Parent Report

父报告
  • 文章类型: Journal Article
    历史上,双语被认为是发育性口吃的危险因素。幼儿纵向研究,2010-11幼儿园班级(ECLS-K:2011)表面上包含测试该主张的证据。
    我们分析了ECLS-K:2011年幼儿园至五年级的单语和双语儿童的数据。
    患病率,男性/女性比例,ECLS中报告的口吃的发作和恢复与广泛接受的口吃临床报告不一致。我们认为报告的数字可能具有误导性。我们讨论了一些可能导致报告的患病率上升的因素,包括缺乏对口吃与口吃之间的区别的认识正常的不流畅,以及教师和家长对“口吃”一词的非正式用法来描述典型的不流畅。
    UNASSIGNED: Bilingualism has historically been claimed to be a risk factor for developmental stuttering. The Early Childhood Longitudinal Study, Kindergarten Class of 2010-11 (ECLS-K:2011) ostensibly contains evidence to test that claim.
    UNASSIGNED: We analyze data from monolingual and bilingual children in Kindergarten through fifth grade in the ECLS-K:2011.
    UNASSIGNED: The prevalence, male/female ratio, and onset and recovery of reported stuttering in the ECLS are inconsistent with widely-accepted clinical reports of stuttering. We argue that the reported figures may be misleading. We discuss some factors that may inflate the reported prevalence, including a lack of awareness of the difference between stuttering vs. normal disfluencies, and the informal usage of the word \"stuttering\" on the part of teachers and parents to describe typical disfluencies.
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  • 文章类型: Journal Article
    这项研究的目的是研究父母对奶瓶喂养行为的报告与奶嘴上的婴儿非营养性吸吮(NNS)以及奶瓶喂养过程中的口服喂养技巧之间的关联。进行了前瞻性研究。在3个月时招募了没有先前诊断出喂养障碍的足月婴儿。父母使用新生儿饮食评估工具-瓶喂养(NeoEAT-Bottle-Feeding)报告婴儿的奶瓶喂养行为,由五个领域组成:婴儿法规,能量和生理稳定性,胃肠道功能,感官反应,以及有问题的喂养症状。使用定制安抚奶嘴测量婴儿NNS,压力传感器装置,它产生以下NNS变量:持续时间(秒),频率(Hz),振幅(cmH20),每个脉冲串的周期,循环量,和爆裂量。口服喂养技巧(OFS)量表用于测量初始体积,传输体积,熟练程度,和奶瓶喂养过程中的牛奶转移率。52名婴儿(58%为男性)报告了以前的瓶子经历完成了这项研究。NeoEAT-Bottle-Feeding总分与NNS爆发持续时间和每次NNS周期呈显着正相关。NeoEAT-Bottle-Feeding能量和生理稳定性域与每次爆发的NNS周期呈显着正相关。NeoEAT-Bottle-Feeding胃肠道功能域评分与NNS持续时间呈显著正相关,振幅,和每个脉冲周期。NeoEAT-Bottle-Feeding域与OFS量表之间没有显着关联。研究结果表明,父母在3月龄时喂养有问题的报告与婴儿NNS生理方面有关,而与奶瓶喂养期间的口服喂养指标无关。奶瓶喂养行为的家长报告,特别是关于胃肠道问题,与婴儿NNS的各个方面有关。这些数据一起将允许对婴儿喂养有更细致的理解,并且将有助于确定婴儿是否有喂养延迟。
    The aim of this study was to examine associations between parent reports of bottle-feeding behaviors and infant non-nutritive suck (NNS) on a pacifier as well as oral feeding skills during bottle-feeding. A prospective study was conducted. Full-term infants with no prior diagnosed feeding disorders were recruited at 3-months. Parents reported their infant\'s bottle-feeding behaviors using the Neonatal Eating Assessment Tool-Bottle-Feeding (NeoEAT-Bottle-Feeding), consisting of five domains: Infant Regulation, Energy and Physiologic Stability, Gastrointestinal Tract Function, Sensory Responsiveness, and Compelling Symptoms of Problematic Feeding. Infant NNS was measured using a custom pacifier, pressure transducer device, which yields the following NNS variables: duration (sec), frequency (Hz), amplitude (cmH20), cycles per burst, cycle amount, and burst amount. The Oral Feeding Skills (OFS) scale was used to measure the initial volume, transfer volume, proficiency, and rate of milk transfer during bottle feeding. Fifty-two infants (58% male) with reported prior bottle experience completed this study. NeoEAT-Bottle-Feeding Total score was significantly positively associated with NNS burst duration and NNS cycles per burst. The NeoEAT-Bottle-Feeding Energy and Physiologic Stability domain was significantly positively correlated with NNS cycles per burst. NeoEAT-Bottle-Feeding Gastrointestinal Tract Function domain score was significantly positively correlated with NNS duration, amplitude, and cycles per burst. There were no significant associations between NeoEAT-Bottle-Feeding domains and the OFS scale. The findings demonstrate that parent reports of problematic feeding at 3 months of age are associated with aspects of infant NNS physiology and not with oral feeding metrics during bottle-feeding. Parent reports of bottle-feeding behaviors, particularly pertaining to gastrointestinal issues, were associated with aspects of infant NNS. These data together will allow for a more nuanced understanding of infant feeding and will be beneficial in determining if infants have a feeding delay.
