■晚期癌症患者需要准确了解他们的预后,以便参与知情的临终关怀治疗决策。拉丁裔癌症患者在预后理解方面存在差异,部分原因是缺乏有关预后和提前护理计划(ACP)的文化能力沟通。
■本研究的目标是晚期拉丁裔患者,绝症癌症是检查他们对预后的理解,以及文化因素如何影响对ACP的理解和参与。
■进行了混合方法研究,其中包括调查和半结构化访谈。描述性统计用于社会人口统计学信息和自我报告的预后理解。记录了有关预后理解的访谈以及对这种理解和参与ACP的文化影响,转录,然后使用主题内容分析进行编码和分析。
■患有晚期癌症的拉丁裔患者(n=20)完成了自我报告的调查,并参加了半结构化访谈。结果表明,在绝症患者中,50%的患者不准确地认为他们患有早期癌症,85%的人不相信他们的癌症已经晚期,70%的人认为他们的癌症是可以治愈的。此外,访谈产生了两个主要主题:对癌症的不治之症的不同认识水平,以及基于预后理解的不同临终关怀决策和治疗偏好.在这些主题中,患者通过与肿瘤科医生沟通表示否认或接受他们的预后,家庭的重要性,并结合他们先前存在的信念。
■研究结果表明沟通的重要性,家庭参与,并纳入信念,以促进拉丁裔患者对预后的准确理解。必须解决拉丁美洲晚期癌症患者预后理解的差异,以便他们能够围绕临终关怀进行知情的治疗决策。
UNASSIGNED: Advanced cancer patients need an accurate understanding of their prognoses in order to engage in informed end-of-life care treatment decision-making. Latino cancer patients experience disparities around prognostic understanding, in part due to a lack of culturally competent communication around prognosis and advance care planning (ACP).
UNASSIGNED: The objective of the present
study of Latino patients with advanced, terminally ill cancer is to examine their understanding of prognosis, and how cultural factors may influence this understanding and engagement in ACP.
UNASSIGNED: A mixed methods
study was conducted, which consisted of surveys and semi-structured interviews. Descriptive statistics were used for sociodemographic information and self-reported prognostic understanding. Interviews around prognostic understanding and cultural influences on this understanding and engagement in ACP were recorded, transcribed, and then coded and analyzed using thematic content analysis.
UNASSIGNED: Latino patients with advanced cancer (n = 20) completed a self-reported survey and participated in a semi-structured interview. Results indicate that among terminally ill patients, 50% of the patients inaccurately believed they had early-stage cancer, 85% did not believe their cancer was terminal, and 70% believed their cancer was curable. Moreover, interviews yielded two main themes: varying levels of awareness of the incurability of their cancer and diverse end-of-life care decision-making and treatment preferences based on prognostic understanding. Within these themes, patients expressed denial or acceptance of their prognosis through communication with the oncologist, the importance of family, and incorporating their pre-existing beliefs.
UNASSIGNED: Findings indicate the importance of communication, family involvement, and incorporation of beliefs for promoting an accurate prognostic understanding among Latino patients. It is imperative to address disparities in Latino advanced cancer patients\' prognostic understanding so they can engage in informed treatment decision-making around end-of-life care.