背景:Lowe综合征(LS)是一种罕见的疾病,会影响大脑,肾脏,神经系统,和眼睛,主要是男性。这项研究的目的是检查牙齿状况,牙科治疗,与健康个体相比,LS患者的获得和/或护理障碍。
方法:评估牙科状况的调查,牙科治疗,对Lowe综合征协会的家庭和在塔夫茨大学牙科医学院(TUSDM)儿科牙科诊所有牙科预约的有健康儿童的家庭进行了治疗和/或障碍。要求一位父母或患有LS或不患有TUSDM的儿科患者的监护人完成在线调查。
结果:获得了108项调查(LS组n:58,健康组n:50)。LS组明显更有可能(p<0.05)报告“牙齿弯曲/错位,\"\"困难的时候咀嚼,\"\"口臭,\"和\"口腔囊肿\",并且报告6个月检查的可能性显著降低,\"清洁,\"和\"填充。“LS组报告说,定位牙医的难度明显更大。
结论:这项研究的结果表明,与健康个体相比,患有LS的个体更容易患上严重的牙齿疾病,并且在获得牙齿护理方面遇到困难。此外,患有这种综合征的人可能不太可能接受特定的必要牙科治疗。因此,必须为LS患者提供适当的牙科护理和支持,以确保他们达到最佳的口腔健康。
BACKGROUND: Lowe syndrome (LS) is an uncommon condition that affects the brain, kidneys, nervous system, and eyes, predominantly in males. The aim of this study was to examine dental conditions, dental treatments, and access and/or barriers to care for those with LS compared to healthy individuals.
METHODS: Surveys assessing dental conditions, dental treatments, and access and/or barriers to care were administered to families in the Lowe Syndrome Association and families with healthy children who had dental appointments at the Tufts University School of Dental Medicine (TUSDM) pediatric dental clinic. One parent or a guardian of pediatric patients with LS or not at TUSDM was asked to complete an online survey.
RESULTS: One hundred and eight surveys were obtained (n:58 from the LS group and n:50 from the healthy group). The LS group was significantly more likely (p < .05) to report \"crooked/misaligned teeth,\" \"difficult time chewing,\" \"bad breath,\" and \"mouth cysts\" and was significantly less likely to report 6-month examination, \"cleaning,\" and \"filling.\" The LS group reported significantly greater difficulty locating a dentist.
CONCLUSIONS: The findings of this study indicate that individuals with LS are more vulnerable to developing severe dental conditions and experiencing difficulties in accessing dental care than healthy individuals. Additionally, those who present with this syndrome may be less likely to receive specific necessary dental treatments. As a result, it is essential to offer appropriate dental care and support to individuals with LS to guarantee they achieve optimal oral health.