Holistic care

整体护理
  • 文章类型: Journal Article
    背景:患者安全是影响全球患者的全球性健康问题。在重症监护病房(ICU)提供安全护理是护士最重要的任务之一。许多因素会影响护士在ICU内提供安全护理的能力。因此,本研究的目的是确定ICU中安全护理的组成部分.
    方法:当前研究构成了2022年1月至2022年6月进行的定性常规内容分析研究。研究参与者包括护士,密集主义者,负责患者安全的护士,护理人员,病人,和病人的家庭成员,共有21个人通过目的抽样选出。数据收集涉及个人,深入,半结构化面试。随后,利用Graneheim和Lundman概述的方法进行数据分析(NurseEducToday24(2):105-12,2004),导致确定参与者的观点。
    结果:三个主题被确定为ICU安全护理的组成部分。这些主题包括专业行为(包括类别:政策的执行,组织沟通,职业道德),整体护理(含类别:系统护理,全面照顾所有系统),和以安全为导向的组织(类别:人力资源管理和安全环境)。
    结论:这项研究的结果强调了通过强调专业行为在ICU中倡导安全护理实践的重要性,整体护理,和以安全为中心的组织结构。这些结果与现有研究一致,建议通过引入由这些要素提供信息的量身定制的干预措施和策略,可以为ICU患者建立更安全的护理环境。
    BACKGROUND: Patient safety is a global health issue that affects patients worldwide. Providing safe care in the intensive care units (ICUs) is one of the most crucial tasks for nurses. Numerous factors can impact the capacity of nurses to deliver safe care within ICUs. Consequently, this study was undertaken with the aim of identifying the components of safe nursing care in ICUs.
    METHODS: The current research constitutes a qualitative conventional content analysis study conducted from January 2022 to June 2022. The study participants comprised nurses, intensivists, nurse responsible for patient safety, paramedic, patients, and patients\' family member, totaling 21 individuals selected through purposive sampling. Data collection involved individual, in-depth, and semi-structured interviews. Subsequently, data analysis was performed utilizing the approach outlined by Graneheim and Lundman (Nurse Educ Today 24(2):105-12, 2004), leading to the identification of participants\' perspectives.
    RESULTS: Three themes were identified as components of safe nursing care in ICUs. These themes include professional behavior (with categories: Implementation of policies, organizing communication, professional ethics), holistic care (with categories: systematic care, comprehensive care of all systems), and safety-oriented organization (with categories: human resource management and safe environment).
    CONCLUSIONS: The findings of this study underscore the significance of advocating for safe nursing practices in ICUs by emphasizing professional conduct, holistic care, and safety-focused organizational structures. These results align with existing research, suggesting that by introducing tailored interventions and tactics informed by these elements, a safer environment for nursing care can be established for ICUs patients.
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  • 文章类型: Journal Article
    背景:以患者为中心的护理(PCC)可提高HIV的依从性和保留率,尽管在其概念化和理解如何解释方面缺乏共识阻碍了实施。方法:我们招募了佛罗里达州RyanWhite计划的20名HIV提供者进行深入访谈。主题分析确定了与以下方面有关的核心一致性:1)提供者的看法,2)促进PCC的现行做法。结果:提供者对PCC的看法出现在四个领域:1)整体,2)个性化护理,3)尊重舒适和安全,4)患者参与和伙伴关系。PCC实践发生在多个层面:1)个人社会心理和后勤支持,2)通过尊重沟通和积极参与,在患者-提供者关系中提供人际支持,和3)机构实践,包括反馈机制,服务集成,方便患者,和多样化的人员配备。结论:我们的发现强调了PCC的核心原则,即尊重,整体,整体个性化,和引人入胜的护理。我们提供了一个适应HIV的PCC框架,作为指导未来干预的多层次构建。
    HIV护理提供者中以患者为中心的护理观点本研究通过分析访谈中出现的共同主题,探讨了HIV护理提供者对以患者为中心的护理(PCC)的看法。我们发现提供商认为PCC是整体的,个性化护理侧重于尊重患者的舒适度和安全性,并积极参与他们作为护理合作伙伴。供应商讨论了他们通过心理社会和后勤支持在个人服务水平上实践PCC的各种方式,通过他们尊重沟通和信任的人际关系,以及通过更结构化的设施级别政策和活动,例如更大的服务集成和雇用多样化的员工。PCC正在迅速成为新的护理标准,这项研究希望提供有关提供者对PCC的看法以及HIV护理领域的实践示例的见解。
