Grief

悲伤
  • 文章类型: Journal Article
    背景:死胎是一种独特的现象,受文化背景和精神信仰的影响,具有各种表现形式。中国的文化和精神实践为中国失去亲人的母亲带来了不同的死产后悲伤经历。然而,大多数关于围产期损失和悲伤的研究都是在西方文化中进行的。在中国文化背景下,丧亲母亲的死产后悲伤经历可能与主要研究中检查的西方丧亲类型不同。
    目的:本研究调查了文化和灵性对在中国经历过死产的悲伤母亲的影响。
    方法:这项定性研究以解释性建构主义认识论为基础。与前一年经历过死产的母亲进行了深入访谈。采用专题分析法对数据进行分析。
    结果:共有28名女性接受了训练有素的面试官的采访。确定了三个关键主题:1)文化对悲伤表达的影响,有四个子主题:克制悲伤的表达,无法实现的哀悼仪式,医院政策作为悲伤的障碍,和以他人为导向的自我;2)死产后经历的文化特征,有四个子主题:家长式医学文化,\"孔月子\",产后就诊时的尴尬,以及处理已故婴儿财产的文化禁忌;3)在精神康复过程中发现意义,有四个子主题:在事件中寻求意义,接受并与事件和解,重塑关于生与死的信仰和观点,实现个人成长。
    结论:中国文化和灵性对失去亲人的母亲的悲伤表达和死产后的康复有不同的影响。这项研究证明了灵性的特定方面,这些方面有助于或阻碍了悲伤的过程,以及中国文化和灵性对个人的不同作用。研究结果表明,需要发展对文化敏感的干预措施和支持系统,以帮助母亲度过悲伤和康复。未来的研究可以探讨中国文化和灵性随着时间的推移在死产后悲伤和康复的不同阶段的作用。
    BACKGROUND: Stillbirth is a unique phenomenon with various manifestations influenced by cultural contexts and spiritual beliefs. Chinese cultural and spiritual practices produce different post-stillbirth grief experiences for bereaved mothers in China. However, the majority of research on perinatal loss and grief has been conducted in Western cultures. In the Chinese cultural context, the post-stillbirth grief experience of bereaved mothers may differ from the types of Western bereavement examined in the dominant research.
    OBJECTIVE: This study investigated the influence of culture and spirituality on grieving mothers who had experienced a stillbirth in China.
    METHODS: This qualitative study was grounded in an interpretivist constructionist epistemology. In-depth interviews were conducted with mothers who had experienced a stillbirth within the previous year. Thematic analysis was used to analyse the data.
    RESULTS: A total of 28 women were interviewed by trained interviewers. Three key themes were identified: 1) The influence of culture on grief expression, with four subthemes: restrained expressions of grief, unattainable mourning ceremonies, hospital policy as a barrier to grieving, and others-oriented self; 2) Cultural characteristics of post-stillbirth experiences, with four subthemes: paternalistic medical culture, \"Kong yuezi\", embarrassment during postpartum visits, and cultural taboos on dealing with deceased babies\' possessions; and 3) Finding significance in spiritual healing process, with four subthemes: seeking meaning in the event, accepting and reconciling with the event, reshaping beliefs and views about life and death, and achieving personal growth.
    CONCLUSIONS: Chinese culture and spirituality have different influences on bereaved mothers\' expressions of grief and post-stillbirth healing. This research demonstrates specific aspects of spirituality that contribute to or hinder the grieving process and the different roles of Chinese culture and spirituality for individuals. The findings suggest the need for the development of culturally sensitive interventions and support systems to assist mothers in navigating grief and healing. Future studies could explore the roles of Chinese culture and spirituality over time in the different stages of grief and healing after stillbirth.
