背景:精神疾病的病因是多因素的,包括基因组和环境危险因素。精神病学遗传咨询是一个新兴领域,可以促进适应过程,和管理,精神疾病。许多国家缺乏专门的服务,导致护理差距。此范围审查将为基于精神病学遗传学的教育资源的开发提供信息。
目的:探讨精神病患者及其亲属对精神病学遗传学的态度和信念,遗传咨询,以遗传学为基础的教育。评估如何最好地向消费者传达教育。
方法:数据库文献检索发生在5月2日,2023年,使用PubMed,Medline,和PsycINFO。评论,给编辑的信,病例报告,2003年以前的出版物被排除在外。
结果:24篇论文符合纳入标准。结果表明,患有精神疾病的个体及其亲属倾向于高估风险,并对生殖决策表示关注。遗传咨询和教育资源被认为是有用和授权的。
结论:受影响的个人和亲属有兴趣更深入地了解自己和/或亲属的精神疾病,管理策略,了解家族风险。
结论:来自这篇综述的证据可能为基于遗传学的教育资源的开发提供信息或指导未来的研究。
BACKGROUND: The etiology of psychiatric disorders is multifactorial including genomic and environmental risk factors. Psychiatric genetic counseling is an emerging field that may promote processes of adaptation to, and the management of, psychiatric disorders. Many countries lack dedicated services leading to a gap in care. This scoping
review will inform the development of psychiatric genetics-based educational resources.
OBJECTIVE: To explore individuals with a psychiatric disorder and their relatives\' attitudes and beliefs toward psychiatric genetics, genetic counseling, and genetics-based education. To evaluate how best to convey education to consumers.
METHODS: Database literature searches occurred on May 2nd, 2023, using PubMed, Medline, and PsycINFO. Reviews, letters to the editor, case reports, and publications before 2003 were excluded.
RESULTS: Twenty-four papers met the inclusion criteria. Results suggest individuals with a psychiatric disorder and their relatives tended to overestimate risk, and express concern about reproductive decision- making. Genetic counseling and educational resources were perceived to be useful and empowering.
CONCLUSIONS: Affected individuals and relatives are interested in gaining greater insight into their own and/or their relative\'s psychiatric disorder, management strategies, and understanding familial risks.
CONCLUSIONS: The evidence from this
review may inform the development of genetics-based educational resources or guide future research.