    Background: Patient-centered care (PCC) improves HIV adherence and retention, though lack of consensus on its conceptualization and understanding how it is interpreted has hindered implementation. Methods: We recruited 20 HIV providers at Ryan White Programs in FL for in-depth interviews. Thematic analysis identified core consistencies pertaining to: 1) provider perceptions, 2) current practices promoting PCC. Results: Provider perceptions of PCC emerged under four domains: 1) holistic, 2) individualized care, 3) respect for comfort and security, and 4) patient engagement and partnership. PCC practices occurred at multiple levels: 1) individual psychosocial and logistical support, 2) interpersonal support within patient-provider relationships through respectful communication and active engagement, and 3) institutional practices including feedback mechanisms, service integration, patient convenience, and diverse staffing. Conclusions: Our findings highlight the central tenets of PCC as respectful, holistic, individualized, and engaging care. We offer an HIV-adapted framework of PCC as a multilevel construct to guide future intervention.
    Patient-centered care perspectives among HIV care providersThis study explores HIV care provider perceptions of patient-centered care (PCC) by analyzing common themes that arose in interviews. We found that providers perceived PCC to be holistic, individualized care focused on respecting patient comfort and security and actively engaging them as partners in care. Providers discussed a variety of ways in which they practiced PCC at the individual service level through psychosocial and logistical support, through their interpersonal relationships with respectful communication and trust, and through more structured facility level policies and activities such as greater service integration and employing a diverse staff. PCC is rapidly becoming the new standard of care and this study hopes to offer insight into provider perceptions of PCC and examples of practice in the HIV care field.
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  • 文章类型: Journal Article
    胰腺癌是癌症死亡的第四大原因,在过去的几十年中,预期寿命为1.5年,治疗进展甚微。尽管它造成了负担,关于这一特定人群需求的研究很少。这项研究旨在探索医疗保健专业人员对提供护理和患者未满足需求的看法。
    这项定性描述性研究是在希腊北部的一家癌症医院进行的。共有12名参与者(6名医生和6名护士),治疗接受化疗的胰腺癌患者,通过目的性抽样招募,并进行了面对面的半结构化访谈。数据通过NVivo12软件中的专题分析方法进行分析。
    分析强调了两个主题:“胰腺癌患者的需求”包括6个子主题(“日常活动”,“症状管理”,“心理支持”,\"信息需要\",“多学科护理”和“临终关怀”)和“医疗保健专业人员的需求”有3个子主题(“心理支持”,“教育”和“组织支持”)。确定了几种症状并影响这些患者的日常活动,心理支持对大多数人来说很重要,甚至在诊断的时候。与会者对缺乏姑息治疗结构和服务表示不满,并指出跨学科方法将提高护理质量。
    医疗保健专业人员报告了胰腺癌患者的各种未满足的需求,大多数人表达了他们对生命最后阶段完全缺乏患者支持的担忧。
    Raktrebušneslinavkeječetrtinajpogostejšivzroksmrtizaradiraka.Prčakovanaçivljenjskadobabolnikovzrakomtrebušneslinavkeje1,5leta,terapevtskinapredekvzadnjihdesetletjihpajeskromen.KljubBremenu,kigapovzroča,jezelomaloraziskavopotrebahtespecifičnepopulacije.Ciljteštudijejejeproučitimnenjazdravstvenihdelavcevozagotavljanjuoskrbeinneizpolnjenihpotrebahbolnikov.
    比拉·兹韦德纳vbolnišnicizazdravljenjerakavseverniGrčiji.Vnjejjesodelovalo12zdravstvenihdelavcev(6zdravnikovin6medicinskihsester),Kisoskemoterapijozdravilibolnikezrakomtrebušneslinavke.Sodelujočisobiliizbraniznamenskimvzorčenjem,znjimipasobiliopravljeniosebnipolstrukturiraniintervjuji.PodatkisobilianaliziranizmetodotematskeanalizevprogramskiopremiNVivo12.