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  • 文章类型: Journal Article
    目的:我们的目的是探讨最近一次死产事件后女性的生活经历和需求。
    方法:定性现象学研究。
    方法:本研究于2024年1月25日至2024年3月29日在华东某三级产科医院进行。
    方法:14名在过去6个月内经历过死产的妇女。
    结果:研究人员在四个关键主题上达成了一致,包括情绪反应和恢复的个体差异,身体恢复和对未来怀孕的担忧,社会支持系统的关键作用和对死产的认识变化是胎儿与人类的死亡,以及相关的哀悼仪式。这些主题共同突出了死产经历的多面性,强调个人之间复杂的相互作用,塑造女性情感和身体反应的文化和医学因素。
    结论:中国女性的死产经历非常个性化,并受到个人情绪复杂相互作用的影响,文化背景和医学互动。医疗保健系统必须在标准协议之外实施量身定制的护理策略,以通过增强对文化敏感性的认识来主动解决其各种情感景观和身体问题。应设计针对医疗保健提供者的专业培训,以识别和应对独特的悲伤过程。应建立全面的支持系统,通过提供基本资源和社区联系,大大加快恢复进程。
    OBJECTIVE: We aimed to explore the lived experiences and needs of women after a recent stillbirth event.
    METHODS: Qualitative phenomenological study.
    METHODS: The current study was conducted in a tertiary obstetric hospital in East China between 25 January 2024 and 29 March 2024.
    METHODS: 14 women having experienced a stillbirth within the last 6 months.
    RESULTS: Researchers agreed on four key themes including individual variations in emotional reaction and recovery, physical recovery and concerns about future pregnancies, the critical role of social support systems and variations in perceptions of stillbirth as the death of a fetus versus a human being, along with related mourning rituals. These themes collectively highlight the multifaceted nature of the stillbirth experience, underscoring the complex interplay between personal, cultural and medical factors that shape women\'s emotional and physical responses.
    CONCLUSIONS: Post-stillbirth experiences among Chinese women are deeply individualised and influenced by a complex interplay of personal emotions, cultural contexts and medical interactions. It is imperative for healthcare systems to implement tailored care strategies beyond standard protocols to proactively address their varied emotional landscapes and physical concerns with an enhanced awareness of cultural sensitivities. Specialised training for healthcare providers should be devised to recognise and respond to the unique grief processes. Comprehensive support systems should be established to significantly enhance the recovery journey by providing essential resources and community connections.
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  • 文章类型: Journal Article
    背景:死亡的危重病人的亲属出现复杂悲伤(CG)症状的风险很高,具有潜在的个人和社会负担。CG的患病率和预测因子,特别是亲属应对策略的个人层面的参与,不是很了解。
    目标:CG的患病率有多高,预测因素是什么,以及如何应对策略与CG症状相关?
    方法:在这项单中心观察性队列研究中,6个月后,对死亡的危重病人的亲属进行了调查,使用复杂悲伤量表(ICG)和简短COPE问卷评估CG症状和应对策略,分别。获得了患者和亲属的特征。主要结果是ICG总分。
    结果:纳入研究期间在ICU死亡的298例患者中的89例亲属。平均ICG总分(SD)为41.6±10.9。84名亲属(94.4%)的ICG评分>25。多变量分析显示,作为伴侣显著影响ICG总分(系数4.9,95%置信区间[1.8;8.0],p=0.003),自我分心的应对策略也是如此(系数4.4,95%CI[2.5;6.3],p<0.001),验收(系数-4.4,95%CI[-6.3;-2.5],p<0.001),和自责(系数3.8,95%CI[1.4;6.3],p=0.002)。
    结论:几乎所有死亡的危重患者的亲属都表现出CG症状。亲属的功能和功能失调的应对策略可能与他们的CG症状有关。了解个体亲属的应对策略可能有助于支持他们。应制定足够的支持性干预措施。
    BACKGROUND: Relatives of deceased critically ill patients are at high risk for symptoms of complicated grief (CG) with potential individual and social burdens. The prevalence and predictors of CG, and in particular the involvement of individual facets of relatives\' coping strategies, are not well understood.
    OBJECTIVE: How high is the prevalence and what are the predictors of CG, and how are coping strategies associated with CG symptoms?
