information seeking

信息搜寻
  • 文章类型: Journal Article
    在怀孕和早育期间,父母对儿科健康信息的浓厚兴趣为积极影响长期寻求健康行为和整体儿童健康提供了宝贵的机会。随着数字化转型的日益普及,进行了范围审查,以探讨两个关键方面:(1)移民父母中数字健康信息的信息寻求和使用,(2)相关原因和因素。使用WebofScience进行的文献检索涵盖了直到2022年7月的时期,MEDLINE,和CINAHL完整数据库。在625篇文章中,包括12个,包括六个定性的,五项定量研究,和一个审查。大多数研究集中在北美的移民,主要来自拉丁美洲和亚洲。这些研究的主题和方法各不相同,这使得得出一般性结论具有挑战性。然而,虽然大多数移民父母依赖儿童健康的数字信息,他们通常更喜欢人类来源,如家庭,朋友,或医疗保健提供者。可信性和可访问性成为卫生资源的关键标准。两个焦点小组讨论,从审查结果中得出,为瑞士的移民母亲证实了这些发现。
    During pregnancy and early parenthood, parents\' strong interest in pediatric health information presents a valuable opportunity to positively impact long-term health-seeking behavior and overall child health. In line with the increasing prevalence of digital transformation, a scoping review was conducted to explore two key aspects: (1) information seeking and use of digital health information among immigrant parents, and (2) associated reasons and factors. The literature search covered the period until July 2022, using Web of Science, MEDLINE, and CINAHL Complete databases. Out of 625 articles, 12 were included, comprising six qualitative, five quantitative studies, and one review. The majority of studies focused on immigrants in North America, primarily from Latin America and Asia. The studies varied in topics and methodologies, making it challenging to draw general conclusions. Nevertheless, while most immigrant parents rely on digital information on child health, they often prefer human sources such as family, friends, or healthcare providers. Trustworthiness and accessibility emerged as critical criteria for health resources. Two focus group discussions, derived from the results of the review, confirmed these findings for migrant mothers in Switzerland.
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  • 文章类型: Journal Article
    先前的研究已经确定了抑郁症和焦虑症患者的大量未满足的信息需求。关于这种疾病的足够信息,治疗,可用服务,自我管理的策略至关重要,因为它可能会影响护理质量和患者的生活质量。此范围审查旨在提供抑郁症和焦虑症患者的信息需求以及他们用于寻求这些信息的来源的广泛概述。
    我们纳入了所有以英文发表的主要研究,这些研究调查了抑郁症或焦虑症患者的信息需求或信息来源,对研究设计没有任何限制,location,设置,或参与者特征。六个电子数据库(MEDLINE,Embase,PsycINFO,CINAHL,利斯塔,在WebofScience)和灰色文献(Google和GoogleScholar)中搜索了截至2021年11月发表的相关研究。两名审稿人独立筛选文章并提取数据。进行了叙事综合以确定信息需求和信息来源的关键主题。还确定了与信息需求/来源相关的因素,例如人口统计学变量和症状严重程度。
    纳入了56项研究(包括8320名参与者)。信息需求分为七个主题,包括一般事实,治疗,生活经验,医疗保健服务,应对,财务/法律,和其他信息。抑郁症和焦虑症患者最常报告的需求是一般事实和治疗信息。自我报告抑郁/焦虑症状的亚临床样本似乎对治疗信息的兴趣低于有临床诊断的患者。信息来源分为五类:卫生专业人员,书面材料,媒体,人际交往,和组织资源。卫生专业人员和媒体(包括互联网)是最经常采用和首选的来源。尽管很少有研究研究与信息需求和信息来源相关的因素,有初步证据表明症状严重程度和疾病亚型与信息需求/来源有关,而关于人口统计学因素的研究结果参差不齐。
    抑郁和焦虑患者的信息需求似乎很高。未来的研究应该检查亚组之间的差异和相关因素,如治疗过程。还需要个性化信息提供策略来根据个人需求和患者概况定制信息。
    此范围审查的协议已在OpenScienceFramework(OSF;链接:https://doi.org/10.17605/OSF上注册。IO/DF2M6)。
    BACKGROUND: Previous studies have identified substantial unmet information needs in people with depression and anxiety. Sufficient information about the disorder, treatment, available services, and strategies for self-management is essential as it may influence quality of care and patients\' quality of life. This scoping review aimed to provide a broad overview of information needs of people with depression and anxiety as well as the sources that they use to seek this information.