    Prianalizistabiliizpovljenidvetemi:tema“pottrebebolnikovzrakomtrebušneslinavke”s6podteami(“vsakodnevnedejavnosti”,"simptomatskozdravljenje""psihološkapodpora""potrebepoinformacijah"“oskrbaobkoncuzivljenja”中的“multidisciinarnaoskrba”)在tema“potrebezdravstvenihdelavcev”的3podteami(“psihološkapodpora”中,“organizacijskapodpora”中的“izobrazevanje”)。Ugotovljenihjebilovečsimptomov,kivplivajonavsakodnevnedejavnostitebolnikov,ZaVečinotehsimptomovpajepomembnapsihološkapodpora,celovcasudiagnoze.乌德里奇如此izrazilinezadovoljstvozaradipomanjkanjastrukturinstoritevpaliativneoskrbeternavedli,达比跨学科研究中心izboljšalkakovostoskrbe.
    Zdravstvenidelavcinavajoštevilneneizpolnjenepotrebebolnikovzrakomtrebušneslinavke,veinapajezaskrbljenihzaraditega,kerbolnikiobkoncuzivljenjaneprejmejonobenepodpore.
    UNASSIGNED: Pancreatic cancer is the fourth leading cause of cancer death overall, with 1.5 years life expectancy and minimal therapeutic progress in the last decades. Despite the burden it causes, there is little research on the needs of this specific population. This study aimed to explore healthcare professionals\' views on providing care and patients\' unsatisfied needs.
    UNASSIGNED: This qualitative descriptive study was carried out at a cancer hospital in Northern Greece. A total of 12 participants (6 physicians and 6 nurses), treating patients with pancreatic cancer undergoing chemotherapy, were recruited through purposive sampling and underwent face-to-face semi-structured interviews. Data were analyzed through the thematic analysis method in NVivo12 software.
    UNASSIGNED: The analysis highlighted two themes: \"needs of patients with pancreatic cancer\" consisted of 6 subthemes (\"daily activities\", \"symptoms management\", \"psychological support\", \"information needs\", \"multidisciplinary care\" and \"end-of-life care\") and \"needs of healthcare professionals\" had 3 subthemes (\"psychological support\", \"education\" and \"organizational support\"). Several symptoms are identified and affect the daily activities of these patients, and psychological support is important for the majority of them, even at the time of diagnosis. The participants express dissatisfaction with the absence of palliative care structures and services and stated that an interdisciplinary approach would improve the quality of care.
    UNASSIGNED: Healthcare professionals report a wide range of unsatisfied needs of patients with pancreatic cancer, with the majority expressing their concerns about the complete lack of patient support in the last stages of their lives.
    UNASSIGNED: Rak trebušne slinavke je četrti najpogostejši vzrok smrti zaradi raka. Pričakovana življenjska doba bolnikov z rakom trebušne slinavke je 1,5 leta, terapevtski napredek v zadnjih desetletjih pa je skromen. Kljub bremenu, ki ga povzroča, je zelo malo raziskav o potrebah te specifične populacije. Cilj te študije je proučiti mnenja zdravstvenih delavcev o zagotavljanju oskrbe in neizpolnjenih potrebah bolnikov.
    UNASSIGNED: Ta kvalitativna deskriptivna študija je bila izvedena v bolnišnici za zdravljenje raka v severni Grčiji. V njej je sodelovalo 12 zdravstvenih delavcev (6 zdravnikov in 6 medicinskih sester), ki so s kemoterapijo zdravili bolnike z rakom trebušne slinavke. Sodelujoči so bili izbrani z namenskim vzorčenjem, z njimi pa so bili opravljeni osebni polstrukturirani intervjuji. Podatki so bili analizirani z metodo tematske analize v programski opremi NVivo12.
