Physician–patient relations

医患关系
  • 文章类型: Journal Article
    目的:培训临床沟通医生的教育方法各不相同,医生是否应用他们学到的沟通技巧或发现它们在临床上有用还不为人所知。这项研究的目的是确定接受7种沟通策略明确指导的第一年居民如何将其应用于模拟练习和临床实践中。
    方法:城市教学医院的一年级内科住院医师接受了7种系统沟通策略的指导:Ask-Tell-Ask,背诵,开放式提问,护士,开放的肢体语言,暂停,和简单的语言。在向标准化患者披露医疗错误的模拟练习中,对居民使用与7种策略相关的特定沟通行为进行了评估。对照组住院医师参加培训前进行模拟的情况与培训后进行模拟的培训组住院医师进行比较。培训计划结束后6个月,向居民询问了他们在临床实践中使用沟通策略的情况。
    结果:共有27名居民参加(n=13对照组;n=14训练组)。训练组比对照组更频繁地执行“建立患者理解”的行为。两组都使用非语言交流和行为来解决相似水平的患者情绪。在回答6个月随访问卷的24位居民中,24(100%)使用询问-告知-询问报告,开放式提问,和背诵,22例(92%)报告使用NURSE陈述和非语言交流。大多数受访者报告说,在临床实践中经常或经常使用这些策略(79%),并发现这些策略有用或非常有用(96%)。
    结论:在系统的沟通策略中提供明确的指导,特别是那些专注于建立病人理解的人,可能是帮助早期职业医生开发有效的沟通技巧的有效方法,可以在临床培训和实践中轻松实施。
    OBJECTIVE: Educational approaches for training physicians in clinical communications vary, and whether physicians apply the communication skills they learn or find them useful in the clinic is not well known. The aim of this study was to determine how first-year residents who received explicit instruction in 7 communication strategies would apply them in a simulation exercise and in clinical practice.
    METHODS: First-year Internal Medicine residents at an urban teaching hospital received instruction in 7 systematic communication strategies: Ask-Tell-Ask, Teach-back, open-ended questioning, NURSE, open body language, pausing, and plain language. Residents were evaluated on their use of specific communication behaviors associated with the 7 strategies during a simulation exercise of disclosing a medical error to a standardized patient. Control group residents who did the simulation before attending the training program and training group residents who did the simulation after the training were compared. Residents were queried 6 months after the training program on their use of communication strategies during clinical practice.
    RESULTS: A total of 27 residents participated (n = 13 control group; n = 14 training group). The training group performed behaviors for \"establishing patient understanding\" significantly more often than the control group. Both groups used non-verbal communication and behaviors for addressing patient emotions at similar levels. Of the 24 residents who responded to the 6-month follow-up questionnaire, 24 (100%) reported using Ask-Tell-Ask, open-ended questioning, and Teach-back, and 22 (92%) reported using NURSE statements and non-verbal communication. Most respondents reported using the strategies in clinical practice often or very often (79%) and found the strategies useful or very useful (96%).
    CONCLUSIONS: Providing explicit instruction in systematic communication strategies, particularly those focused on establishing patient understanding, may be an efficient approach for helping early career physicians develop effective communication skills that can be readily implemented during clinical training and practice.
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  • 文章类型: Journal Article
    OBJECTIVE: We aimed to investigate effects of prognostic communication strategies on emotions, coping, and appreciation of consultations in advanced cancer.
    METHODS: For this experimental study, we created 8 videos of a scripted oncological consultation, only varying in prognostic communication strategies. Disease-naive individuals (n = 1036) completed surveys before and after watching 1 video, while imagining being the depicted cancer patient. We investigated effects of the type of disclosure (prognostic disclosure vs. communication of unpredictability vs. non-disclosure) and content of disclosure (standard vs. standard and best-case vs. standard, best- and worst-case survival scenarios; numerical vs. word-based estimates) on emotions, coping, and appreciation of consultations. Moderating effects of individual characteristics were tested.
