bereavement

丧亲
  • 文章类型: Journal Article
    我们探讨了战时竞争对手之间器官捐赠的现象,当器官捐赠等重要礼物不仅赠送给“陌生人”,而且赠送给可能被视为敌人的陌生人时。这是一个独特的器官捐赠事件的案例研究,该事件发生在2021年5月的“墙的守护者”行动期间。它涉及一名被犹太警察杀害的巴勒斯坦男孩和一名被巴勒斯坦青年杀害的犹太男子。两个受害者,缺少器官捐献卡,他们的器官是由家人捐赠的,他们意识到接受者可能来自“反对”群体。我们问:(1)来自敌对团体的家庭如何在捐赠器官的决定中构建意义?(2)他们如何在失去的经历中构建意义?研究结果表明,失去亲人的家庭使他们的行为具有政治和宗教意义,将器官捐赠定为以宗教戒律为指导的“普遍礼物”,以挽救生命。虽然这些行为最初超越了文化和国界,之后缺乏认可和感激会导致幻灭,加强“我们”与“他们”的界限。这项研究强调了政治冲突期间器官捐赠的复杂动态以及宗教当局在塑造观念和意义方面的关键作用。此外,它强调了器官捐赠在冲突中促进和解与共存的潜力,在优先考虑同情和理解损失的情况下提供相互承认。
    We explore the phenomenon of organ donation between rivals in time of war when a significant gift such as organ donation is given not just to a \"stranger\" but to a stranger who may be considered an enemy. This is a case study of a unique organ donation event that occurred in Israel during Operation Guardian of the Walls in May 2021. It involved a Palestinian boy killed by a Jewish policeman and a Jewish man killed by Palestinian youths. Both victims, lacking organ donor cards, had their organs donated by their families with the awareness that recipients could come from the \"opposing\" group. We ask: (1) How do families from rival groups construct meaning in their decision to donate organs? (2) How do they construct meaning in their experience of loss? The findings reveal that bereaved families imbue their actions with political and religious significance, framing the organ donations as a \"universal gift\" guided by religious commandments to save lives. While these acts initially transcend cultural and national boundaries, a lack of recognition and gratitude afterward can lead to disillusionment, reinforcing \"us\" versus \"them\" boundaries. This study underscores the intricate dynamics in organ donations during political conflict and the pivotal role of religious authorities in shaping perceptions and meaning. Moreover, it highlights the potential for organ donations to foster reconciliation and coexistence amidst conflict, provided mutual recognition in cases where compassion and understanding of loss are prioritized.
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  • 文章类型: Journal Article
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  • 文章类型: Case Reports
    全球越来越认识到,围产期死亡后有关泌乳的护理需要潜在地提供孕产妇捐赠的机会。本文讨论了越南人乳银行(HMB)的经验和观点。这是一个描述性的探索性案例研究,在社会科学和健康科学中都有悠久的传统。三角数据收集涉及视频数据的审查,与捐赠者的访谈数据,和数据审查,母乳喂养卓越中心。我们发现,尽管越南的母亲向HMB捐赠母乳很普遍,这种情况在围产期损失后较少见。我们提供了一个描述双胞胎母亲损失的案例研究,以及随后选择捐赠大约1个月给达港HMB,越南的第一个HMB。我们讨论了有关围产期损失后捐赠的四个原因。(1)意识到这项服务时捐赠母乳的强烈动机,(2)捐赠母乳帮助她处理悲伤,(3)家人支持她度过这段艰难时期,支持她的决定,和(4)卫生工作人员支持她的决定。而人乳共享(例如,湿护理)已经在越南实行,失去亲人的母亲的母乳捐赠既没有得到讨论,也没有得到充分研究。因为母亲的悲伤是复杂的和个人的,决定捐赠母乳是一个需要支持的个人决定,不会为那些不希望捐赠的人带来罪恶感。
    There is a growing recognition globally that care regarding lactation following a perinatal death needs to potentially offer the opportunity for maternal donation. This article discusses this experience and perspectives from a human milk bank (HMB) in Vietnam. This is a descriptive exploratory case study that has a long tradition in both the social and health sciences. Triangulated data collection involved a review of video data, interview data with the donor, and data review for the Da Nang HMB, a Center for Excellence in Breastfeeding. We found that although it is common for mothers in Vietnam to donate breastmilk to HMBs, it is less common for this to occur following perinatal loss. We offer a descriptive case study of the maternal loss of twins and a subsequent choice to donate for approximately 1 month to the Da Nang HMB, the first HMB in Vietnam. We discuss four reasons derived from this case regarding donation following perinatal loss. (1) A strong motivation to donate breastmilk when aware of the service, (2) donating breastmilk helped her deal with grief, (3) family members supported her through this tough time and supported her decision, and (4) health staff supported her decision. While human milk sharing (e.g., wet nursing) has been practiced in Vietnam, breastmilk donation from bereaved mothers has neither been discussed nor well-researched. Because maternal grief is complex and individual, deciding to donate breastmilk is a personal decision that needs to be supported, without creating guilt for those who do not wish to donate.
