■疲劳是中风幸存者的长期症状。这项范围审查综合了幸存者如何实现疲劳适应。
■在2012年至2021年之间搜索了四个数据库进行研究。如果他们描述了幸存者的“疲劳经历和/或护理伙伴”帮助幸存者适应疲劳的经历,则包括定性研究或混合方法研究的定性发现。如果是海报摘要,研究被排除在外,reviews,或社论。
■分析了36篇文章。有疲劳的幸存者描述了不同的适应性挑战-疲劳使他们生产力降低,带来了情绪困扰,而且别人看不出来.为了应对这些挑战,中风幸存者做了适应性工作,包括节约能源,改变心态,和重组常态。护理伙伴,雇主,和同事们通过调整日常生活或角色责任表现出适应性领导能力。大多数幸存者描述说,目前的临床实践不能满足他们解决疲劳的需求。
■中风幸存者有许多类型的挑战和疲劳适应策略。幸存者得到了家人,雇主,和同事的支持,但护理伙伴如何帮助幸存者发展新技能是未知的。中风幸存者表示,医疗保健专业人员需要向幸存者和护理伙伴传授满足其个人需求的疲劳基本知识,并为幸存者提供适应性干预措施。对康复的影响中风后疲劳的挑战是多方面的,因为疲劳会影响中风幸存者的身体,认知,心理,和社会方面的恢复。中风幸存者需要他们的护理伙伴的支持,例如帮助他们适应疲劳,适应新的生活常规,调整角色职责。医疗保健专业人员,中风幸存者,和护理伙伴需要共同努力,制定满足中风幸存者个人需求的中风后疲劳策略。
Fatigue is a long-term symptom for stroke survivors. This scoping
review synthesized how survivors achieve fatigue adaptation.
Four databases were searched for studies between 2012 and 2021. Qualitative studies or qualitative findings from mixed-methods studies were included if they described survivors\' experiences with fatigue and/or care partners\' experiences in helping survivors adapt to fatigue. Studies were excluded if they were poster abstracts, reviews, or editorials.
Thirty-six articles were analyzed. Survivors with fatigue described different adaptive challenges - fatigue made them less productive, brought emotional distress, and was indiscernible to others. To respond to these challenges, stroke survivors did adaptive work including conserving energy, changing mindset, and restructuring normality. Care partners, employers, and colleagues showed adaptive leadership by adjusting daily routines or role responsibilities. Most survivors described that the current clinical practice did not meet their needs to address fatigue.
Stroke survivors had many types of challenges and strategies for fatigue adaptation. Survivors received family, employer, and colleague support but how care partners help survivors develop new skills is unknown. Stroke survivors expressed that healthcare professionals need to teach survivors and care partners basic knowledge of fatigue that meet their personal needs and provide adaptive interventions for survivors. Implications for rehabilitationThe challenges of poststroke fatigue are multifaceted because fatigue influences stroke survivors\' physical, cognitive, mental, and social aspects of recovery.Stroke survivors need support from their care partners such as helping them adapt to the fatigue, adapt to new life routine, and adjust role responsibilities.Healthcare professionals, stroke survivors, and care partners need to work together to develop strategies about poststroke fatigue that meet stroke survivors\' personal needs.