    RESULTS: Participants generally reported more satisfaction (p < .001) after prognostic disclosure versus communication of unpredictability and less uncertainty (p = .042), more satisfaction (p = .005), and more desirability (p = .016) regarding prognostic information after numerical versus word-based estimates. Effects of different survival scenarios were absent. Prognostic communication strategies lacked effects on emotions and coping. Significant moderators included prognostic information preference and uncertainty tolerance.
    CONCLUSIONS: In an experimental setting, prognostic disclosure does not cause more negative emotions than non-disclosure and numerical estimates are more strongly appreciated than words. Oncologists\' worries about harming patients should not preclude disclosing (precise) prognostic information, yet sensitivity to individual preferences and characteristics remains pivotal.
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  • 文章类型: Journal Article
    背景:在治疗伙伴关系中,医生依靠病人来描述他们的健康状况,加入共同决策,并参与支持的自我管理活动。在共享护理中,病人,初级保健,和专家服务合作伙伴一起使用商定的流程和输出,将患者置于其护理中心。然而,很少有实证研究探讨医生对患者的信任及其对共享护理模式的影响。
    目的:探索全科医生(GP)对患者的信任,以及信任对全科医生参与新护理模式的意愿的影响,如结直肠癌共同护理。
    方法:通过专业网络招募GP参与者进行半结构化访谈。成绩单经过完整性检查,感应编码,和主题迭代发展。
    结果:分析了25次访谈。一些全科医生认为信任是医生的责任,并且很容易信任患者。对于其他GP,对患者的信任是基于患者的特点,如诚实,可靠性,和自我保健的主动性。全科医生更愿意与他们开发的患者进行结直肠癌共享护理,信任关系。
    结论:信任在患者获得共享护理方面发挥着重要作用。共享护理的实施应考虑患者与医疗保健提供者之间的关系动态。
    在治疗伙伴关系中,医生依靠病人来描述他们的健康状况,参与共同决策,并参与支持的自我管理活动。在共享护理中,病人,初级保健,和专家服务合作伙伴一起使用商定的流程和输出,将患者置于其护理中心。信任是这种伙伴关系的关键。然而,很少有研究探讨医生对患者的信任及其对共享护理模式的影响。这项研究旨在探索全科医生(GP)对患者的信任,以及信任对全科医生参与新护理模式的意愿的影响,如结直肠癌共同护理。在分析了25份全科医生的采访记录后,我们发现一些全科医生认为信任是医生的责任,而在别人,对患者的信任是基于患者的特征,如诚实,可靠性,和自我保健的主动性。全科医生更愿意与他们开发的患者进行结直肠癌共享护理,信任关系。信任在患者获得共享护理方面起着重要作用。共享护理的推出应考虑患者与医疗保健提供者之间的关系动态。
    BACKGROUND: In a therapeutic partnership, physicians rely on patients to describe their health conditions, join in shared decision-making, and engage with supported self-management activities. In shared care, the patient, primary care, and specialist services partner together using agreed processes and outputs for the patient to be placed at the centre of their care. However, few empirical studies have explored physicians\' trust in patients and its implications for shared care models.
    OBJECTIVE: To explore trust in patients amongst general practitioners (GPs), and the impacts of trust on GPs\' willingness to engage in new models of care, such as colorectal cancer shared care.
    METHODS: GP participants were recruited through professional networks for semi-structured interviews. Transcripts were integrity checked, coded inductively, and themes developed iteratively.
    RESULTS: Twenty-five interviews were analysed. Some GPs view trust as a responsibility of the physician and have a high propensity for trusting patients. For other GPs, trust in patients is developed over successive consultations based on patient characteristics such as honesty, reliability, and proactivity in self-care. GPs were more willing to engage in colorectal cancer shared care with patients with whom they have a developed, trusting relationship.
    CONCLUSIONS: Trust plays a significant role in the patient\'s access to shared care. The implementation of shared care should consider the relational dynamics between the patient and health care providers.