    METHODS: In this observational single-center cohort study, relatives of deceased critically ill patients were surveyed 6 months later, using the Inventory of Complicated Grief (ICG) and the Brief-COPE questionnaire to assess CG symptoms and coping strategies, respectively. Patients\' and relatives\' characteristics were obtained. The primary outcome was the ICG sum score.
    RESULTS: Relatives of 89 of the 298 patients who died in the ICU during the study period were included. The mean ICG sum score (SD) was 41.6+10.9. Eighty-four relatives (94.4%) had an ICG score of >25. Multivariable analysis revealed that being a partner affected the ICG sum score significantly (coefficient 4.9, 95% confidence interval [1.8; 8.0], p=0.003), as did the coping strategies self-distraction (coefficient 4.4, 95% CI [2.5; 6.3], p<0.001), acceptance (coefficient -4.4, 95% CI [-6.3; -2.5], p<0.001), and self-blame (coefficient 3.8, 95% CI [1.4; 6.3], p=0.002).
    CONCLUSIONS: Almost all relatives of deceased critically ill patients show symptoms of CG. Relatives\' functional and dysfunctional coping strategies may be associated with their CG symptoms. Knowledge of individual relatives\' coping strategies may be helpful in supporting them. Adequate supportive interventions should be developed.
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  • 文章类型: Journal Article
    背景:妊娠损失影响了四分之一的女性,并且与较差的整体健康和关系结局有关。尽管性福对健康很重要,怀孕后性生活如何随着时间的推移而变化,以及什么可以预测这种变化,就像围产期的悲伤,从未被检查过,让从业者和夫妇不知道会发生什么。
    目的:我们的目的是研究(1)性满意度性欲,性困扰,和围产期悲伤从损失后的10到25周改变对夫妇;(2)如果在损失后10周时围产期悲伤水平可以预测性生活轨迹。
    方法:妇女和不同性别的人怀孕时发生了妊娠损失(在过去4个月内)和男性,女人,和性别多样化的未怀孕的伴侣(N=132对夫妇)独立完成了4个月的性健康和围产期悲伤评估。
    结果:结果包括性满意度(性满意度的全球衡量标准),性欲(性欲清单),性困扰(性困扰量表-简表),围产期悲伤(围产期悲伤量表)。
    结果:二元增长曲线模型表明,从损失后10到25周,这对夫妇的性满意度都增加了,他们的性欲保持稳定;伴侣的性困扰减少,但怀孕的人保持稳定;夫妇双方围产期悲伤减少。损失后10周的围产期悲伤水平并不能预测随时间的性生活轨迹。
    结论:鉴于性幸福感的动态性,临床医生应在失孕后定期与夫妇双方讨论性行为.在这样的讨论中,临床医生可以通过分享这一点来向夫妇保证他们的性关系的恢复,平均而言,性满意度,性欲,和性困扰往往改善或保持相同(而不是恶化)从10到25周失联。他们还可以分享围产期悲伤在这段时间内趋于减少,并且与性满意度的轨迹无关,性欲,和性困扰。
    这是第一项研究,根据我们的知识,检查妊娠失败后性生活的变化以及围产期悲伤在这种变化中的作用。结果可能无法广泛推广,因为大多数夫妇处于混合性别/性关系中,被认定为白色,相对富裕。
    结论:从损失后10到25周,这对夫妇往往经历改善他们的整体性生活和减少他们的围产期悲伤。早期围产期悲伤水平和随后的性生活轨迹似乎无关。
    BACKGROUND: Pregnancy loss affects 1 in 4 women and is linked with poorer overall health and relationship outcomes. Despite sexual well-being\'s importance to health, how sexual well-being changes across time after a pregnancy loss and what might predict such changes, like perinatal grief, have never been examined, leaving practitioners and couples without knowledge of what to expect.
