Parental stress

父母的压力
  • 文章类型: Journal Article
    BACKGROUND: Parental stress experienced in the context of caring for children with autism spectrum disorder (ASD) in preschool is significant and has been poorly studied; studies tend to focus on more advanced ages of children where parental symptomatology has become chronic. The current study sought to provide new empirical evidence on factors associated with parental stress.
    METHODS: An exhaustive search was conducted in four academic databases: CINAHL Complete, Medline Complete, Web of Science (WoS), and Scopus, limiting the articles to those published between 2017 and 2023.
    RESULTS: The sample obtained consisted of 24 selected articles, which were produced in 11 countries, and all were in English. In terms of content, the topics addressed were the manifestation of parental stress, factors of the child with ASD and their relationship with parental stress, factors of parents of children with ASD, family factors of parents of children with ASD, social factors of parents of children with ASD, parental stress and access to formal care services, and parental stress and specialized interventions.
    CONCLUSIONS: It is possible to affirm that research reports indicate that the general level of stress among parents of children with ASD is compared to their reference groups, both in relation to child-related stress and other stressors. The variables that affect parental stress exhibit a reciprocal influence among them, so interventions aimed at early childhood should incorporate both the children and their parental figures. This is in consideration of the impact that stress has on the mental health of parents, establishing that parents with better health have early access to support services during the early years of parenting, as well as in later years.
    UNASSIGNED: El estrés parental vivenciado en el contexto de cuidado de los niños con trastorno del espectro autistas en etapa preescolar es significativo y ha sido muy poco estudiado, las investigaciones tienden a focalizarse en edades de los niños más avanzada donde la sintomatología de los padres se ha cronificado. El objetivo de la presente investigación fue actualizar el corpus de evidencia empírica referida a los factores relacionados con el Estrés parental.
    UNASSIGNED: Se realizó una búsqueda exhaustiva en cuatro bases de datos académicas: CINAHL Complete, Medline Complete, Web of Science (WoS) y Scopus, limitando los artículos publicados entre los años 2017 y 2023.
    RESULTS: La muestra obtenida fue de 24 artículos seleccionados, los cuales fueron producidos por 11 países todos de habla inglesa. En cuanto al contenido, los temas abordados son: La manifestación del estrés parental, factores del niño con TEA y su relación con el estrés parental, factores de los padres de los niños con TEA, factores familiares de los padres de los niños con TEA, factores sociales de los padres de los niños con TEA, estrés parental y acceso a los servicios formales de atención, y estrés parental e intervenciones especializadas.
    CONCLUSIONS: Es posible afirmar que las investigaciones reportan que el nivel general de estrés de los padres de niños con TEA es superior al de sus grupos de referencia, tanto en relación al estrés relacionado con el niño, como el que no. Las variables que afectan el estrés parental presentan una influencia recíproca entre éstas, por lo que las intervenciones dirigidas a la primera infancia deberían incorporar a los niños y a sus figuras parentales. Esto, en atención al impacto que el estrés presenta en la salud mental de los padres, estableciendo que los padres con mejor salud mental presentan mayor acceso temprano a los servicios de apoyo durante los primeros años de crianza, y en los años posteriores.
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  • 文章类型: Journal Article
    目的:经验证据强调了父母压力与后代情绪和行为问题之间的关联。然而,缺乏关于这一主题的全面系统综述或荟萃分析。因此,本研究旨在解决科学问题:父母压力与儿童情绪/行为问题之间是否存在关系?
    方法:本系统综述采用荟萃分析调查了PubMed,PsycINFO,和2021年8月至9月之间的BibliotecaVirtualemSaúde。本搜索组合了术语(学龄儿童)和(父母压力或育儿压力或家庭压力)和(情绪和行为问题或内在化和外在化问题)。合格标准包括横截面,队列,以及过去五年内发表的病例对照研究,探索学龄儿童父母压力(压力性生活事件和父母相关压力障碍)与情绪/行为问题之间的关系。PROSPEROIDCRD42022274034。
    结果:在符合系统评价的所有纳入标准的24项研究中(n=31,183),9人符合纳入荟萃分析的条件.荟萃分析揭示了父母压力与情绪问题之间的关联(COR:0.46[95%CI:0.27-0.61],p<0.001,异质性=89%)以及行为问题(COR:0.37[95%CI:0.27-0.46],p<0.001,异质性=76%)。
    结论:这些研究结果表明,父母的压力可以预测学龄儿童的情绪/行为问题。由于这些问题与成年后的长期负面影响有关,这些结果对于预防后代的心理健康问题以及筛查和管理父母的压力至关重要。
    OBJECTIVE: Empirical evidence underscores an association between parental stress and emotional and behavioral problems in offspring. However, a comprehensive systematic review or meta-analysis on this topic is lacking. Thus, this study aims to address the scientific inquiry: Is there a relationship between parental stress and emotional/behavioral problems in children?