    In a therapeutic partnership, physicians rely on patients to describe their health conditions, join in shared decision-making and engage with supported self-management activities. In shared care, the patient, primary care, and specialist services partner together using agreed processes and outputs for the patient to be placed at the centre of their care. Trust is key to this partnership. However, few studies have explored the physicians’ trust in patients and its implications for shared care models. This study aims to explore trust in patients amongst general practitioners (GPs), and the impacts of trust on GPs’ willingness to engage in new models of care, such as colorectal cancer shared care. After analysing 25 interview transcripts with GPs, we found some GPs view trust as a responsibility of the physicians, while in others, trust in patients developed over successive consultations based on patient characteristics such as honesty, reliability, and proactivity in self-care. GPs were more willing to engage in colorectal cancer shared care with patients whom they have a developed, trusting relationship. Trust plays a significant role in the patient’s access to shared care. The rollout of shared care should consider the relational dynamics between the patient and health care providers.
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  • 文章类型: Journal Article
    背景:同理心倾听对于表现压力演讲的患者尤其具有挑战性,而时间压力和成本限制了从业者的可用性。我们旨在探讨遇到无病理综合征的有压力言语的患者时,全科医生(GP)的经验。
    方法:使用主题分析方法,对法兰西岛地区的全科医生进行了19次半结构化访谈。
    结果:出现了三个主题。首先,当遇到一个有压力的演讲的病人时,引起了疑虑,包括挫折,不高兴,和保持焦点的斗争。第二,对于需要更多时间和精力的这些患者,需要付出巨大的努力来坚持适当的临床推理和护理。这种情况的定义因临床医生而异,对一些人来说,精神疾病是系统相关的。第三,需要实施特定的策略来适应这些患者:试图与患者保持距离,组织一个框架,在这个框架中,有压力的言语患者可以表达他或她自己,甚至是提高GP可用性的策略。
    结论:为有压力的言语患者提供充分护理所需的时间和精力使其具有挑战性,这增加了候诊室的压力。但是当医疗需求采取这种形式时,临床医生有可能拒绝患者或尽早转诊精神卫生服务,导致越来越多的被遗弃的感觉,忽视有机问题,和医学游牧。最初和持续的医学培训侧重于先进的沟通技巧和多焦点方法可以促进长期随访。
    Empathetic listening can be particularly challenging with patients presenting pressured speech, while time pressure and costs limit practitioners\' availability. We aimed to explore general practitioners\' (GPs\') experiences when encountering a patient with pressured speech without pathological syndrome.
    Using a thematic analysis method, 19 semi-structured interviews were conducted with GPs purposively sampled in Ile-de-France region.
    Three themes emerged. First, misgivings were aroused when meeting a patient with pressured speech, including frustration, displeasure, and a struggle to maintain focus. Second, huge efforts were needed to adhere to the appropriate clinical reasoning and care for these patients who need more time and energy. The very definition of this condition varies from one clinician to another, and for some, psychiatric conditions were systematically associated. Third, implementation of specific strategies was required to adjust to these patients: trying to create distance with the patient, to organize a framework in which the patient with pressured speech can express him or herself, and even strategies to increase GPs\' availability.
    The time and energy required to provide adequate care for patients presenting with pressured speech make it quite challenging, and this builds up pressure in the waiting room. But when medical demands take this form, there is a risk that clinicians will reject the patient or refer early to mental health services, leading to growing feelings of abandonment, the neglect of organic issues, and medical nomadism. Initial and continuing medical training focussing on advanced communication skills and multifocal approaches can foster long-term follow-up.