    UNASSIGNED: Pri analizi sta bili izpostavljeni dve temi: tema »potrebe bolnikov z rakom trebušne slinavke« s 6 podtemami (»vsakodnevne dejavnosti«, »simptomatsko zdravljenje«, »psihološka podpora«, »potrebe po informacijah«, »multidisciplinarna oskrba« in »oskrba ob koncu življenja«) in tema »potrebe zdravstvenih delavcev« s 3 podtemami (»psihološka podpora«, »izobraževanje« in »organizacijska podpora«). Ugotovljenih je bilo več simptomov, ki vplivajo na vsakodnevne dejavnosti teh bolnikov, za večino teh simptomov pa je pomembna psihološka podpora, celo v času diagnoze. Udeleženci so izrazili nezadovoljstvo zaradi pomanjkanja struktur in storitev paliativne oskrbe ter navedli, da bi interdisciplinarni pristop izboljšal kakovost oskrbe.
    UNASSIGNED: Zdravstveni delavci navajajo številne neizpolnjene potrebe bolnikov z rakom trebušne slinavke, večina pa je zaskrbljenih zaradi tega, ker bolniki ob koncu življenja ne prejmejo nobene podpore.
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  • 文章类型: Journal Article
    目的:探索青少年父母患有心脏病的经历。
    方法:这项定性研究是通过半结构化的个人访谈进行的。
    方法:对33名13至19岁的青少年进行访谈,他们的母亲或父亲患有缺血性心脏病,心律失常,心力衰竭,心脏骤停或心脏瓣膜病。父母生病至少6个月,长达5年。这项研究是在丹麦进行的,挪威和瑞典在2019年至2022年之间。该分析的灵感来自自反性方法论。
    结果:出现了三个中心主题:对父母心脏病的反应;提前成长;以及改变生活状况的策略。对于青少年来说,心脏病是一种急性和致命的疾病,使他们的父母处于危险之中。新的常规和角色不仅改变了家庭中的日常生活,而且还增强了对生活的成熟度和欣赏。为了在生活中保持平衡,青少年追求正常,寻求一个安全的空间来过正常的青春生活。
    结论:在已知对发展具有重要意义的时期,父母患有心脏病的生活似乎是传记的中断,因为青少年重新协商了自己的身份以管理自己的新生活状况。
    结论:重要的是帮助年轻的家庭成员适应父母的心脏病,告知他们可能的反应,并通过寻求休息和正常来支持他们如何适应新的生活。
    没有患者或公众参与。
    OBJECTIVE: To explore adolescents\' experiences of having a parent with heart disease.
    METHODS: This qualitative study was performed with semi-structured individual interviews.
    METHODS: Interviews were conducted with 33 adolescents between 13 and 19 years old, who either had a mother or father with one of these diagnoses: ischemic heart disease, arrhythmia, heart failure, cardiac arrest or heart valve disease. The parent had been ill for at least 6 months and up to 5 years. The study was carried out in Denmark, Norway and Sweden between 2019 and 2022. The analysis was inspired by Reflexive Methodology.
    RESULTS: Three central themes emerged: Response to parental heart disease; Growing up ahead of time; and Strategies in a changed life situation. For the adolescents, heart disease was experienced as an acute and lethal disease that put their parents\' lives in danger. New routines and roles not only changed everyday life within the family but they also enhanced maturity and appreciation of life. To maintain a balance in life, the adolescents pursued normality and sought a safe space to have a normal youthful life.
    CONCLUSIONS: In a period known to be significant for development, life with parental heart disease appeared as a biographical disruption because adolescents renegotiated their identity to manage their new life situation.
    CONCLUSIONS: It is important to help younger family members adapt to parental heart disease by informing them about possible reactions and supporting them in how to adapt to their new life by seeking breaks and normality.
    UNASSIGNED: No patient or public involvement.