    METHODS: This systematic review with a meta-analysis surveyed PubMed, PsycINFO, and the Biblioteca Virtual em Saúde between August and September 2021. The present search combined terms (school-age children) AND (parental stress OR parenting stress OR family stress) AND (emotional and behavioral problems OR internalizing and externalizing problems). Eligibility criteria encompassed cross-sectional, cohort, and case-control studies published within the last five years, exploring the association between parental stress (stressful life events and parenthood-related stress disorders) and emotional/behavioral problems in school-age children. PROSPERO ID CRD42022274034.
    RESULTS: Of the 24 studies meeting all inclusion criteria (n = 31,183) for the systematic review, nine were eligible for inclusion in the meta-analysis. The meta-analysis revealed an association between parental stress and emotional problems (COR: 0.46 [95 % CI: 0.27 - 0.61], p < 0.001, Heterogeneity = 89 %) as well as behavioral problems (COR: 0.37 [95 % CI: 0.27 - 0.46], p < 0.001, Heterogeneity = 76 %).
    CONCLUSIONS: These findings indicate that parental stress predicts emotional/behavioral problems in school-age children. Since these problems are related to long-term negative effects in adulthood, these results are crucial for preventing mental health problems in offspring and for screening and managing parental stress.
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  • 文章类型: Systematic Review
    背景:近年来,已经发表了大量关于早产后父母心理健康和压力的研究。这篇综述旨在回顾父母长期抑郁的患病率和危险因素。焦虑,早产后的创伤后应激症状和育儿压力。
    方法:我们搜索了PubMed,PsychINFO和WebofScience用于描述性,2013年1月至2022年8月发表的横断面和纵向研究。
    结果:45项研究符合纳入标准。头两年,抑郁症,焦虑,约20%的极端和极低出生体重(E/VLBW)婴儿的母亲存在创伤后应激症状和育儿压力。可以观察到长期的心理困扰症状,尽管很少有研究关注到学龄期和更长时间的症状。VLBW婴儿的父亲也可能会经历更多的心理困扰,然而,他们只被纳入十项研究。我们发现,当共同父母正在与心理健康症状作斗争时,父母的痛苦更常见。确定了许多风险因素,如社会风险,精神病史,人际关系因素(即社会支持)和儿童相关因素(即脑室内出血,残疾,在家里使用医疗设备)。
    结论:一些研究存在方法学问题,例如缺乏对已知混杂因素的控制,并且采用了各种各样的措施。
    结论:确定了压力和心理健康症状的重要危险因素。需要更多的证据来确定长期症状是否持续到学龄期。研究应侧重于采取基于家庭的方法,以确定VLBW婴儿父母的预防策略和弹性因素。
    BACKGROUND: In recent years, there has been a wide array of research studies published on parental mental health and stress following very preterm birth. This review aims at reviewing the prevalence and risk factors of long-term parental depression, anxiety, post-traumatic stress symptoms and parenting stress following very preterm birth.
    METHODS: We searched PubMed, PsychINFO and Web of Science for descriptive, cross-sectional and longitudinal studies published between January 2013 and August 2022.
    RESULTS: 45 studies met our inclusion criteria. In the first two years, depression, anxiety, post-traumatic stress symptoms and parenting stress were present in ∼20 % of mothers of extreme and very low birth weight (E/VLBW) infants. Long-term psychological distress symptoms could be observed, although few studies have focused on symptoms into school age and longer. Fathers of VLBW infants might experience more psychological distress as well, however, they were only included in ten studies. We found that parental distress is more common when the co-parent is struggling with mental health symptoms. Many risk factors were identified such as social risk, history of mental illness, interpersonal factors (i.e. social support) and child-related factors (i.e. intraventricular hemorrhage, disability, use of medical equipment at home).
    CONCLUSIONS: Several studies have methodological issues, such as a lack of control of known confounders and there is a large variety of measures employed.
    CONCLUSIONS: Important risk factors for stress and mental health symptoms were identified. More evidence is needed to determine if long-term symptoms persist into school age. Research should focus on taking a family-based approach in order to identify preventive strategies and resilience factors in parents of VLBW infants.