    OBJECTIVE: We aimed to examine (1) how sexual satisfaction, sexual desire, sexual distress, and perinatal grief change from 10 to 25 weeks postloss for both couple members; and (2) if perinatal grief levels at 10 weeks postloss predict sexual well-being trajectories.
    METHODS: Women and gender-diverse individuals who were pregnant when a pregnancy loss occurred (within the last 4 months) and men, women, and gender-diverse partners who were not pregnant (N = 132 couples) independently completed 4 monthly assessments of sexual well-being and perinatal grief.
    RESULTS: Outcomes included sexual satisfaction (Global Measure of Sexual Satisfaction), sexual desire (Sexual Desire Inventory), sexual distress (Sexual Distress Scale-Short Form), perinatal grief (Perinatal Grief Scale).
    RESULTS: Dyadic growth curve modeling indicated that, from 10 to 25 weeks postloss, both couple members\' sexual satisfaction increased, and their sexual desire remained stable; sexual distress decreased for partners but remained stable for individuals who were pregnant; and both couple members\' perinatal grief decreased. Perinatal grief levels at 10 weeks postloss did not predict sexual well-being trajectories over time.
    CONCLUSIONS: Given sexual well-being\'s dynamic nature, clinicians should regularly discuss sexuality with both couple members after pregnancy loss. During such discussions, clinicians could reassure couples about their sexual relationship\'s recovery by sharing that, on average, sexual satisfaction, sexual desire, and sexual distress tend to improve or stay the same (rather than worsen) from 10 to 25 weeks postloss. They can also share that perinatal grief tends to decrease during this time and is unrelated to trajectories of sexual satisfaction, sexual desire, and sexual distress.
    UNASSIGNED: This is the first study, to our knowledge, to examine how sexual well-being changes across time after a pregnancy loss and perinatal grief\'s role in such changes. The results may not generalize broadly, as most couples were in mixed-gender/sex relationships, identified as White, and were relatively affluent.
    CONCLUSIONS: From 10 to 25 weeks postloss, both couple members tend to experience improvements in their overall sexual well-being and declines in their perinatal grief. Early perinatal grief levels and subsequent sexual well-being trajectories are seemingly unrelated.
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  • 文章类型: Journal Article
    目的:姑息治疗患者经历了慢性悲伤,失去了尊严和生命意义。定位疗法是应对损失的有效方法。本研究旨在评估认知疗法对慢性悲伤的影响,尊严,以及姑息治疗患者生活中的意义。
    方法:本研究对58名因晚期癌症住院的成年人进行了研究,并通过简单随机分组分为干预组或对照组。数据采用描述性信息表收集,姑息表现量表,患者尊严清单(PDI)长期悲伤障碍量表-患者表(PGDS-PF),以及入学时生活问卷(MIL)中的含义,在第四和第八周。干预组接受了八次语用治疗。对照组给予常规护理。
    结果:PGDS-PF的平均得分(p=0.01),PDI(p=0.01),与对照组相比,干预组的MIL(MIL-SM)(p=0.11)降低,在第4周和第8周的评估。MIL(MIL-PM)的当前含义子维度的平均得分(p=0.02)在第4周评估时增加,但在第8周时以无统计学意义的水平降低。对照组PGDS-PF和PDI的平均得分增加,而MIL-PM和MIL-SM降低,在第4周和第8周的评估。
    结论:认知疗法可有效减少姑息治疗患者的悲伤和尊严相关困扰,同时增加在生活中的意义。建议姑息治疗专业人员使用Logotherapy来赋予患者权力。
    背景:临床试验注册号和日期:NCT05129059,19/01/2021。
    OBJECTIVE: Palliative care patients experience chronic sorrow with loss in dignity and meaning in life. Logotherapy is an effective way to cope with loss. This study aimed to evaluate the effect of logotherapy on chronic sorrow, dignity, and meaning in life of palliative care patients.
