■家庭护理人员通常没有经验,需要从诊所就诊获得信息才能有效地为患者提供护理。尽管有报道称存在缺陷,68%的卫生系统有助于通过患者门户与家庭护理人员共享信息。在严重疾病的背景下,患者门户尤其重要,比如晚期癌症和痴呆症,在那里,护理是紧张的,信息需求随着疾病进展的轨迹而变化。
■我们研究的目的是分析一个大型的,来自国家护理研究(NSOC)的具有全国代表性的家庭护理人员样本,以确定痴呆症患者和癌症患者的家庭护理人员中与患者门户使用相关的个体特征和人口统计学因素。
■我们使用与国家健康和老龄化趋势研究相关的2020NSOC家庭护理人员样本数据进行了二次数据分析。按条件进行加权回归分析(即,痴呆症或癌症)用于检查家庭护理人员对患者门户的使用与人口统计学变量之间的关联,包括年龄,种族或民族,性别,就业状况,照顾者的健康,教育,和宗教。
■共有462名参与者(代表4,589,844个加权响应)被纳入我们的分析。在痴呆症患者照顾者的完全调整回归模型中,西班牙裔种族与患者使用门静脉的几率较高相关(OR:2.81,95%CI1.05-7.57;P=.04),而低于大学学历的资格与家庭护理人员使用患者门户的几率较低相关(OR0.36,95%CI0.18-0.71;P<.001.在癌症患者照顾者的完全调整回归模型中,在.05水平上,没有发现变量与患者门户使用有统计学显著性相关.
■在我们对NSOC调查数据的分析中,我们发现痴呆症患者和癌症患者看护者访问患者入口的方式存在差异.由于患者门户是将护理人员与诊所就诊信息联系起来的常用方法,未来的研究应该集中在理解我们已经确定的群体如何使用门户,以及为什么。
Family caregivers are often inexperienced and require information from
clinic visits to effectively provide care for patients. Despite reported deficiencies, 68% of health systems facilitate sharing information with family caregivers through the patient portal. The patient portal is especially critical in the context of serious illnesses, like advanced cancer and dementia, where caregiving is intense and informational needs change over the trajectory of disease progression.
The objective of our
study was to analyze a large, nationally representative sample of family caregivers from the National
Study of Caregiving (NSOC) to determine individual characteristics and demographic factors associated with patient portal use among family caregivers of persons living with dementia and those living with cancer.
We conducted a secondary data analysis using data from the 2020 NSOC sample of family caregivers linked to National Health and Aging Trends
Study. Weighted regression analysis by condition (ie, dementia or cancer) was used to examine associations between family caregiver use of the patient portal and demographic variables, including age, race or ethnicity, gender, employment status, caregiver health, education, and religiosity.
A total of 462 participants (representing 4,589,844 weighted responses) were included in our analysis. In the fully adjusted regression model for caregivers of persons living with dementia, Hispanic ethnicity was associated with higher odds of patient portal use (OR: 2.81, 95% CI 1.05-7.57; P=.04), whereas qualification lower than a college degree was associated with lower odds of patient portal use by family caregiver (OR 0.36, 95% CI 0.18-0.71; P<.001. In the fully adjusted regression model for caregivers of persons living with cancer, no variables were found to be statistically significantly associated with patient portal use at the .05 level.
In our analysis of NSOC survey data, we found differences between how dementia and cancer caregivers access the patient portal. As the patient portal is a common method of connecting caregivers with information from
clinic visits, future research should focus on understanding how the portal is used by the groups we have identified, and why.