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  • 文章类型: Journal Article
    目标:2005年,法国有10%的咨询在没有处方的情况下结束。2019年,对文献的回顾发现,北欧30%至70%的无处方咨询和南欧10%至22%的无处方咨询,并强调了定量数据的稀缺性。不同的因素导致了这种异质性,例如产品可用性和状态,管理模式,分销渠道,临床实践建议,针对某些阶层的公共政策,等。我们研究的主要目的是量化2021年法国一般实践中无处方咨询的比率。次要目标是表征无处方咨询并分析其决定因素。
    方法:这是一项在奥弗涅医疗实践中使用自我问卷进行的定量观察研究。
    结果:在540份问卷中,无处方咨询率为24%(95%CI[20.11-27.41]).免费咨询是为了预防,行政问题,和手势。限制因素是“感觉需要药物”(OR=0.006),“不知道是否需要药物”(OR=0.11)和“急性原因咨询”(OR=0.33)。
    结论:急性咨询限制无处方咨询。全科医生(GP)可能高估了患者对药物处方的期望。必须支持法国全科医生不开药的决定。这是时间的长期投资,教育患者并避免因急性原因而进行新的咨询。在法国的未来研究中,将创建一种工具来帮助医生在急性咨询期间管理非处方。
    OBJECTIVE: In 2005, 10% of consultations in France ended without a prescription. In 2019, a review of the literature found 30 to 70% of prescription-free consultations in Northern Europe and 10 to 22% in Southern Europe and underlined the scarcity of quantitative data. Different factors contribute to this heterogeneity, such as product availability and status, modes of management, distribution channels, clinical practice recommendations, public policies targeting certain classes, etc. The main objective of our study was to quantify the rate of prescription-free consultations in general practice in France in 2021. The secondary objective was to characterize prescription-free consultations and analyze their determinants.
    METHODS: This was a quantitative observational study conducted using self-questionnaires among patients in medical practices in Auvergne.
    RESULTS: Out of 540 questionnaires, the rate of prescription-free consultations was 24% (95% CI [20.11-27.41]). Prescription-free consultations were for prevention, administrative problems, and gestures. The limiting factors are \"feeling a need for a medication\" (OR=0,006), \"not knowing if a medication is needed\" (OR=0.11) and \"consultations for acute reasons\" (OR=0.33).
    CONCLUSIONS: Acute consultations limit prescription-free consultations. General practitioners (GPs) probably overestimate patients\' expectation of drug prescription. The French GP must be supported in their decision to not prescribe drugs. This is a long-term investment of time, to educate patients and avoid new consultations for acute reasons. A tool to help doctors manage non-prescription during acute consultations will be created in a future study in France.
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  • 文章类型: Journal Article
    背景:老年人的护理连续性(COC)与较低的医疗保健服务使用率有关,降低住院风险,和较低的死亡率。然而,对老年人COC的研究受到短时间段或小样本的限制。长期COC只能在患者坚持常规治疗多年的情况下发展。因此,需要长期和更广泛的人群研究。
    目的:测量一般实践中纵向站点水平COC的程度,并列出所有老年丹麦公民的患者与一般实践关系的持续时间。
    方法:对2021年12月31日所有≥65岁的患者进行回顾性队列研究,纳入丹麦全科医生(1,144,941人)。
    方法:我们使用开始日期和结束日期的个人级别登记数据与一般实践一起列出,以分析2007-2021年患者-一般实践关系的班次和列出持续时间的站点级别COC。
    结果:在15年间,39.3%没有改变一般做法。在其余60.7%经历护理不连续的人中,34.0%有一个,16.3%两个,和6.3%三班倒。不到5%的普通练习改变了三倍以上。患者-一般实践关系平均为9.5年。总的来说,27.5%持续0-4年,33.7%持续了5-9年,38.8%持续≥10年。
    结论:丹麦一般实践为老年患者提供高水平的位点水平COC。平均≥65岁的患者更换了一次全科医生,平均患者-全科医生关系长度为9.5年。
    BACKGROUND: Continuity of care (COC) for older adults has been associated with lower use of healthcare services, decreased risk of hospitalisation, and lower mortality. However, research on COC in older adults is limited by short time periods and small sample sizes. Long-term COC can only develop if the patient stays with the general practice for ≥10 years. Therefore, research that focuses on long duration and broader populations is needed.
    OBJECTIVE: To measure the extent of longitudinal site-level COC in general practice and listing duration of the patient-general practice relation for all older Danish citizens.
    METHODS: Retrospective cohort study of all patients aged ≥65 years on 31 December 2021 listed with a Danish general practice (N = 1 144 941 persons).