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  • 文章类型: Letter
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  • 文章类型: Journal Article
    背景:以患者和家庭为中心的护理被认为是最佳实践。这种方法与高质量和积极的护理体验有关,鼓励和启用家庭在床边的存在。COVID-19大流行,然而,导致严格限制医院就诊,这威胁到卫生专业人员提供以家庭为中心的护理的能力。
    目的:探讨COVID-19访客限制对重症监护病房临终危重疾病期间家庭关系的影响。
    方法:采用回顾性集体案例研究方法,使用半结构化访谈,通过电话或变焦进行,按照COVID-19的限制。
    方法:两个参与者组,包括在重症监护病房死亡的患者(n=6)和大城市医院的重症监护护士(n=3)。
    结果:对失去亲人的近亲的采访持续了25-59分钟(平均值=41),重症监护护士访谈持续了31-52分钟(平均=43).归纳内容分析揭示了五个主题:(一)第一次告别,当时没有意识到的重要性;(Ii)混淆规则和限制,强调家庭联系的身体和情感障碍;(iii)沟通不足,这进一步影响了近亲;(四)最后的告别,匆忙,情绪化,没有隐私;和(V)反思。
    结论:这个集体案例研究表明,访客限制对失去亲人的近亲和更广泛的家庭产生了深远的影响。以家庭为中心的护理方法,保护和优先考虑家庭联系,必须强调将患者视为较大家庭单位的一部分。
    结论:重症监护团队必须在访客限制期间考虑自己的临终关怀方法,寻找新的,灵活和创新的方式来改善沟通,促进以家庭为中心的护理,保持病人与家庭的联系,促进结束生命的文化习俗,仪式对近亲和更广泛的家庭单位至关重要。
    BACKGROUND: Patient and family-centred care is considered best practice. Such an approach is associated with high quality and positive experiences of care, and family presence at the bedside is encouraged and enabled. The COVID-19 pandemic, however, resulted in strictly enforced restrictions on hospital visitation, which threatened health professionals\' ability to provide family-centred care.
    OBJECTIVE: To explore the impact of COVID-19 visitor restrictions on family relationships during critical illness at the end of life in the intensive care unit.
    METHODS: A retrospective collective case study approach was taken, using semi-structured interviews, conducted via telephone or Zoom, in accordance with COVID-19 restrictions.
    METHODS: Two participant groups, bereaved next-of-kin of patients who died in the intensive care unit (n = 6) and critical care nurses (n = 3) from a major metropolitan hospital were included.
    RESULTS: Interviews with bereaved next-of-kin lasted 25-59 (mean = 41) minutes, and critical care nurse interviews lasted 31-52 (mean = 43) minutes. Inductive content analysis revealed five themes: (i) the first farewell, the significance not realised at the time; (ii) confusing rules and restrictions, which emphasised physical and created emotional barriers to family connections; (iii) inadequate communication, which further impacted next-of-kin; (iv) final farewells, which were rushed, emotional and afforded no privacy; and (v) reflecting back.
    CONCLUSIONS: This collective case study demonstrates the profound impact visitor restrictions have had on bereaved next-of-kin and the wider family. A family-centred approach to care, protecting and prioritising family connection, and recognising the patient as a person who is part of a larger family unit must be emphasised.
    CONCLUSIONS: Critical care teams must consider their own approach to end-of-life care during times of visitor restrictions, finding new, flexible and innovative ways to improve communication, promote family-centred care, maintain the patient-family connection and facilitate end-of-life cultural customs, and rituals imperative to next-of-kin and the wider family unit.
