electronic patient-reported outcome

电子患者报告结果
  • 文章类型: Journal Article
    背景:在姑息性肿瘤学中,电子患者报告结果(PRO)评估可以在支持临床医生和患者的临床活动中发挥重要作用。本范围审查旨在绘制癌症姑息治疗中电子患者报告结果测量(e-PROM)的技术创新图,以及通过e-PROM收集的PRO数据如何影响症状的监测和管理,并使卫生专业人员和患者之间更好的沟通。
    方法:根据Arksey和O\'Malley框架设计了范围审查研究。Medline,Embase,WebofScience,Scopus,咨询了PsycINFO和CINAHL和灰色文献来源。纳入标准为18岁以上的人接受使用e-PROM的姑息治疗和/或临终关怀。
    结果:共纳入13项主要研究:9项定量研究,两项定性研究,和两个混合方法研究。最近开发的支持e-PROM的软件允许患者接收有关其症状的反馈,帮助临床医生优先考虑护理需求,并监测患者症状变化时的病情。电子PRO数据提示困难,临床医生和患者之间的临终沟通,以更好地组织生命最后阶段的护理。
    结论:这项工作表明,电子PRO数据评估为患者的健康和症状管理提供了有价值的工具;只有一项研究报告了相互矛盾的结果。然而,缺乏关于临床医生如何使用这些工具来改善与患者沟通的研究,需要更多的研究。
    BACKGROUND: In palliative oncology settings, electronic patient-reported outcome (PRO) assessment can play an important role in supporting clinical activities for clinicians and patients. This scoping review aims to map the technological innovation of electronic patient-reported outcome measures (e-PROMs) in cancer palliative care and how PRO data collected through e-PROMs can influence the monitoring and management of symptoms and enable better communication between health professionals and patients.
    METHODS: A scoping review study was designed according to the Arksey and O\'Malley framework. Medline, Embase, Web of Science, SCOPUS, PsycINFO and CINAHL and gray literature sources were consulted. The inclusion criteria were people over 18 years old receiving palliative and/or end-of-life care using e-PROMs.
    RESULTS: Thirteen primary studies were included: nine quantitative studies, two qualitative studies, and two mixed-method studies. The recently developed software that supports e-PROMs allows patients to receive feedback on their symptoms, helps clinicians prioritize care needs and monitors patients\' conditions as their symptoms change. Electronic PRO data prompt difficult, end-of-life communication between clinicians and patients to better organize care in the last phase of life.
    CONCLUSIONS: This work shows that electronic PRO data assessment provides valuable tools for patients\' well-being and the management of symptoms; only one study reported conflicting results. However, with studies lacking on how clinicians can use these tools to improve communication with patients, more research is needed.
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  • 文章类型: Journal Article
    视觉模拟量表(VAS)用于各种患者-,观察者和临床医生报告的结果指标。虽然通常包括在最初为完成笔和纸而制定的措施中,目前,更多的临床试验使用电子方法来收集它们。这导致研究人员质疑在迁移到电子格式的过程中,秤的测量特性是否得到了保留,特别是因为电子格式通常使用与100毫米纸张标准不同的刻度长度。
    我们对已发表的研究进行了综述,这些研究调查了VAS的纸质和电子格式的测量可比性。
    我们的文献检索产生了1997年至2018年间发表的26项研究,报告了使用VAS比较纸质和电子格式。排除2种出版物后,本综述中的其余24项研究中,有23项报告了电子格式的VAS(eVAS)和纸质格式(pVAS)的等效性。进一步的研究得出结论,eVAS和pVAS均可接受,但不应互换。eVAS长度从21到200毫米不等,表明100毫米的长度不是一个要求。
    文献支持以下假设:无论VAS长度如何,eVAS和pVAS都提供可比较的结果。在基于屏幕的电子模式上实现VAS时,我们建议遵循行业最佳实践进行忠实迁移,以最大程度地减少与pVAS不可比的可能性。
    Visual analogue scales (VASs) are used in a variety of patient-, observer- and clinician-reported outcome measures. While typically included in measures originally developed for pen-and-paper completion, a greater number of clinical trials currently use electronic approaches to their collection. This leads researchers to question whether the measurement properties of the scale have been conserved during the migration to an electronic format, particularly because electronic formats often use a different scale length than the 100 mm paper standard.
    We performed a review of published studies investigating the measurement comparability of paper and electronic formats of the VAS.
    Our literature search yielded 26 studies published between 1997 and 2018 that reported comparison of paper and electronic formats using the VAS. After excluding 2 publications, 23 of the remaining 24 studies included in this review reported electronic formats of the VAS (eVAS) and paper formats (pVAS) to be equivalent. A further study concluded that eVAS and pVAS were both acceptable but should not be interchanged. eVAS length varied from 21 to 200 mm, indicating that 100 mm length is not a requirement.
    The literature supports the hypothesis that eVAS and pVAS provide comparable results regardless of the VAS length. When implementing a VAS on a screen-based electronic mode, we recommend following industry best practices for faithful migration to minimise the likelihood of non-comparability with pVAS.
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