    METHODS: This study was conducted with 58 adults hospitalized due to advanced cancer and assigned to either intervention or control group by simple randomization. Data were collected with descriptive information form, Palliative Performance Scale, Patient Dignity Inventory (PDI), Prolonged Grief Disorder Scale-Patient Form (PGDS-PF), and Meaning in Life Questionnaire (MIL) on admission, at the 4th and 8th weeks. The intervention group received eight sessions of logotherapy. The control group received routine care.
    RESULTS: The mean scores of PGDS-PF (p = 0.01), PDI (p = 0.01), and searched meaning subdimension of MIL (MIL-SM) (p = 0.11) decreased in the intervention group compared to controls, both at the 4th and 8th week evaluation. The mean score of the present meaning subdimension of MIL (MIL-PM) (p = 0.02) increased at the 4th week evaluation but decreased at a non-statistically significant level at the 8th week. The mean scores of PGDS-PF and PDI increased in the control group while MIL-PM and MIL-SM decreased, both at the 4th and 8th week evaluation.
    CONCLUSIONS: Logotherapy was found effective in decreasing the sorrow and dignity-related distress of palliative care patients, while increasing finding meaning in life. Logotherapy is recommended to be used by palliative care professionals to empower patients.
    BACKGROUND: Clinicaltrials registration number and date: NCT05129059, 19/01/2021.
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  • 文章类型: Journal Article
    这项研究的目的是检查女性对青少年围产期死亡后悲伤强度的影响的回忆寿命感知。
    19名成年女性在青春期经历过流产或流产。该研究涉及对3至28年前发生的经历的事件的回忆。
    一项55项在线调查被用来收集青少年流产和堕胎经历的回忆。围产期悲伤强度量表被嵌入在这项调查中。参与者被指示回忆他们在青少年时期(T1;时间1)对围产期损失的反应,以及他们目前作为成年人对他们以前的青少年围产期死亡的感觉(T2;时间2)。在T1和T2收集数据。围产期悲伤强度量表附有适当加权的Excel评分表,用于分析T1和T2的数据。
    作为青少年,当按损失类型进行比较时,参与者感觉到相似的高悲伤强度和中等悲伤强度(流产,n=6;流产,n=6)。然而,与流产的参与者(n=2)相比,更多的流产女性(n=5)经历了较低的悲伤强度.作为成年人,与损失类型相比,参与者继续感觉到相似的高悲伤强度和中等悲伤强度(流产,n=6;流产,n=5)。此外,与流产的参与者(n=2)相比,流产的女性的悲伤强度继续较低(n=6).大约四分之一的成年女性受访者,26%(n=5)的悲伤强度随着时间的推移而增加。37%(n=7)的分数没有变化,37%(n=7)的青少年流产或流产得分随着时间的推移而下降。
    支持采用围产期悲伤强度量表来识别青少年流产或终止妊娠后需要对悲伤强度进行随访的女性。这项研究的结果表明,成年女性在对整个生命周期中的事件做出反应时,悲伤可以重新产生或出现,包括进一步的生殖经历。因此,卫生保健专业人员有义务确定由于先前的共同事件而有强烈悲伤反应风险的妇女。
    医疗保健提供者应筛查曾经历过青春期流产或终止妊娠的成年女性,以应对其成年后的不良心理健康问题。
    UNASSIGNED: The purpose of this study was to examine women\'s recollected lifespan perceptions of the effect of grief intensity following adolescent perinatal death.
    UNASSIGNED: Nineteen adult women who had experienced either a miscarriage or an abortion during adolescence. The study involved the recollection of events surrounding the experience which had occurred between three and 28 years previously.
    UNASSIGNED: A 55-item online survey was used to gather recollected perceptions of adolescent miscarriage and abortion experiences. The Perinatal Grief Intensity Scale was embedded within this survey. The participants were instructed to recall their responses to the perinatal loss at the time of the event as an adolescent (T1; Time 1) and how they feel currently as adults about their previous adolescent perinatal death (T2; Time 2). Data were collected at both T1 and T2. The Perinatal Grief Intensity Scale is accompanied by an appropriately weighted Excel scoring sheet which was utilised to analyse the data at both T1 and T2.
