有越来越多的交互式基于网络的预先护理计划(ACP)支持工具,这些都是基于网络的辅助工具,以任何形式鼓励反思,通信,和处理公开信息,其中大部分在同行评审的文献中找不到。
本研究旨在对基于Web的ACP支持工具进行系统审查,以描述其特征,可读性,和内容的质量,并调查它们是否以及如何被评估。
我们系统地搜索了基于网络的灰色文献数据库OpenGrey,ClinicalTrials.gov,ProQuest,大英图书馆,荷兰的灰色文学,和正在进行的卫生服务研究项目,以及谷歌和应用商店,并使用以下资格标准咨询专家:基于网络的,为普通人群设计的,每个人都可以访问,互动(令人鼓舞的反思,通信,和信息处理),用英语或荷兰语。使用质量评估评分工具评估内容的质量(评分0-28-较高的评分表示较好的质量)。为了综合ACP工具的特点,内容的可读性和质量,以及如何评估它们,我们使用了4个数据提取表。
共有30个工具符合资格标准,包括15个(50%)网站,10个(33%)基于Web的门户,3(10%)应用程序,和2(7%)的格式组合。在30个工具中,24(80%)提到了明确的目标,包括7个(23%)支持反射或通信,8(27%)支持人们做出决定,7(23%)为文件决策提供支持,和2(7%)旨在实现所有这些目标。在30个工具中,7(23%)提供了有关发展的信息,所有这些都是与医疗保健专业人员合作开发的,和3(10%)与最终用户。质量得分在11到28之间,大多数得分较低的工具不涉及信息源。
网络上提供了各种ACP支持工具,内容质量不同。在未来,用户应参与ACP支持工具的开发过程,内容应该有科学依据。
PROSPEROCRD42020184112;https://tinyurl.com/mruf8b43。
There is an increasing number of interactive web-based advance care planning (ACP) support tools, which are web-based aids in any format encouraging reflection, communication, and processing of publicly available information, most of which cannot be found in the peer-reviewed literature.
This study aims to conduct a systematic
review of web-based ACP support tools to describe the characteristics, readability, and quality of content and investigate whether and how they are evaluated.
We systematically searched the web-based gray literature databases OpenGrey, ClinicalTrials.gov, ProQuest, British Library, Grey Literature in the Netherlands, and Health Services Research Projects in Progress, as well as Google and app stores, and consulted experts using the following eligibility criteria: web-based, designed for the general population, accessible to everyone, interactive (encouraging reflection, communication, and processing of information), and in English or Dutch. The quality of content was evaluated using the Quality Evaluation Scoring Tool (score 0-28-a higher score indicates better quality). To synthesize the characteristics of the ACP tools, readability and quality of content, and whether and how they were evaluated, we used 4 data extraction tables.
A total of 30 tools met the eligibility criteria, including 15 (50%) websites, 10 (33%) web-based portals, 3 (10%) apps, and 2 (7%) with a combination of formats. Of the 30 tools, 24 (80%) mentioned a clear aim, including 7 (23%) that supported reflection or communication, 8 (27%) that supported people in making decisions, 7 (23%) that provided support to document decisions, and 2 (7%) that aimed to achieve all these aims. Of the 30 tools, 7 (23%) provided information on the development, all of which were developed in collaboration with health care professionals, and 3 (10%) with end users. Quality scores ranged between 11 and 28, with most of the lower-scoring tools not referring to information sources.
A variety of ACP support tools are available on the web, varying in the quality of content. In the future, users should be involved in the development process of ACP support tools, and the content should be substantiated by scientific evidence.
PROSPERO CRD42020184112; https://tinyurl.com/mruf8b43.