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  • 文章类型: Journal Article
    目的:探索在瑞典COVID-19大流行期间,医护人员对护理现实变化的体验。
    方法:在线完全混合方法设计。
    方法:一份基于网络的自我报告问卷,带有固定和开放式答案,收集了2021年3月至4月的数据,分三个步骤进行了分析。首先,自由文本问题通过定性内容分析进行分析。然后使用涵盖压力和应对机制的模型进行定量线性回归分析。最后,定性和定量数据的元推断出现了新的全面理解。COREQ指南用于报告。
    结果:定量和定性研究结果的元推断结果显示,大流行对医护人员来说是一种创伤经历。主题;当工作在一个非人性化的现实中成为一种令人恐惧的经历时,包括四个主题:进入一个毫无准备的可怕,不可理解的世界;牺牲道德价值观,孤立地藏有困境;缺乏清晰的管理;在团结中重新定位,在变化的现实中找到意义。定性结果包括四类;在一个非人性化的世界中工作;生活在背叛自己的良心中;在混乱的时代缺乏结构,并一起恢复活力。在多元回归分析中,子维度的可理解性和意义性与创伤后应激障碍显着相关。在多元回归分析中,连贯感是最突出的应对策略。
    结论:强迫自己超越自己的极限,在大流行期间,牺牲道德价值观和缺乏管理对医护人员来说是一次痛苦的经历。与同事团结在一起,可以重新定位作为一种应对方式。迫切需要采取干预措施,以满足在COVID-19大流行期间担任前线角色的医护人员的需求,并在未来的危机中预防精神健康疾病。
    没有患者或公众捐款。
    结论:在一些荟萃分析和系统评价中,大流行的爆发使一线医护人员面临着无与伦比的压力,这些压力对他们的心理健康呈负面影响。对经验的深入了解以及创伤后应激障碍的症状与应对机制的关系几乎没有探索。这项研究有助于了解医护人员的经验以及较低的连贯性与创伤后应激障碍症状发展风险之间的关系。
    这项研究可能会指导如何为未来的紧急情况做好准备。
    OBJECTIVE: To explore healthcare workers\' experiences of the changed caring reality during the COVID-19 pandemic in Sweden.
    METHODS: An online fully mixed-methods design.
    METHODS: A web-based self-reported questionnaire with fixed and open-ended answers collected data from March to April 2021, analysed in three steps. First, free-text questions were analysed by qualitative content analysis. Then quantitative linear regression analyses using models covering stress and coping mechanisms were conducted. Finally, a meta-inference of qualitative and quantitative data emerged a new comprehensive understanding. The COREQ guidelines were used for reporting.
    RESULTS: Meta-inferenced results of quantitative and qualitative findings show the pandemic was a traumatic experience for healthcare workers. Main theme; When work became a frightening experience in a dehumanized reality, comprised four themes: Entering unprepared into a frightful, incomprehensible world; Sacrificing moral values and harbouring dilemmas in isolation; Lack of clear management; and Reorient in togetherness and find meaning in a changed reality. Qualitative results comprised four categories; Working in a dehumanized world; Living in betrayal of ones\' own conscience; Lack of structure in a chaotic time and Regaining vitality together. Subdimensions comprehensibility and meaningfulness were associated significantly with post-traumatic stress disorder in multiple regression analysis. In multiple regression analysis, sense of coherence was the most prominent coping strategy.
    CONCLUSIONS: Forcing oneself to perform beyond one\'s limit, sacrificing moral values and lacking management was a traumatic experience to healthcare workers during the pandemic. Reorienting as a way of coping was possible in togetherness with colleagues. There is an urgency of interventions to meet the needs among healthcare workers who took on a frontline role during the COVID-19 pandemic and to prevent mental health illness in future crisis.
    UNASSIGNED: No patient or public contribution.
    CONCLUSIONS: The pandemic outbreak exposed frontline healthcare workers to unparallelled stress shown as negative for their mental health in several meta-analyses and systematic reviews. In-depth understanding on experiences and how symptoms of post-traumatic stress disorder relate to coping mechanisms have been scarcely explored. This study contributes to understanding on healthcare workers\' experiences and the relation between lower sense of coherence and increased risk of developing symptoms of post-traumatic stress disorder.
    UNASSIGNED: This study might guide how to prepare for resilience in future emergencies.