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  • 文章类型: Systematic Review
    目的:确定评估儿科临床人群父母压力的量表,并分析其心理测量特性。
    方法:四个电子数据库(PubMed,WebofScience,PsycINFO,和Scopus)和元搜索引擎(GoogleScholar和OpenGrey)的搜索没有时间限制。方法学质量是使用以健康测量指标(COSMIN)为基础的标准进行评估的,证据质量是使用建议评估的分级,发展,和评估(等级)方法由COSMIN修改。最后,对证据质量最高的仪器提出了建议。
    结果:共38项研究报告了11种不同的评估儿科临床环境中父母压力的工具。根据COSMIN指南,在最后阶段对六种仪器进行了“A”评级(推荐)。家长儿科量表是评估心理测量属性数量最多并获得最高方法学质量的工具,全球评估,以及不同心理测量特性的证据质量。
    结论:本系统综述概述了儿科临床环境中使用的父母压力仪器的测量特性。家长儿科清单是衡量住院或患病儿童父母压力的最强大工具之一。需要为临床环境中使用的所有父母压力量表生成证据。
    结论:鉴于尚未系统地评估儿科医疗机构中使用的现有父母压力量表的心理测量特性,本综述根据COSMIN使用了综合方法。
    报告方法:PRISMA声明和COSMIN报告指南,用于研究患者报告结果指标的测量特性。
    OBJECTIVE: To identify scales that assess parental stress in the paediatric clinical population and to analyse their psychometric properties.
    METHODS: Four electronic databases (PubMed, Web of Science, PsycINFO, and Scopus) and metasearch engines (Google Scholar and Open Grey) were searched with no time period limitations. Methodological quality was assessed using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) and quality of evidence using the Grading of Recommendations Assessment, Development, and Evaluation (GRADE) approach modified by COSMIN. Finally, recommendations were made for the instruments with the highest quality of evidence.
    RESULTS: A total of 38 studies reporting on 11 different instruments for assessing parental stress in the paediatric clinical setting were included. Six instruments were \'A\' rated (recommended) in the final phase in line with COSMIN guidelines. The Paediatric Inventory for Parents was the instrument that evaluated the highest number of psychometric properties and obtained the highest methodological quality, global assessment, and quality of evidence for the different psychometric properties.
    CONCLUSIONS: This systematic review provides an overview of the measurement properties of the parental stress instruments used in the paediatric clinical setting. The Paediatric Inventory for Parents stands out as being one of the most robust instruments for measuring stress in parents with a hospitalised or sick child. Evidence needs to be generated for all the parental stress scales used in the clinical setting.
    CONCLUSIONS: Given that the psychometric properties of the existing parental stress scales used in paediatric health care settings have not been systematically assessed, the present review utilised comprehensive methods according to COSMIN.
    UNASSIGNED: REPORTING METHOD: PRISMA statement and COSMIN reporting guidelines for studies on measurement properties of patient-reported outcome measures.
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  • 文章类型: Systematic Review
    本系统综述旨在确定有特殊教育需要的儿童家庭中父母压力的风险因素和保护因素。研究表明,家庭的健康与身体有关,心理,和儿童的社会条件,以及家庭运作,压力应对策略,以及他们父母的社会和职业支持。有特殊教育需求的孩子的父母经历了高水平的父母压力。确定相关的风险因素和保护因素可能有助于提供干预措施以促进这些父母的心理健康。
    布尔运算符用于搜索多个在线数据库,本系统评价采用了系统评价和荟萃分析指南的首选报告项目。数据被提取到人口类别中,年龄,区域,孩子的诊断,应力测量仪,危险因素和保护因素。
    26项研究,包括5169名父母和3726名儿童,被审查了。发现以下四个主要危险因素和保护因素与父母压力有关:父母的性别,诊断相关的应对问题,社会经济特征,和父母的社会孤立。
    这项系统评价确定了与夫妻社会支持相关的四个重要风险因素和保护因素,家庭成员,和社交圈。各机构可以提供财政和人力援助以及专业支持和服务,以提高父母的知识和应对技能,以及情感支持,早期筛查,并不断评估父母的进展。强烈建议为有特殊教育需要的儿童的父母提供持续和与诊断相关的支持的社会政策和干预措施。
    UNASSIGNED: This systematic review aimed to identify the risk factors and protective factors for parental stress in families with children with special educational needs. Studies have indicated that the wellbeing of families is related to the physical, psychological, and social conditions of the children, as well as the family functioning, stress coping strategies, and social and professional support of their parents. The parents of children with special educational needs experience high levels of parental stress. Identifying the associated risk factors and protective factors may shed light on the provision of interventions to promote the mental wellbeing of these parents.