    METHODS: Individual-level register data were used on start and end dates for listing with a general practice to analyse site-level COC by number of changes and listing duration of the patient-general practice relation from January 2007-December 2021.
    RESULTS: During the 15 years, 39.3% of older adults did not change general practice. Among the remaining 60.7%, who experienced discontinuity of care, 34.0% changed once, 16.3% changed twice, and 6.3% changed three times. Overall, <5% changed general practice >3 times. The duration of the patient-general practice relations were on average 9.5 years. Overall, 27.5% lasted 0-4 years, 33.7% lasted 5-9 years, and 38.8% lasted ≥10 years.
    CONCLUSIONS: Danish general practice provides high levels of site-level COC for their older patients. On average, patients aged ≥65 years changed general practice once and had a patient-general practice relation length of 9.5 years.
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  • 文章类型: Journal Article
    关于暴露前预防(PrEP)的医疗保健提供者(HCP)的认识和讨论,一种有效的艾滋病毒预防方法,与PrEP摄取有关,然而,很少有研究使用代表性样本或使用不同的行为风险亚组报告这些结局.这项横断面研究利用了男性在2017-2019年全国家庭增长调查中的回答,一项针对15-49岁美国人的全国代表性调查。使用多元逻辑回归模型来确定受访者的社会人口统计学特征和HIV风险行为与PrEP意识和HCP讨论的关系。PrEP意识较低(29.40%),报告曾与HCP讨论过PrEP的比例(4.48%)。基于社会人口统计学和行为特征,在性行为亚组中,意识到PrEP并与HCP讨论PrEP的可能性显着变化,突出了男性不同行为亚组中的不同风险。在促进PrEP意识和讨论时,应考虑性行为分组,因为HIV风险行为差异很大,仅性身份可能不足以捕获一个人的HIV风险。
    Awareness of and discussions with a healthcare provider (HCP) around pre-exposure prophylaxis (PrEP), an effective HIV prevention method, are associated with PrEP uptake, yet few studies utilize representative samples or report on these outcomes using distinct behavioral risk subgroups. This cross-sectional study utilized responses given by men on the 2017-2019 National Survey of Family Growth, a nationally representative survey of Americans aged 15-49 years. Multiple logistic regression models were used to determine how respondents\' sociodemographic characteristics and HIV risk behaviors were related to PrEP awareness and HCP discussions. PrEP awareness was low (29.40%) as was the proportion who reported ever discussing PrEP with an HCP (4.48%). Odds of being PrEP aware and discussing PrEP with an HCP varied significantly within sexual behavior subgroups based on sociodemographic and behavioral characteristics highlighting the differential risks within distinct behavioral subgroupings of men. Sexual behavior subgroupings should be considered when promoting PrEP awareness and discussions as HIV risk behaviors vary considerably and sexual identity alone may not sufficiently capture one\'s HIV risk.
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  • 文章类型: Journal Article
    背景:在职业全科培训期间,每个受训者的内容(在澳大利亚,注册商\')咨询临床经验预计将带来广泛的条件,以举例说明一般实践,使注册服务商能够获得管理常见临床病症和常见临床方案的能力。在注册员培训临床接触(ReCEnT)项目之前,尽管注册员咨询对培训质量很重要,但对注册员咨询内容的研究很少。ReCEnT旨在记录澳大利亚注册商个人的基于咨询的临床和教育经验。
    方法:ReCEnT是一项初始队列研究。它由密切相关的研究和教育组成部分组成。注册员由参与的全科医生区域培训组织招募。他们提供自己的人口统计信息,他们的技能,和他们以前的训练。在三个为期6个月的一般实践培训术语中,他们提供有关他们工作的实践的数据,并使用在线门户从60个连续的患者遭遇中收集数据。数据分析使用标准技术,包括线性和逻辑回归建模。ReCEnT项目已获得纽卡斯尔大学人类研究伦理委员会的批准,参考H-2009-0323。
    结论:该研究的优势在于与患者人口统计学相关的临床实践的颗粒细节,提出问题/诊断,药物决定,要求调查,转介,所采取的程序,安排后续行动,产生的学习目标,并寻求咨询中的帮助;将上述变量与它们所涉及的当前问题/诊断联系起来;以及非常高的响应率。这项研究由于没有关于疾病严重程度的信息而受到限制,病人的病史,完整的药物治疗方案,或患者对咨询时做出的临床决定的依从性。使用标准技术分析数据以回答研究问题,这些问题可以分类为:临床暴露的映射分析;临床暴露关联的探索性分析;教育行为的映射和探索性分析;其他结果的映射和探索性分析;纵向“注册员内部”分析;纵向“程序内”分析;测试教育干预措施的有效性;以及ReCEnT数据与其他来源的数据分析。该研究可以识别培训需求,并将随后的循证教育创新转化为全科医生的专业培训。
    During vocational general practice training, the content of each trainee\'s (in Australia, registrars\') in-consultation clinical experience is expected to entail a breadth of conditions that exemplify general practice, enabling registrars to gain competency in managing common clinical conditions and common clinical scenarios. Prior to the Registrar Clinical Encounters in Training (ReCEnT) project there was little research into the content of registrars\' consultations despite its importance to quality of training. ReCEnT aims to document the consultation-based clinical and educational experiences of individual Australian registrars.