    UNASSIGNED: As adolescents, participants perceived similar high and medium grief intensity when compared by type of loss (miscarriage, n = 6; abortion, n = 6). However, more women who had an abortion (n = 5) experienced low grief intensity compared with participants who had a miscarriage (n = 2). As adults, participants continued to perceive similar high and medium grief intensity when compared by type of loss (miscarriage, n = 6; abortion, n = 5). In addition, women who had an abortion continued to experience more low grief intensity (n = 6) compared with participants who had a miscarriage (n = 2). Approximately one quarter of adult female respondents, 26 % (n = 5) exhibited increased grief intensity as measured by the scores over time. Thirty seven percent (n = 7) exhibited no change in scores, and 37 % (n = 7) exhibited decreased scores over time in response to adolescent miscarriage or abortion.
    UNASSIGNED: Support for the adoption of the Perinatal Grief Intensity Scale to identify women in need of follow-up for grief intensity after an adolescent miscarried or terminated pregnancy is evident. The results of this study have demonstrated that grief can resurge or appear in adult females as they respond to events across the lifespan, including further reproductive experiences. Therefore there is a compulsion for health care professionals to identify women at risk of intensive grief responses due to previous contributory events.
    UNASSIGNED: Healthcare providers should screen adult women who have experienced a previous adolescent miscarriage or termination for adverse mental health issues in adulthood.
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  • 文章类型: Journal Article
    背景:个人如何得知亲人的创伤性损失会影响他们的悲伤过程和生活质量。
    目的:本定性研究旨在探索,通过主题分析,生命阶段如何影响那些从警察或医疗保健专业人员那里收到创伤性死亡信息的人的经历和感受。
    方法:通过社交网络和口碑招募,30人参与了这项研究。根据年龄将受试者分为三组(第1组:10名年龄在20至35岁之间的参与者;第2组:10名年龄在45至55岁之间的参与者;第3组:10名年龄在60岁及以上的参与者)。参与者在线填写了一份临时问卷。阿特拉斯。使用ti软件8进行专题分析。
    结果:三个年龄组有以下四个共同的关键主题:(a)情绪反应;(b)对通知的主观评估;(c)支持;(d)需求。年龄组之间出现了微妙的差异;然而,所考虑的群体之间的反应质量和主要主题并没有很大差异。
    结论:意外和暴力死亡的交流似乎在不同生命阶段的幸存者中引起了相当相似的影响。在子主题上发现了一些差异(年轻接受者对专业培训的需求增加;老年人没有自杀意念);也许定量设计可以在未来的调查中提供更多细节。
    BACKGROUND: How individuals are informed of the traumatic loss of a loved one can influence their grieving process and quality of life.
    OBJECTIVE: This qualitative study aimed to explore, through thematic analysis, how life stages might influence the experience and feelings of those who have received communication of a traumatic death from police officers or healthcare professionals.
    METHODS: Recruited through social networks and word of mouth, 30 people participated in the study. Subjects were divided into three groups according to age (Group 1: ten participants aged between 20 and 35 years; Group 2: ten participants aged between 45 and 55 years; and Group 3: ten participants aged 60 and over). Participants completed an ad hoc questionnaire online. Atlas.ti software 8 was used to perform thematic analysis.
    RESULTS: The three age groups had the following four key themes in common: (a) emotional reactions; (b) subjective valuation of the notification; (c) support; and (d) needs. Subtle differences emerged between age groups; yet the quality of the reactions and main themes did not vary greatly between the groups considered.
    CONCLUSIONS: The communication of an unexpected and violent death seems to provoke rather similar effects in survivors of different life stages. A few differences were noted in sub-themes (increased need for professional training in younger recipients; absence of suicidal ideation in older adults); perhaps quantitative designs could provide further details in future investigations.
