Linking

链接
  • 文章类型: Journal Article
    内容效度是成果测度的基本要求。在审查了业务需求和现有定义后,内容有效性我们被定义为:在多大程度上,一项措施在定义的范围内对指定结构或属性的关键相关元素进行全面和真实的评估,对于既定的目标受众和背景,这是明确和公平的。2002年,2005年和2019年的ICF联系规则为描述和评估结果指标的内容提供了越来越清晰的流程。ICF核心集提供了对不同健康状况重要的核心结构的国际参考标准。在内容验证期间,两者作为参考标准都很重要。为了总结它们作为参考标准的用途,提出了以下汇总指标:(1)衡量ICF联系,(2)衡量(简要或全面)核心集绝对联系,(3)测量(简要或全面)核心集独特的联系,(4)核心集表示,和(5)核心集独特的残疾表示。需要评估受访者如何参与内容的方法来补充ICF链接。认知访谈是一种理想的方法,因为它用于探索受访者如何根据结果衡量标准解释和校准对单个项目的反应。我们提出了一个对这些响应进行分类的框架:清晰度/理解,相关性,响应定义不充分,参考点,透视修改,和校准跨项目。我们对24份使用ICF链接进行内容验证的手稿进行了分析,因为更新的链接规则发布后发现,作者通常使用链接来验证现有措施,涉及多个评估者,使用2005年的链接规则,概念级别的汇总内容(例如,减值,活动,参与)和/或使用核心集作为参考标准。很少,ICF链接用于创建新措施的项目池/概念框架,应用了2019年链接规则的全部范围,使用的汇总指标,或与认知访谈等定性方法进行综合ICF链接。我们得出的结论是,ICF链接是在PROM开发或验证过程中实现内容有效性的强大工具。最佳做法包括使用更新的ICF链接规则,ICF的三角剖分与参与者对清晰度和相关性的评估相联系,最好使用认知访谈方法获得,以及定义的汇总指标的应用。
    Content validity is a fundamental requirement of outcome measures. After reviewing operational needs and existing definitions, content validity we as defined as: the extent to which a measure provides a comprehensive and true assessment of the key relevant elements of a specified construct or attribute across a defined range, clearly and equitably for a stated target audience and context. ICF linkage rules from 2002, 2005, and 2019 have provide increasingly clear processes for describing and evaluating content of outcome measures. ICF Core Sets provide international reference standards of the core constructs of importance for different health conditions. Both are important as reference standards during content validation. To summarize their use as reference standards, the following summary indicators were proposed: (1) Measure to ICF linkage, (2) Measure to (Brief or Comprehensive) Core Set Absolute Linkage, (3) Measure to (Brief or Comprehensive) Core Set Unique Linkage, (4) Core Set Representation, and (5) Core Set Unique Disability Representation. Methods to assess how respondents engage with content are needed to complement ICF-linking. Cognitive interviewing is an ideal method since it used to explore how respondents interpret and calibrate response to individual items on an outcome measure. We proposed a framework for classifying these responses: Clarity/Comprehension, Relevance, Inadequate response definition, Reference Point, Perspective modification, and Calibration Across Items. Our analysis of 24 manuscripts that used ICF linking for content validation since updated linking rules were published found that authors typically used linking to validate existing measures, involved multiple raters, used 2005 linking rules, summarized content at a concept level (e.g., impairment, activity, participation) and/or use core sets as a reference standard. Infrequently, ICF linking was used to create item pools/conceptual frameworks for new measures, applied the full scope of the 2019 linking rules, used summary indicators, or integrated ICF-linking with qualitative methods like cognitive interviews. We conclude that ICF linkage is a powerful tool for content validity during development or validation of PROM. Best practices include use of updated ICF linking rules, triangulation of ICF linking with participant assessments of clarity and relevance preferably obtained using cognitive interview methods, and application of defined summary indicators.
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  • 文章类型: Journal Article
    OBJECTIVE: To determine the most frequently utilized functional status assessment instruments for patients with brain tumors, compare their contents, using the International Classification of Functioning, Disability and Health (ICF), and their psychometric properties.
    METHODS: A scoping review was conducted to explore possible assessment instruments and summarize the evidence. A systematic literature search was performed for identification of the frequently used functional assessment tool in clinical trials in PubMed, ScienceDirect, and ProQuest databases. The content of most used instruments was linked to the ICF categories. The psychometric qualities of these assessment tools were systematically searched and analyzed.
    RESULTS: Nine most used assessment tools in clinical trials were identified. The most frequently used assessment instrument is the Karnofsky Performance Scale, which is developed for a general assessment of oncological patients. Out of four self-assessment tools, two were disease-specific (EORTC QLQ-BN20 and FACT-Br), EORTC QLQ-C30 has been shown good psychometric properties in patients with brain tumors as well as in patients with various oncological diseases, similar to the SF-36, it is used in patients with brain tumors as well as in patients with various diseases. The Functional Independence Measure and the Barthel Index were two objective assessment tools that described functioning, but two were neuropsychological tests (MMSE and Trial Making Test). Two hundred eighty-three meaningful concepts were identified and linked to 102 most relevant second-level categories covering all components of the ICF. Forty-nine studies reporting psychometric properties of those nine assessment tools were identified, indicating good reliability and validity for all the instruments.