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  • 文章类型: Journal Article
    因此,本研究旨在检查特质和状态焦虑,通过父母的视角,儿童和青少年在COVID-19大流行的1年半期间的睡眠习惯和执行功能。评估在三个不同的时间进行:2020年4月(T1),2020年10月(T2)和2021年10月(T3)。主要样本包括953名6至18岁的儿童和青少年,并使用量表评估焦虑(STAIC),睡眠习惯(熊)和执行功能(BRIEF-2)。结果显示,疫情爆发后6个月,状态和特质焦虑,睡眠障碍和执行功能障碍显著增加。一年半之后,特质焦虑和睡眠障碍一直存在,而状态焦虑和执行功能障碍降低了他们的分数,获得了与2020年4月相似的分数。总之,自疫情开始以来,儿童和青少年的心理健康进一步下降,它似乎仍然存在于目前,比如作为人格一部分的特质焦虑。
    The present study therefore aims to examine trait and state anxiety, sleep habits and executive functioning during 1 year and a half of the COVID-19 pandemic in children and adolescents through the lens of parents. Assessments were conducted at three different times: April 2020 (T1), October 2020 (T2) and October 2021 (T3). The main sample included 953 children and adolescents aged 6 to 18 years, and scales were used to assess anxiety (STAIC), sleep habits (BEARS) and executive functioning (BRIEF-2). The results showed that 6 months after the outbreak of the pandemic, state and trait anxiety, sleep disturbances and executive dysfunctions increased significantly. One and a half year later, trait anxiety and sleep disturbances have been maintained, while state anxiety and executive dysfunction have decreased their scores obtaining scores similar to those of April 2020. In conclusion, there has been a further decrease in children and adolescents\' mental health since the beginning of the pandemic, and it seems to remain at the present time, such as trait anxiety as a part of the personality.
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  • 文章类型: Journal Article
    目的:产后抑郁症(PPD)可能对父母产生负面影响,导致认知功能受损,社会情感,和孩子的行为发展。这项研究的目的是检查分娩后第一年父母与PPD相关的因素。
    方法:本研究采用自编问卷。问卷调查在5天寄出,3个月,6个月,交货后一年,分别。参与者是107对父母。使用爱丁堡产后抑郁量表(EPDS)评估PPD。关于连贯感(SOC)的数据,婚姻质量指数,社会支持量表,母婴粘合秤,并收集社会人口统计学变量。进行多元回归分析,以检查在每个调查期间,父亲和母亲的几个变量与EPDS之间的关联强度,分别。
    结果:父亲和母亲产后第一年PPD的患病率为12.1%-23.4%至7.5%-8.4%,分别。在所有四个调查期间,SOC对父亲和母亲的EPDS得分影响最大。
    结论:我们的研究结果表明,对于父亲和母亲来说,压力应对技巧是影响产后第一年PPD的重要因素。
    OBJECTIVE: Postpartum depression (PPD) may have negative effects on the parents and lead to impaired cognitive, socioemotional, and behavioral development in their children. The purpose of this study was to examine factors associated with PPD in parents during the first year after delivery.
    METHODS: This study used a self-administered questionnaire. Questionnaires were mailed at 5 days, 3 months, 6 months, and 1 year after delivery, respectively. The particpants were 107 pairs of mothers and fathers. PPD was assessed using the Edinburgh Postnatal Depression Scale (EPDS). Data on sense of coherence (SOC), Quality Marriage Index, Social Support Scale, Mother-to-Infant Bonding Scale, and sociodemographic variables were collected. Multiple regression analysis was performed to examine the strength of the association between several variables and the EPDS at each survey period for fathers and mothers, respectively.