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  • 文章类型: Journal Article
    背景:患有心理健康问题的儿童和年轻人(CYP)的父母照料者面临更大的不良结局风险,如身体和心理健康差。对CYP残疾父母照顾者的同伴干预可能会改善父母照顾者的结局。这项定性研究调查了父母-照顾者使用父母思想(PM)的经历,为CYP残疾人的父母照顾者提供多组件对等支持服务。
    方法:下午的12名当前服务用户和4名工作人员/志愿者参加了一对一的半结构化访谈。所有参与者都是白人女性,除了一个男性服务用户。所有访谈都进行了记录和逐字抄录。结果的主题分析用于探索PM的感知益处和缺点以及可能的行为改变机制。
    结果:确定了三个主题和八个子主题。参与者发现内部和外部因素会影响他们的自我概念。确定自己是优先事项,通过保证和肯定来增强能力,从而改善父母-照顾者的自我效能和机构,以更好地照顾他们的CYP。参与者描述了与朋友和家人诚实地谈论他们所经历的困难,因为这被认为与“正常”父母所经历的不同。从参与者账户中,PM可以建立支持网络并链接外部服务,以帮助管理家庭情况,而不是提供治疗/干预。参与者重视不断获得的积极和即时的建议。与会者表示需要灵活的服务组成部分,提供涵盖健康和社会护理的整体支持。
    结论:PM被认为是有益的,作为一种多组成部分的同伴支持服务,可以提高育儿自我效能和赋权,减少隔离,改善对服务的访问,并根据个人需求量身定制。父母照顾者报告了在育儿和福利方面的好处。完善的逻辑模型的开发将为将来研究PM对父母照顾者结果的有效性提供信息。
    Parent-carers of children and young people (CYP) with mental health problems are at greater risk of poor outcomes, such as poor physical and mental health. Peer interventions for parent-carers of CYP with disabilities may improve parent-carer outcomes. This qualitative study investigates parent-carer experiences of using Parental Minds (PM), a multi-component peer support service for parent-carers of CYP with disabilities.
    Twelve current service-users and four staff/volunteers at PM participated in one-to-one semi-structured interviews. All participants were white females, except for one service-user who was male. All interviews were recorded and transcribed verbatim. Thematic analysis of results was used to explore perceived benefits and disadvantages of PM and possible behaviour change mechanisms.
    Three themes and eight subthemes were identified. Participants identified that internal and external factors influence their self-concept. The identification of themselves as a priority, and empowerment by reassurance and affirmation lead to improved parent-carer self-efficacy and agency to better care for their CYP. Participants described the difficulty of speaking honestly with friends and family about what they experience because it is perceived as different to what \"normal\" parents experience. From participant accounts, PM enables the construction of a support network and links external services to help manage family circumstances rather than offer curative treatment/intervention. Proactive and immediate advice which is constantly and consistently available was valued by participants. Participants expressed the need for a flexible range of service components which provide holistic support that encompasses both health and social care.
    PM was perceived to be beneficial as a multi-component peer support service which increases parenting self-efficacy and empowerment, reduces isolation, improves access to services, and is tailored to individual needs. Parent-carers reported benefits in parenting and wellbeing practices. The development of a refined logic model will inform a future study of the effectiveness of PM on parent-carer outcomes.
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  • 文章类型: Journal Article
    目的:探讨炎症性肠病患者的亲密关系和性行为体验。
    方法:在vanManen的框架指导下的解释性现象学研究。通过对四个存在域的解释和反思进行了主题分析:身体,关系,时间和空间。
    方法:在2019-2021年期间,通过面对面或电话采访收集了43名参与者的数据,以及通过GoogleForms提交的匿名叙述集合。
    结果:确定了四个主题:作为生活不完整的性是代表亲密关系和性体验本质的首要主题。这个主题涵盖了四个主要主题:身体的差异性,中断连接,缺少生活的充实和零散的开放,每个都对应于一个存在的领域。亲密关系和性行为受到炎症性肠病的负面影响,影响生活质量。患者经历了悲伤的多重损失,从身体形象和控制,选择合作伙伴和未来的机会。这四个域很难分开,并且每个域之间存在密切的相互关系。
    结论:开发了一个模型来得出新的理论见解,以理解性幸福感与类似悲伤的心理情绪困扰之间的关系。
    结论:首次定性研究探讨炎症性肠病患者的亲密关系和性体验。由于失去了旧的自我和拥有所需的关系/性生活的能力,疾病对性的影响会产生负面的心理情感影响。建立了一个理论模型,试图说明亲密关系的密切关系,性和心理情感健康。
    患者参与研究设计。
    OBJECTIVE: To explore patient experiences of intimacy and sexuality in those living with inflammatory bowel disease.