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  • 文章类型: Journal Article
    背景:失孕和哀悼可导致对女性生活质量的心理不良影响。本研究旨在评估艺术疗法对妊娠流产妇女生活质量的影响。
    方法:本研究是一项随机临床试验,对60名最近经历过流产或死产的妇女进行。随机分为两组(每组30个),干预组的女性接受了4次艺术治疗.在对照组中,进行常规护理。围产期悲伤量表和世界卫生组织生活质量问卷,短版本26,用于在干预前和干预后八周收集数据,比较两组干预前后的结果。
    结果:参与者的平均年龄为26.5±4.75岁。干预后八周,两组患者总生活质量平均得分差异有统计学意义(348.64±13.12vs.254.46±58.35;P>0.01)。此外,所有的物理,心理,社会,与对照组相比,治疗组的生活质量和环境维度有所改善(P>0.01)。
    结论:艺术疗法可以改善妊娠流产后的生活质量,并且可以推荐作为常规护理旁边的补充方法。
    背景:IRCT20200104046002N1。
    BACKGROUND: Pregnancy loss and mourning can lead to psychological adverse effects on women\'s quality of life. This study aimed to evaluate the effect of art therapy on the quality of life of women with pregnancy loss.
    METHODS: This study was a randomized clinical trial performed on 60 women who recently experienced abortion or stillbirth. After randomization in two groups (30 in each group), women in the intervention group received four session art therapy. In the control group, routine care was performed. The Perinatal Grief Scale and World Health Organization quality of life questionnaire, short version 26, was used to collect data before and eight weeks after intervention, and the result was compared before and after the intervention in both groups.
    RESULTS: The mean age of participants was 26.5±4.75 years. Eight weeks after the intervention, the mean score of the total quality of life was significantly different between the two groups (348.64±13.12 vs.254.46±58.35; P>0.01). Also, all physical, psychological, social, and environmental dimensions of quality of life improved in the art therapy group compared to the control group (P>0.01).
    CONCLUSIONS: Art therapy could improve the quality-of-life following pregnancy loss, and can be recommended as a complementary method next to routine care.
    BACKGROUND: IRCT20200104046002N1.
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  • 文章类型: Journal Article
    背景:由于胎儿异常而决定终止妊娠可能会产生重大的情绪影响,尤其是在妊娠中期。以前关于终止妊娠的心理后果的研究有局限性,对伴侣的结局和胎儿捐献的影响知之甚少。因此,我们旨在调查终止中期妊娠的心理影响,并确定与女性和男性结局相关的因素。包括将胎儿遗体捐献给科学.
    方法:在荷兰阿姆斯特丹UMC进行了一项纵向队列研究,涉及在妊娠23周和6天或之前终止妊娠的妇女和伴侣。在终止时进行问卷调查,6周,4个月后。我们利用经过验证的问卷来评估心理发病率(悲伤,创伤后应激和产后抑郁和生活质量[QoL]),以及可能影响结果的因素。
    结果:在241名参与者中,女性比男性表现出更明显的心理困扰,虽然两组都随着时间的推移而改善。终止合同四个月后,27.4%的女性和9.1%的男性表现出病理性悲伤的迹象。19.8%的女性和4.1%的男性发生了产后抑郁症的得分。既往精神病史是预后较差的一致预测因素。向荷兰胎儿生物库捐赠胎儿与终止后四个月出现复杂悲伤症状的可能性降低有关。
    结论:妊娠中期因胎儿畸形而终止妊娠可导致心理并发症,尤其是女性。然而,随着时间的推移,两组都有显著的改善。有精神病史的人在终止后似乎更容易受到伤害。此外,向科学捐赠胎儿对心理健康没有负面影响。
    BACKGROUND: The decision to terminate a pregnancy due to fetal anomalies can have a significant emotional impact, especially in second-trimester terminations. Previous studies on the psychological consequences of pregnancy termination have had limitations, and little is known about the outcomes for partners and the impact of fetal donation. Therefore, we aimed to investigate the psychological effects of second-trimester pregnancy termination and identify factors associated with outcomes in both women and men, including donation of fetal remains to science.