    METHODS: We included all primary research published in English that investigated information needs or information sources in people with depression or anxiety, with no restrictions imposed on the study design, location, setting, or participant characteristics. Six electronic databases (MEDLINE, Embase, PsycINFO, CINAHL, LISTA, Web of Science) and the grey literature (Google and Google Scholar) were searched for relevant studies published up to November 2021. Two reviewers independently screened articles and extracted data. Narrative synthesis was performed to identify key themes of information needs and information sources. Factors associated with information needs/sources such as demographic variables and symptom severity were also identified.
    RESULTS: Fifty-six studies (comprising 8320 participants) were included. Information needs were categorised into seven themes, including general facts, treatment, lived experience, healthcare services, coping, financial/legal, and other information. The most frequently reported needs in both people with depression and anxiety were general facts and treatment information. Subclinical samples who self-reported depressive/anxious symptoms appeared less interested in treatment information than patients with clinical diagnoses. Information sources were summarised into five categories: health professionals, written materials, media, interpersonal interactions, and organisational resources. Health professionals and media (including the internet) were the most frequently adopted and preferred sources. Although few studies have examined factors associated with information needs and information sources, there is preliminary evidence that symptom severity and disease subtypes are related to information needs/sources, whereas findings on demographic factors were mixed.
    CONCLUSIONS: Information needs appear to be high in people with depression and anxiety. Future research should examine differences between subgroups and associated factors such as the treatment course. Personalised information provision strategies are also needed to customise information according to individual needs and patient profiles.
    BACKGROUND: The protocol of this scoping review was registered on Open Science Framework (OSF; link: https://doi.org/10.17605/OSF.IO/DF2M6 ).
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  • 文章类型: Journal Article
    背景:老年人通过随意的互联网搜索寻求与健康相关的信息。然而,研究人员将重点放在同行评审的期刊和会议演示文稿上,作为主要的传播策略。大众媒体的代表被警告(被动扩散)新的研究或建议,但是共享信息的真实性并不经常被分析,当它是,分析往往不全面。然而,大多数老年人无法获得同行评审的期刊文章或更有信誉的媒体的付费订阅服务。
    目的:我们旨在确定哪些信息是现成的(即,开放访问)给可以随便在互联网上搜索体育活动建议的老年人。
    方法:我们进行了6个部分的范围审查,以确定研究问题和现有证据,并使用流行的在线搜索引擎在开放获取的热门歌曲中提取数据。结果按具有来源类别的传播模型进行分类,频道,观众,和信息。
    结果:在迭代搜索过程之后,包括92篇独特的文章并进行了编码。只有5个(5%)引用了体育锻炼指南,大多数被编码为促进健康衰老(82/92,89%)和阳性框架(84/92,91%)。大多数文章被认为是有教育意义的,但作者的证书很少被报道(即,22%的时间)。很少报道老年人身体活动指南中的肌肉加强和平衡成分(72/92,78%和80/92,87%,分别)或报告不准确(3/92,3%和3/92,3%,分别)。
    结论:不一致的信息导致对科学和公共卫生代表的不信任。这项工作强调了现有开放获取资源中缺乏证据。需要进一步努力,以确保基于证据的公共卫生信息存在于老年人使用的来源和渠道中,以告知他们的知识和行为。
    BACKGROUND: Older adults seek health-related information through casual internet searches. Yet, researchers focus on peer-reviewed journals and conference presentations as primary dissemination strategies. Representatives of mass media are alerted (passive diffusion) of new studies or recommendations, but the veracity of the information shared is not often analyzed, and when it is, the analysis is often not comprehensive. However, most older adults do not have access to peer-reviewed journal articles or paid subscription services for more reputable media outlets.
    OBJECTIVE: We aimed to determine what information was readily available (ie, open access) to older adults who may casually search the internet for physical activity recommendations.
    METHODS: We performed a 6-part scoping review to determine the research question and available evidence, and extract data within open-access top hits using popular online search engines. Results were categorized by a dissemination model that has categories of sources, channels, audience, and messages.
    RESULTS: After the iterative search process, 92 unique articles were included and coded. Only 5 (5%) cited physical activity guidelines, and most were coded as promoting healthy aging (82/92, 89%) and positive framing (84/92, 91%). Most articles were posed as educational, but the authors\' credentials were rarely reported (ie, 22% of the time). Muscle strengthening and balance components of the physical activity guidelines for older adults were rarely reported (72/92, 78% and 80/92, 87%, respectively) or inaccurately reported (3/92, 3% and 3/92, 3%, respectively).
