背景:研究表明,一些移民妇女在围产期的死亡率和发病率增加;然而,在共同制作的研究中,以改善护理存在差距。英国国家健康与护理研究所(NIHR)将联合生产定义为“一种研究人员的方法,从业者,和公众一起工作,分享权力和责任。“我们总结从我们的研究中学到的东西,旨在共同制定解决方案,以改善英国移民妇女的生育护理,通过与女性合作来确定最重要的研究重点。
方法:我们招募了18名在过去15年内在英国分娩的、服务不足的移民妇女,以创建患者咨询小组。他们是通过国家和地方非政府组织和滚雪球抽样招募的,使用有目的的方法来确保来自不同背景的代表,包括那些难民,寻求庇护者,和无证件。服务不足被定义为寻求庇护,难民,无证,或低收入母亲(那些经历无家可归或接受福利支持的人)。妇女参与了概念化,分析,和项目的传播。该项目是英国国家健康与护理研究所(NIHR)博士奖学金项目,为期3年,具有各种研究工作流程。
结果:研究经费申请程序于1月开始,2021年,该项目获得资助并于11月开始,2022年。研究小组努力获得关于联合制作的全面培训,特别是在如何对抗动力动态。我们任命了一名首席患者顾问,负责管理学者和患者顾问之间的关系。此外,我们偿还妇女的时间,托儿服务,和旅行。我们发现在线会议更可取,因为女性不需要旅行或安排托儿服务。我们每年与患者咨询小组会面四次。一些妇女直接参与了研究,如系统审查筛选和定性访谈,并接受了研究培训。我们最初的研究重点与女性的研究重点不一致,这帮助我们重塑了我们的工作。妇女说,拥有首席患者顾问使参与变得更容易,特别是一些问题是创伤性的。为了缓解这种情况,我们提供了支持资源和汇报。使用在线口译员一直很有挑战性,我们最近分成不同的语言组,以最大限度地提高参与度。
结论:总体而言,作为研究人员,我们了解到,采取真正的共同生产方法是耗时的,但确保我们的研究优先考虑移民妇女在英国分娩的观点。
背景:美国国立卫生与护理研究所(NIHR)。
BACKGROUND: Research suggests some migrant women are at increased risk of mortality and morbidity in the perinatal period; however, there is a gap in co-produced research to improve care. The UK National Institute for Health and Care Research (NIHR) defines co-production as \"an approach in which researchers, practitioners, and members of the public work together, sharing power and responsibility\". We summarise learnings from our study, which aimed to co-produce solutions to improve maternity care for migrant women in the UK, by working with women to identify the most important research priorities.
METHODS: We recruited 18 underserved migrant women living in the UK who had given birth in the UK within the past 15 years to create a patient advisory panel. They were recruited via national and local non-governmental organisations and snowball sampling using purposive methods to ensure representation from a range of backgrounds, including those who were refugees, asylum seekers, and undocumented. Underserved was defined as asylum seeking, refugee, undocumented, or low-income mothers (those who were experiencing homelessness or in receipt of welfare support). The women are involved in conceptualisation, analysis, and dissemination of the project. The project is a UK National Institute of Health and Care Research (NIHR) Doctoral Fellowship project lasting 3 years with a variety of research workstreams.
RESULTS: The research funding application process began in January, 2021, and the project was funded and began in November, 2022. The research team struggled to access comprehensive training on co-production, particularly in how to counter power dynamics. We appointed a Lead Patient Advisor who manages the relationship between the academics and the patient advisors. Additionally, we reimburse women\'s time, childcare, and travel. We have found that online meetings are preferable, as women do not need to travel or arrange childcare. We meet our patient advisory panel four times per year. Some women have been directly involved in research such as systematic review screening and qualitative interviewing and have been given research training. Our initial research priorities did not align with those of the women, and this helped us to reshape our work. Women said that having a Lead Patient Advisor made it easier to participate, particularly as some issues are traumatic. To mitigate this, we have offered support resources and debriefing. Using online interpreters has been challenging, and we have recently split into different language groups to maximise engagement.
CONCLUSIONS: Overall, as researchers, we have learned that taking a truly co-produced approach is time-consuming but has ensured our research prioritises the views of migrant women giving birth in the UK.
BACKGROUND: National Institute for Health and Care Research (NIHR).