背景:癫痫患者在恢复生活质量方面存在多种障碍。本研究的目的是确定社区团体干预的影响,重点是互助和人权的组成部分,改善癫痫患者的生活质量。
方法:前瞻性准实验研究,纳入干预前和干预后评估。有102人接受了针对互助小组中心组成部分的干预(现役机构,应对策略,情感识别和管理,解决问题,支持性互动,身份建构,信任,和社交网络)以及QualityRights战略。作为评估工具,量表用于确定生活质量(QOLIE-10),治疗依从性(Morisky测试),自我照顾行为,在提供卫生服务时对残疾和质量的认识。
结果:提出的生活质量变量之间存在相关性。干预措施显示出所有变量的改善,并且在自我护理领域具有中等至较大的效果。干预对自我护理和生活质量变量有显著影响。药物依从性在年轻人中显示出中等效应大小,成年人和老年人。关于残疾的看法,效应大小仅在成人中发现。药理学粘附变量也具有中等效应大小。这确实指定了年龄组,但在一般样本中没有。
结论:无癫痫发作时间是恢复的基本因素。然而,社会心理状况是实现癫痫患者更好生活质量的关键因素。
BACKGROUND: People with epilepsy have multiple barriers to recovering their quality of life. The objective of the present study was to determine the impact of a community group intervention focused on the components of mutual aid and human rights, to improve the quality of life in people with epilepsy.
METHODS: Prospective quasi-experimental study, incorporating pre- and post-intervention evaluations. There were 102 people who underwent an intervention focused on the central components of mutual aid groups (Active agency, Coping strategies, Emotion recognition and management, Problem solving, Supportive interaction, Identity construction, Trust, and Social networks) and in the QualityRights strategy. As evaluation instruments, scales were used to determine quality of life (QOLIE-10), treatment adherence (Morisky Test), self-care behaviors, perception of disability and quality in the provision of health services.
RESULTS: Correlations were shown between the variables proposed for quality of life. The intervention showed an improvement in all variables and a moderate to large effect in the self-care domain. There was a significant effect size in the self-care and quality of life variables with the intervention. Pharmacological adherence showed a moderate effect size in young people, adults and older adults. Regarding the perception of disability, the effect size was found only in adults. The pharmacological adherence variable also had a moderate effect size. This does specify the age groups, but not in the general sample.
CONCLUSIONS: Seizure-free time constitutes a fundamental element in recovery. However, psychosocial conditions constitute key elements to achieve a better quality of life in people with epilepsy.