    CONCLUSIONS: Inconsistent messages lead to mistrust of science and public health representatives. This work highlights the lack of evidence within existing open-access resources. Further efforts are needed to ensure evidence-based public health messages are in the sources and channels older adults are using to inform their knowledge and behaviors.
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  • 文章类型: Journal Article
    People engage in health information-seeking behavior to support health outcomes, and being able to predict such behavior can inform the development of interventions to guide effective health information seeking. Obtaining a comprehensive list of the predictors of health information-seeking behavior through a systematic search of the literature and exploring the interrelationship of these predictors are critical first steps in this process.
    This study aims to identify significant predictors of health information-seeking behavior in the primary literature, develop a common taxonomy for these predictors, and identify the evolution of the concerned research field.
    A systematic search of PsycINFO, Scopus, and PubMed was conducted for all years up to and including December 10, 2019. Quantitative studies identifying significant predictors of health information-seeking behavior were included. Information seeking was broadly defined and not restricted to any source of health information. Data extraction of significant predictors was performed by 2 authors, and network analysis was conducted to observe the relationships between predictors with time.
    A total of 9549 articles were retrieved, and after the screening, 344 studies were retained for analysis. A total of 1595 significant predictors were identified. These predictors were categorized into 67 predictor categories, with the most central predictors being age, education, gender, health condition, and financial income. With time, the interrelationship of predictors in the network became denser, with the growth of new predictor grouping reaching saturation (1 new predictor identified) in the past 7 years, despite increasing publication rates.
    A common taxonomy was developed to classify 67 significant predictors of health information-seeking behavior. A time-aggregated network method was developed to track the evolution of the research field, showing the maturation of new predictor terms and an increase in primary studies reporting multiple significant predictors of health information-seeking behavior. The literature has evolved with a decreased characterization of novel predictors of health information-seeking behavior. In contrast, we identified a parallel increase in the complexity of predicting health information-seeking behavior, with an increase in the literature describing multiple significant predictors.
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  • 文章类型: Journal Article
    Health information and access to it are important aspects of maintaining health. There are 61 million people with disability in the U.S., many of whom experience health disparities. However, it may not be clear to health professionals how people with disability seek health information.
    Assess the breadth, examine the characteristics, and evaluate the risk of bias in the existing literature related to health information seeking and people with disability.
    The authors conducted a systematic search across five databases (Pubmed, Scopus, PsycINFO, HealthSTAR, and CINAHL) to identify empirical journal articles related to health information seeking among people with disability. Analysis of data items and a quality assessment were completed.
    Forty-two articles met the criteria for inclusion and were assessed. The articles primarily used survey methodology (50%), and primarily focused on ten disability types, including MS (19%), CP (17%) and general disability (17%). The articles primarily investigated the internet (88%), and healthcare providers (71%) as sources of health information. Trustworthiness (31%), accuracy (29%), and accessibility (29%) were also commonly assessed. The overall quality was high, with room for improvement in minimizing bias.
    The literature addressing health information seeking among people with disability is heterogeneous, but generally of high quality. Future research may benefit from an inclusive definition of disability and a more consistent definition of health information. Focused research on best practices and interactions among sources of health information would be valuable additions.
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  • 文章类型: Journal Article
    As technology continues to advance, the internet is becoming increasingly popular. Self-diagnosis and health information seeking online is growing more common and it will be important to understand the influence this may have on the patient-healthcare professional relationship.
    A mixed-method systematic review of quantitative, qualitative and mixed method studies concerning the public and healthcare professionals\' perceptions of online self-diagnosis and health information seeking and how this can impact the patient-healthcare professional relationship. We searched MEDLINE, EMBASE, CINAHL, ACM & SCOPUS between 2007 and 2018. Relevant data were extracted, and a thematic analysis was conducted and conceptualised using the Normalisation Process Theory framework.
    Of 6107 records identified, 25 articles met the review eligibility criteria which included 16 qualitative, 8 quantitative and 1 mixed method study. The findings indicated that patients found the internet as a complementary information source alongside healthcare professionals. Health care professionals were perceived to be the most reliable and valued information source. People feel responsible for their own health and find the internet to be a source that provides information rapidly with accessibility at their convenience. Most healthcare professionals agreed on the importance of collaboration with patients and the need to develop a partnership and shared decision-making process but struggled to find time in the consultation to do so efficiently. Some healthcare professionals felt that the internet was advantageous for patients looking after their own health, while others felt it was due to a lack of trust in their expertise. Patients tended to present information to the healthcare professional to support the therapeutic relationship rather than to challenge it and to become more involved in the decision-making process of their healthcare.