    UNASSIGNED: Boolean operators were used to search multiple online databases, and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were applied in this systematic review. Data were extracted into categories of population, age, region, the child\'s diagnosis, the stress-measuring instrument, and the risk factors and protective factors.
    UNASSIGNED: Twenty-six studies, including 5,169 parents and 3,726 children, were reviewed. The following four major risk factors and protective factors were found to be associated with parental stress: the sex of the parents, diagnosis-related coping issues, socioeconomic characteristics, and social isolation of the parents.
    UNASSIGNED: This systematic review identified four significant risk factors and protective factors related to social support from couples, family members, and social circles. Various agencies may provide financial and manpower assistance and professional support and services to improve the parents\' knowledge and coping skills, as well as affectional support, early screening, and continuous assessment of the parents\' progress. Social policies and interventions offering continuous and diagnosis-related support to the parents of children with special educational needs are highly recommended.
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  • 文章类型: Journal Article
    地中海贫血是一组先天性血红蛋白(Hb)疾病,其特征是血红蛋白四聚体的一个或多个珠蛋白链的产生减少或完全减少。随后无节制地破坏红细胞(RBC),导致严重的贫血。疾病的严重程度通常仍然变化很大。患有地中海贫血的儿童患有该疾病的后果和治疗并发症。这种疾病还会对家庭成员造成负面影响,精神上受苦的人,社会,财政上,甚至身体上。在这次审查中,我们强调家庭和照顾者所经历的挑战;例如,反复输血是组织伤亡的主要原因,发病率,和致命的临床结果。直到骨髓移植和基因治疗开始,地中海贫血的治疗方法才成功。
    Thalassemias are a group of congenital hemoglobin (Hb) disorders distinguished by dwindling or total curtailment of production of one or more globin chains of hemoglobin tetramers, ensuing in unrestrained destruction of red blood cells (RBC) that causes severe anemia. The severity of the disease often remains immensely variable. Children with thalassemia suffer from the disease\'s consequences and treatment complications. The disease also causes a negative impact on family members, who suffer mentally, socially, financially, and even physically. In this review, we highlight the challenges experienced by the family and caregivers; for instance, repeated blood transfusion as the dominant origin of tissue casualty, morbidity, and fatal clinical outcomes. Treatment modalities regarding thalassemias were not successful until the inception of bone marrow transplantation and gene therapy.
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  • 文章类型: Journal Article
    父母的压力是一种与人们对困难的感知和无法应付育儿要求的感觉有关的结构。这种结构通常是对父母义务的消极或厌恶反应,现有证据还表明,过度的育儿压力减少了积极育儿行为的使用,并且与育儿功能失调有关。存在不同的工具来评估父母的压力。本文是翻译和改编育儿压力指数(PSI)项目的一部分,第四版,在其两种形式(完整和短)。这项研究的目的是确定该工具获得的心理测量指标,并审查它们可以提供的证据。
    方法:遵循PRISMA指南(系统评价和荟萃分析的首选报告项目),与PSI相关的研究在不同的数据库(ERIC,Psycarticles,PubMed,Scopus和WebofScience)。
    结果:筛选过程产生了16篇文章;四个分析了PSI-4的心理测量特性,其余的研究了PSI-3。尽管版本4于2012年发布,但这些研究很少。然而,他们遵循上一个简短版本中提到的路线,内部高度的一致性和三个因素的因素结构。
    结论:使用具有101个项目的测量仪器的困难意味着对PSI的完整版本的研究很少,翻译和语言适应研究除外。
    Parental stress is a construct related to people\'s perception of difficulties and feelings of not being able to cope with the demands of parenting. This construct is often experienced as a negative or aversive response to parental obligations, and the available evidence also suggests that excessive parenting stress reduces the use of positive parenting behaviors and are related to dysfunctional parenting. Different instruments exist to assess parental stress. This article is part of a project to translate and adapt the Parenting Stress Index (PSI), fourth edition, in its two forms (full and short). The aim of this research is to identify the psychometric indicators obtained by this instrument and to review the evidence they can provide.
    METHODS: Following the PRISMA guide (Preferred Reporting Items for Systematic Reviews and Meta-Analyses), the studies related to the PSI were identified in different databases (ERIC, PsycArticles, PubMed, Scopus and Web of Science).
    RESULTS: The screening process resulted in 16 articles; four have analyzed the psychometric properties of the PSI-4 and the rest have studied the PSI-3. Although version 4 was published in 2012, the studies are scarce. However, they follow the line noted in the previous short version, a high internal consistency and a factor structure of three factors.