    CONCLUSIONS: Nine most frequently utilized functional status assessment instruments for patients with brain tumors represent all components of the ICF and have good psychometric properties. However, the choice of the tool depends on the clinical question posed and the aim of its use.
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  • 文章类型: Journal Article
    METHODS: Systematic review.
    BACKGROUND: A patient with rheumatoid arthritis (RA) or osteoarthritis (OA) may have functional impairments, decreased quality of life, and productivity reductions. The International Classification of Functioning (ICF) provides a scientific basis for understanding health, outcomes, and determinants.
    OBJECTIVE: The purpose of this study was to critically appraise the current literature for outcome measures associated with the management of OA or RA to determine if they describe the components of the ICF that includes body functions and structures, activities, participation, environmental factors, as well as quality of life. The secondary purpose is to examine if patient satisfaction was addressed in the interventions associated with management of OA or RA.
    METHODS: A comprehensive literature search was conducted in the CINAHL and PubMed databases using the search terms joint protection, hand OA, hand RA, and assistive devices.
    RESULTS: Six of the outcome measures were linked to body structures and body functions, three were associated with activity limitations and participation restrictions, one was linked to environmental factors, and two outcome measures addressed quality of life.
    CONCLUSIONS: Practitioners should incorporate outcome measures that address environmental factors and quality of life as they relate to the ICF.
    CONCLUSIONS: Most of the outcome measures associated with hand OA or RA are related to body structures and body functions or activity limitations and participation restrictions.
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  • 文章类型: Journal Article
    气候变化和对气候敏感的灾害对健康产生重大影响。将减少灾害风险(DRR)与适应气候变化(CCA)联系起来对于解决这些问题至关重要,复杂且不断增加的风险。最近有人呼吁在健康领域建立这些联系。然而,有必要清楚地阐明为什么将DRR和CCA联系起来对健康很重要。此外,关于DRR和CCA应该如何在健康中联系起来,人们知之甚少。通过广泛研究相关文献,这篇综述介绍了将DRR和CCA联系起来的健康状况。这包括最大化概念协同作用的潜力,如建设弹性,降低脆弱性和风险。此外,确定了技术和运营协同作用,以将DRR和CCA在卫生方面联系起来,包括:政策,预警系统,脆弱性和风险评估,加强卫生系统,基础设施弹性,备灾和救灾,和健康影响途径。由于公共卫生行为者的专业知识,他们在建立这些联系方面发挥着核心作用。工作函数,以及应对复杂健康风险的经验。这篇综述最后提出了对未来研究的建议,包括如何在健康方面更好地将DRR和CCA联系起来;以及机会,建立和维持这些链接的挑战和推动者。
    Climate change and climate-sensitive disasters significantly impact health. Linking Disaster Risk Reduction (DRR) and Climate Change Adaptation (CCA) is essential for addressing these ever present, complex and increasing risks. Recent calls have been made to build these links in health. However, there is a need to clearly articulate why linking DRR and CCA is important in health. Furthermore, little is known about how DRR and CCA should be linked in health. By extensively examining relevant literature, this review presents the current state of knowledge of linking DRR and CCA in health. This includes the potential for maximising conceptual synergies such as building resilience, and reducing vulnerability and risk. Additionally, technical and operational synergies are identified to link DRR and CCA in health, including: policy, Early Warning Systems, vulnerability and risk assessment, health systems strengthening, infrastructure resilience, disaster preparedness and response, and health impact pathways. Public health actors have a central role in building these links due to their expertise, work functions, and experience in addressing complex health risks. The review concludes with recommendations for future research, including how to better link DRR and CCA in health; and the opportunities, challenges and enablers to build and sustain these links.
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  • 文章类型: Journal Article
    Poor health and health inequalities persist despite increasing investment in health improvement programmes across high-income countries. Evidence suggests that to reduce health inequalities, a range of activities targeted at different levels within society and throughout the life course should be employed. There is a particular focus on addressing inequalities in early years as this may influence the experience of health in adulthood. To address the wider determinants of health at a community level, a key intervention which can be considered is supporting patients to access wider community resources. This can include processes such as signposting, referral and facilitation. There is a lack of evidence synthesis in relation to the most effective methods for linking individuals from health services to other services within communities, especially when considering interventions aimed at families with young children.
    The aim of this study is to understand the way health services can best help parents, carers and families with pre-school children to engage with local services, groups and agencies to address their wider health and social needs. The review may inform future guidance to support families to address wider determinants of health. The study is a systematic review, and papers will be identified from the following electronic databases: Web of Science, Embase, MEDLINE and CINAHL. A grey literature search will be conducted using an internet search engine and specific grey literature databases (TRiP, EThOS and Open Grey). Reference lists/bibliographies of selected papers will be searched. Quality will be assessed using the Effective Public Health Practice Project Quality Assessment Tool for quantitative studies and the CASP tool for qualitative studies. Data will be synthesised in a narrative form and weighted by study quality.
    It is important to understand how health services can facilitate access to wider services for their patients to address the wider determinants of health. This may impact on the experience of health inequalities. This review focuses on how this can be achieved for families with pre-school children, and the evidence obtained will be useful for informing future guidance on this topic.
    PROSPERO CRD42016034066.
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