    The results of this review suggests that patients value healthcare professionals as a source of medical advice more than the internet. While health professionals\' views were mixed our findings indicate that online health information seeking can potentially improve the patient-healthcare professional relationship as patients reported they usually conducted an online search to form a partnership with the healthcare professional as opposed to trying to prove them wrong.
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  • 文章类型: Journal Article
    UNASSIGNED: Awareness of health information needs, sources of health information, and barriers to accessing health information among pregnant women is critical for the development of health interventions and provides high-quality prenatal care for them. Hence, the aim of this review study was to summarize evidence from studies evaluating health information needs, sources of information and barriers to accessing health information of women during pregnancy.
    UNASSIGNED: A systematic literature search was conducted using Web of Science, Scopus, PubMed, ScienceDirect, and Google Scholar for relevant studies published between 1 January 2000 and 24 May 2018. The methodological quality of cross-sectional studies was assessed using the STROBE checklist. The Critical Appraisal Skills Programme (CASP, 2018) was used to appraise the qualitative studies. Data were analyzed descriptively.
    UNASSIGNED: Thirty-one studies from 14 countries met criteria for inclusion in this review. The majority of articles focused on information needs and sources of information used by women during pregnancy. The most common information needs among women during pregnancy were information about unborn child, nutrition, and labor/delivery. The most frequent information source used by women during pregnancy was health professionals followed by informal source (family and friends), and Internet. The most prominent barriers to information access included the following: feeling ashamed or embarrassed to talk about pregnancy-related issues, long waiting times at clinic to see a health provider, and lack of adequate information resources.
    UNASSIGNED: Due to the limited number of studies examining barriers to health information seeking among pregnant women, further research is warranted. Further qualitative research is also recommended to explore pregnant women\'s perceptions of, and satisfaction with the use of health information sources.
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  • 文章类型: Journal Article
    Despite a lack of evidence of clinical efficacy for complementary and alternative medicine (CAM) use in amyotrophic lateral sclerosis (ALS), these medicines remain popular around the world.
    To examine the prevalence and cost of CAM use in ALS and CAM users\' profile, decision-making, information seeking, and disclosure among ALS patients.
    A comprehensive literature search was conducted of MEDLINE, CINAHL/SCOPUS, and AMED databases from their inception to April 2018. This review followed PRISMA guidelines and employed a quality scoring system to assess the included papers.
    Seven papers met the inclusion criteria and were thematically analysed. ALS patients utilized a range of CAM therapies and/or products, with acupuncture and vitamins being the most frequently reported. CAM modalities were often employed concurrently with conventional medications throughout the disease process. Although some ALS patients reported positive experience regarding CAM use, many were reluctant to disclose their CAM use to their clinicians. Research focusing on CAM use in ALS remains ad hoc and restricted to only a few countries. The rigour and quality of this research field to date has been varied, predominantly drawing upon regional/localized data and failing to report CAM users\' characteristics.
    A proportion of ALS patients report utilizing CAM concurrently with conventional treatments. Such use, set amidst a dearth of evidence for the efficacy of CAM in ALS, poses potential direct and indirect risks to patient care, and medical providers should be mindful of and enquire about CAM use when treating ALS patients.
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  • 文章类型: Journal Article
    With online health information becoming increasingly popular among patients, concerns have been raised about the impact of patients\' Internet health information-seeking behavior on their relationship with physicians. Therefore, it is pertinent to understand the influence of online health information on the patient-physician relationship.
    Our objective was to systematically review existing research on patients\' Internet health information seeking and its influence on the patient-physician relationship.
    We systematically searched PubMed and key medical informatics, information systems, and communication science journals covering the period of 2000 to 2015. Empirical articles that were in English were included. We analyzed the content covering themes in 2 broad categories: factors affecting patients\' discussion of online findings during consultations and implications for the patient-physician relationship.
    We identified 18 articles that met the inclusion criteria and the quality requirement for the review. The articles revealed barriers, facilitators, and demographic factors that influence patients\' disclosure of online health information during consultations and the different mechanisms patients use to reveal these findings. Our review also showed the mechanisms in which online information could influence patients\' relationship with their physicians.
    Results of this review contribute to the understanding of the patient-physician relationship of Internet-informed patients. Our main findings show that Internet health information seeking can improve the patient-physician relationship depending on whether the patient discusses the information with the physician and on their prior relationship. As patients have better access to health information through the Internet and expect to be more engaged in health decision making, traditional models of the patient-provider relationship and communication strategies must be revisited to adapt to this changing demographic.
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