    METHODS: An interpretative phenomenological study guided by van Manen\'s framework. Thematic analysis was conducted through interpretation and reflection on four existential domains: body, relationships, time and space.
    METHODS: Data were collected during 2019-2021 from 43 participants via face-to-face or telephone interviews, as well as anonymous collection of narratives submitted via Google Forms.
    RESULTS: Four themes were identified: Sexuality as lived incompleteness was the overarching theme representing the essence of the experiences of intimacy and sexuality. This theme covered the four main themes: Otherness of the body, Interrupted connectedness, Missing out on life fullness and Fragmented openness and each corresponded to an existential domain. Intimacy and sexuality are negatively affected by inflammatory bowel disease, with impact on quality of life. Patients experienced grieving multiple losses, from body image and control, to choice of partners and future opportunities. The four domains were difficult to separate and a close inter-relationship between each domain was acknowledged.
    CONCLUSIONS: A model was developed to draw new theoretical insights to understanding the relationship between sexual well-being and psycho-emotional distress similar to grief.
    CONCLUSIONS: First qualitative study to explore intimacy and sexuality experiences of those living with inflammatory bowel disease. Illness impact on sexuality has negative psycho-emotional implications as a result of losing the old self and capacity to have the desired relationships/sex life. A theoretical model was developed in an attempt to illustrate the close relationship of intimacy, sexuality and psycho-emotional well-being.
    UNASSIGNED: Patients were involved in the study design.
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  • 文章类型: Journal Article
    目的:本研究的目的是探讨感觉障碍与家庭护理客户接受护理时间之间的关系。
    方法:横断面多来源研究。
    方法:将来自员工自我报告的护理时间分配调查的数据与来自居民评估工具注册的注册数据合并(n=1477)。数据是在2021年10月从芬兰的17个家庭护理单位收集的。使用线性回归分析检查感觉障碍与客户接受护理时间之间的关系。
    结果:线性回归分析显示,单独患有视力障碍会增加护理时间,而双重感觉障碍导致接受护理时间减少。单独的听力障碍与护理时间没有统计学上的显着相关。
    结论:有双重感觉障碍的家庭护理客户的整体护理需求可能还不够。为了确保平等和个性化照顾客户,必须进一步关注有感觉障碍的客户,尤其是那些有双重感觉障碍的人。此外,必须发展家庭护理人员与有感觉障碍的客户接触和沟通的能力,以支持整体护理。
    必须及时识别家庭护理客户的感官障碍,并在护理计划和遇到客户时予以考虑。
    结论:由于存在双重感觉障碍的客户无法充分表达自己的风险,必须进一步关注有感觉障碍的客户,更好地理解和支持这个弱势群体。需要提高认识和持续教育,以更好地识别和支持有感觉障碍的家庭护理客户。
    该研究遵循STROBE报告指南。
    没有患者或公众捐款。
    OBJECTIVE: The aim of this study was to explore the relationship between sensory impairment and home care client\'s received care time.
    METHODS: A cross-sectional multi-source study.
    METHODS: Data from a self-reported staff survey on care time allocation were merged with registry data from the Resident Assessment Instrument registry (n = 1477). The data were collected during 1 week from 17 home care units in Finland in October 2021. The relationship between sensory impairment and clients received care time was examined using linear regression analyses.
    RESULTS: The linear regression analyses showed that having vision impairment alone increased care time, while dual sensory impairment resulted in decreased received care time. Hearing impairment alone was not statistically significantly associated with care time.
    CONCLUSIONS: The holistic care need of home care clients with dual sensory impairment may not be adequate. To ensure equality and the individually tailored care of clients, further attention must be paid to clients with sensory impairments, especially those with dual sensory impairment. Furthermore, the competence of home care workers to encounter and communicate with clients with sensory impairment must be developed to support the holistic care.
    UNASSIGNED: The sensory impairments of home care clients must be identified in time and considered in care planning and encountering clients.
    CONCLUSIONS: As there is a risk that clients with dual sensory impairment are not able to fully express themselves, it is imperative that further attention is paid to clients with sensory impairments, to better understand and support this vulnerable group. Increased awareness and continuous education are needed to better identify and support home care clients with sensory impairment.
