Person-centred

以人为本
  • 文章类型: Journal Article
    全球艾滋病毒感染者社区正在老龄化,其中一些有越来越复杂的护理需求,已知过量的非HIV相关的合并症和相关问题,包括随之而来的多重用药。在蒙特利尔举行的2022年国际艾滋病大会上,加拿大,“银区”是在地球村创建的,作为艾滋病毒感染老年人的安全空间。作为银区活动的一部分,举行了一次会议,讨论该小组的全球护理模式。来自不同资源环境和不同专业知识的艾滋病毒治疗提供者和倡导者被邀请分享他们的经验,反思,和想法,这份共识声明是在这些讨论的基础上形成的。出现了不同的护理方法,根据当地的需求和资源,很明显,复杂和脆弱的问题不需要年龄限制。尽管存在明显的地区差异,一些共同的主题变得明显,并就可以在不同背景下考虑的基本原则达成共识。这些都在这里讨论,就开发定制以人为本的护理模式的必要近端步骤达成一致。
    ABSTRACTGlobally the community of people with HIV is ageing, and some of these have increasingly complex care needs, with a known excess of non-HIV related comorbidities and related issues including consequent polypharmacy. At the 2022 International AIDS Conference in Montréal, Canada, the \"Silver Zone\" was created in the Global Village as a safe space for older people with HIV. As part of the Silver Zone activities, a session discussing global models of care for in this group was held. HIV treatment providers and advocates from diverse resource settings and with a diversity of expertise were invited to share their experience, reflections, and ideas, and this consensus statement was formed based on these discussions. Different approaches to care emerged, based on local needs and resources, and it became clear that issues of complexity and frailty need not be age limited. Despite clear regional differences, some common themes became apparent, and a consensus was established on basic principles that may be considered in diverse settings. These are discussed here, with agreement on necessary proximal steps to develop bespoke person-centred care models.
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  • 文章类型: Journal Article
    BACKGROUND: Adults with intellectual disability are affected by dementia at equivalent and elevated rates, many surviving into advanced age. End of life care and support considerations come into play among these individuals when most are in the advanced stage of dementia.
    METHODS: A preliminary report summarizing available literature and making initial recommendations was developed by a workgroup, reviewed by all conference participants and then was finalized by the workgroup.
    RESULTS: The International Summit on Intellectual Disability and Dementia produced a report on End of life care in advanced dementia that provides a synthesis statement which encompasses defining the state of advanced dementia, proposes use of palliative care services (including hospice) and recommends special efforts for enabling advanced directives and advance care planning prior to the extensive progression of dementia. The Summit further recommended that when aiding adults with advanced dementia, the following be undertaken: integrative efforts between intellectual disability and palliative care providers, specialized training for carers on end of life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.
    CONCLUSIONS: The Consensus recommendations will ensure greater and more appropriate support at end of life for persons with intellectual disabilities and advanced dementia.
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