    ReCEnT is an inception cohort study. It is comprised of closely interrelated research and educational components. Registrars are recruited by participating general practice regional training organisations. They provide demographic information about themselves, their skills, and their previous training. In each of three 6-month long general practice training terms they provide data about the practice where they work and collect data from 60 consecutive patient encounters using an online portal. Analysis of data uses standard techniques including linear and logistic regression modelling. The ReCEnT project has approval from the University of Newcastle Human Research Ethics Committee, Reference H-2009-0323.
    Strengths of the study are the granular detail of clinical practice relating to patient demographics, presenting problems/diagnoses, medication decisions, investigations requested, referrals made, procedures undertaken, follow-up arranged, learning goals generated, and in-consultation help sought; the linking of the above variables to the presenting problems/diagnoses to which they pertain; and a very high response rate. The study is limited by not having information regarding severity of illness, medical history of the patient, full medication regimens, or patient compliance to clinical decisions made at the consultation. Data is analysed using standard techniques to answer research questions that can be categorised as: mapping analyses of clinical exposure; exploratory analyses of associations of clinical exposure; mapping and exploratory analyses of educational actions; mapping and exploratory analyses of other outcomes; longitudinal \'within-registrar\' analyses; longitudinal \'within-program\' analyses; testing efficacy of educational interventions; and analyses of ReCEnT data together with data from other sources. The study enables identification of training needs and translation of subsequent evidence-based educational innovations into specialist training of general practitioners.
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  • 文章类型: Journal Article
    在这两个COVID-19年中,初级医疗保健服务已经从面对面转变为远程咨询。我们根据专业人士群体研究了COVID-19大流行之前和期间的趋势,患者年龄,以及与诊断注册表的关联。我们分析了这两个时期的比例,并计算了2017-2019年和2020-2021年咨询类型的比率。使用每月线性时间趋势检查COVID-19期间。结果显示,2020-2021年咨询量增长了24%。与2017-2019年相比,全科医生的面对面咨询人数大幅下降(比率0.44;95%CI:0.44至0.45),但这一增长在不同年龄段不成比例;15-44岁的患者的远程咨询次数增加了45.8%,年龄>74岁的人有18.2%以上。与全科医生面对面咨询和每月诊断活动的线性回归模型趋势为阳性,而远程咨询的趋势与诊断登记和面对面咨询的趋势相反。远程咨询未能解决COVID-19导致的对初级医疗保健服务需求增加的问题。全科医生,护士和初级卫生保健专业人员需要更适应的远程咨询工具,以建立有效的诊断注册表,以保持访问的公平性,并回答老年患者的需求和优先事项。
    Primary healthcare services have changed from face-to-face to tele-consults during the two COVID-19 years. We examined trends before and during the COVID-19 pandemic years based on groups of professionals, patient ages, and the associations with the diagnostic registry. We analyzed proportions for both periods, and ratios of the type of consults in 2017-2019 and 2020-2021 were calculated. The COVID-19 period was examined using monthly linear time trends. The results showed that consults in 2020-2021 increased by 24%. General practitioners saw significant falls in face-to-face consults compared with 2017-2019 (ratio 0.44; 95% CI: 0.44 to 0.45), but the increase was not proportional across age groups; patients aged 15-44 years had 45.8% more tele-consults, and those aged >74 years had 18.2% more. Trends in linear regression models of face-to-face consults with general practitioners and monthly diagnostic activity were positive, while the tele-consult trend was inverse to the trend of the diagnostic registry and face-to-face consults. Tele-consults did not resolve the increased demand for primary healthcare services caused by COVID-19. General practitioners, nurses and primary healthcare professionals require better-adapted tele-consult tools for an effective diagnostic registry to maintain equity of access and answer older patients\' needs and priorities in primary healthcare.