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  • 文章类型: Journal Article
    尽管死者的感官和准感官体验(SED)一直是许多争论的主题,关于丧亲者听觉言语体验现象学的研究一直被忽视。此案例研究描述了定期发生的语音听觉体验的现象学及其对单个丧亲者的意义。死者的声音可以在外部空间听到,体验可以感受到真实,即使死亡被完全承认。失去亲人的人可以欢迎并受益于这种经历,即使它在个人的文化背景下不被认为是悲伤的正常部分,当没有来世信仰时,当经验无法解释时。案例研究表明,听到死者的声音可能是经常发生的,而不会引起痛苦或功能障碍,并支持SED是正常丧亲的常见伴随。
    Although sensory and quasi-sensory experiences of the deceased (SED) have been the subject of much debate, research on the phenomenology of auditory verbal experiences in the bereaved has been neglected. This case study describes the phenomenology of a regularly occurring voice hearing experience and its meaning for a single bereaved individual. The voice of the deceased can be heard as though in external space, and the experience can feel real, even when the death is fully acknowledged. A bereaved individual can welcome and benefit from the experience even when it is not recognized as a normal part of grieving in the individual\'s cultural context, when no afterlife belief is present, and when the experience remains unexplained. The case study demonstrates that hearing the voice of the deceased can be a regular occurrence without causing distress or dysfunction and lends support to the idea that SED are a common concomitant of normal bereavement.
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  • 文章类型: Journal Article
    目的:探讨自杀丧亲者的自杀风险机制,观察到失去亲人的人在具有情感意义的日期前后经历了更高水平的痛苦。我们假设自杀丧亲的一级亲属和伴侣在(i)死亡纪念日和(ii)死者生日前后经历自我伤害和自杀的风险增加,与中间时期相比。
    方法:我们使用1980年1月1日至2016年12月31日居住在丹麦的所有个人的国家登记数据进行了自我对照病例系列研究,这些人在此期间因一级亲属或伴侣(配偶或同居者)的自杀而丧亲。以及在丧亲后5年6周内有结果(任何自残或自杀事件)的人。我们比较了(i)丧亲后的前30天和(ii)在累积暴露期(死亡纪念日的任一侧为6周;死者生日的任一侧为6周)中自杀行为的相对发生率与参考(累积的未暴露干预期)。作为间接比较,我们在因其他原因而失去亲人的人身上重复了这些模型。
    结果:我们没有发现证据表明自杀丧亲者在死亡或死者生日纪念日(调整后的发生率[IRRadj]=1.00;95%置信区间[CI]=0.87-1.16)或其他原因(IRRadj=1.04;95%CI=1.00-1.08)与干预期相比,自杀行为的风险升高。由于其他原因,丧亲后30天内比率立即升高(IRRadj:1.95,95%CI:1.77-2.22)。
    结论:尽管因自杀而丧亲者的自残和自杀风险较高,我们的发现并不表明这种风险在情感上重要的周年纪念日左右增加。在遭受创伤损失后,应该在所有时间点都可以获得丧亲护理,因为悲伤轨迹的需求会有所不同。
    OBJECTIVE: To investigate mechanisms of suicide risk in people bereaved by suicide, prompted by observations that bereaved people experience higher levels of distress around dates of emotional significance. We hypothesised that suicide-bereaved first-degree relatives and partners experience an increased risk of self-harm and suicide around dates of (i) anniversaries of the death and (ii) the deceased\'s birthday, compared with intervening periods.
    METHODS: We conducted a self-controlled case series study using national register data on all individuals living in Denmark from 1 January 1980 to 31 December 2016 and who were bereaved by the suicide of a first-degree relative or partner (spouse or cohabitee) during that period, and who had the outcome (any episode of self-harm or suicide) within 5 years and 6 weeks of the bereavement. We compared relative incidence of suicidal behaviour in (i) the first 30 days after bereavement and (ii) in the aggregated exposed periods (6 weeks either side of death anniversaries; 6 weeks either side of the deceased\'s birthdays) to the reference (aggregated unexposed intervening periods). As an indirect comparison, we repeated these models in people bereaved by other causes.
    RESULTS: We found no evidence of an elevated risk of suicidal behaviour during periods around anniversaries of a death or the deceased\'s birthdays in people bereaved by suicide (adjusted incidence rate ratio [IRRadj] = 1.00; 95% confidence interval [CI] = 0.87-1.16) or other causes (IRRadj = 1.04; 95% CI = 1.00-1.08) compared with intervening periods. Rates were elevated in the 30 days immediately after bereavement by other causes (IRRadj: 1.95, 95% CI: 1.77-2.22).
    CONCLUSIONS: Although people bereaved by suicide are at elevated risk of self-harm and suicide, our findings do not suggest that this risk is heightened around emotionally significant anniversaries. Bereavement care should be accessible at all points after a traumatic loss as needs will differ over the grief trajectory.