    METHODS: A longitudinal cohort study was conducted at the Amsterdam UMC in the Netherlands, involving women and partners who underwent termination at or before 23 weeks and 6 days of gestation. Questionnaires were administered at termination, 6 weeks, and 4 months after. We utilized validated questionnaires to assess psychological morbidity (grief, post-traumatic stress and postnatal depression and quality of life [QoL]), and factors that could potentially influence outcomes.
    RESULTS: Of 241 participants, women displayed more pronounced psychological distress than men, though both groups improved over time. Four months after termination, 27.4% of women and 9.1% of men showed signs of pathological grief. Scores indicative for postnatal depression occurred in 19.8% women and 4.1% of men. A prior psychiatric history was a consistent predictor of poorer outcomes. Fetal donation to the Dutch Fetal Biobank was associated with reduced likelihood of symptoms of complicated grief four months after termination.
    CONCLUSIONS: Second-trimester termination of pregnancy for fetal anomalies can lead to psychological morbidity, particularly in women. However, there is a notable improvement over time for both groups. Individuals with prior psychiatric history appear more vulnerable post-termination. Also, fetal donation to science did not have a negative impact on psychological well-being.
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  • 文章类型: Journal Article
    目的:该研究旨在探讨与患有肌萎缩侧索硬化症(ALS)的父母一起生活对青少年的意义。
    方法:设计是定性的。在2020年12月至2022年4月期间,对11名青少年(8-25岁)进行了访谈,生活在瑞典父母患有ALS的家庭中。分析是现象学上的诠释。
    结果:青少年处于困难和暴露的境地,特别是如果父母有严重的残疾和助理护理提供者在家里。目睹父母在与时间的无限斗争中逐渐失去,在仍然需要它们的同时,引发了充满悲伤和难以管理的情绪。日常生活被颠倒了,导致青少年承担更大的责任,不仅在帮助家务和帮助生病的父母方面,而且在情感上保护父母双方。它迫使青少年更快地成熟并搁置自己的生活,触发有限的体验。这个,随着家庭角色的改变,却更加依附于家庭,加剧了青少年生活的不平衡。整个青少年的解释说明,与患有ALS的父母一起生活意味着在已经充满过渡的青春期中充满挑战和悲伤的过渡,这让青少年努力在支离破碎的生活中站稳脚跟。
    结论:不平衡的生活状况可能会阻碍青少年的身份形成和解放,这对管理一个健康和独立的成年期具有重要的发展意义。结果强调了早期有针对性的支持对这一弱势群体的重要性,以确保他们的健康。
    OBJECTIVE: The study aimed to explore the meaning for adolescents of living with a parent with amyotrophic lateral sclerosis (ALS).
    METHODS: The design is qualitative. Interviews were conducted between December 2020 and April 2022 with 11 adolescents (8-25 y), living in households with a parent with ALS in Sweden. The analysis was phenomenologically hermeneutical.
    RESULTS: The adolescents were in a difficult and exposed situation, especially if the parent had a severe disability and assistant care providers were in the home. Witnessing the gradual loss of the parent in an indefinite battle against time, while still needing them, elicited grief-filled and hard-to-manage emotions. Everyday life was turned upside down, resulting in greater responsibility for the adolescents, not only in helping with household chores and assisting the ill parent, but also in emotionally protecting both parents. It forced the adolescents to mature faster and put their own life on hold, triggering experiences of being limited. This, together with changing family roles yet being more attached to home, reinforced the imbalance in the adolescents\' lives. The interpreted whole of the adolescents\' narratives revealed that living with a parent with ALS meant a challenging and grieving transition during an already transition-filled adolescence, which left the adolescents struggling to keep a foothold on a life torn apart.
    CONCLUSIONS: The unbalanced life situation may hinder the adolescents\' identity formation and emancipation, which are developmentally important for managing a healthy and independent adulthood. The results emphasize the importance of early targeted support to reach this vulnerable group in order to secure their health.
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