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  • 文章类型: Journal Article
    背景:对于一些不知道预后的晚期癌症患者至关重要。然而,在明智决策的时代,无意识的潜在保护功能容易被忽视。我们的目的是调查1)不知道预后的晚期癌症患者的比例;2)患者预后信息偏好的原因;3)与患者预后信息偏好相关的特征;4)医生感知和患者实际预后信息偏好之间的一致性。
    方法:这是一项具有结构化调查(PROSPECT)的横断面研究。内科和胸肿瘤学家包括患者(n=524),来自七家荷兰医院,转移性/无法手术的癌症,预期中位总生存期≤12个月。为了进行分析,使用描述性统计和逻辑回归模型.
    结果:25-31%的患者不知道一般预期寿命或5/2/1年死亡风险。与更喜欢知道预后的患者相比,更喜欢无意识的患者更经常报告乐观,避免和无法理解信息是想要有限信息的原因;以及不太经常报告对他人的期望,焦虑,自主性和控制感是想要完整信息的原因。女性(p<0.05),接受进一步系统治疗的患者(p<.01)和具有强烈斗志的患者(p<.001)更有可能不知道预后.医生感知和患者实际预后信息偏好之间的一致性较差(kappa=0.07)。
    结论:我们鼓励医生明确探索患者的预后信息偏好和根本原因,实现个性化的通信。未来的研究可能会调查患者预后信息偏好随时间的变化,并检查预后信息对偏爱无意识的患者的影响。
    BACKGROUND: For some patients with advanced cancer not knowing prognosis is essential. Yet, in an era of informed decision-making, the potential protective function of unawareness is easily overlooked. We aimed to investigate 1) the proportion of advanced cancer patients preferring not to know prognosis; 2) the reasons underlying patients\' prognostic information preference; 3) the characteristics associated with patients\' prognostic information preference; and 4) the concordance between physicians\' perceived and patients\' actual prognostic information preference.
    METHODS: This is a cross-sectional study with structured surveys (PROSPECT). Medical and thoracic oncologists included patients (n = 524), from seven Dutch hospitals, with metastatic/inoperable cancer and an expected median overall survival of ≤ 12 months. For analysis, descriptive statistics and logistic regression models were used.
    RESULTS: Twenty-five to 31% of patients preferred not to know a general life expectancy estimate or the 5/2/1-year mortality risk. Compared to patients preferring to know prognosis, patients preferring unawareness more often reported optimism, avoidance and inability to comprehend information as reasons for wanting limited information; and less often reported expectations of others, anxiety, autonomy and a sense of control as reasons for wanting complete information. Females (p < .05), patients receiving a further line of systemic treatment (p < .01) and patients with strong fighting spirit (p < .001) were more likely to prefer not to know prognosis. Concordance between physicians\' perceived and patients\' actual prognostic information preference was poor (kappa = 0.07).
    CONCLUSIONS: We encourage physicians to explore patients\' prognostic information preferences and the underlying reasons explicitly, enabling individually tailored communication. Future studies may investigate changes in patients\' prognostic information preferences over time and examine the impact of prognostic disclosure on patients who prefer unawareness.
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