    UNASSIGNED: The study adheres to the STROBE reporting guidelines.
    UNASSIGNED: No patient or public contribution.
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  • 文章类型: Journal Article
    结核病(TB)已成为导致十大道德的重大公共卫生问题。直接观察治疗,建议将短程治疗(DOTS)作为治疗和预防结核病的关键因素。然而,患有结核病的患者通常会遇到障碍和挑战,这可能导致他们停止DOTS治疗。
    本研究旨在了解患者感染结核病和接受DOTS治疗方案的经历。
    采用了定性的描述性研究。在曼谷贫民窟社区中使用便利抽样选择的20名结核病患者中进行了半结构化访谈,泰国。专题方法用于数据分析。
    提出了两个主要主题:(1)麻烦的疾病和(2)情感挑战。第一个主题包括三个子主题:面对死亡,接受生活方式的改变,DOTS挑战第二个主题包括两个子主题:与他人隔离和污名化。
    这些发现可以指导护士和其他医疗保健专业人员使用整体方法制定治疗指南和DOTS策略。
    UNASSIGNED: Tuberculosis (TB) has become a significant public health problem leading to a top ten morality. Directly Observed Therapy, Short-course (DOTS) is recommended as a critical element for curing and preventing TB. However, patients who have been living with TB often receive barriers and challenges, which may lead them to discontinue the DOTS treatment.
    UNASSIGNED: This study aimed to understand patients\' experiences living with TB and receiving DOTS regimens.
    UNASSIGNED: A qualitative descriptive study was employed. Semi-structured interviews were done among twenty tuberculosis patients selected using convenience sampling from the slum community in Bangkok, Thailand. The thematic approach was used for data analysis.
    UNASSIGNED: Two main themes were developed: (1) troublesome disease and (2) emotional challenges. The first theme comprises three subthemes: confronting death, accepting lifestyle change, and DOTS challenges. The second theme consists of two subthemes: isolation from others and stigma.
    UNASSIGNED: The findings could guide nurses and other healthcare professionals to develop the treatment guideline and the DOTS strategy using a holistic approach.
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  • 文章类型: Journal Article
    背景:患者参与是有关医疗保健专业人员和精神卫生中心患者的辩论的基石。它构成了斯堪的纳维亚和其他西方国家政府卫生政策的目标。然而,对医疗保健专业人员在涉及接受治疗和护理的患者的精神保健实践中的经验知之甚少。
    目的:本研究旨在探索在心理健康中心背景下,患者参与的医疗保健专业人员的经验。
    方法:对医疗保健专业人员的四次焦点小组访谈反映了在心理健康中心的四个病房中患者参与临床实践的不同经历。内容分析开发和框架主题。
    结果:患者参与基于结构条件,这表明预定的结构方法主要控制参与。从患者的角度来看,结构方法被视为促进参与。同时,这些方法还可以考虑患者个人的意愿和参与需求。
    结论:这项研究基于护士和其他医疗保健专业人员之间的社交互动,阐明了患者参与心理健康中心的意义。该方法可以有助于应对将患者参与纳入精神病学背景下所有患者的意识形态的挑战,这是医疗保健专业人员的重要知识。
    Patient participation is a cornerstone of the debate concerning healthcare professionals and patients of mental health centres. It constitutes an objective in government health policy in Scandinavia and other Western countries. However, little is known about the experiences of healthcare professionals in mental healthcare practices involving patients under their treatment and care.
    This study aimed to explore the experiences of healthcare professionals with patient participation in the context of a mental health centre.
    Four focus group interviews with healthcare professionals reflected differing experiences with unfolding patient participation in clinical practices in four wards of a mental health centre. A content analysis developed and framed themes.
    Patient participation was based on structural conditions, which shows that predetermined structural methods predominantly control involvement. The structural methods are seen as promoting participation from the patient\'s perspective. At the same time, the methods also enable taking account of the individual patient\'s wishes and needs for involvement.
    This study illuminates the meaning of patient participation in a mental health centre based on the social interactions among nurses and other healthcare professionals. The approach can contribute to dealing with the challenges of incorporating patient participation as an ideology for all patients in a psychiatric context, which is important knowledge for healthcare professionals.
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