    RESULTS: The prevalence of PPD in the first-year postpartum ranged from 12.1%-23.4% to 7.5%-8.4% for fathers and mothers, respectively. SOC had the strongest impact on EPDS scores for both fathers and mothers at all four survey periods.
    CONCLUSIONS: Our findings suggest that stress coping skills are an important factor affecting PPD throughout the first-year postpartum for both fathers and mothers.
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  • 文章类型: Journal Article
    To provide comparison data on the Intelligibility in Context Scale (ICS) for a sample of 3-year-old English-speaking children born with any cleft type.
    Questionnaire data from the Cleft Collective Cohort Study were used. Descriptive and inferential statistics were carried out to determine difference according to children\'s cleft type and syndromic status.
    A total of 412 children born with cleft lip and/or palate whose mothers had completed the ICS when their child was 3 years old.
    Mothers\' rating of their children\'s intelligibility using the ICS.
    The average ICS score for the total sample was 3.75 (sometimes-usually intelligible; standard deviation [SD] = 0.76, 95% CIs = 3.68-3.83) of a possible score of 5 (always intelligible). Children\'s speech was reported to be most intelligible to their mothers (mean = 4.33, SD = 0.61, 95% CIs = 4.27-4.39) and least intelligible to strangers (mean = 3.36, SD = 1.00, 95% CIs = 3.26-3.45). There was strong evidence (P < .001) for a difference in intelligibility between children with cleft lip only (n = 104, mean = 4.13, SD = 0.62, 95% CIs = 4.01-4.25) and children with any form of cleft palate (n = 308, mean = 3.63, SD = 0.76, 95% CIs = 3.52-3.71). Children born with cleft palate with or without cleft lip and an identified syndrome were rated as less intelligible (n = 63, mean = 3.28, SD = 0.85, 95% CIs = 3.06-3.49) compared to children who did not have a syndrome (n = 245, mean = 3.72, SD = 0.71, 95% CIs = 3.63-3.81).
    These results provide preliminary comparative data for clinical services using the outcome measures recommended by the International Consortium for Health Outcomes Measurement.
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  • 文章类型: Clinical Study
    OBJECTIVE: To examine (a) the quality of life (QOL) in children with Tourette\'s disorder (TD) and ADHD (TD + ADHD) compared with ADHD without tics (ADHD alone) and (b) the effects of the severity of tics, ADHD symptoms, comorbid diagnoses, and family functioning on QOL.
    METHODS: The assessments included the Kiddie-Schedule for Affective Disorders and Schizophrenia, Yale Global Tic Severity Scale, ADHD Rating Scale, Pediatric Quality of Life Inventory, and Family Assessment Device.
    RESULTS: The TD + ADHD group had poorer psychosocial QOL. Agreement between child and parent ratings was higher in the TD + ADHD group, and children reported higher scores than their parents in both groups. Severity of tics and ADHD symptoms had stronger negative associations with parent-reported than child-reported QOL. Significant positive correlations were detected between QOL and family functioning in both groups.
    CONCLUSIONS: Children with TD + ADHD have lower QOL than their peers with ADHD alone. Family functioning seems to affect QOL in both groups.
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  • 文章类型: Journal Article
    Informant-reported outcome measures, usually completed by parents, are often administered in pediatric clinical trials with the intention of collecting data to support claims in a medical product label. Recently, there has been an emphasis on limiting these measures to observable content, as recommended in the US Food and Drug Administration guidance on patient-reported outcomes. This qualitative study explores the concept of observability using the example of childhood attention deficit/hyperactivity disorder (ADHD).
    Concept elicitation interviews were conducted with children (aged 6-12 years) diagnosed with ADHD and parents of children with ADHD to identify concepts for a potential parent-reported measure of functional impact of childhood ADHD. The observability of each concept was considered.
    Of the 30 parents (90% females; mean age = 42.0 years), 24 had a child who was also interviewed (87.5% males; mean age = 9.6 years). Areas of functional impact reported by parents and/or children included the following: 1) functioning within the home/family, 2) academic performance, 3) school behavior, 4) social functioning, 5) emotional functioning, and 6) decreased self-efficacy. Parents cited many examples of direct observation at home, but opportunities for observation of some important areas of impact (e.g., school behavior and peer relationships) were limited.
    Findings illustrate the substantial functional impairment associated with childhood ADHD while highlighting the challenges of developing informant-reported outcome measures limited to observable content. Because ADHD has an impact on children\'s functioning in a wide range of contexts, a parent-report measure that includes only observable content may fail to capture important aspects of functional impairment. Approaches for addressing this observability challenge are discussed.
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