in further expansion of bioethical knowledge. The contextual aspects of the development of bioethics in the country such as the consequences of the Chernobyl disaster, the prevalence of the authoritarian social morality and traditionally paternalistic nature of the relations between physicians and their patients are discussed.
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