背景:在姑息性肿瘤学中,电子患者报告结果(PRO)评估可以在支持临床医生和患者的临床活动中发挥重要作用。本范围审查旨在绘制癌症姑息治疗中电子患者报告结果测量(e-PROM)的技术创新图,以及通过e-PROM收集的PRO数据如何影响症状的监测和管理,并使卫生专业人员和患者之间更好的沟通。
方法:根据Arksey和O\'Malley框架设计了范围审查研究。Medline,Embase,WebofScience,Scopus,咨询了PsycINFO和CINAHL和灰色文献来源。纳入标准为18岁以上的人接受使用e-PROM的姑息治疗和/或临终关怀。
结果:共纳入13项主要研究:9项定量研究,两项定性研究,和两个混合方法研究。最近开发的支持e-PROM的软件允许患者接收有关其症状的反馈,帮助临床医生优先考虑护理需求,并监测患者症状变化时的病情。电子PRO数据提示困难,临床医生和患者之间的临终沟通,以更好地组织生命最后阶段的护理。
结论:这项工作表明,电子PRO数据评估为患者的健康和症状管理提供了有价值的工具;只有一项研究报告了相互矛盾的结果。然而,缺乏关于临床医生如何使用这些工具来改善与患者沟通的研究,需要更多的研究。
BACKGROUND: In palliative oncology settings, electronic patient-reported outcome (PRO) assessment can play an important role in supporting clinical activities for clinicians and patients. This scoping
review aims to map the technological innovation of electronic patient-reported outcome measures (e-PROMs) in cancer palliative care and how PRO data collected through e-PROMs can influence the monitoring and management of symptoms and enable better communication between health professionals and patients.
METHODS: A scoping
review study was designed according to the Arksey and O\'Malley framework. Medline, Embase, Web of Science, SCOPUS, PsycINFO and CINAHL and gray literature sources were consulted. The inclusion criteria were people over 18 years old receiving palliative and/or end-of-life care using e-PROMs.
RESULTS: Thirteen primary studies were included: nine quantitative studies, two qualitative studies, and two mixed-method studies. The recently developed software that supports e-PROMs allows patients to receive feedback on their symptoms, helps clinicians prioritize care needs and monitors patients\' conditions as their symptoms change. Electronic PRO data prompt difficult, end-of-life communication between clinicians and patients to better organize care in the last phase of life.
CONCLUSIONS: This work shows that electronic PRO data assessment provides valuable tools for patients\' well-being and the management of symptoms; only one study reported conflicting results. However, with studies lacking on how clinicians can use these tools to improve communication with patients, more research is needed.