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  • 文章类型: Randomized Controlled Trial
    简介:心理治疗增加到通常的医院护理是有益的。本研究报告了两个截然不同的案例,一个响应者和一个无响应者,来自一项关于抑郁症住院患者强化和短暂心理动力心理治疗(IBPP)有效性的随机对照试验,其中抑郁严重程度的降低在IBPP完成后维持长达1年。我们旨在探索心理治疗师和患者如何通过聚焦主题(在IBPP手册中描述)进行互动工作,以及他们的工作如何成为潜在变化过程的一部分。方法:本案例研究是心理治疗中混合方法的一般框架的一部分,该框架将对随机对照试验中收集的数据进行定量分析与定性案例研究相结合。结果:出现了两个一般类别-(1)成为抑郁症的主题,(2)重新获得支持感-结合了特定功能。在第一,这些功能与根据哀悼的精神分析工作的相互作用有关,旨在挪用抑郁症状。在第二个,互动的功能是构建治疗空间,并通过承认患者的忧郁状态和保持情感接触来恢复认知信任。在这两种情况下都观察到与重新获得支持感有关的工作,而与成为抑郁症主题相关的工作更具体地针对响应者案例。讨论:这些结果强调了干预措施的重要性,这些干预措施有助于产生支持感并动员象征的内部过程,理解,和拨款,引导患者发展赋予其症状意义的能力,并了解与抑郁发作相关的个人心理因素。
    Introduction: Psychotherapy added to usual hospital care is beneficial. This study reports on two contrasting cases, one responder and one nonresponder, from a randomized controlled trial on the effectiveness of intensive and brief psychodynamic psychotherapy (IBPP) for depressed inpatients, in which reduction in depressive severity was maintained for up to 1 year after completion of IBPP. We aimed to explore how the psychotherapist and patient interacted to work through the themes of focalization (described in the IBPP manual) and how their work was part of a potential process of change. Methods: This case study is part of the general framework of mixed methods in psychotherapy combining quantitative analysis of data collected in a randomized controlled trial with a qualitative case study. Results: Two general categories emerged-(1) becoming the subject of one\'s depression and (2) regaining a sense of support-which combine specific functions. In the first, the functions relate to interactions in line with the psychoanalytic work of mourning, which aims for an appropriation of depressive symptoms. In the second, interactions have as their functions the construction of a therapeutic space and the restoration of an epistemic trust by acknowledging the patient\'s melancholic state and maintaining emotional contact. Work related to regaining a sense of support was observed in both cases, whereas work related to becoming the subject of one\'s depression was more specific to the responder case. Discussion: These results highlight the importance of interventions that help generate a sense of support and mobilize the internal processes of symbolization, understanding, and appropriation, leading patients to develop the capacity to give meaning to their symptoms and to understand the personal psychological factors related to the depressive episode.
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  • 文章类型: Journal Article
    为了在失去伴侣后支持年长的哀悼者,Leaves,提供LIVIA配偶丧亲干预的在线自助服务,已开发。它集成了具体化的对话代理和初始风险评估。基于迭代,以人为本,和利益相关者的包容性方法,采访了年长的哀悼者和利益相关者的焦点小组,以了解他们对悲伤和使用LEAVES的看法。随后,通过访谈对由此产生的技术和服务模式进行了评估,焦点小组,和在线调查。虽然数字素养仍然是一个挑战,LEAVES显示出支持目标最终用户的承诺。
    To support older mourners after the loss of their partner, LEAVES, an online self-help service that delivers the LIVIA spousal bereavement intervention, was developed. It integrates an embodied conversational agent and an initial risk assessment. Based on an iterative, human-centered, and stakeholder inclusive approach, interviews with older mourners and focus groups with stakeholders were conducted to understand their perspective on grief and on using LEAVES. Subsequently, the resulting technology and service model were evaluated by means of interviews, focus groups, and an online survey. While digital literacy remains a challenge, LEAVES shows promise of being supportive to the targeted end-users.
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  • 文章类型: Case Reports
    失去亲人的老年人面临着与配偶死亡相关的角色变化带来的压力。说明女性失去配偶后,在衰老期间的日常生活经历。1918年出生的一名妇女在丈夫去世后,年龄在74至80岁之间。数据由每日日记组成。用现象学诠释学的方法对日记中的文字进行了分析。成为寡妇后的日常生活的特点是在管理日常生活的个人资源和脆弱性之间取得平衡。在健康和社会护理方面,重要的是要确定脆弱的经历,因为这些经历与健康状况不佳有关。
    Bereaved older people face stressors from the changes in roles associated with the death of a spouse. To illustrate the lived experience of everyday life during a period of aging after a woman\'s loss of her spouse. One woman born in 1918 was followed between 74 and 80 years of age after her husband died. Data consisted of daily diary. The text from the diaries were analyzed with a phenomenological hermeneutical approach. Everyday life after becoming a widow is characterized by balancing between personal resources to manage everyday life and vulnerability. In health and social care, it is important to identify experiences of vulnerability because these are associated with poor health.
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