    CONCLUSIONS: The difficulties of working with a measurement instrument with 101 items means that the full version of the PSI has been little studied, except in translation and linguistic adaptation studies.
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  • 文章类型: Journal Article
    成为父母是一个具有挑战性的过渡,和压力因素可能出现。这项范围审查旨在绘制地图,从文学,结构,潜在的障碍,在为3岁以下儿童的父母开展育儿方案时,应考虑到促进者。它遵循JBI方法,并包括对3岁以下儿童父母的研究(参与者),关于育儿计划结构的研究,其潜在的障碍,和促进者(概念)在医疗保健或社区设置(上下文)。2016年至2021年的定性和/或定量研究设计和灰色文献出版物符合资格。在CINAHLPlus中,全文分三个阶段进行搜索,MEDLINE与全文,和PubMed数据库。它也是在OpenGrey中进行的,ProQuest,葡萄牙开放获取科学知识库,谷歌学者。选择了14篇文章。关于育儿计划,确定了以下方面:好处;需要考虑的结构要素;促进因素和可能的发展障碍,和评估方案的测量仪器。育儿计划是促进健康的重要途径,可持续,和弹性社会。它应该适应个人,groups,和社区。它们为父母增加价值,孩子们,和社会,应该仔细适应群体的需要。
    Becoming a parent is a challenging transition, and stress factors may arise. This scoping review aims to map, from the literature, the structure, potential barriers, and facilitators to be considered when conducting a parenting programme for parents of children up to 3 years old. It followed the JBI methodology and included studies with parents of children up to 3 years old (Participants), studies about parenting programme structure, its potential barriers, and facilitators (Concept) in the healthcare or community setting (Context). Qualitative and/or quantitative study designs and grey literature publications between 2016 and 2021 were eligible. The search was performed in three stages in CINAHL Plus with Full Text, MEDLINE with Full Text, and PubMed databases. It was also conducted in OpenGrey, ProQuest, Portuguese Open Access Scientific Repository, and Google Scholar. Fourteen articles were selected. The following aspects were identified regarding parenting programmes: benefits; structuring elements to be considered; facilitating factors and possible barriers to its development, and measurement instruments to assess the programme. Parenting programmes are important ways to contribute to a healthy, sustainable, and resilient society. It should be adapted to individuals, groups, and communities. They add value to parents, children, and society and should be carefully adapted to the group\'s needs.
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  • 文章类型: Journal Article
    Background: Parents play a significant role in the management and monitoring of their children\'s Type 1 diabetes mellitus (T1DM), being considered a family disease. The current review intends to investigate parental stress, depression and anxiety symptoms associated with self-efficacy referred to paediatric diabetes management. Method: A literature review was carried out using PsycINFO, Web of Science and PubMed where the following terms were considered: diabetes mellitus, paediatric, parent-child relationship, self-efficacy, parenting stress, perceived stress, stress, depression, anxiety. Standing a defined list of inclusion and exclusion criteria, a total of 33 papers were finally included. Results: Findings have shown that parents experience relatively high levels of anxiety, depression and stress symptoms related to managing a child with T1DM and are associated with parental self-efficacy. Parental stress predicts a worsening in the control of HbA1c levels, while parental diabetes-specific distress predicts an increase in children depression symptoms. High parental self-efficacy associates with better monitoring, allowing better adherence and more balanced HbA1c levels in the children. Conclusions: Interventions aimed at fostering social support, improving diabetes management, and decreasing perceived stress, might alleviate parents\' psychological symptoms by focusing on increasing their self-efficacy. Digital interventions might also represent valuable solutions to support parents in the management of paediatric diabetes not presented and substantiated in the main text and should not exaggerate the main conclusions.
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  • 文章类型: Journal Article
    There is a growing interest in understanding the relationship between family support and family or child-related outcomes in high-income countries. However, this has received little attention in low- and middle-income countries. The purpose of this review was to explore the relationship between family support and family and child-related outcomes among families affected by disability in low- and middle-income countries. We conducted a scoping review of five databases using search terms related to \'family\', \'support\', \'child\', and \'disability\'. A total of 13 articles met the inclusion criteria. Families of children with disabilities received most of their support from informal sources (e.g. immediate family members, friends, and parents support groups). Parental stress was most often evaluated as the family outcome and was negatively linked to emotional support and childcare assistance from immediate family members. Movement and mobility therapy offered by rehabilitation professionals was found to improve children\'s walking patterns. Positive attitudes from community members were key facilitators to participation of children with disabilities in social activities. The review calls for urgent attention to research in low- and middle-income countries, particularly the extent of support families are receiving from government-led support systems.
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